I need help with school
I made a mistake listening as if they were. I wish people meant what they said. I know they mean well. I wish that I could trust what they would do.
Compose a "minutes" of yesterday's meeting now. Make sure that you detail ALL the discussions that happened at the meeting, who-said-what, what you agreed to, disagreed with etc, and send it out via email (cc the special education director) TODAY, when the discussions / disagreements are still fresh in everyone's minds. Add a note in the email that if anyone disagrees with the minutes or remembers differently, then that they should send you the minutes as they remember it by close of business on Friday, October 30, 2015 (2 business days out). Also, in the email, let all the team members know that you are sending out - via certified postal mail with return receipts - copies of the minutes to the Principal and Special Education director (aka "the administrators").
Then, send out THREE postal mails (as mentioned above - certified with return receipts) - one to the Principal, one to the special education director and one to YOU. (Do not open your copy of the certified mail - it goes unopened into a folder where you are gathering documentation to take these guys and gals to OAH).
Once you have received the return receipts for the mailed version of the minutes, drop the bombshell by asking for an IEE for your daughter (I will post this letter format for you later today). Again, make the request via email first to the special education director (cc yourself), and then make the request via certified mail (remembering to certified postal mail yourself the exact same request). Your copy, of course, goes into the "documentation folder".
Tell the district that you are requesting that all future correspondence between you and them be in the form of certified mail, although an email copy would be appreciated, as well. Let them know that you will not be available to discuss these requests by phone anymore (especially if you - like me - are horrible at phone / verbal communication and are infinitely better at written communication). Also, phone calls can become a hot bed for hearsays, avoid at all costs, and always respond to phone messages via email.
This is enough to put the district / SEC on notice that you aren't just going to roll over and die. Or that you are just going to go away. While they mull over your demand for an IEE, you go out and hire the fiercest advocate that money can buy.
While I admit that a good relationship with the district goes a long way, the squeaky wheels end up getting the grease. I have been where you are, believing that the district meant well. And they screwed my baby over. Not anymore. You are not their friend, you are not a comrade, and you are certainly not their cheer leader. You are a parent, and your only loyalty is to your kid.
Hang in there.
_________________
O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".
-- Hamlet, 1.5.113-116
I am so, so, sorry that they made you feel this way.
FWIW, in case this is driving some of your upset - many of the Moms in my support group are completely NT and they still cry at IEP meetings.
It is too much to ask a parent who is already worried about their child to sit through a meeting where the other people have degrees in what they are doing - but whose main focus is sadly the budget, and yes their degrees address that, too - and you are a beginner.
It's such a big problem that some states even have free advocacy built in at the State Board of Education. Even if you can't find a SPED advocate (best choice) bring somebody with you to the meeting, preferably someone who knows you and your child but is not related to you. If you are using any outside service providers like OTs, speech therapists, therapists or social workers, they are the next-best choice; they will probably charge you but they can help.
Reading your posts makes me feel less alone, thank you. It is hard to word, it is just, we had come to an understanding, I thought. And every rational statement that I made in the meeting I got the same response. They see no academic problem therefore while I could demand a CSE meeting, their belief is that they are already doing all they can do, it is up to me to take her for outside "counseling" because she is a capable student with her current IEP supports (I half expected they'd announce she didn't need those anymore but they didn't say that).
Maybe they are right. I don't even know anymore.
Mostly I am disappointed in myself for not understanding they would manipulate, and not tabling the meeting when they started that. And I am disappointed that, again, I did not even realize kind words and caring faces and tones may mean they care, but not about logic or what I think or say and certainly not what my child wants. I should not have trusted them that they wanted a discussion.
I wrote the minutes, but when I showed them to someone, she said they need to be organized differently. It is very slow to edit and writing to make sense to people is very hard.
