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squirrelflight-77
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25 Jun 2011, 9:59 am

K-R-X wrote:
School provides a -lot- of social interaction. I managed to keep a friend in Jr. High and a couple of them in high school, but by the time I got home I was done. I went to the basement (cool, dark, quiet) and read or what not and decompressed.

I know for a fact that if I didn't have that time to myself I would have been a 'spaz' in school. In a bad way. My tolerance increased in high school, again in college, and again after that to where I don't need 4+ hours a day in isolation to process everything.

I know it sounds horrible to most people, but I can attribute the fact that I'm a reasonably well-adjusted adult (supportive job, amazing fiancée, etc.) entirely to two factors - One, that I always had a friend from 7th grade on who watched out for me and told me when I was wrong; and Two that my parents left me alone and never bothered me when I was decompressing. If they had been more interested in my life, I wouldn't have had enough time to decompress and I would have had constant meltdowns.

Every one of us is different, and what is true for one isn't always true for another. I do want you to consider, however, that the odd behavior you're seeing isn't a bad sign. It may be just how she is managing to cope with everything right now.


and this is what we are doing as well. Just letting her be in the evenings and most of saturday so she can just recover. But isnt that trading 'good' social time for 'crappy' social time? You know what I mean.. We used to talk more, do more together, etc but now she is stressed out and just wants to left alone most of the time and some nights everything is just a struggle bc her mood is so horrible.

She is in a very small group of 5 including herself and has still managed to be ostracized.. <sigh> and at this point she has no friends. She only really talks to me and plays with no one. She used to have friends and be fairly popular with the other kids in the groups she was in. She would even tolerate the irritating ones to 'not hurt thier feelings'. I had to encourage her that it was ok to tell another girl that she would not be friends with her if she lied. (the other girl had a major problem with lying that really upset Jordan as she is very truthful and often felt misled, etc by the lying) So things have gone very off track somewhere and I am really just trying to understand where that is.


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Michelle K. - OCD, undiagnosed Aspergers
Mom to Jordan age 10 - Sensory Integration Disorder, undiagnosed Aspergers, Diabetes, JRA


squirrelflight-77
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25 Jun 2011, 10:13 am

Ilka wrote:
I agree with Bombaloo. I do not see staying at home as a good idea. You have to take care of yourself, too. And Jordan is big now. She needs her own space and needs to learn to handle things on her own. You cannot be trying to live her life for her. I am an expert on that subject. I am over protective and am always trying to do "what's best for her", trying to do things for her to make things easier. But I've had to learn that I have to let her do her stuff and let her be, because she has a live to life, and I cannot live it for her. If she does not fall she will never learn how to get up. The best you can do is be there for her when she falls, listen to her, comfort her, and let her stand up for herself again. For us as parents that's really hard, because we do not want to see our kids suffer, but it's better to see them suffer now, because things will only get tougher when they are adults. You are not saving them pain, just delaying it. If you really want to help her, get her a good therapist that will give her the tools she needs to handle things. That's the best you can do.


I agree with you to an extent but honestly, as an adult, I have learned to cut things out of my life that cause me too much stress. Being late causes me to be in a panic so I am always early. Jobs that were horrible were quit for a new job. Boyfriends that were jerks were walked away from, etc. So yes you have to learn to manage difficult situations but you also have to learn when to move on from a difficult situation. As an adult I ultimately have a lot of control over my environment that the average child does not. And while my job/ life isnt always cupcakes and puppies I do have things to where they are within what I can manage and not be stressed out and miserable all the time. :-) I think it comes down to whether the benefits outweigh the difficulties or not.


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Michelle K. - OCD, undiagnosed Aspergers
Mom to Jordan age 10 - Sensory Integration Disorder, undiagnosed Aspergers, Diabetes, JRA


squirrelflight-77
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25 Jun 2011, 10:19 am

Bombaloo wrote:
squirrelflight-77 wrote:
I really think the stress is the problem and unfortunately having her home with me may be the only way to solve that one. I like my job and I'm good at it and it's my 'social' time so I would miss it. But I think she will do much better at home without the stress and then we can go back to outings and social times that are less stressful, more controlled, and shorter.

Does it have to be all or nothing with your job or is there a possibility of reducing your hours and being with her more but not dropping your job and the home school situation all together? Perhaps she could tolerate the school situation with the other family better if it were just fewer hours a day or fewer days a week. I'm all for doing what we can to meet our kids needs but at the same time we need to meet some of our own needs too. We can't be very good parents when our own buckets are constantly empty.


