RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays

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My daughter used to yell "HELP....HELP.....HELP" ....We taught her how to respond to "quiet voice". We would say "quiet voice" and then we would whisper...she caught on to it after awhile. I also used PECS in stores....My daughter responds really well to pictures and we had a picture of a person holding a finger up to their mouth which was the "quiet" card and I never left home without my "wait" card. I also had a strip of "I want ___" along with single cards: "potty"...."drink"...."food" ect.

Wanted to let you guys know that my daughters speech is getting better. She is less stressed since we found out about the issue at school. Just to remind you the therapist from the center told my daughters aide that she was not allowed to speak English to her anymore and my daughter got very stressed and her speech regressed even more than it has since moving here. She got really bad in only a few weeks time, she was hardly speaking, not responding and the only sentences she was using were all scripting. After we found out we told the aide and the teacher that we did not agree with the center and we were the parents so we made these types of decisions. My husband dropped her off at school today and her aide told him that she is now speaking more French since she started speaking English to her again.....I cant wait to tell the moronic therapist that ! The main problem they are having right now is that she is too much of a perfectionist. If any little thing is wrong with something she writes or draws she flips out and tears it up. She had a major meltdown the other day because she spent a long time working on an art project and the corner got torn.
She is also still having a lot of anxiety with the other kids touching her and just the noise and crowding. My husband took some of her sensory toys in today....she always wears her "chewlery"....its bracelets that she can chew on but sometimes she needs her putty or her squishy balls. Her aide is also learning how to help her calm down before she goes into full meltdown so she is recognizing her signs. Im so glad her aide gets to go with her to the big school next year, we were really stressed about that. Her aide is also going to take some more classes this summer on Autism. I hope we will be able to hold on to her for the next few years.

Thats great news!

I don't post in here much because i don't really know what to say. I understand most of my son's quirks, having gone through them myself as a child.

It was very cute today we went out to lunch at the pub like we do every week and there was lots of kids there. There was also 2 older boys. One of the older boys remembered L from hospital (they have the same allergies and have met before) and was really nice and they were having fun. That was nice.

The down side was that there was a table of some mothers group at the next table with all NT children L's age. They kept talking really loudly about how their kids must be gifted ect because L doesn't talk much. I hate the merc mob mummies around where i live.

That reminds me of something funny. My daughter (James big sis, she is 9) has Dyspraxia, when she went to school she had trouble learning things and was unco-ordinated. We did a lot of OT and I spent a lot of time making her swim and go on the jungle gyms and trampoline etc. She was in all the bottom reading, writing, maths groups and it used to be..well its not very nice for other people to brag about their kids when yours are struggling. Well anyway so skip forward a bit and we went to a PT interview and lo and behold her reading has gone from one side of the bell curve to the other, just like that. I was in shock. A few months on, and the teacher tells us they consider her 'twice exceptional' which means she has a learning disability and is at the same time gifted. More shock. Then they start a gifted child programme and naturally to complete my shock they did formal testing and put her in it. They had an information evening at the school about the programme, and all the usual suspect were there who rate their kids. It was pretty funny for me and really cool..and surreal to watch my girls goofy grinning face flash up on some of the slides, while their kids were not in there. Some of the parents articulated that they thought their kids should be, they lobbyed for inclusion!

She eats M&Ms now and this does the trick. Once we made her inhale a drop of Eucalyptus oil but the other passengers complained about the smell. One of the more ridiculous things we put up with was in the airport lounge when my daughter was quietly watching a portable DVD player and a suited businessman told us it was irritating that he could hear Dora the Explorer while he was reading the newspaper. Diddums...poor baby.

Glad you found something that works for her. My Dad is a big baby like that too, cant stand the noise of the kids tv shows. We decided we are not going to visit anymore until my kids are older. It was cool though the last time we went, my son has a War obsession so my Dad showed him the aircraft carrier he was on in Vietnam....he sat there for over a hour with my son, that was pretty awesome. Anyway, its much worse when some random stranger complains about your kids....like that jerk couldnt have gotten up and moved to read his damn newspaper elsewhere.

I don't know. I am very strange and i know this.


I just cant understand what you guys are talking about.


I am sorry. But I have huge troubles.

Ok

Just talking about our how our ASD kids cope in passenger airlines and airports. Trials and tribulations if you like.

LOL! people are so funny at airports. You often hear about how mild mannered individuals become maniacs when they drive a car. I think the same thing happens to some people when they travel on airlines. In some cases it may just be travel anxiety....will I miss my connecting flight, did I forget something, I hope I can get a money changer etc etc.... Sometimes people are just so precious, like they are VIPs and other people's kids are no excuse for ruining their holiday.

No - its just Hypoglycemia! Eat more food Solvejg

yes more food. that will help.

No i mean that most of the things you guys are posting about is very normal and i can't understand the issues. I guess a HFA that has a HFA sees things differently.

This is a forum so please don't be shy.

What issues are important to you Solvejg?

Well at the moment trying to communicate to educational facilities and to L's one on one that social interection isn't the only indicator that he is ready to progress into kindy. He is as bright as a button and can toilet and follow instructions. he just doesn't want that social stuff like gossiping about ben10. He prefers to sit in the corner and read.

This is causing a lot of issues at the moment.

Oh, are they trying to make him join in with things?

yes and he can't talk to them to say no so they keep pushing him, so he stands there and gets sad and goes inside himself so they try to pair him with other children so then his anxiety goes through the roof and he can't say what he is feeling. They then say he isn't socially ready for kindy.