Can anything be done about this fussy eating?

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Bombaloo
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20 Aug 2010, 3:47 pm

EduAdvocate wrote:
I don't know if it has been accepted here, but researchers have found ...


I think it would be polite of you to take a moment to find out what is "accepted here".
I have learned a lot from the people on the spectrun who come on this forum and share their experiences and perspectives. It helps me understand my son and find ways to make his path in life maybe a little easier. Your tone comes across quite condescendingly and I don't find that helpful or productive.



Tracker
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20 Aug 2010, 4:34 pm

I wouldn't worry too much about your child being underweight. Based on the available data, being skinny and scrawny are often tied to the condition hypotonia (often referred to as loose joints). Since hypotonia is common in autistic people, being skinny is also fairly common.

But all that to say, being skinny and scrawny aren't exactly causes for alarm. I am 5'6" and only weigh about 103 lbs, which is a BMI of 16.5 (very skinny). I have been this skinny ever sense I was about age 3 or 4 and lost my 'baby fat'. But despite being skinny, I still grew up and I am still alive. Your son won't starve himself to death if you let him eat the food he wants. He will just be skinny. And that isn't really a big deal so long as you avoid sports.

I would recommend letting your son try other foods, and offer them as available options. But don't try forcing your son to eat things that he is adamantly opposed to, because all you are going to do is turn dinner into a battlefield.


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Bombaloo
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20 Aug 2010, 4:56 pm

Tracker
Maybe I sound like I am obsessing about this... DS never had and "baby fat" to grow out of and I worry because he still has a lot of growing and development to do, he's only 4. My understanding from reading books on growth and development is that the brain development actually requires a high level of lipids aka fats. If the body doesn't have fat reserves it takes it from somewhere else and breaks down muscle and then other tissue. I don't force food on him and I give in more than my DH thinks I should and just let him eat what he wants (spaghetti or a hot dog usually) just to make sure that he is getting some calories. It's not that I think ending up thin like you is bad I'm just concerned that he isn't developing as he could becasue he simply isn't getting enough of the right kind of foods.



EduAdvocate
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20 Aug 2010, 6:36 pm

Bombaloo wrote:
EduAdvocate wrote:
I don't know if it has been accepted here, but researchers have found ...


Quote:
I think it would be polite of you to take a moment to find out what is "accepted here".


Sorry I'm not as polite enough to please you, but social skills are not the strong suit of Aspies. So far as 'accepted here' goes, I was referring to the concept of a 2/3 delay and whether anyone has raised it here before. Since you don't appear to know what I meant, I guess not, but it is well documented and accepted as fact on many other AS forums and by many professionals, too.

Quote:
I have learned a lot from the people on the spectrun who come on this forum and share their experiences and perspectives. It helps me understand my son and find ways to make his path in life maybe a little easier.


That is exactly what my point was by posting the info about the study, since there are many parents who have latched on to all kinds of outdated reports and plain old junk science about issues involving Asperger's. We have been dealing with AS since our daughter was born in 1983 - 11 years before AS was a diagnosis and have witnessed all kinds of false promises. Many by the schools and others where parents were duped into spending their life savings on by unscrupulous 'doctors.' We have also had to deal with medical personnel who don't know the first thing about autism and its variants. We were forced to learn about treatments and educational advances out of self preservation (daughter preservation) and, after trying to work WITH the system which was failing our child, have devoted our efforts to helping other parents use the rules and laws that are ignored by the SpEd system to get the help, accommodations and services their children need. We facilitate several groups for adult Aspies and parents of adults on the spectrum and have participated in groups for school age kids, too.

Since she's 27 now, that experience includes a perspective that most parents lack - what is going to happen to their kids when they graduate HS and try to move on. We have also returned to our roots and are back into EI, preschool, transitioning to district and Kg, as our daughter's 4 1/2 yo son is also on the spectrum with HFA. We also have had to deal with how to handle adult relationships of adults on the spectrum, since her significant other is also an Aspie.

Oh, yeah. My wife was DXed AS several years ago - she's an RN and has issues dealing with anxiety.