I talked to hubby last night and we are going to look at all the options. My job is not flexible on the hours. I'm full time state employee.. but I do have her with me at work frequently and may be able to do that more. Dad can also have her with him at work. We may be able to reduce her time there and see if that helps. On the other end, if I do quit I'm at a community center so I can volunteer and what not so I would still see everyone regularly.

Right now I;m trying to evaluate things.. she is on a 3 night sleepover with one child now that is going great.. she has summer camp next week.. and then 2 weeks at Jennifers without school work (they are on break) I'm going to see how she does in all the different situations and take a day or 2 off to go with Jenn on some of the field trips and all and see how that goes.


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Michelle K. - OCD, undiagnosed Aspergers
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squirrelflight-77
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25 Jun 2011, 10:46 am

Chronos wrote:
I think you have to come to terms that she does not get the same joy out of socializing with others that most people would. She likely see's the other children as an intrusion on her world, which apparently she likes to have complete control over.

I should say, this isn't the perspectives of all children on the spectrum. Some children on the spectrum desperately want to be accepted by the other children and play with them, but just don't know how.

Either way, it would be conductive to her well being when she is older if she at least knows some basics about interacting with groups of people. She should know at least two things, which you should tell her explicitly.

1. People are not robots and have things that they want to do, and ideas on how things should be done, just like she does. And sometimes, the ways they think to do things are going to be better than the ways she thinks to do thing, so she should stop and consider that their way might be better sometime. Ask how she would feel if someone never considered her ideas and tried to tell her what to do all the time, even if her idea was a better idea than theirs.

2. She has to understand that people can't read her mind, like she can't read theirs. Tell her, if she does want something to know to do something, she has to tell them with words. Ask how she would feel if someone got mad at her because she didn't do something that they never told her to do, and just expected her to know. Ask if she thinks that would be fair for them to get mad at her for doing something she didn't know to do.

I think a controlled activity would be a good idea. It'd be an even better idea with a very small group of people, maybe she and two others, or even one other, so you can better isolate her social difficulties and help correct them.


I completely agree. She is in a small group but I dont think there is any structure to it or real supervision. No one is stepping in to help Jordan navigate any of this. Things just explode and then its no one is allowed to play with her.

At this point the children do not ask Jordan to join in anything and are not encouraged to do so. It is up to her to initiate that she would like to play. This isnt going to happen. Schedules have been created so when she has free time the other children are doing school work and she is doing school while they have their free time. She stays very separate from everyone and this is the only way they have found to keep Jordan from being rude and ugly to the other children. Jennifer says she is mean rude and aggressive continually to the others. I have never seen / heard this about her in any other situation.

New children coming there at this point are also being told ahead of time to not try to interact with her. Not to talk to her or try to play with her etc. Everything requires her to make the first move. I think this is a disaster for an aspie as I dont believe she will make that move. I'm just not sure what to do about the situation other than I do not think this is helpful or appropriate in any way.

But at the same I do know that if she is stressed she is very rude if you speak to her at all. This is what is happening. She is stressed. A child asks her to play and she is rude to them. Jen says Jordan seems happier with the children ignoring her. But this is not going to teach her anything in the long run.

On the up side Jen is open to making changes, etc but I dont really know what changes to make either and if its just a matter of her kids and mine dont mix well it may not be able to be worked out. I just dont know but this is not a good situation for her or any child IMO.


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Michelle K. - OCD, undiagnosed Aspergers
Mom to Jordan age 10 - Sensory Integration Disorder, undiagnosed Aspergers, Diabetes, JRA


squirrelflight-77
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25 Jun 2011, 10:48 am

aann wrote:
I, too, think a middle of the road approach would be best. I totally agree with Ilka that moving the kids in the direction of handling things on their own is extremely important. I just can't see her learning it with this group. She doesn't know how to get there from here and you aren't there to teach her. There are materials you can buy online that help with social training. I would keep her home at least part time and work through some materials with her, while keeping some kind of part time job if you can. At home, invite kids in for one on one playdates. The next step would be moving toward finding friends in the neighborhood, if you live in one.


This is a lot of how I'm feeling. Like maybe it would be better if she were just home with me and we could do social outings together, arrange playdates, etc in a less stressful setting, and I could help her figure some of this out.


