please help

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Isnt a kid with autism part of a family with autism?Dont you think they might have something to add about their experience about the family...I am not saying it is the only view,just not one that should be ignored.Maybe I am over sensitive but a lot of the questions(this isnt the first person to come here and ask about autism in the family)Talk about the child as if they were a deffective thing that the family has to suffer with...just rubs me wrong.I dont want the kids voice to not be heard as part of the process of being in a family and based on the caring parents here,I dont think they do either.Maybe I am wrong.I just get tired of people coming on here to do their research and never asking people with AS what their experiences are.

I just thought I should explain myself a little better here without people arguing about this topic anymore.

You are right, a kid with autism is a part of the family. If I was able to write about children with autism, I would do it in a heartbeat. However, due to the confidentiality issues, I am not able to complete my study for my class in the time period. Also, this is not a study that will be published, it is a class research project to mainly teach college students how to come about research and putting it all together. My professor encouraged us to limit our topics; therefore, would not allow me to stretch out my topic to the entire family. I have researched on this topic and found many articles about families, children, and parents. I want to remind you that I love children and wanted to focus on what they thought and felt about autism and their experiences but I am not able to do so.

Thank you for everything that has showed interest in this survey and I can only encourage others to follow.

utstudent, Thanks for your interest in Autism and families who have children with Autism.

As a parent, if I could offer you some kindly advice if you find yourself doing research of this nature in the future, it would be that the responses might be more positive if you take steps from the start to make your project more credible. When I get solicitations to participate in Autism research projects from my local university, the letter is ALWAYS signed by the actual name of the student researcher and is accompanied by a letter from the supervising professor verifying the project and its confidentiality. Occasionally I've participated in online projects but then again, the person idenified themselves and provided a link to the university they were associated with along with contact information as well as specific information about how the data would be used. These steps are often important to families who are providing confidential information about their lives and their children. Again, I sincerely appreciate your interest in this area but I'm willing to bet many families who can be tracked by their board monikers at a site like this would be more open to participating if such steps were taken as opposed to their being asked to hand over private information to someone with a pseudonym for a project with no verification from the supporting facility.

Best wishes to you.
Pippen

Thanks for your advice, and I will definitely make sure I follow those steps next time I have to do a research like this. My professor did not really go through this part of the process much at all, so I appreciate your advice greatly.