zette wrote:
From what I've heard, even partents of the severely affected (ie needing 24 hour support) have a hard time finding services after they age out of the school system, so I'm not surprised the OP is not finding much help.
I have relatives in their 30's in such a situation and they are in SSI and live in group homes. However they were receiving services since a young age, and it wasn't always easy on the parents.
I am assuming that my son (age 4 and still barely communicative) would, worst case, have a similar living situation once he's an adult.
momsparky wrote:
earthmom wrote:
If you would like to see the other side of your parents, start being drunk regularly, smoke when they say you cannot in their home, break things that you cannot repair or replace. Treat them rudely, call them names, be totally ungrateful, complain that your favorite food isn't purchased. Do that for the next 10 -15 years or so and write me back to tell me how nice your parents are and how they just do what they can to get by and try to understand you and manage you without negativity.
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Once again - this forum is for PARENTS and this thread is directed toward PARENTS.
Children are absolutely going to have a child's viewpoint on this subject.
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Once again - this forum is for PARENTS and this thread is directed toward PARENTS.
Children are absolutely going to have a child's viewpoint on this subject.
I can understand that you have been through an extremely difficult time and that your situation feels impossible right now.
However, I would like to respectfully point out that the value of WrongPlanet's Parents' Discussion is the inclusion of feedback by adults on the spectrum. It is the sole reason I am here and not on some other autism forum for parents, I find that experience to be more valuable by far than any other resource out there - otherwise, I would have had no idea how to gain my son's perspective on things, nor find out what the real outcomes to different approaches have been.
For instance, you might ask littlelily613 what it is that her parents do that prevents the types of behavior you are having trouble with?
The main service I was thinking of was respite care.
One technique I use with my son that may be helpful to you: I go "on strike." I announce that I expect to see improvement in my son's willingness to share the responsibilities and until I do, I will do none of the work to take care of him. I have gone so far as to make myself a single-serve meal, take it to my room, and eat alone. This could extend to eating out instead of shopping, removing and storing away any dishware that wasn't cleaned and put away, etc.
It also strikes me that your problem is not really autism, but family dynamics. You might benefit from a visit to a family counselor. It isn't as though similar situations don't happen in NT households - a good counselor should be able to help you set boundaries and expectations that are reasonable for everyone involved (for instance, I think it's fair for you to call the kitchen off-limits after a certain time.)
We are all armchair-quarterbacking here in an attempt to help - but the truth is, an anonymous forum is not really the best place to get an intervention.
Your strike "on strike" method would pose a problem with me because unless I was told specifics as to what responsibilities I'm supposed to share I would not know how to share the responsibilities. Telling me to share in the responsibilities more to me is to vague.
a. What would be my tasks?
b. When would you want them to be done?
c. How often?
Do you understand where I am coming from?
League_Girl wrote:
StrayCat wrote:
League_Girl wrote:
StrayCat wrote:
EDIT:
Quote:
He smokes, in a home that is strictly no smoking, and drinks (during which he has broken things in the house that neither he nor I can repair) So the house is being torn up and not fixed, and it stinks - badly.
That is a good reason to kick your kid out, AS or not. To hell with their disability.
A loving, responsible parent would find someplace else for their child; maybe a group home where they're equipped to deal with him? I just cannot hear you say these things and think positively about you as a parent. I could never throw my child out on the street, respect sadly knowing they had a disability. The reason it offends me so much is because your attitude reminds me of my mother's. I got kicked out because I wore black clothes and vinyl pants, and listened to Marilyn Manson....and was a reminder of her first marriage, which ended when my adoptive Dad died.
I'm sorry, you're just coming across really mean to me. You have you're reasons, but I don't understand you.
Maybe because I have had a bad experience? I tried helping him but he always blew me off, always had excuses and everything. Now I have low tolerance for any slobs and rude and inconsiderate people. especially smokers and drinkers and destroy the house. And the OP said about not having any money to keep paying for their care so I assume it means having to pay for their group home. Seriously, what do you expect someone to do in that position? Suffer? What if he was abusing her too like beating her and threatening her and she wasn't safe? So I would go the "mean" way and kick him out. I am sure my own mother would do the same too if I were like that.
Also, were you a smoker or a drinker? Did you destroy your parents property? Did you steal from them? Did you abuse them? Were you rude or disrespectful to them? Did you help clean up after yourself? If you answers no to all of them but the last one, I don't see why this would hit close to home with you. I would never toss my child out unless they were that bad like the OP listed and what examples I listed.
I used to smoke but I quit. To me, alcoholic beverages taste nasty. I never could stomach the taste. I do not even know how people drink the stuff.
Let's say you and I lived together. For me, I would need to know what your rules were and where stuff went. Let's say I see something that belonged to you and I didn't know what it was. Let's say you're not around to ask about it. What do I do with it? What if I don't know the designated place for it? Is there a temporary spot to place it at? For me, I get stuck when this is the case with my wife.
cubedemon6073 wrote:
Your strike "on strike" method would pose a problem with me because unless I was told specifics as to what responsibilities I'm supposed to share I would not know how to share the responsibilities. Telling me to share in the responsibilities more to me is to vague.
a. What would be my tasks?
b. When would you want them to be done?
c. How often?
Do you understand where I am coming from?
a. What would be my tasks?
b. When would you want them to be done?
c. How often?
Do you understand where I am coming from?
I didn't go into specifics, but in cases where I used this technique, we are talking about my son refusing to do tasks he is aware are his responsibility, and I do check to make sure he understands before I do this.
momsparky wrote:
cubedemon6073 wrote:
Your strike "on strike" method would pose a problem with me because unless I was told specifics as to what responsibilities I'm supposed to share I would not know how to share the responsibilities. Telling me to share in the responsibilities more to me is to vague.
a. What would be my tasks?
b. When would you want them to be done?
c. How often?
Do you understand where I am coming from?
a. What would be my tasks?
b. When would you want them to be done?
c. How often?
Do you understand where I am coming from?
I didn't go into specifics, but in cases where I used this technique, we are talking about my son refusing to do tasks he is aware are his responsibility, and I do check to make sure he understands before I do this.
ahh ok I missed this presupposition you had.
Quote:
Perhaps I should delete this thread. Most of the responders are offended that I've brought a bit of reality into their lala land of "little child with AS". Maybe it's too much for you all to consider any of this. Maybe your mind has to make me a bad person because this would NEVER happen to you, you're a good person. (?) And maybe you just assume your child will grow up fine and all of these issues will be gone and things will be happy and rosey. I hope so.
OK, I think you have insulted enough of us by saying that we are unrealistic and naive. The collective wisdom of this group is inspiring. You have had lots of great suggestions from others and have responded with sarcasm. Your inability to cope with your situation seems to be to be connected to an overall lack of respect towards other human beings. When things are bad (and they have been for all parents and all adults with ASD on this forum or, actually, in life) we have to delve deep in order to be good people and find solutions that are compassionate and respectful. For parents, that can mean changing ourselves rather than our partners and children, changing our environment and lives, or trying harder to really understand what our children really need. Most of us are doing all three of those things every day. Which one would you like to try?
J.