My epiphany came a year later, while discussing diagnosing people based upon their actions and behaviors, like Michelangelo, Einstein, Newton and Bill Gates, to mention a few. At one point I commented that "next, you'll tell me that I'm one, too." They paused to look at each other, smiled and nodded in agreement. I was surprised at first, but the more I thought about it, the more it fit. It was formalized later.

Anyhow, that gives us a broad time span to work from and the understanding of the various changes that have occurred over the years to refer to when posting or making presentations.

Quote:
Your tone comes across quite condescendingly and I don't find that helpful or productive.


As I remember, you fired the first shot :

"However, I am not sure where you are getting your information that kids on the spectrum have no health issues as a result of being fussy eaters. . . .there is AMPLE evidence that a significant percentage of kids on the spectrum are under-weight and/or are not in good physical health."

So, I gave you the source and you responded:

Quote:
"When you have a child who has consistently been in the lower end of the percentile for body weight and seems to have trouble keeping weight on, it causes one to worry and people telling me I shouldn't worry because some recent study says I shouldn't kind of rub me the wrong way."


As I said, the post was not to you and I never said you should or shouldn't worry. I presented info about a NEW study, which you can believe, or not. The rest is a function of YOUR attitude.

If anything was condescending, it was when you implied that I was a jerk by writing, "However, I am not sure where you are getting your information that kids on the spectrum have no health issues as a result of being fussy eaters. . . .there is AMPLE evidence that a significant percentage of kids on the spectrum are under-weight and/or are not in good physical health.", but, hey, you are entitled to your opinion and to do whatever you desire with your son.

I hope this closes the discussion, because I've wasted enough time and space on the forum with it.
------------------------------------------------------------------------------------------------------------------
To the rest of the members, I apologize for the mess I seem to have created. As I said, I'm an Aspie and find it hard to let go, especially when I'm accused of something where I did nothing wrong. What started out as a nice first post about a new study evolved into an imbroglio, something I never expected or desired. For that, I extend my condolences.

I pray that this doesn't become a habit.

Rick



buryuntime
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20 Aug 2010, 7:10 pm

Bombaloo wrote:
EduAdvocate wrote:
I don't know if it has been accepted here, but researchers have found ...


I think it would be polite of you to take a moment to find out what is "accepted here".
I have learned a lot from the people on the spectrun who come on this forum and share their experiences and perspectives. It helps me understand my son and find ways to make his path in life maybe a little easier. Your tone comes across quite condescendingly and I don't find that helpful or productive.

What? EduAdvocate was being helpful and siting sources. This is an autistic forum, I find it very rude that you would criticize our communication here of all places.



Bombaloo
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20 Aug 2010, 9:25 pm

buryuntime wrote:
Bombaloo wrote:
EduAdvocate wrote:
I don't know if it has been accepted here, but researchers have found ...


I think it would be polite of you to take a moment to find out what is "accepted here".
I have learned a lot from the people on the spectrun who come on this forum and share their experiences and perspectives. It helps me understand my son and find ways to make his path in life maybe a little easier. Your tone comes across quite condescendingly and I don't find that helpful or productive.

What? EduAdvocate was being helpful and siting sources. This is an autistic forum, I find it very rude that you would criticize our communication here of all places.

Well this is the parents forum and I am a parent. I am not commenting on your communication at all.



stepmum_2_3ASD_boys
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22 Aug 2010, 4:09 pm

I worry all the time about my youngest step son who only eats about 10 different foods none of which are vegetables! On the plus side he will eat apples and grapes. It was recommended to us by his school that you can get multi-vitamins from boots that are in little sweet packets and are shaped like gummy bears, he loves them and you at least feel like he is getting some sort of vitamins and minerals!

Another good piece of advice they gave us was to pick a food that you would like him to try (we are trying peas at the moment) and to put them on the dinner table on a seperate plate/bowl next to his meal. And just leave it there with no expectations for him to try it or even touch it. Gradually the process (we were told) is that over a period of months he will first touch it, then after a while smell it, then maybe lick it, then put it in his mouth, then eventually swallow it. Apparently neurotypical kids are exposed to a food 30 times before they try it through various ways and with ASD kids sometimes it just takes that bit longer. If he is in a specialist school (possibly not as he is so young) but they should be able to give you some hints and tips and carry on whatever you are doing at home, in school.