One tiny sliver that is good: my daughter came home today and said the teacher that was the most negative....was nice, explained the homework between classes to her, and checked in on her several times whether my daughter was understanding. And the sped teacher worked with her today!! I am afraid still. Very afraid, and overwhelmed and tired, and one of the hard parts that I don't know how to handle is that I know they won't want to be wrong, but if they feel bad for what they were doing and correct it, it's likely she'll still need more....,I don't know how to present that. And I may be able to get a private eval done I can afford, if it recommends more, I don't know how to get past that they will not want to back down. What am I to say how would I present new information to them? Because if they want to claim there is no educational impact, they can do that, or at least they have been doing that, and I don't know what to do how to present so it isn't "I told you she needs more. See? Look at this!!" The need to be on top...:it really it is beyond me my brain can't relate I don't know how to push back. The advocate I used in the past she is not there anymore. I will keep looking but if anyone has advice about the not cornering them to get them to give in if that is possible please tell me what your thoughts are. I know I'm ranking. I am sorry. Trying to be organized feeling upset has exhausted me!
Maybe they are right. I don't even know anymore.
They doth protest too much.
So the whole and sole purpose of the meeting was to tell you that your child needs "counseling" (from an outside source) ? And, pray, what is the school psychologist's job ?
This was the *exact* same thing that they told me last year. Your daughter's academics are superior, so she does not need "more supports", she may benefit from counseling for her challenges interacting with her peers. HA !
I believed them... sort of.
Long story short : They will tell you ANYTHING to avoid giving her help. And they are making it clear - by minimalizing her challenges - that they won't raise a pinky to help her, so the onus is really on you to make them help her.
The reason I wanted you to mail out the minutes was basically to put a summary of yesterday's meeting in writing (unless the meeting was tape recorded, which it probably wasn't) ? A "minutes" is basically a fancy way of saying "summary".
Here is a simple sample of a "minutes" :
http://www.miataownersofvegas.com/Image ... Page_1.jpg
There is no specific format that I am aware of. All it requires is a summary of who attended, what was discussed, what disagreements were raised and what conclusions were reached. That's it. Just make sure to use grammatically correct and polished English and edit the document for spelling before sending it off to them. That sentence about asking the team to contact you if they remembered / understood the details in your minutes "differently" is just to get *them* to put the goings-on at the IEP (what they believed was discussed, who said what, what the outcome of the meeting was) etc in writing !
Simple... but sweet, eh ? If they don't agree with your minutes and don't say so, then your missive on how the meeting went is final. It doesn't matter whether they respond or not - you still win, either way !

As I said, they are not your friends. They are adversaries. Don't beat yourself up. We all have made this mistake, I am sure. I certainly have. Just remember not to believe a WORD that comes out of their mouths anymore, and get them to put their money where their mouth is -- as in, they need to put everything in writing henceforth.
Curiouser and curiouser. Or in other words, they are FULL of it.
The first step is still to send out the minutes, and then once you receive the return receipt, send out the request for IEE. You *have* to be slow and patient and these things take time. But if you document everything that goes down, on paper, the OAH will - more likely than not - find in *your* favour. It's worth all the time, effort and cost necessary to get to this outcome.
_________________
O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".
-- Hamlet, 1.5.113-116
I know I am being naive, and everyone's advice is very good and I am trying to follow.
This is confusing. They yelled at me and told me I am wrong and they have done all they can and all she needs from them. Anything else, that's up to me. But they think she needs outside help. Her learning disability is under control, she is doing well supposedly. But, my daughter says they have corrected many of the bad things they were doing.
Do you mean they only temporarily feel guilty and will revert to ignoring her very soon? That I must not trust them to see their better behavior works and continue it? I think this sounds like it makes sense. But is this what people think? How they operate?
[youtube]
This is probably exactly right - and in large part the reason they're trying to "make nice" is because they know that if you could REALLY cost them money if you find out what your rights are and just how grossly they are being violated.
They aren't monsters, though: at my son's elementary school, when I was sobbing in fear of my son's violent outbursts at home (due mostly to school refusal and school stress) the principal looked directly at me and said she could do nothing to help. She and I are friends.
She is in an impossible position - they have exactly so much money to go around, and the way that hashes out is that if they give in to one parent, they have to take something away from another, or from somewhere else. I think this causes them to "hoard" services and "starve" the kids whose disabilities are less visible...they are in these jobs because they want to help kids, and they have to sleep at night.
