The "fewer moms work" statistic and what it means
Lilolme and azure crayon touched on another point I was thinking when I heard the stat: how the parents may have impairments interfering with paid work. Not all special needs have a genetic component, but AS very much seems to, and that is going to be a factor, meaning that parents of kids hindered by aspects of their AS, have increased odds of facing limitations (sensory, interpersonal issues, etc) themselves. For that, I really love the concept of paying parents to stay home with the kids that lilolme mentioned.
Some moms with kids on the spectrum very likely have health issues preventing paid work. However, I personally do not know any.
The president of the local Autism Society, the vice president of the local Autism Society, and I are all former female attorneys with children with classic autism who decided to quit their jobs at some point to help their kids.
Here in Texas, special education and public services are very weak. Pay for state employees (including attorneys, many of whom are female) is also bad.
For some families here, if the mom has the skills to work with a child who is is not doing well, it makes financial sense for the mom to quit. (Private services are expensive; the private help necessary for a child with severe issues can quickly exceed whatever income the mom brings in.)
As soon as I inherited some money, I quit my job and made some real estate investments that support the family.
Most families have to use just use whatever public services are available, though.
_________________
www.freevideosforautistickids.com is my website with hundreds of links and thousands of educational videos for kids, parents and educators. Son with high-functioning classic autism, aged 7, and son with OCD/Aspergers, aged 4. I love my boys!
I have wrestled with this question for years, much longer than DS having a diagnosis.
Here's our story - I would love to be a stay at home mom. I always worked for financial reasons though. With our 1st, it broke my heart, but he did ok. Once my 2 nd was born, we needed in home help right away. He was kicked out of daycare @ 3 months old for crying incessantly. We didn't know what was wrong, but time and time again, when we tried the standard care options, this child just couldn't hang.
My DH makes fairly good money now, and we probably could afford to live on his income BUT he gets no medical benefits at work. I provide all of the benefits. I talk about having him quit his job to stay home, but frankly I'm very worried that he doesn't have the executive functioning to manage a house and full time parent. He has very little patience and as we all know that's a requirement.
The juggle is miserable in my opinion. I can't fully engage in my work because DHs job has no flexibility, so I can't work the hours or travel as I should for my job. If we have him quit, I would have the flexibility, but I'm not sure that he could manage at home.
I feel like all of the options stink!
I have seen DS thrive since I pulled him out of school, and feel that is the answer for him, now I just have to fins a way to make that happen.
I really liked that video. I am not really able to go back to work for a bunch of reasons. Work isn't flexible enough for when I need to leave to pick up a child. Many of the better daycares won't take special needs kids without extra help. School does not make it easy with necessary therapies with union rules, etc.
I am very thankful to be able to stay home. And very thankful that we have an excellent social worker that has helped to get us what we need.
This is not true for everywhere and do wish therapy, classes and proper respite care was easier to coordinate.
Here's our story - I would love to be a stay at home mom. I always worked for financial reasons though. With our 1st, it broke my heart, but he did ok. Once my 2 nd was born, we needed in home help right away. He was kicked out of daycare @ 3 months old for crying incessantly. We didn't know what was wrong, but time and time again, when we tried the standard care options, this child just couldn't hang.
My DH makes fairly good money now, and we probably could afford to live on his income BUT he gets no medical benefits at work. I provide all of the benefits. I talk about having him quit his job to stay home, but frankly I'm very worried that he doesn't have the executive functioning to manage a house and full time parent. He has very little patience and as we all know that's a requirement.
The juggle is miserable in my opinion. I can't fully engage in my work because DHs job has no flexibility, so I can't work the hours or travel as I should for my job. If we have him quit, I would have the flexibility, but I'm not sure that he could manage at home.
I feel like all of the options stink!
I have seen DS thrive since I pulled him out of school, and feel that is the answer for him, now I just have to fins a way to make that happen.
If you live in the United States, I would look into whether your state has a high risk pool for insurance coverage.
I am covered by the Texas High Risk Pool (for people unable to buy private health insurance and not insured through an employer). It is managed by Blue Cross/Blue Shield. The premiums are twice what they would be for a normal individual policy. Those covered by High Risk Pool policies can get policies for their dependents. There are no High Risk Pool family policies.
A child with autism can get coverage through the Texas High Risk Pool if he cannot get insurance any other way (medicaid or through his parent's work). Coverage is not automatic: his parents must apply for and be turned down by private insurers due to health issues. The parents must document this.
