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DW_a_mom
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10 Mar 2011, 1:06 pm

missykrissy wrote:
i don't think that most parents need to keep stuff like that locked up.


Irrelevent, isn't it? You do what works in your family, whatever makes your life easier. Especially when you have special needs kids.

You wrote in another post that you have softened a lot of things over what your husband would have done. Progress, right? One step at a time.


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DW_a_mom
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10 Mar 2011, 1:15 pm

missykrissy wrote:
i am okay with time outs but he hits himself when i give him time out. this is something i try to ignore so i don't make it worse but if he keeps going i tell him that's not going to help him get off any faster. at school his teachers aid runs over and hugs him when he hits himself and i asked her not to do that because i think it makes things worse by giving in to him when he does it. he had pretty much stopped doing that completely over the summer and was also listening alot better but when school started back up he went back to it. i am going to set up a time out area just for him. the other kids take time out on the bottom stair but that doesn't work for him because it's hard to see him there and he hits himself or makes holes in the wall. i tried giving him a chair just around the corner. he will stay sitting on it but he keeps slamming it at the same time. i am now thinking maybe a small carpet would work away from any walls and other things he could use against himself. .


As long as he isn't doing himself serious harm (if which case things like helmets can work), I think the self-hitting should be ignored. If it's a stim, it needs to be ignored. If he's doing it for attention (unlikely in an AS child, actually), it needs to be ignored. Totally agree with you on that.

There was a period I had to hold my son in my lap to calm him down for things like time outs. He actually would have preferred being left alone, but it wasn't safe. So, in my lap with me holding his arms was it, just until he calmed down. Sounds horrible, but I would calmly sit there and say I loved him but he needed to calm down, and we would sit like that until he calmed down.

He eventually learned to self-calm and self-regulate. Thankfully before the hormones of puberty hit and before he got too big for me to physically stop. That is the goal: to transfer responsibility for self-management to the child.


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10 Mar 2011, 1:33 pm

hot water heater -there will be either a compartment you open or it'll be visible. My old one was at the bottom the new one near the top in a compartment.. You dont have to turn it off you just turn the temperature setting down all you do is slide to the next setting if it's still too hot slide it down further. If it's hot enough to burn chances are it's set too high anyway .. not only will it help with no burns for any of the kids but you'll also save a lot of money on electricity 140 is the recommended temp if you have a dishwasher otherwise you can go even lower than that ... it will still give you hot water it just wont be hot enough to burn :)


time out -I use a rug for william because he has broken all the chairs lol
-if it is truely just attention seeking behavior to get out of the time out ignore it when he realizes your not buying he will stop. What i do with william is tell him if he acts up or is screaming the time doesn't start untill he's quiet and if he does it in the middle i reset the timer. or if he continues i might say your only wasting your playtime other than that warning i dont talk to him at all... lol anway ... just make sure you give him hugs when it's done and whatever irritation your still feeling let go of it .. once the punishment is over he starts fresh.


**on that note i wanted to tell you that william pschologist when he was young like this had said to me that whatever reward system you choose to use make sure it doesn't involve time with you because it is bad for his self esteem.... thinking here of the nitly reward he really needs that time with you so he can bond with you and with the other kids:) stickers usually make a great reward?? also the dinner time like i said he really should be coming to dinner at 5 years old with the family even if he doesn't eat anything ..... the old adage 'the family who eats together stays together' it's a time when you can ask him how his day was or how the other kids days were , where they can learn to say prayers or where you all can share happy memories :)

child directed play was suggested and helped not only his bond with me but also with my daughter it also is supose to improve negative behaviors
http://seattlelearningcenter.wordpress.com/2010/05/04/child-directed-play/

---- the loud loud tantrum.. each child is different every single one :) wouldn't it be nice if they were all quiet lol i'm reminded that recently a friend of mine slept over and in the morning i woke up to him whispering do you hear that? i said yes it's william he said OMG you weren't kidding you realy do wake up to the birdcage...

it also sounds like he's had a rough life so far which is sad for such a lil guy :( so when he's driving you insane like william did me try very very hard to remember that he really needs your compassion and lots of love it's only with those two things he will start to improve :)



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10 Mar 2011, 2:05 pm

DW_a_mom wrote:
[As long as he isn't doing himself serious harm (if which case things like helmets can work), I think the self-hitting should be ignored. If it's a stim, it needs to be ignored. If he's doing it for attention (unlikely in an AS child, actually), it needs to be ignored. Totally agree with you on that.

