Yay!! !
I dont know...my kid clearly has had his Aspergers since birth, and I was very open to bring all of his issues to the table and he got services since birth due to his cleft palate. I was always told he was fine, he was just so smart, etc...he did get services, but he NEVER got a label. And I was constantly saying, "something isnt right here, somethings not adding up, there has to be some expliinaton for this..." and al I ever got was roses!
The one or 2 times it was mentioned POSSIBLE ASD (always by someone who diidnt know him) it was immediately shot down by the professionals who knew him well, and those who mentioned it were fine with their answers.
I know I am only ONE example, but my kid saw numbers of professionals, he was in the system since birth, I was bringing htem issues, etc... and never did he get pushed into anything or any label. I had to take him OUT of the district once he was CSE age to finally get a diagnosis, and the district refuses to acknowledge it.
Its frustrating on this end too...
_________________
Dara, mom to my beautiful kids:
J- 8, diagnosed Aspergers and ADHD possible learning disability due to porcessing speed, born with a cleft lip and palate.
M- 5
M-, who would be 6 1/2, my forever angel baby
E- 1 year old!! !
The one or 2 times it was mentioned POSSIBLE ASD (always by someone who diidnt know him) it was immediately shot down by the professionals who knew him well, and those who mentioned it were fine with their answers.
I know I am only ONE example, but my kid saw numbers of professionals, he was in the system since birth, I was bringing htem issues, etc... and never did he get pushed into anything or any label. I had to take him OUT of the district once he was CSE age to finally get a diagnosis, and the district refuses to acknowledge it.
Its frustrating on this end too...
The problem is that it is in a school district's best interests to create a mythology that parents like us (that is, with kids who don't exhibit symptoms that fit a very narrow profile for diagnosis) are "gaming the system" to get "free services" because then there is somebody to blame if they can't make ends meet. Most social workers and intake workers are on the frontline of gatekeeping the special services budget.
I'm not saying it never happens - I'm just saying that there are significantly (more likely exponentially) more parents who are fighting to get services for kids who can mask their symptoms than there are parents gaming the system to use services to babysit their NT kids.
When we went to the school district at son's age of 4 we were attempting to exclude a diagnosis because that was what was recommended to us to do by the shrink referred to us by the pediatrician. Since a diagnosis would have given our son FREE preschool that he would not have otherwise been entitled to, they absolutely tried their darnedest to exclude it. My son was severe enough that they gave him the diagnosis of autism instead of excluding it. I don't have any doubt that if he was not as severe as he was, that they would have excluded him for just being too smart, which is what the shrink thought, at first.
I don't know how many people try to game the system to get free preschool, or other services, but where I am at least, they have multiple barriers to this. They have screening tests, then actual tests of multiple types, and observations in addition to the questionnaires that parental input is asked for. I really doubt that many non=deserving people get passed this. In addition, at least where we are, they are very stingy in what actual services are given, requiring severe deficiencies and not at all proactive. As far as they EI stuff, my son passed through the very limited phone screen b/c he was "smart." Most of the questions were about cognitive deficiencies and our stims did not happen to match up with the stims they asked about. I think if we had a more thorough phone screen and/or I was less in denial at the time, I think our son could have been diagnosed easily at 2 instead of 4.
I think far more kids fall through the cracks than get free unneeded stuff.
Last edited by ASDMommyASDKid on 10 Mar 2013, 9:49 pm, edited 1 time in total.
spot on!!
_________________
Dara, mom to my beautiful kids:
J- 8, diagnosed Aspergers and ADHD possible learning disability due to porcessing speed, born with a cleft lip and palate.
M- 5
M-, who would be 6 1/2, my forever angel baby
E- 1 year old!! !