What's more, if you try to go to the school board and suggest cutting non-required programs to support kids with special needs, or to raise taxes, parents come out of the woodwork to scream and threaten and pontificate about the arts or sports or school gardens or whatever. Special needs parents can't do that: we have to think about the privacy of our children when we ask the schools for support. That's why there are laws to protect us - and that's why schools spend so much time gaslighting special needs parents.
What changed my way of thinking was this: if whatever it was my son needed was due to a physical disability and not an "invisible" one, would I feel justified in fighting for it? For instance, if my son's need for organizational support was due to blindness and not executive functioning problems, or if my son's need for physical space and a choice of line placement/locker placement was due to a wheelchair and not bad proprioperception, would I feel bad about fighting for them?
It is nigh on impossible to do this without outside support, so don't feel bad that you are confused and upset and concerned and struggling. THEY ARE DOING THAT TO YOU ON PURPOSE, even if they are not horrible people. It is the only tool they have.[/youtube]
This is probably exactly right - and in large part the reason they're trying to "make nice" is because they know you could REALLY cost them money if you find out what your rights are and just how grossly they are being violated.
They aren't monsters, though: at my son's elementary school, when I was sobbing in fear of my son's violent outbursts at home (due mostly to school refusal and school stress) the principal looked directly at me and said she could do nothing to help. She and I are friends.
She is in an impossible position - they have exactly so much money to go around, and the way that hashes out is that if they give in to one parent, they have to take something away from another, or from somewhere else. I think this causes them to "hoard" services and "starve" the kids whose disabilities are less visible...they are in these jobs because they want to help kids, and they have to sleep at night.
What's more, if you try to go to the school board and suggest cutting non-required programs to support kids with special needs, or to raise taxes, parents come out of the woodwork to scream and threaten and pontificate about the arts or sports or school gardens or whatever. Special needs parents can't do that: we have to think about the privacy of our children when we ask the schools for support. That's why there are laws to protect us - and that's why schools spend so much time gaslighting special needs parents.
What changed my way of thinking was this: if whatever it was my son needed was due to a physical disability and not an "invisible" one, would I feel justified in fighting for it? For instance, if my son's need for organizational support was due to blindness and not executive functioning problems, or if my son's need for physical space and a choice of line placement/locker placement was due to a wheelchair and not bad proprioperception, would I feel bad about fighting for them?
It is nigh on impossible to do this without outside support, so don't feel bad that you are confused and upset and concerned and struggling. THEY ARE DOING THAT TO YOU ON PURPOSE, even if they are not horrible people. It is the only tool they have.
This is confusing. They yelled at me and told me I am wrong and they have done all they can and all she needs from them. Anything else, that's up to me. But they think she needs outside help. Her learning disability is under control, she is doing well supposedly. But, my daughter says they have corrected many of the bad things they were doing.
Do you mean they only temporarily feel guilty and will revert to ignoring her very soon? That I must not trust them to see their better behavior works and continue it? I think this sounds like it makes sense. But is this what people think? How they operate?
"Nothing if not purposeful" pretty much sums up anything and everything that they do. They are hoping to prevent you from taking any further action - such as asking for an in depth assessment - in response to their claim that her LD is "under control" and that all she needs is "outside counseling"
It is up to you on what your next steps are. Personally, I prefer to be "that parent" school districts love to hate. I don't care at all for their opinions of me, only that my kids get the help they need.
I strongly recommend taking the steps I outlined previously - postal mailing the minutes of the meeting, asking CSE to conduct a thorough assessment is all areas of suspected disability and finally an IEE.
This is my feedback based on my experience with the district with my daughter. It is up to you whether to take these series of actions or not. It is whatever you feel most comfortable with and what your priority is. If you want to keep a good relationship with the district under all circumstances, I understand that, too. Please just be aware that you will probably not get any help from them, in return. The squeaky wheel gets the grease.
It is your decision now on what to do now / next. Good luck !
_________________
O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".