There was a period I had to hold my son in my lap to calm him down for things like time outs. He actually would have preferred being left alone, but it wasn't safe. So, in my lap with me holding his arms was it, just until he calmed down. Sounds horrible, but I would calmly sit there and say I loved him but he needed to calm down, and we would sit like that until he calmed down.

He eventually learned to self-calm and self-regulate. Thankfully before the hormones of puberty hit and before he got too big for me to physically stop. That is the goal: to transfer responsibility for self-management to the child.


yeah, i did those time outs with my daughter when she was younger. i am afraid to get hurt if i do it with SS. first i will try the carpet. i don't think he is hurting himself when he hits himself. he used to hurt himself and hit really hard but it doesn't look like he's doing hard anymore and it doesn't leave a red mark. i actually have a squishy helmet for him but i haven't used it since he figured out that leaning waaaay over means your going to fall.



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10 Mar 2011, 2:07 pm

DW_a_mom wrote:
missykrissy wrote:
i don't think that most parents need to keep stuff like that locked up.


Irrelevent, isn't it? You do what works in your family, whatever makes your life easier. Especially when you have special needs kids.

You wrote in another post that you have softened a lot of things over what your husband would have done. Progress, right? One step at a time.


your right, it is irrelevant.



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10 Mar 2011, 2:08 pm

missykrissy wrote:
yeah, i did those time outs with my daughter when she was younger. i am afraid to get hurt if i do it with SS.


He.Is.Five.



DW_a_mom
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10 Mar 2011, 2:34 pm

ediself wrote:
missykrissy wrote:
yeah, i did those time outs with my daughter when she was younger. i am afraid to get hurt if i do it with SS.


He.Is.Five.


My friend's 6 year old broke her nose. Happens.

But the way I was taught to do the hold there would have been little chance of my son hurting me. He's also a small kid; some parents here have had pretty large and strong kids. Just so glad my son self-regulates at 13 because he has now outgrown me!

If the carpet works, I actually think it's a better solution. The holds always felt extreme, and I would never have done it if it hadn't been recommended by a sweet, attachment-parenting-type psychologist.


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Last edited by DW_a_mom on 10 Mar 2011, 2:36 pm, edited 2 times in total.

missykrissy
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10 Mar 2011, 2:35 pm

liloleme wrote:
If you go back to this post http://www.wrongplanet.net/postp3282815 ... t=#3282815 that was posted already you will see that I tried very hard to offer help to you and you ignored me and the other people that tried to help. If you think I dont understand try reading my posts that I put up for you explaining the things that I went through with my son. Im sorry if I came off as abrasive but your son is going to end up like mine if you dont do something. Ive walked down that road....actually mine could actually have been more rocky as it seems you have a supportive husband. I am not perfect...far from it! The thing that makes me angry is you have not only a diagnosis for this child but you have help and people who are willing to help you but you ignore this and just continue to put up angry posts about this very young child. Thankfully my son is trying to put his life together but he is still impulsive, and obsessive and he is nearly 24.
I know how you feel (frustrated and angry) however I dont condone your attitude that you express here. Just wanted to let you know that I did try to help you. My son at five lit the house on fire in the middle of the night...and not just on one occasion. He would also go out the windows (we finally had to nail them shut) and turn on the neighbors water and flood their yard. These were obsessions for him but at the time I though I must be the worst Mom on the planet because I had no control....I didnt know, I didnt know what Aspergers or Bi Polar disorder was....I was just told I was a bad Mom, I spoiled him! You know, you are aware of the problem....Please use the information available to help you and your child!

