Severe autism, mostly non verbal, age 5, progress very slow

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liloleme
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16 Jul 2011, 11:27 am

Ditsy wrote:
Hi ya

I am also very new here, but also have the potty training issues with my daughter (now 6) she is still not dry completely in the day and has only recently stopped soiling herself (Thank goodness) So she was still soiling and wetting when she started in Reception, its been a really rocky and embarrassing :oops: ride. The worst being the school sent her home with soiled knickers and pooh clearly visible through the plastic bag! My face was burning with humiliation that day in the playground and I went home and cried!

BUT Hurray we are getting there finally and what helped our daughter was the social story the school made for her - simple laminated pictures of the process of going to the loo. Something seemed to click and with the pictures and routine she seemed to "get it" She still has accidents out of the blue, but they are getting less. We are now in the process of making a social story to get dressed and do bathroom routine.

Hang in there! The teachers once they understood it wasn't naughtiness have been so supportive and understanding!

Each child is different and they each have their own time for everything.


Im sorry you felt so bad....dont feel bad, there are lots of us facing this very same thing. I have a net friend who has a daughter age 6 still in diapers (nappies) because she has bowel problems. Also any teacher that thought a child having an accident was naughtiness would need to be smacked :twisted: . Glad you have good teachers and dont feel bad when you daughter has an accident...they happen and s**t happens :lol: :lol: ....sorry couldnt help myself!



Washi
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16 Jul 2011, 2:52 pm

liloleme wrote:
You may want to look into cloth diapers for your son. Here is a site that has lots of potty training accessories and the cloth diapers that look like boxer shorts. The good thing about cloth is that they can better feel that they are wet. You can also buy disposable liners that makes solid clean up easier. http://pottytrainingsolutions.com/


I've been cloth diapering my son for 3 years now. It would be a rough transition at this stage I think, but worth it if full potty training is a long way off. I never intended on cloth diapering so long, I thought it would result in early potty training because I didn't anticipate having an autistic child. I'm fortunate I took the cloth diaper route though because it has saved me thousands of dollars in diapers. I'm in a fortunate situation right now where my water and electric is included in my rent and the diapers have long since paid for themselves ... so diapering my son actually only costs me about $1 a month for detergent. (We couldn't afford the cost of living any other way). The website you linked to doesn't include one of these though http://www.bumgenius.com/diaper-sprayer.php (there's more than one brand and I don't remember what mine is) it's a gadget that attaches to the toilet and sprays all the nasty off the diapers, anyone who wants to try cloth diapers should consider getting one (mine also reaches over to the tub and is excellent for rinsing it out and better at hosing off things in the tub then the shower head is). The Snappi is another genius invention for cloth diapers http://www.snappibaby.com/products/snap ... tener.html



Last edited by Washi on 16 Jul 2011, 3:01 pm, edited 1 time in total.

Washi
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16 Jul 2011, 2:57 pm

Washi wrote:
liloleme wrote:
You may want to look into cloth diapers for your son. Here is a site that has lots of potty training accessories and the cloth diapers that look like boxer shorts. The good thing about cloth is that they can better feel that they are wet. You can also buy disposable liners that makes solid clean up easier. http://pottytrainingsolutions.com/


Oh and if I wasn't broke I'd have to get that school bus potty that's on that potty training link, that's too cute.



nostromo
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17 Jul 2011, 4:38 am

Ditsy wrote:
Hi ya

I am also very new here, but also have the potty training issues with my daughter (now 6) she is still not dry completely in the day and has only recently stopped soiling herself (Thank goodness) So she was still soiling and wetting when she started in Reception, its been a really rocky and embarrassing :oops: ride. The worst being the school sent her home with soiled knickers and pooh clearly visible through the plastic bag! My face was burning with humiliation that day in the playground and I went home and cried!

OMG I did this the first month when I was at school because I didn't know how to ask or something. I can still remember going home with poo in my pants and my Mum being pretty displeased (I was fully toilet trained etc) I think they mustof rung her :lol:



blondeambition
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17 Jul 2011, 7:07 am

nostromo wrote:
Ditsy wrote:
Hi ya

I am also very new here, but also have the potty training issues with my daughter (now 6) she is still not dry completely in the day and has only recently stopped soiling herself (Thank goodness) So she was still soiling and wetting when she started in Reception, its been a really rocky and embarrassing :oops: ride. The worst being the school sent her home with soiled knickers and pooh clearly visible through the plastic bag! My face was burning with humiliation that day in the playground and I went home and cried!