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Rhiannon0828
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26 Jun 2011, 9:51 pm

I understand that you want the best for your daughter; but I think if you are going to achieve this you need to BACK OFF. As a child, I had very little interest in socializing with other people. As an adult, I have only slightly more. But one thing I can tell you is that people were constantly trying to force me into social interaction and I hated it and it stressed me out and I learned nothing. Yes, it would be a benefit to her if she learned better social interaction. But she needs to come to that realization on her own and eventually, she will. How she decides to act on it at that point is really up to her, but she may decide that she is ready to come to you or someone else she is close to and ask for help and advice. Forcing it on her is not going to work. She is only ten. She has a lot of time to learn. Let her do it on her own time. If dealing with other people becomes a source of dread for her, she may never want to deal with it and be socially phobic.

Just so you know, I'm still pretty solitary. But that's totally ok with me and most casual aquaintances have no idea I have social issues. The only time I wish I had better social skills is as involved with my job. But I still couldn't have worked on my skills until I was really ready and had the desire, maybe with a certain focus in mind.



K-R-X
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27 Jun 2011, 8:07 am

squirrelflight-77 wrote:
New children coming there at this point are also being told ahead of time to not try to interact with her. Not to talk to her or try to play with her etc. Everything requires her to make the first move. I think this is a disaster for an aspie


I admit, this right here worries me. It sounds like there are very real issues with the situation that she is in and, from the above, it strikes me as though it may not be her fault she's having issues. I might just have the wrong context on this, but it sounds as though she is being deliberately isolated - and if she knows this than she might just be saying "Fine, I'm not supposed to interact with people, so I will not interact with people."



momsparky
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27 Jun 2011, 10:12 am

Rhiannon0828 wrote:
The only time I wish I had better social skills is as involved with my job. But I still couldn't have worked on my skills until I was really ready and had the desire, maybe with a certain focus in mind.


Rhiannon - this is what I think most parents worry about - that the skills aren't there when you want them. It takes a long, long time for someone to learn skills by rote - while I understand your point, I still think classes are valuable.

I second the concern about the child being isolated; such treatment not only negatively impacts your daughter, but all the other children as well: I have never forgotten about a little boy in preschool who had some kind of language/developmental disability. We were all able to converse, and this child would growl, grab, and knock things we were playing with out of our hands or off the table.

Sadly, nobody had any training in dealing with an inclusion situation, nor any training in dealing with a special needs child. People handled this boy by yelling at him - and the kids modeled this behavior. Even though I was probably between three or four years old, I still remember the following with shame: I was waiting in the lobby to be picked up, and this boy ran over to me and growled. I yelled at him. His mother reacted with extreme surprise, and said "Why would you treat (boy) that way." In a completely aspie sort of way, I answered what I thought was the truth (sadly, I was probably right) "Because nobody likes (boy) and that's the way everybody treats him."

This resulted in the entire preschool getting a lecture, but it didn't change the adult's behavior at all, and nobody took responsibility for teaching kids to respond inappropriately to a disabled child, even if it meant they were teaching kids to bully. The important piece of information I'm trying to impart: not only is this relationship damaging to your daughter, it's probably damaging to the other kids.

Contrasting that with our school, which isn't quite there yet, but which is working on it - kids who are really struggling have a trained aide who will step in when there is a conflict. There is a lot of discussion about differences, how to handle them, and specific steps on conflict resolution.

I noticed that you say your daughter has undiagnosed AS - not sure where you live, but you might want to consider getting a diagnosis so you can qualify for the services...which may even follow you to afterschool care, depending on what you qualify for. I know it's difficult to add extra labels on to an already-labeled child, but the truth is that AS typically gets better attention than SPD, plus it would qualify you specifically for social supports like pragmatic speech therapy, etc.



squirrelflight-77
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28 Jun 2011, 12:08 pm

Rhiannon0828 wrote:
I understand that you want the best for your daughter; but I think if you are going to achieve this you need to BACK OFF. As a child, I had very little interest in socializing with other people. As an adult, I have only slightly more. But one thing I can tell you is that people were constantly trying to force me into social interaction and I hated it and it stressed me out and I learned nothing. Yes, it would be a benefit to her if she learned better social interaction. But she needs to come to that realization on her own and eventually, she will. How she decides to act on it at that point is really up to her, but she may decide that she is ready to come to you or someone else she is close to and ask for help and advice. Forcing it on her is not going to work. She is only ten. She has a lot of time to learn. Let her do it on her own time. If dealing with other people becomes a source of dread for her, she may never want to deal with it and be socially phobic.

Just so you know, I'm still pretty solitary. But that's totally ok with me and most casual aquaintances have no idea I have social issues. The only time I wish I had better social skills is as involved with my job. But I still couldn't have worked on my skills until I was really ready and had the desire, maybe with a certain focus in mind.