Just wanted to add one more thing. My younger children both have Autism and parenting them is so different....no they are not perfect either...the difference is, is that I am informed and I know WHY they do the things they do and I know how to deal with it. I understand that your other children have ASD and you say you deal with them alright. So maybe this child has other problems and needs to be dealt with differently. You have no idea how much I wish I could turn back time....my baby has Hepatitis C from sticking dirty needles in his arms....Do you know what that feels like???? Im just so sad for this little boy because he sounds so much like my son...this is why I wanted to help but you are so angry and so sure that you know what to do, but if that was true you would be having so many problems. Im sorry but this just hurts me and Im sorry Im taking it personally but like I said, your son mirrors mine and I just cant help it!
Im a hysterical shaking mess now...Im just so sorry...Im so sorry


i see you suggested i read a book about bi-polar and offered me to pm you if i wanted.
all the other suggestions on that thread don't make sense to me. things like 'get your son help' i have been working on for years. ' 'talk to him instead of at him' i do talk to him but not when he is freaking out cause he doesn't hear me and when he is done i talk to him but that conversation becomes irrelevant to him by the time he is angry next time.
'smoothing transitions' 'help him regulate' and other such advice other people give me doesn't mean anything to me. there is no actual instruction i can use to help him with because there are no steps to smoothing and regulating. i know what it means but that doesn't help me know how to do it. and the advice on that thread that not wanting to pick up the toys is the same as not being able to........ i'm not buying that because it's not true. by the way, it wasn't true because he doesn't do it anymore. now he helps me pick up toys or laundry when i ask him to. he did know how and he really was just refusing to do it because he didn't want to do it. i just needed to not let him get away with having a meltdown and saying he couldn't do it. yes it was annoying and it caused him stress but i stayed on him every time i asked him to do it until he did it. now he doesn't even try to get out of it.



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10 Mar 2011, 2:40 pm

DW_a_mom wrote:
ediself wrote:
missykrissy wrote:
yeah, i did those time outs with my daughter when she was younger. i am afraid to get hurt if i do it with SS.


He.Is.Five.


My friend's 6 year old broke her nose. Happens.

.


:lol: my son broke my nose when he was 2, he jumped up as i bent to pick him up from his crib. It didn't make me go buy a shield and armour to protect myself from him though...



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10 Mar 2011, 2:51 pm

missykrissy wrote:
i see you suggested i read a book about bi-polar and offered me to pm you if i wanted.
all the other suggestions on that thread don't make sense to me. things like 'get your son help' i have been working on for years. ' 'talk to him instead of at him' i do talk to him but not when he is freaking out cause he doesn't hear me and when he is done i talk to him but that conversation becomes irrelevant to him by the time he is angry next time.
'smoothing transitions' 'help him regulate' and other such advice other people give me doesn't mean anything to me. there is no actual instruction i can use to help him with because there are no steps to smoothing and regulating. i know what it means but that doesn't help me know how to do it. and the advice on that thread that not wanting to pick up the toys is the same as not being able to........ i'm not buying that because it's not true. by the way, it wasn't true because he doesn't do it anymore. now he helps me pick up toys or laundry when i ask him to. he did know how and he really was just refusing to do it because he didn't want to do it. i just needed to not let him get away with having a meltdown and saying he couldn't do it. yes it was annoying and it caused him stress but i stayed on him every time i asked him to do it until he did it. now he doesn't even try to get out of it.

Ok. I will be as concrete as I can, since you actually ask for advice.
Smoothing transitions: this means warning him 10 minutes in advance if you're going to turn off the television, and repeating it again 5 minutes before, making sure he heard you. The fact that he complains is irrelevant, what matters is he knows what unpleasant thing is going to happen. He has to be warned like this about: every dinner and breakfast ,showers, time to clean, time for bed, shopping and every outing, and anything that means a change.
For bigger things like outings and visit to a doctor, warn the day before and keep reminding him.
Help him regulate: this is a bit vague and fuzzy to me too, but i would translate it by: give him ways to calm down. It may be rewards , as in if everything goes well at the store you can play a video game when we get home, or it can be a way to calm down on the moment, as in directing him to a quiet place , for instance the book section of a store, and look at a few book with him in silence if he gets overwhelmed.
Only you know what will help him control himself (yes, HE has to control himself. It's hard work to learn that)
Last thing: children grow up. My son was also adamant he couldn't tidy his bedroom when he was 4, and he still tried to pull it later, and i agree that it isn't true, but the one thing that is true is that : he may know where everything goes, taken separately, but he may only see the mess as a huge pile of indistinct stuff. You can help him by showing him: make with him a pile of legos, a pile of clothes, a pile of cubes, and then show him that once this part is done, the whole work is done, all you have to do is put everything where it belongs. You need to teach him how to clean up before telling him to do it!
hope I helped.