OMG I did this the first month when I was at school because I didn't know how to ask or something. I can still remember going home with poo in my pants and my Mum being pretty displeased (I was fully toilet trained etc) I think they mustof rung her :lol:


I always sent a change of clothes with my son to school with him in his backpack. (He is potty trained, but there have been a couple of accidents). The school needs to be discreet and have kids bring extra clothes to school so that they will not have to go home in soiled garments.

A lot of the special needs kids in my son's elementary school are still not potty-trained at six or having accidents.


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nostromo
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17 Jul 2011, 7:28 am

Yeah my boy is coming up to 5 and no where near being potty trained.



liloleme
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17 Jul 2011, 9:24 am

Washi wrote:

I've been cloth diapering my son for 3 years now. It would be a rough transition at this stage I think, but worth it if full potty training is a long way off. I never intended on cloth diapering so long, I thought it would result in early potty training because I didn't anticipate having an autistic child. I'm fortunate I took the cloth diaper route though because it has saved me thousands of dollars in diapers. I'm in a fortunate situation right now where my water and electric is included in my rent and the diapers have long since paid for themselves ... so diapering my son actually only costs me about $1 a month for detergent. (We couldn't afford the cost of living any other way). The website you linked to doesn't include one of these though http://www.bumgenius.com/diaper-sprayer.php (there's more than one brand and I don't remember what mine is) it's a gadget that attaches to the toilet and sprays all the nasty off the diapers, anyone who wants to try cloth diapers should consider getting one (mine also reaches over to the tub and is excellent for rinsing it out and better at hosing off things in the tub then the shower head is). The Snappi is another genius invention for cloth diapers http://www.snappibaby.com/products/snap ... tener.html


I had the sprayer as well....could not have lived without it! Also loved the snappies. My fav diapers were fuzzi bunz but I used prefolds at night. I wish we would have brought the sprayer with us when we moved but she has not has really big accidents since we moved....mainly pee....she has peed so many times on the computer chair I have to spray it with fabric freshener and keep a towel on it all the time.
At one time the doctors made me switch to disposables for awhile because they thought that it would stop the MRSA....the disposables made it worse because the chemicals broke her skin down more. I started using cloth with my older kids. I had a diaper service with my first son who is now 24, that was awesome! I always look at the isles of disposables in the store and think of piles and piles of diapers in landfills.



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17 Jul 2011, 3:23 pm

liloleme wrote:
I had the sprayer as well....could not have lived without it! Also loved the snappies. My fav diapers were fuzzi bunz but I used prefolds at night. I wish we would have brought the sprayer with us when we moved but she has not has really big accidents since we moved....mainly pee....she has peed so many times on the computer chair I have to spray it with fabric freshener and keep a towel on it all the time. At one time the doctors made me switch to disposables for awhile because they thought that it would stop the MRSA....the disposables made it worse because the chemicals broke her skin down more. I started using cloth with my older kids. I had a diaper service with my first son who is now 24, that was awesome! I always look at the isles of disposables in the store and think of piles and piles of diapers in landfills.


We use Imse Vimse covers and Chinese prefolds. We have a kitchen chair with white upholstery that we keep spilling coffee on and I keep putting it in the bathtub and spraying it off with the diaper sprayer with a little soap, it'd be ruined without it. My son also gets nastier rashes in disposables, I don't know if it's the chemicals (my son is sensitive to formaldehyde) or if it's because he gets left in them longer or if they just create a better environment for bacteria to breed. I think if my son ever had a rash bad enough I'd have to watch him and let him go without for a while, I've heard sunshine and fresh air is the best thing for a diaper rash ... my Mom had to do that with me and switch me to cloth when I was a baby because my skin couldn't tolerate disposables either.



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17 Jul 2011, 10:24 pm

Washi wrote:
liloleme wrote:
I had the sprayer as well....could not have lived without it! Also loved the snappies. My fav diapers were fuzzi bunz but I used prefolds at night. I wish we would have brought the sprayer with us when we moved but she has not has really big accidents since we moved....mainly pee....she has peed so many times on the computer chair I have to spray it with fabric freshener and keep a towel on it all the time. At one time the doctors made me switch to disposables for awhile because they thought that it would stop the MRSA....the disposables made it worse because the chemicals broke her skin down more. I started using cloth with my older kids. I had a diaper service with my first son who is now 24, that was awesome! I always look at the isles of disposables in the store and think of piles and piles of diapers in landfills.