I'm not sure how much of this thread you have read. No one is trying to force her to constantly interact. Her current situation involves lots of alone time with limited social time. My concern is that the social situation she is in is creating problems rather than helping her. The question is how to improve the situation there or is it just not fixable and other arrangements need to be made. My daughter is rather solitary as am I. That is not an issue. She goes to the homeschool.. does her work, plays by herself , often talks to no one and comes home stressed and in a bad mood. :-(


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squirrelflight-77
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28 Jun 2011, 12:11 pm

K-R-X wrote:
squirrelflight-77 wrote:
New children coming there at this point are also being told ahead of time to not try to interact with her. Not to talk to her or try to play with her etc. Everything requires her to make the first move. I think this is a disaster for an aspie


I admit, this right here worries me. It sounds like there are very real issues with the situation that she is in and, from the above, it strikes me as though it may not be her fault she's having issues. I might just have the wrong context on this, but it sounds as though she is being deliberately isolated - and if she knows this than she might just be saying "Fine, I'm not supposed to interact with people, so I will not interact with people."


yeah.. I was really not happy with that one.. I just dont know how to handle this situation. I'm going to hang out there some next week and tag along on a few field trips and see if I can get an idea of what the problem is and how things should be handled there. I think she needs someone right there giving her clear correction / direction with the other kids but I dont think that is happening and from what I am hearing she does not take direction very well from her caregiver so that may not even be doable. I just dont know.. :?


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Michelle K. - OCD, undiagnosed Aspergers
Mom to Jordan age 10 - Sensory Integration Disorder, undiagnosed Aspergers, Diabetes, JRA


squirrelflight-77
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28 Jun 2011, 12:16 pm

momsparky wrote:
Rhiannon0828 wrote:
The only time I wish I had better social skills is as involved with my job. But I still couldn't have worked on my skills until I was really ready and had the desire, maybe with a certain focus in mind.


Rhiannon - this is what I think most parents worry about - that the skills aren't there when you want them. It takes a long, long time for someone to learn skills by rote - while I understand your point, I still think classes are valuable.

I second the concern about the child being isolated; such treatment not only negatively impacts your daughter, but all the other children as well: I have never forgotten about a little boy in preschool who had some kind of language/developmental disability. We were all able to converse, and this child would growl, grab, and knock things we were playing with out of our hands or off the table.

Sadly, nobody had any training in dealing with an inclusion situation, nor any training in dealing with a special needs child. People handled this boy by yelling at him - and the kids modeled this behavior. Even though I was probably between three or four years old, I still remember the following with shame: I was waiting in the lobby to be picked up, and this boy ran over to me and growled. I yelled at him. His mother reacted with extreme surprise, and said "Why would you treat (boy) that way." In a completely aspie sort of way, I answered what I thought was the truth (sadly, I was probably right) "Because nobody likes (boy) and that's the way everybody treats him."

This resulted in the entire preschool getting a lecture, but it didn't change the adult's behavior at all, and nobody took responsibility for teaching kids to respond inappropriately to a disabled child, even if it meant they were teaching kids to bully. The important piece of information I'm trying to impart: not only is this relationship damaging to your daughter, it's probably damaging to the other kids.

Contrasting that with our school, which isn't quite there yet, but which is working on it - kids who are really struggling have a trained aide who will step in when there is a conflict. There is a lot of discussion about differences, how to handle them, and specific steps on conflict resolution.

I noticed that you say your daughter has undiagnosed AS - not sure where you live, but you might want to consider getting a diagnosis so you can qualify for the services...which may even follow you to afterschool care, depending on what you qualify for. I know it's difficult to add extra labels on to an already-labeled child, but the truth is that AS typically gets better attention than SPD, plus it would qualify you specifically for social supports like pragmatic speech therapy, etc.


I agree that isolating her tell the visiting kids to ignore her is not good. Jordan told me yesterday that when they have company everyone completely ignores her. I dont think she knows they are being told this. she just knows she is being ignored. :evil: So even worse.

Dad is not in favor of an assessment. To stop the fighting I've agreed to hold off on that and we will do what we can ourselves. That will only go so far but has made improvements. I'm planning to see if the OT will write me a letter reccomending that she be evaluated further for aspergers / autism so that she can receive X support. The OT also feels that Jordans issues are more autistic / aspergers than sensory related although sensory is definitely an issue. That way though the suggestions is coming from someone other than me.


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Michelle K. - OCD, undiagnosed Aspergers
Mom to Jordan age 10 - Sensory Integration Disorder, undiagnosed Aspergers, Diabetes, JRA