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10 Mar 2011, 3:09 pm

DW_a_mom wrote:
ediself wrote:
missykrissy wrote:
yeah, i did those time outs with my daughter when she was younger. i am afraid to get hurt if i do it with SS.


He.Is.Five.


My friend's 6 year old broke her nose. Happens.

.


that is what i'm afraid of. he is five(only a few days until 6) but he has a hard head that hurts when he smashes me with it. he also bites and scratches and kicks and elbows. with my daughter she would resist but she never was aggressive about it. SS is already aggressive and i'm pretty sure holding him on me would only make that worse and he would do anything he could to get in a good kick or bite......



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10 Mar 2011, 4:33 pm

Something I've been meaning to add: when you are having a good day, and are able to chat wtih your ss, that is a good time to see if you can eek any information out about how he viewed what was going on in the bad days. Sometimes to make it less personal you might ask about a fictional character going through what he did. Take everything the child says seriously; try not to lead or put words in his mouth, but to really learn how he saw it. He has no incentive to lie once the consequences are over and done with, and the information can help guide future decisions. That is we learned how difficult it is for our son to expand a rule that he learned in situation A, to situation B, and how sensitive he really is to certain things that he pretends not to care about. We also learned how afraid he was of his own meltdowns, how much he did NOT want that behavior to happen, but couldn't help it. Understanding can be difficult, because he may not known the right word for what he is trying to say, so it is also a time to be careful about taking him too literally.


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DW_a_mom
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10 Mar 2011, 4:39 pm

missykrissy wrote:
DW_a_mom wrote:
ediself wrote:
missykrissy wrote:
yeah, i did those time outs with my daughter when she was younger. i am afraid to get hurt if i do it with SS.


He.Is.Five.


My friend's 6 year old broke her nose. Happens.

.


that is what i'm afraid of. he is five(only a few days until 6) but he has a hard head that hurts when he smashes me with it. he also bites and scratches and kicks and elbows. with my daughter she would resist but she never was aggressive about it. SS is already aggressive and i'm pretty sure holding him on me would only make that worse and he would do anything he could to get in a good kick or bite......


My son was highly aggressive during those episodes. I acted as a straightjacket so outside of head butts he couldn't have hurt me; he was still too small to escape the straight jacket. It felt like it acceleated the release of the anger and frustration until he literally went limp. I don't know, I still have mixed feelings about it, but it is a tool and it was effective. I think we did that through age 9 or so.


