Giving my son hope
Hello all,
First post, hope this isn't a selfish use of the forum!
By way of introduction: my son is 10, and over 100 pounds and well into puberty. His psychiatrist diagnosed him with Asperger's and ADHD. His IQ is normal, yet it is extremely hard to teach him anything. He is utterly unable to organize anything. He has no friends or hobbies and few interests. He's quiet and usually well-behaved at school, but with a few behavior problems cropping up. At home is a different story. He has mood swings and can become violently angry over trivial things. He kicks holes in the walls and breaks things. Exercising helps but it's hard to make him do it. Noise is painful to him. His perception of reality is a bit odd sometimes; for instance over school work he tells me, "That's what I said!" after I correct him. It's very challenging to get him to eat regularly, get him to sleep, and to get him to maintain his hygiene.
He's never been abused in any way and lives comfortably in a very stable home in a nice neighborhood with both parents and a supportive sibling. While nowhere near perfect I think we do make it clear that we expect things of him, and we also try hard to make him comfortable. He's never been abused in any way. His psychiatrist has him on Zoloft for depression and Adderall to aid his concentration. I'm not sure they are having much effect honestly, other than seemingly giving him headaches.
I wonder if anyone can suggest something we can do to inspire our son. He can't shake his depression and feels numb and dissatisfied all the time. He knows perfectly well that he's not a good student, or socially adept, or good with his hands, and doesn't like himself much. We've tried so many things but nothing seems to engage him. His only interests are reading, action figures and video games. I try to boost his self-esteem, but it's so hard to stay positive when it's a struggle to get him to do the simplest thing. I'll be grateful for any and all suggestions about what we can try with this unhappy child.
I wonder about the Zoloft. I was prescribed Zoloft for postpartum depression and the numb, dissatisfied feeling came AFTER the Zoloft (although I suppose it was better than the despairing, suicidal feeling that it replaced). Have you tried different meds? I know it's tricky prescribing SSRIs to kids and adolescents and I think Zoloft is one of the less-bad ones, but when I described my feelings of numbness and ennui to my shrink, he did say those were common side effects. Hopefully someone who's had better luck with antidepressants will be able to suggest an alternative.
As for books, when I was that age (well, any age over 4, really) I found them a wonderful escape from all the external troubles. Since he enjoys reading, perhaps books about kids with Asperger's (or better yet, BY kids with AS) would help give him a self-confidence boost. Wish I could help more! That is just such a tough age for kids who are different from their peers.
10 years old was definitely a tough part of life for me socially. I can certainly empathize with your son's difficulties.
Looking back on my own childhood, here are some things I found play a huge role in initiating friends/interest/hobbies:
Outdoor Activity (sports, hiking, camping, developing an awareness of the natural world, etc.)
Activity that is Relationship-Centered (boy scouts, sports, deliberate long-term role models, father/son outings)
I'm only saying this because (as much as it seems very basic and strange) none of these basic facts ever occurred to me. I went without all of them pretty much. I went from 10 years old to 29 years old without giving any of it much of a second thought.
Looking back, I can see how much of a basic foundation it gives in knowing and relating to people. It helps provide a point of reference outside the individual.
I don't know that I was any more-or-less capable than my fellow students, but for whatever reason I would've benefitted from a little more "outside orchestration" in my involvements. I think some kids figure this out naturally and some kids need a more deliberate invitation.
I'm just throwing this out there as an adult male as a "been there and this is what I've found to be true..."
Sounds like your son is in good hands and he has a lot going for him. Will be wishing the best for all of you.
Also, supposing his motor skills/coordination is a bit off compared to the other kids, there may be more enjoyment for him in sports that as aren't directly competitive. Maybe something that can he learn and adapt to at his own particular level, something like karate lessons, track, etc?
I think you should try looking at it from a different angle. Many AS are "inspired" by reading, action figures, and video games. There is nothing wrong with having interests focused in these areas, and they can be turned into social opportunities and even careers. Start with what you know he likes instead of trying to engage him in something different. Different can be frightening to someone with AS, and you might find your efforts backfiring.
In middle school some kids start to form social groups around RPG games like Dungeons and Dragons or Warhammer. Specialty game stores offer activities, workshops, and tournaments. Take him into one of those stores and see if it sparks anything in him.
Since he likes playing video games, consider downloading the freeware version of GameMaker, and let him try his hand at programming his own game. You may also be able to find summercamps or afterschool programs that teach GameMaker programming (they are costly, however). A group of kids huddled around computers may not seem not a good time to you and me, but it can be heaven for an AS child. Why not run with it? Your child will start developing an interest in a marketable skill if he does.
