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I am so confused

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Caitlin
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14 Apr 2011, 7:15 pm

Just read through the posts - I am also in MB, and I'd be happy to help you with resources and school info. Do you mind telling me who diagnosed your son? Was it Dr. Moser by chance?

One of the things that might help you come to terms with the dx, is attending an Asperger Manitoba parent support meeting. I'm on the board, and would be happy to talk with you about what we do, if you're interested or when you're ready. Just send me a personal message here and I'll send you my personal email.

Asperger Manitoba also has a Kids Club which I help to organize, and our purpose is to facilitate fun, engaging, structured social outings for our kids where they can be social AND successful. We have a rock climbing outing and a Lego Robotics outing coming up in the next few months.

You can also check out my blog if you'd like to read some of what I've observed and experienced with my son, in case it helps you come to a better understanding of your own son. It's at www.welcome-to-normal.com.

This is an unexpected and challenging journey, but it not only gets easier, but it also gets more rewarding and inspiring. Connecting to a community of families who understand what you are going through helps a lot :)


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DoriansMom
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14 Apr 2011, 8:20 pm

Hi Caitlin

I will send you a pm



momsparky
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17 Apr 2011, 8:35 am

DW_a_mom wrote:
I remember being told that the biggest indicator of success seemed to be how much the parent learned about the condition. So step one is parental homework: you read. I went on-line and found places like this; others start in a library. Whatever reasonates with you.


Does anybody have any backup for this idea? It really struck me when DW wrote it; makes total sense to me - but for those of us who have a bit of difficulty getting our spouses to actually do the reading, I'd love to be able to offer documentation.



DW_a_mom
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17 Apr 2011, 11:11 am

momsparky wrote:
DW_a_mom wrote:
I remember being told that the biggest indicator of success seemed to be how much the parent learned about the condition. So step one is parental homework: you read. I went on-line and found places like this; others start in a library. Whatever reasonates with you.


Does anybody have any backup for this idea? It really struck me when DW wrote it; makes total sense to me - but for those of us who have a bit of difficulty getting our spouses to actually do the reading, I'd love to be able to offer documentation.


I don't know if documentation exists. It was told to me by the school district psychologist, who sees these kids from the first IEP meeting until they leave the district, and talks to their parents through out. He shared it as his observation. It's been a strong enough observation that he really wanted to emphasize it.


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17 Apr 2011, 3:34 pm

Hi Dorian'smom-

Welcome to Wrong Planet! I have an almost 6 yr old son that was diagnosed at 2.5 yrs old with PDD-NOS, but over time, he seems to be leaning more towards Asperger's. I was just curious about what caused the doctors to give your son the Tourette's diagnosis. I am just curious because I have often wondered if my son has it too, but he definitely seems to have control over his words. He will just blurt out words or phrases that he has heard before, and will just say them when they come to his mind. From some of my reading, I believe this can be a part of autism. It is called delayed echolalia.

I have never taken my son back in for another diagnosis, he has an IEP with school, and they have never suggested Tourette's, but it has been in the back of my mind for some time. My son is very social with adults and older children, but has no desire to interact with his peers. So at least you have that going for you!



DoriansMom
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17 Apr 2011, 9:30 pm

angelbear wrote:
Hi Dorian'smom-

Welcome to Wrong Planet! I have an almost 6 yr old son that was diagnosed at 2.5 yrs old with PDD-NOS, but over time, he seems to be leaning more towards Asperger's. I was just curious about what caused the doctors to give your son the Tourette's diagnosis. I am just curious because I have often wondered if my son has it too, but he definitely seems to have control over his words. He will just blurt out words or phrases that he has heard before, and will just say them when they come to his mind. From some of my reading, I believe this can be a part of autism. It is called delayed echolalia.

I have never taken my son back in for another diagnosis, he has an IEP with school, and they have never suggested Tourette's, but it has been in the back of my mind for some time. My son is very social with adults and older children, but has no desire to interact with his peers. So at least you have that going for you!


Hi

My son has vocal and motor tics and I think you need to have both to be diagnosed with Tourette's. Tourette's is also involutery, and they really have no control over the actions. My son's tics are very mild, only a trained professional and my husband and I can notice them. I have been trying to figure out if he is just stimming or has actual Tourette's but the specialist does feel he has Tourette's with the descriptions we have given them. But I know he does stimming as well.

My son does well with his friends, especialy outside of school, but in the class room(of 26 kids) he shuts down and doesn't interact well with the children. He acts inappropriatly and or avoids interactions althogether, he has been this way ever since he started preschool. But yes, he actually is very obsessive about playing with his friends.