In Texas, those earning too much for medicaid but under 3x the poverty line can apply for a reduction in Texas High Risk Pool premiums. They may be put on a waiting list.
I would check into similar programs in your state if you are in the U.S. and verify that all my advice applies to your situation.
_________________
www.freevideosforautistickids.com is my website with hundreds of links and thousands of educational videos for kids, parents and educators. Son with high-functioning classic autism, aged 7, and son with OCD/Aspergers, aged 4. I love my boys!
On one forum I used to frequent there was a single mom of an AS boy who lived off of his disability check. Things were pretty rough for them.
On one forum I used to frequent there was a single mom of an AS boy who lived off of his disability check. Things were pretty rough for them.
That can happen.
I own a low-income housing business, and I have seen other scenarios also. For example, the mom taking part-time work or something she can do out of her apartment while her child is at school and trying to get by on that, child support payments, and government services.
There is also the very common situation where the child goes to a school that is not good, does not get any private services, and gets poor quality daycare.
Sometimes, an older child still needing a lot of care is left unsupervised while the parent is at work and may wander off, become pregnant, etc.
There are some sad situations out there.
_________________
www.freevideosforautistickids.com is my website with hundreds of links and thousands of educational videos for kids, parents and educators. Son with high-functioning classic autism, aged 7, and son with OCD/Aspergers, aged 4. I love my boys!
wow, my life resembles many of these scenarios =)
like kailuamom talks about, my SO doesnt have the executive function necessary to maintain a household, so our house is always a mess and i end up doing a disproportionate amount of the household chores considering i also work full time. i cant wait for school to start again, as having the kids in school all day greatly reduces the mess they make =) my autie is a little destruction machine, and having him home all day literally means hours of cleaning up every day. two days ago he tells me, "i like making messes." oh, i know, son, i know.
we rely on medicaid for health coverage, and we do get ssi for our youngest, which i applied for in part because autism is hitting us so hard financially, not just for this child but because of my SO's inability to work, and my own need to stay at my low paying but flexible job that allows me to help with the sahp tasks. my SO was working part time, but lost that in march due to issues caused by autism and anxiety.
so we are struggling, and a lot of that has to do with autism and its effects on members of our family. i hate the amount of time i spend outside the house, and i hate relying on assistance programs, but really, there arent a lot of other options. i work or we starve =) we get basically zero autism support, the only things we get are the ST and OT services during the school year. the area we live in is a big black hole for autism resources. we dont even have support groups or respite care available.
despite the struggle, its not all depressing tho. like i said, i hate the assistance programs, but thanks to the addition of the ssi to our household income this year, i was able to get approved for a small mortgage, and within the next month we should close on our very first home. little late by most standards considering we will both be 40 this year, and its a simple house, but its a good neighborhood and will be our very own. we are extremely lucky that we live in a very economically depressed area, so our house was selling for only 26k, and the low price and the ssi are the only reasons we were able to even dream of buying our own home. and because the mortgage is so small, it wont cost us any more than renting does, in fact it will cost us less even with accounting for utilities, insurance, etc.
i dont like working so much and being broke all the time, but there are only two things in life ive ever wanted, to have a family and a house. well the house is small and coming late, and 60% of my family is autistic, but i am livin' the dream =)
_________________
Neurotypically confused.
partner to: D - 40 yrs med dx classic autism
mother to 3 sons:
K - 6 yrs med/school dx classic autism
C - 8 yrs NT
N - 15 yrs school dx AS
like kailuamom talks about, my SO doesnt have the executive function necessary to maintain a household, so our house is always a mess and i end up doing a disproportionate amount of the household chores considering i also work full time. i cant wait for school to start again, as having the kids in school all day greatly reduces the mess they make =) my autie is a little destruction machine, and having him home all day literally means hours of cleaning up every day. two days ago he tells me, "i like making messes." oh, i know, son, i know.
i dont like working so much and being broke all the time, but there are only two things in life ive ever wanted, to have a family and a house. well the house is small and coming late, and 60% of my family is autistic, but i am livin' the dream =)
I can relate to much of the above, since my husband is bipolar. Unfortunately, he does not take care of himself, and is not good at childcare and not reliable as a financial provider. I think that he is perfectly capable of doing more, but he'd rather be accomodated by me.
_________________
www.freevideosforautistickids.com is my website with hundreds of links and thousands of educational videos for kids, parents and educators. Son with high-functioning classic autism, aged 7, and son with OCD/Aspergers, aged 4. I love my boys!