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10 Mar 2011, 6:52 pm

I just wanted to respond to the holding thing. I used to have to sit on my oldest because his meltdowns were "scary" he had this wild look in his eyes like he was no longer there. I didnt hurt him and he was older when I did this but this helped him to regulate and he needed me for that. If I tried to hold my 5 year old Autistic daughter it would just make her worse. I talk to her gently and I offer things to her that help her to self regulate like her stress toys (squishy balls officeplayground.com is a great place to buy this stuff) or her blanket. My 8 year old Aspie son gets very angry with his sister and sometimes she hurts him but I have to deal with them on different levels. Once we establish calm I talk about my son about how he felt and how he can go in his room away from his sister when she is on his nerves or he can come to me and I can keep her away from him. I redirect my Autie a lot because she still does not understand that breaking her brothers toys hurts him but I tell her that it does and I tell her that she made him sad and I ask her to apologize.
A lot of the "naughty" things my daughter does she does out of boredom. We have no therapy yet since we moved to France (STILL) its finally starting next week. I have a autoimmune disease that leaves me in extreme pain at times so its difficult to keep her engaged.
To misskrissy, I dont think its wrong to teach your kids to pick up after themselves or to teach them manners. I dont allow my kids to talk to me like crap and even my Autie can pick up her toys....actually she enjoys it because she has color coded bins and her need for order and patterns makes this fun for her.
The things I would have done differently with my older son is I would have made him toys that fed his obsessions. He did not ever play with toys but he loved knobs and buttons so I could have made him a board with light switches and knobs, ect. and a board with locks and keys. I could have given him nails, boards and a hammer to feed his obsession with tools. I could have made him a sand and water table. He craved sensory imput....a trampoline like I have for my kids now. These things would not have fixed him but they would have stopped or curbed the destruction. I always say an idle J.T. (my son) is a scary thing!....Also I would have known how to talk to him instead of at him. I would have asked him how he felt when he cut the cord off the VCR and what did he think would happen? He may have not known but I should have made him feel safe enough to try instead of screaming at him about how much it cost. He didnt know what he was doing, his impulsivity and his obsessions will always be a problem for him. He was like a little scientist, he wanted to find out what happened when he did this or that, this was why he needed healthy ways to express and explore. I wasnt teaching him in the right way, I wasnt talking to him and explaining to him in the right way and i was not responding to him in the right way. With my 8 year old I relate things that he does to things that have been done to him, that way he understands how his actions effect others. Like, if he hit his sister or takes her toys I ask him to remember how he felt when a neighbor hit him or took his toy, then he makes the connection. Also when I talk to my kids I talk to them alone. In their room or my room, when they are calm. Yeah this may be a pain and difficult but its better than being frustrated and angry and not enjoying your child at all.
When I say get help....get a psychologist, a behavior therapist? Someone to help you to understand this kid if you cant.
Sorry if Im not helpful enough but as parents of these kids we need to do our detective work and find out what is going on and what can help them to understand what you want of them. My kids are worth the extra effort I put into them....Im in so much pain I can hardly get up in the morning some days but these are my kids and they need me to prepare them for the world and the world can be an ugly place and no place for someone who has no control over themselves and no understanding of why they do some of the things they do. We need to prepare them for life not bash them in the head with it! (that was metaphoric by the way)



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10 Mar 2011, 8:54 pm

missykrissy wrote:
i find it funny when you said no children should have access to shampoo or makeup. most children wouldn't bother messing with it because they know what it is, what it's for and that it's not for them. they can usually see oh, that's put up high so they know it's not for them. not many would climb up the back of the toilet and onto a shelf to get at it, or for shampoo climb up the toilet and onto the sink to be able to reach it. i don't think that most parents need to keep stuff like that locked up.


i once walked into the kitchen to find my middle son clinging to the side of the fridge, way up at the top, like a monkey. he had used drawers to climb up onto the counter, then stood on stuff on the counter to get a hold of the top of the fridge, and was half way up the rest of the way when i found him. he was *3* at the time. we tried baby gates to keep him out of rooms, he learned at 2 to push furniture around to use as a ladder, an office chair against the gate on one side, up and over, and then a kitchen chair against the other side to get back. hes 7 and i still find chairs in funky places in the kitchen. nowadays i dont bother telling him to get down, i just tell him to remember to put the chairs back where they belong when hes done. my other two never did this to such a degree, but the difference is that they are not problem solvers. my middle son is, he will figure out a way to do anything he wants, and that will serve him well in the future. but it is definitely hard as a parent now to keep him safe while not dampening his spirit.

btw, never got an answer to my question on whether this is the same child who is odd, and whether he is officially diagnosed with that.

i would never try to hold my son during a meltdown, strictly because of the danger to myself, so i dont blame you there. 45 lbs of fury can do a lot of damage. even when hes not upset, he has a complete lack of knowledge of where his body is in space (hence all his sensory seeking behaviors), and he has hurt me on many an occasion, to the point that i instinctively hold my hands up to protect myself when he comes close to me. hes only 5, but his skull is hard enough to give me migraines and almost break my nose a few times, as well as being kicked or hit more times than i can count, usually when hes happy and bouncy. ive learned to never put your face near him and cover the vulnerable spots!

your sons rough start really breaks my heart. no child should start out life that way. i do wonder what kind of things he experienced while in foster care that could have influenced the behaviors you are seeing. how can a child feel loved and wanted when he gets shuffled around?


