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Shadow50
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11 Dec 2008, 2:17 am

^ I'm with Slowmutant ... thanks for sharing.

The story made me cry.

My girlfriend's little boy has frontal lobe epilepsy and ODD, and she is just the best angel mother I have ever encountered.

Religious and scientific debate aside ... its's a beautiful story in its own right.



silentbob15
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11 Dec 2008, 3:16 am

Thank you art4autism :cry:
I am missing my mom now.



slowmutant
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11 Dec 2008, 6:02 am

My own mother had a very difficult time raising me. She is good, strong, wise, courageous and very loving. She never gave up because she prayed for me.

And I turned out pretty good.



rachel46
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11 Dec 2008, 8:49 am

I loved it too. I believe in God.

Quote:
To dwell on such things borders on neglect.
So because I go to church and pray to, what I believe to be the creator of the universe, for strength when my son won't fall asleep until 1:00 a.m. every night and pray to bring people into his life that will love and understand him and not harm him. When I pray for wisdom to do the right thing ALONG with doing all the things on this Earth that (I believe God provided) such as medication, doctors, books, etc. you consider that borderline neglect.....that's just foolish.



slowmutant
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11 Dec 2008, 9:03 am

Rachel46, I can definitely appreciate what you do and why you do it. Your boy used to be me, and you used to be my mother. Were it not for her strong Catholic faith, I don't think my mother could have risen to the challenge of raising an Aspie kid. My parents certainly didn't have an instruction manual, and when I was a little kid in the early 80s, Asperger's Syndrome was literally unheard-of. They had no choice but to educate themselves and others about my condition.



art4autism
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11 Dec 2008, 9:21 am

Slowmutant you sound like an amazing person. Your parents must have done a great job. Your posts show so much kindness and emotion. I have two very smart Aspies. The oldest is almost Savant like. People say ASD people cant show emotions or empathy but I have learned through my own children that this is not true. Now my son may not show the right emotions/responces at the right times but has more empathy for the world then most people I know. Thanks for sharing. :wink:


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rachel46
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11 Dec 2008, 9:24 am

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Were it not for her strong Catholic faith, I don't think my mother could have risen to the challenge of raising an Aspie kid.


There are days when I know I cannot do this alone and there is no human resource or person that can sustain me, but my faith in God does. I believe there is a power greater than me and I call on it when I don't know what else to do.



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11 Dec 2008, 9:33 am

DW_a_mom wrote:
This is just a sweet piece intended to make certain mothers feel better about their lives and circumstances. WHY is there something wrong with that? We're not waiting for someone to do anything for us.

And, yes, I have faith. Science explains HOW, but it doesn't do a great job with WHY. The world starts to pre-natally select out babies with Downs, and so autism rates (and the severity) rises instead. Why? Oh, yes, there will be a scientific explanation of HOW it happened, but it won't explain the interesting irony in the timing. It can't. It is in these gaps that I look to faith for possible answers. Not facts; faith is not fact; just possibilities.

But I don't expect you to buy it. Just respect my right to it without demeaning my intelligence in choosing it (as those without faith so very often do).


"Why" is the wrong question. "Why" imparts an intelligence behind the observed event (a child born with a disability) and thus narrows the possible causes down to one: a supernatural being for which there is no evidence. But even IF such a being existed and were responsible, how are you able to discern its intent? Or that it has servants called "angels"? The "why" is applied solely by your own mind and turns you away from what you should really be concerned with: your child.
But you are correct in saying that faith is not fact, and that is it's flaw. Faith is believing something for no reason. It is blind and it is dangerous. Were it something else, not a mental disorder, but something like diabetes, would you still rely on faith? People that do that end up with a dead child. And I see no difference in turning to faith when your child has autism or Asperger.
As for the "gaps"... What is so wrong with "I don't know?"
Also, I fail to see where I insulted anybody's intelligence.



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11 Dec 2008, 9:48 am

rachel46 wrote:
I loved it too. I believe in God.

Quote:
To dwell on such things borders on neglect.
So because I go to church and pray to, what I believe to be the creator of the universe, for strength when my son won't fall asleep until 1:00 a.m. every night and pray to bring people into his life that will love and understand him and not harm him. When I pray for wisdom to do the right thing ALONG with doing all the things on this Earth that (I believe God provided) such as medication, doctors, books, etc. you consider that borderline neglect.....that's just foolish.


The strength you get comes from the act of praying itself, not from God. Think about it. All you are really doing is taking a moment to collect your thoughts and calm yourself down. And to say that God provided the medication, doctors and books you rely on is quite insulting to me. You take credit away from the countless people that have worked hard to aquire the knowledge to provide you with those things. God had nothing to do with it.
And it is not foolish to consider this borderline neglect. If it were cancer, would you still rely on faith? You child would be dead.
And the story is insulting because it ignores the many children with disabilities that aren't born into loving families. Were that just not worthy of God's attention?



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11 Dec 2008, 9:49 am

rachel46 wrote:
Quote:
Were it not for her strong Catholic faith, I don't think my mother could have risen to the challenge of raising an Aspie kid.