I am also concerened about the medication. Anti-depressents can have dangerous side effects in teens and cause terrible problems in young AS kids. Being uninterested and inactive - even numb and with a negative self image - does not always mean a child is depressed; I assume there was something more to the diagnosis? Your child most likely has had very frustrating experiences in the outside world and negative feelings would be a logical response to that. Chemical depression is something that happens in spite of the outside world, not as a reaction to it, and Zoloft is for chemical depression. Recent studies are also showing that anti-depressents are no more effective than a placebo, so I really question this as a solution for an AS child. Anxiety or extreme AHDD can be different matters, and quite a few families here have had success with medication for those, but anti-depressants are NOT a normal protocal for an AS child. AS kids get upset by a world that is confusing and hostile to them, regardless of how well intentioned that world may be in reality, it often does not seem that way to an AS child. Bridging and understanding this divide will help far more than medication or medical treatment.
The place I would start is by getting further inside your son's head. Learn how AS kids view the world, and use that to help you guide your interactions with him. Don't try to squash his "weird" behaviors at home, as he probably needs these to self calm and center. I would assume that you are already controlling the noise in your home but if not, do so. Read and understand, if you have not done that already.
I could be missunderstanding some of what you wrote, so my apologies if I am saying things you already know and have tried.
_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).
We're seeing the psych tomorrow. I'll ask to try different meds. Thanks for the suggestion!
I will look for books like that. You have helped, thanks so much for taking the time.
10 years old was definitely a tough part of life for me socially. I can certainly empathize with your son's difficulties.
Looking back on my own childhood, here are some things I found play a huge role in initiating friends/interest/hobbies:
Outdoor Activity (sports, hiking, camping, developing an awareness of the natural world, etc.)
Activity that is Relationship-Centered (boy scouts, sports, deliberate long-term role models, father/son outings)
I'm only saying this because (as much as it seems very basic and strange) none of these basic facts ever occurred to me. I went without all of them pretty much. I went from 10 years old to 29 years old without giving any of it much of a second thought.
Looking back, I can see how much of a basic foundation it gives in knowing and relating to people. It helps provide a point of reference outside the individual.
I don't know that I was any more-or-less capable than my fellow students, but for whatever reason I would've benefitted from a little more "outside orchestration" in my involvements. I think some kids figure this out naturally and some kids need a more deliberate invitation.
I'm just throwing this out there as an adult male as a "been there and this is what I've found to be true..."
Sounds like your son is in good hands and he has a lot going for him. Will be wishing the best for all of you.
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Thanks so much for helping. I really value your first hand point of view. Glad to hear that you made it through intact! I'm also glad that my son's problems have had a positive impact on you, even if it was only to make you reflect on your own life.
I like your ideas and I've already started looking into them. I think the Boy Scouts may be too much responsibility for him to be enjoyable, but there are a couple of other outdoors groups around here.
We've heard the structure thing a few times now. I'll start getting more strict about it.
Thanks for your concern!
He's been playing soccer and is doing taekwondo. The soccer has a been good for social reasons, but it is starting to get more competitive so that may be out next spring. Taekwondo is pretty good, only I'm worried that it will bother him to watch other kids advance faster. I'm making it clear to him that he's doing it for exercise and confidence, and that he should just do his best and not worry about achieving anything in particular.
In middle school some kids start to form social groups around RPG games like Dungeons and Dragons or Warhammer. Specialty game stores offer activities, workshops, and tournaments. Take him into one of those stores and see if it sparks anything in him.
Since he likes playing video games, consider downloading the freeware version of GameMaker, and let him try his hand at programming his own game. You may also be able to find summercamps or afterschool programs that teach GameMaker programming (they are costly, however). A group of kids huddled around computers may not seem not a good time to you and me, but it can be heaven for an AS child. Why not run with it? Your child will start developing an interest in a marketable skill if he does.