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10 Mar 2011, 9:18 pm

sorry, i missed answering your question and a few others because i have my computer away from the kids and don't go online when i'm watching them. posts have been piling up faster than i can answer them. yes, he is the same boy that has ODD and yes, he is officially diagnosed with that, ADHD and pdd-nos. i'm not sure that he has the adhd although i know his symptoms qualify him to be diagnosed with that but i'm pretty sure the symptoms are from the other things. he also just went to get some genetics testing done, they have been planning on diagnosing him with FAS but when they finished his measurements they also decided to test for Fragile X and other chromosone disorders because the measurements were 'off', whatever that means. he doesn't have any features that stand out to me as unusual though. it will be months before we hear back from them though.

DW_A_mom asked me about my house lay-out as well. right now SS has the third floor, which is all one big room that is divided by the top of the stairs and a railing. the second floor has 2 bedrooms, one being the master which is the boys room where the other 2 boys sleep and play. DH also sleeps there most of the time because he hates sleeping on the couch. the other bedroom is really small which is my 12yo daughters room. the bathroom is also on that floor at the bottom of the stairs to the third floor. the mainfloor has the living room, the kitchen and the laundry room. the living room/dining room is pretty big and it's where we spend most of our time, we eat there and i also sleep there. it is the size of the whole second floor as it was the original house but now the walls are all torn out to make it one room. the kitchen comes off the living room. it's a descent size but it is also used as the computer area and storage because there are no closets or cabinets or storage areas in the house, and off that is an extremely small laundry room. there is also a basement but it's unusable because it floods on a regular basement. i can't really do any major changes to anything in the house because it's a rental. i do know that based on the lack of space to put anything away i will never move into a home this old again. i keep checking for something bigger with a yard and more bedrooms/bathrooms in the classified ads but so far no luck unless i can come up within my price range.
someone else asked me if stealing is the only way he can get things he wants. i'm pretty sure they just said it to be insulting but i'll answer it anyways. NO. when we go to the mall i normally buy one thing for each kid even if they aren't all there, which they get to chose out of options i provide. i am open to suggestions as long as it's not something that would be way too irritating or expensive. big toys are reserved for birthdays and special occasions. if i had known he suddenly found his mitts unacceptable i would have went through the mitt box at home and helped him find a different pair and if there was a reason none were working for him i would have bought him new ones. i have since gone through the mitt box with him and he picked out a pair of gloves that seem to be working for him. i would not have chosen them for him because i don't think they are warm enough but he says they are and i put a pair of mitts in his backpack incase he gets too cold. when he needs things i get them for him. i pick out what i know he likes, his shirts need to have buttons, his pant need to be stretch, ect. i do sometimes say no when he wants something like anyone else would but if it's reasonable then it's okay. usually he only asks for toys, mostly hotwheels cars. he has probably 1000. the one and only thing i say no to everytime is girl clothes. he really wants glittery shirts and things that have lace on them. he is allowed girl toys and has many little purses and baby dolls all of which he picked out for himself. he has one pink glittery hand me down shirt he is allowed to wear to bed or on the weekend if he asks for it. he also gets glowsticks everynight regardless of his behaviour and usually ends up with a pile of them because everyone else gets bored with theirs in a few minutes and gives them to him.
on being strict... i didn't think i was all that strict. i have 7 rules and i expect them to be followed by everybody. things like no hurting people, no spitting, no stealing, listen when mommy and daddy are talking to you, no swearing, no being distructive and no talking rudely to the adults. if i remember correctly when i was a kid there were at least 25 rules posted on my bedroom door along with a chore chart, a list of everything i had to do each day and a paper for my parents to keep track of chores i've done to see if i earned any allowance that week which was $2. i don't even make them make their beds properly(or at all) i actually thought i was pretty flexible compared to how i was raised. now i have to learn a whole new way of doing everything...... i was suggested in pm to re do the rules list and involve the kids(specifically SS) so that they will be more willing to co-operate with the rules and understand them better. i am planning to do that tomorrow if the boys are feeling okay(flu). well, i think i should mostly include the 4yo and SS because i think they are the ones who could really use it.



Last edited by missykrissy on 10 Mar 2011, 10:04 pm, edited 1 time in total.