-- Hamlet, 1.5.113-116
Thank you all. I still don't get it, but what I don't understand is that they act by manipulating, and they expect the same from me, no matter how well they know me they still believe I'm like any other parent and they should manipulate me and I will try to manipulate them. I don't understand what to do with that it is too weird to me.
But I understand that I am writing notes and sending them and that she will have an assessment done and if they don't want to I need to hire someone to make that happen or pay for the proper assessment myself because her needs are I feel being swept under the rug and I feel that's not fair to her so I need to find or hire someone to push back on them to change their behavior.
I hope I can do his. But you have all given me really clear information what to do and how to do it and I'm really grateful to you for reading and posting and I think for caring. So thank you all very much
I finished the minutes. I tried really hard not to say things that would make anyone feel bad mostly because I am afraid of the consequences and just to write out the most important fact as far as the negatives which to me is that I asked them to take the issue back to the CSE and they said no. I worked really hard and it took hours and hours but it is done. I think that I asked is probably the thing that matters, not every nit picky complaint about how unreasonable and irrational they are.
I am so very tired. No luck looking for an advocate yet but I have called the agency that I was recommended to call for help twice and hopefully hear back tomorrow.
I am so very tired. No luck looking for an advocate yet but I have called the agency that I was recommended to call for help twice and hopefully hear back tomorrow.
Don't be afraid. The worst they can do is to respond back with a NO, to any of your requests. There can be no other "consequences", really, and if you do this carefully (and craftily), you *will* "win".
The advantage of sending out a minutes of the meeting, as opposed to a personal mail, is that the "minutes" will force you to remain neutral / objective, and not go off on a rant about how they disrespected you at the meeting, how you think that the school psychologist needs to do her / his job and provide your daughter with counseling herself / himself, etc etc etc. All you are doing is providing a summary - there are no emotions involved. Make sure to check grammar and spelling. Your language has to be cold, neutral and very polished. If you are having any questions and need to check tone, for instance, remove all identifying information and post it here. There are some folks here - and I am taking liberties now - like ASDMom whose expressions I have always admired. Even when she is disagreeing with you, she comes across as very polite and objective (unlike me who writes sometimes like I haven't take medication for my hypertension that day,



This is just to get additional pairs of eyes to look at your missive before you mail it out tomorrow.
Since it is already Thursday evening, I suggest that you send the minutes via express mail or FedEx. If you drop it off by 8:30 am tomorrow, I believe that FedEx will guarantee same day delivery. Make sure you send yourself a copy, too, and tell them to respond with any disagreements by close of business on Wednesday, November 4, 2015.
Hang in there.
_________________
O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".
-- Hamlet, 1.5.113-116
Thank you Hismom.
It's hard, for everyone I know, but I've always been taught to try as hard as I can to go along and try not to be too obviously weird or different. And now I have this even more stylized dance to accomplish that requires sticking out by saying no, disagreeing, not going along.
Just.....wow!!
It's hard, for everyone I know, but I've always been taught to try as hard as I can to go along and try not to be too obviously weird or different. And now I have this even more stylized dance to accomplish that requires sticking out by saying no, disagreeing, not going along.
Just.....wow!!
Did you mail out the minutes today ?
_________________
O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".
-- Hamlet, 1.5.113-116
I am afraid that did not certify mail. I know I should have. I was afraid of starting a war and don't have any ammunition yet. Other stuff happened that I couldn't focus and did not feel secure doing this. So I sent the email but not the certified
My day was taken over by something else.
This morning my ASD child's teacher called me after she approached my child to recommend she should stop using her accommodations, they cause a loss of instructional time, she should get used to not having them.....my child did not want this and had to be sent out of the classroom but would I agree teacher is right please she is concerned about my child's future.
I said I believe she wants them, I understand this creates these concerns, and I think she should have the accommodations that are in place. They need to stay. I thought I said that.
Then I got an email from my daughters case manager..... teacher reached out to tell her I wanted my daughter to stop using her accommodations. Could case manager set this in motion please. Case manager suggests daughter needs support.