We use Imse Vimse covers and Chinese prefolds. We have a kitchen chair with white upholstery that we keep spilling coffee on and I keep putting it in the bathtub and spraying it off with the diaper sprayer with a little soap, it'd be ruined without it. My son also gets nastier rashes in disposables, I don't know if it's the chemicals (my son is sensitive to formaldehyde) or if it's because he gets left in them longer or if they just create a better environment for bacteria to breed. I think if my son ever had a rash bad enough I'd have to watch him and let him go without for a while, I've heard sunshine and fresh air is the best thing for a diaper rash ... my Mom had to do that with me and switch me to cloth when I was a baby because my skin couldn't tolerate disposables either.


Are you serious!! Formaldehyde in disposable diapers!! ! Formaldehyde is a carcigen...omg...if I ever have kids it will be cloth diapers. What the heck are they thinking???


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Washi
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17 Jul 2011, 11:45 pm

jojobean wrote:
Washi wrote:
liloleme wrote:
I had the sprayer as well....could not have lived without it! Also loved the snappies. My fav diapers were fuzzi bunz but I used prefolds at night. I wish we would have brought the sprayer with us when we moved but she has not has really big accidents since we moved....mainly pee....she has peed so many times on the computer chair I have to spray it with fabric freshener and keep a towel on it all the time. At one time the doctors made me switch to disposables for awhile because they thought that it would stop the MRSA....the disposables made it worse because the chemicals broke her skin down more. I started using cloth with my older kids. I had a diaper service with my first son who is now 24, that was awesome! I always look at the isles of disposables in the store and think of piles and piles of diapers in landfills.


We use Imse Vimse covers and Chinese prefolds. We have a kitchen chair with white upholstery that we keep spilling coffee on and I keep putting it in the bathtub and spraying it off with the diaper sprayer with a little soap, it'd be ruined without it. My son also gets nastier rashes in disposables, I don't know if it's the chemicals (my son is sensitive to formaldehyde) or if it's because he gets left in them longer or if they just create a better environment for bacteria to breed. I think if my son ever had a rash bad enough I'd have to watch him and let him go without for a while, I've heard sunshine and fresh air is the best thing for a diaper rash ... my Mom had to do that with me and switch me to cloth when I was a baby because my skin couldn't tolerate disposables either.


Are you serious!! Formaldehyde in disposable diapers!! ! Formaldehyde is a carcigen...omg...if I ever have kids it will be cloth diapers. What the heck are they thinking???


I know ... diaper companies don't have to list ingredients so I have no idea which brands contain it ... however when my son was very little several "sensitive for baby" type products irritated/burned his skin ... I compared the ingredients and they all had one ingredient in common DMDM Hydantoin - which is actually just another word for formaldehyde (it's hidden under other names as well). Some of the offending products were Johnson & Johnson diaper rash cream, Lubriderm for sensitive skin, Fruit of the Earth Aloe gel and Huggies unscented Natural Care baby wipes .... I always read labels now and look for it.



Last edited by Washi on 17 Jul 2011, 11:53 pm, edited 1 time in total.

nostromo
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17 Jul 2011, 11:53 pm

We did cloth nappies for ages. Got it down to a fine art that suited us. Just chinese cloth rectangles, with a over-nap shell, we used to insert thin disposable liners (for easy poo removal) most of which got reused. Wash/scrape the worst off in the toilet if required, soak in nappy bucket, cold wash, dry on line. No problem.

Now we use disposables because the Govt pays for them.

There was a study done by a diaper company that dmonstrated that cloth nappies used more energy and cost more than dispoables. It was brilliant, and I'm sure it would be more expensive if you did as they did - hot washes, dried the nappies in a clothes dryer, then ironed them!! !



Washi
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17 Jul 2011, 11:59 pm

nostromo wrote:
We did cloth nappies for ages. Got it down to a fine art that suited us. Just chinese cloth rectangles, with a over-nap shell, we used to insert thin disposable liners (for easy poo removal) most of which got reused. Wash/scrape the worst off in the toilet if required, soak in nappy bucket, cold wash, dry on line. No problem.

Now we use disposables because the Govt pays for them.

There was a study done by a diaper company that dmonstrated that cloth nappies used more energy and cost more than dispoables. It was brilliant, and I'm sure it would be more expensive if you did as they did - hot washes, dried the nappies in a clothes dryer, then ironed them!! !


Lol, I wouldn't trust a study done by a disposable diaper company, I can only imagine the warped logic! I wash and reuse wipes too, and my diaper sprayer doubles as a bidet so I don't have to buy toilet paper anymore - that's long since made the sprayer pay for itself.