There are days when I know I cannot do this alone and there is no human resource or person that can sustain me, but my faith in God does. I believe there is a power greater than me and I call on it when I don't know what else to do.


You sustain yourself.



art4autism
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11 Dec 2008, 10:02 am

I find it interesting how different minds perceive things. Most people say Why? when they find out bad news. I said, why when my two young sisters died. One from cancer and one from crime. I said why, when my boys all born healthy, with no signs of health problems and then around the age of 4 started to get sick. Yes, I asked why. How come? No one in my family gene pool had these issues. The genetic testing came back without answers. Mitochondrial Disease in most cases comes from the mothers DNA yet, I don't show Mito symptoms. How did 3 children get hit with so many issues. I didn't drink or do drugs while pregnant. I was very healthy. I breast fed my children yet, my kids are all sick. Yes, I think many would say why my kids? But unless you are in my shoes, you can't really say how you would feel. God is science. Pretty simple to me. I believe in that who created me. I believe there is a plan out there that I don't understand. But I must have faith to carry on. To be Strong for my children.
:wink:


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11 Dec 2008, 10:07 am

The way I see it, people are free to enjoy this piece, and some of us are free to pick at it's faults.

The main problem with this little story, is that the very concept is inaccurate. The story implies that ALL handicapped children are born to parents who love and accept them, and do their best to raise them properly. This couldn't be further from the truth. A mother's (or father's) quality of character has no bearing on whether or not their children will be disabled.

Sure, there are plenty of parents who love and accept their handicapped children, and wouldn't dream of harming them.
But there are also some parents who highly resent their handicapped children, and their resentment builds up until they eventually do something heinous to their children.

The story "sanitizes" the issue, and pretends like the second category of parent doesn't exist. "Because God wouldn't choose such heartless people to be parents". Face it, if the world really worked like that, then any person who feels compelled to abuse children, at any time, would be sterile/barren. But it doesn't work that way. Pretending that it DOES work that way does more harm than good.



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11 Dec 2008, 10:14 am

You've said too much, drowbot. You've said some very hurtful things, and there is no excuse for that. If your posts are any indication, your character is poor. Regardless of a person's religious beliefs, you can't insult them like that and make like you're doing them a favour.

You presume to lecture a parent on parenthood when you are just a dumb kid? Parenthood, marriage, home-ownership, income-tax, these things are all still ahead of you.



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11 Dec 2008, 10:21 am

art4autism wrote:
I find it interesting how different minds perceive things. Most people say Why? when they find out bad news. I said, why when my two young sisters died. One from cancer and one from crime. I said why, when my boys all born healthy, with no signs of health problems and then around the age of 4 started to get sick. Yes, I asked why. How come? No one in my family gene pool had these issues. The genetic testing came back without answers. Mitochondrial Disease in most cases comes from the mothers DNA yet, I don't show Mito symptoms. How did 3 children get hit with so many issues. I didn't drink or do drugs while pregnant. I was very healthy. I breast fed my children yet, my kids are all sick. Yes, I think many would say why my kids? But unless you are in my shoes, you can't really say how you would feel. God is science. Pretty simple to me. I believe in that who created me. I believe there is a plan out there that I don't understand. But I must have faith to carry on. To be Strong for my children.
:wink:


Just FYI, mitochondrial dna is only passed down from the mother and can't come from the father. Mitochondria are a product of a symbiotic relationship between another organism and early humans. They have their own DNA that is different than the DNA found in your cell nucleus. Just something I find fascinating.

I don't quite understand what you mean by "God is science". Your story imparts a human personality to God and science has no personality. It is a set of methods and procedures, tempered by peer review, used to construct models to explain events we observe in nature. I fail to see the connection.
Your story, to me, implies that you believe the Biblical God. Is this the case? Can you further explain what God is to you?



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11 Dec 2008, 10:24 am

slowmutant wrote:
You've said too much, drowbot. You've said some very hurtful things, and there is no excuse for that. If your posts are any indication, your character is poor. Regardless of a person's religious beliefs, you can't insult them like that and make like you're doing them a favour.

You presume to lecture a parent on parenthood when you are just a dumb kid? Parenthood, marriage, home-ownership, income-tax, these things are all still ahead of you.

I have insulted no one. I question a belief. If that is upsetting to some people, then that is for them to deal with.
You, however, have just insulted me a great deal. You said my character is poor. It is not. You say I am a dumb kid. I am not. What do you even base this on? Did God tell you these things?



slowmutant
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11 Dec 2008, 10:31 am

art4autism wrote:
Slowmutant you sound like an amazing person. Your parents must have done a great job. Your posts show so much kindness and emotion. I have two very smart Aspies. The oldest is almost Savant like. People say ASD people cant show emotions or empathy but I have learned through my own children that this is not true. Now my son may not show the right emotions/responces at the right times but has more empathy for the world then most people I know. Thanks for sharing. :wink:


My pleasure.