Then I couldn't stand to email and called and they didn't want to let me talk to a human being with authority and I heard my voice starting to rise and then I said ok ok Can you transfer me to special Ed administration and by then
I was sounding more hysterical explaining to the secretary I wanted to talk to someone and then she let me and the lady seemed important enough that I want to think she can fix this but the teacher is really committed to helping my child and I've always been taught to see both sides so this is really hard.....saying no, the psychologist said she should have this. Like how do I know. And I think of teachers as experts .....of course I am saying no to teacher I just am telling you all I feel confused by teacher who clearly cares and believes she is right and who am I to say expert is wrong.... and now both my kids schools think I'm some overly protective overly demanding unreasonable nothing to storm over and squash
Anyway I think I've managed to kill the teachers idea temporarily.....I am afraid she'll keep at it again and again though. I don't want her agitating my child. What do others do here?
I am very lucky. I feed my children and have enough to feed myself. I can pay for clothing. I have insurance that helps pay for what they need and am generally able to find enough for what I want them to have.
I am so fortunate. And so many are really suffering horribly. So I am not going to complain more and have nothing to feel sorry for myself about.
But still. Sometimes......does anyone else feel like they will start screaming? And never stop?
And unfortunately.....just lose my voice and get a sore throat. Right now though I just want to scream, you know what I mean anyone?
My day was taken over by something else.
This morning my ASD child's teacher called me after she approached my child to recommend she should stop using her accommodations, they cause a loss of instructional time, she should get used to not having them.....my child did not want this and had to be sent out of the classroom but would I agree teacher is right please she is concerned about my child's future.
I said I believe she wants them, I understand this creates these concerns, and I think she should have the accommodations that are in place. They need to stay. I thought I said that.
Then I got an email from my daughters case manager..... teacher reached out to tell her I wanted my daughter to stop using her accommodations. Could case manager set this in motion please. Case manager suggests daughter needs support.
Then I couldn't stand to email and called and they didn't want to let me talk to a human being with authority and I heard my voice starting to rise and then I said ok ok Can you transfer me to special Ed administration and by then
I was sounding more hysterical explaining to the secretary I wanted to talk to someone and then she let me and the lady seemed important enough that I want to think she can fix this but the teacher is really committed to helping my child and I've always been taught to see both sides so this is really hard.....saying no, the psychologist said she should have this. Like how do I know. And I think of teachers as experts .....of course I am saying no to teacher I just am telling you all I feel confused by teacher who clearly cares and believes she is right and who am I to say expert is wrong.... and now both my kids schools think I'm some overly protective overly demanding unreasonable nothing to storm over and squash
Anyway I think I've managed to kill the teachers idea temporarily.....I am afraid she'll keep at it again and again though. I don't want her agitating my child. What do others do here?
I am very lucky. I feed my children and have enough to feed myself. I can pay for clothing. I have insurance that helps pay for what they need and am generally able to find enough for what I want them to have.
I am so fortunate. And so many are really suffering horribly. So I am not going to complain more and have nothing to feel sorry for myself about.
But still. Sometimes......does anyone else feel like they will start screaming? And never stop?
And unfortunately.....just lose my voice and get a sore throat. Right now though I just want to scream, you know what I mean anyone?
Excuse me ? I don't think you realize it, old girl. You are already AT WAR.
I really don't know what else to tell you except that it sounds like you are dealing with a very insidious bunch of folks. Who does the teacher think she is, to tell your daughter not to use her accommodations ? If she wants to do that, then let her call an IEP and amend that holy document to remove said accommodations. And, incidentally, this is *EXACTLY* why I told you NEVER to communicate with these jerks by phone - teacher puts words in your mouth, lies to the case manager saying you agreed with removing the accommodations, and voila !
Have a good scream, then set about finding an advocate ASAP. Call Disability Rights (if you have a chapter in your state) or ARC. If these don't exist, your next stop is a special education ATTORNEY.
Good luck.
_________________
O villain, villain, smiling, damnèd villain!
My tables—meet it is I set it down
That one may smile, and smile, and be a villain.
At least I'm sure it may be so in "Denmark".
-- Hamlet, 1.5.113-116
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