I am also concerened about the medication. Anti-depressents can have dangerous side effects in teens and cause terrible problems in young AS kids. Being uninterested and inactive - even numb and with a negative self image - does not always mean a child is depressed; I assume there was something more to the diagnosis? Your child most likely has had very frustrating experiences in the outside world and negative feelings would be a logical response to that. Chemical depression is something that happens in spite of the outside world, not as a reaction to it, and Zoloft is for chemical depression. Recent studies are also showing that anti-depressents are no more effective than a placebo, so I really question this as a solution for an AS child. Anxiety or extreme AHDD can be different matters, and quite a few families here have had success with medication for those, but anti-depressants are NOT a normal protocal for an AS child. AS kids get upset by a world that is confusing and hostile to them, regardless of how well intentioned that world may be in reality, it often does not seem that way to an AS child. Bridging and understanding this divide will help far more than medication or medical treatment.
The place I would start is by getting further inside your son's head. Learn how AS kids view the world, and use that to help you guide your interactions with him. Don't try to squash his "weird" behaviors at home, as he probably needs these to self calm and center. I would assume that you are already controlling the noise in your home but if not, do so. Read and understand, if you have not done that already.
I could be missunderstanding some of what you wrote, so my apologies if I am saying things you already know and have tried.
Thanks so much for your thoughts! I like your idea of trying to make something positive out of his video gaming. Of course we let him read and play with his figures as much as he likes, but the video games have been a source of friction. I have tried to get him to have friends over to play games with him, but very few of them seem to lend themselves to group activities. I'll look into GameMaker and WarHammer. He's tried D&D and liked it a little, maybe it was too abstract for him.
You're absolutely right about being afraid of new things. For instance, he HATES getting his hair cut, to the point where we don't warn him anymore, we just drive him there. It seems cruel to make him fret about it for longer than necessary. Frustratingly, he feels quite good after the hair is cut. Sigh.
I try not to scold him about weird behaviors. I've given up on his posture, for instance. Other things I'm stricter about, for instance I bug him as much as necessary to make him bathe correctly and to eat somewhat politely. My reasoning is that smelling bad or terrible manners are more harmful than the nagging. We often clean his room for him, which seems to make him feel good.
Before the recent Newsweek study about SRRIs, there was another one that showed that exercise is at least as effective. It certainly seems to help. He is always crabby on the way to taekwondo and always relaxed on the way back, but he doesn't seem to grasp this connection. I'll ask the doc tomorrow about maybe trying exercise only.
An Australian study recently showed that kids taking adderall/ritalin fared worse (!) than their ADHD peers in school, and also they had higher blood pressure. However, his teacher notices when we take him off the pills, so maybe this one is a good trade off.
Thanks again!
Hi Oliphaunt, do you have a link to that study? I would be very interested in reading it.
I agree with the posters who have said to help him find enthusiasm and inspiration in his interests. My sons (also 10yrs. old) have such a tough go of it, school is so hard for them, everywhere they go is a sensory assault and they are constantly getting the message that they don't measure up, so when we find something that they love or excel at we make a big deal of it. For instance when one son was into turtles and the other into crocodilians we visited every zoo & reptile house we could get to, and got every book & vid we could get our hands on. We did art, wrote stories & reports and helped them to learn about and explore their interests in every way we could. Not only did it bring us a tonne of enjoyment as a family, but they both gained the confidence of being "expert" in their chosen fields. Now their two great loves are Lego & Star Wars and we have delved deep into those worlds (I now know more about Star Wars than ever cared to know!
I am wondering if there is a certain series of books that your son particularly likes? Maybe you could start a book club with him and read them as well, then you and he could plan a themed party, outings, art projects, research a related subject, write fan fiction, watch any related movies or play the tie in video games etc. to spark his interest, have fun and give him a sense of confidence or competency about this subject. This could also be done with his favourite video game or toys. Get into his world of interest with him, and then have fun together while you help him expand it.
Hi Oliphaunt, do you have a link to that study? I would be very interested in reading it.
http://www.news.com.au/breaking-news/ad ... 5831266819
It's not clear to me that this study normalized the Ritalin and non-Ritalin groups; therefore it might well be the case that the kids who faced larger challenges in school tended to be the ones that took Ritalin anyway. This should be clearer in the article.
Thanks for your advice. "Everywhere they go is a sensory assault and they are constantly getting the message that they don't measure up." Yes, exactly! I think you've given me a good idea.
Best of luck with your sons!
Have you let him play any online games? Those lend themselves to socialization. It is remote socialization, but we might as well get used to that, as the younger generations tend to do more and more of their social activities online anyway.
Online games are also somewhat aspie friendly, as most of the social cues are explicit. It's a lot easier to understand a text word "<smile>" than to figure it out from possibly ambiguous facial expressions, for example.
Last edited by psychohist on 05 Mar 2010, 1:27 am, edited 1 time in total.
