Is it just me or is this profoundly disturbing?
I read this comment on a blog today, and was utterly shocked. I'm well aware of the cure controversy, but I've never heard anyone say that a cure is required EVEN for autistics who are perfectly happy. I am curious about your reaction to this statement:
"the need for services and a cure for those in this sector of the autism spectrum is great, not because they are unhappy with their lot in life but because society as a whole will not be able to sustain the costs of their care if we do not reverse the trend of an increasing growth in the autism spectrum."
The author seems to assume there is no other offsetting purpose to society in having people in need of societies financial support, and forgetting that the way society "cured" Downs Syndrome was to act before birth.
While I do worry about the costs to society of adults unable to support themselves, I've also observed that nature has a balance it seeks, and will find a way to create. It feels like Autism went up when Downs Syndrome went down; perhaps society is SUPPOSED to have members with a different perspective on things, who may not all be able to live independently. I don't think we can eliminate the types of autism this poster fears without some new condition rising up and taking it's place. Nature will seek its balance.
Of course, that author is also forgetting that many, many autistics ARE self supporting, and not a burden to society in the least, and that we all benefit daily by the inventions "functioning" autistics have created for society. Shall we "cure" those inventions and ideas away, too? Ah, perhaps this is one of those people who would say those adults are not truly autistic? That is the end of the spectrum where the growth seems to be most dramatic, however.
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Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).
DW, your post sums up my feelings exactly. So well said.
here's the link - I always hesitate to link to people's comments on blogs... I feel a bit like I'm outing them...
http://blog.cripchick.com/archives/8612
This person is an idiot. If they are worried about monetary costs to society, they should worry about those people who have been collecting unemployment for 2 years and not even attempting to look for a job. Or the 'single moms' out there that collect daycare and food assitance while living with their boyfriend for the past decade who makes $50k + per year.
Darkmysticdream
Raven

Joined: 15 Aug 2009
Age: 40
Gender: Female
Posts: 103
Location: Charlottesville, VA
I will sum this up with a phrase my Aunt gave me when I have to deal with stupid people:
"Empty trucks rattle the loudest"
The people who have the least intelligence will be the loudest and most voracious about hating others.
There are more NTs who are sucking off the system than people with autism. There are tons more NTs sucking at life than folks who are AS or Spectrum. At least we have passions!
This whole "cure" thing is just like the issues about people being bi/gay/trans/etc. People are just idiots when it comes to accepting anything other than themselves, and most of the time they hate themselves too.
Reading the whole context, I'm not sure he is meaning what we all are reading. I didn't read it all that carefully, but got the sense that to the author "cure" means anything that can help move a person from dependent to independent. And he does quite specifically restrict his statement to those unable to ever live independently.
Even then ... while I understand the sentiment, I would still suggest the laws of nature would work against the goal. Society has never been able to move 100% of its citizens into independence, and most likely never will be. And one still has to look at the meaning of productive. He's responding to a blog written by someone who is actually disabled; living dependent on society. But that voice is not silent, and it is not without its own type of contribution. One can, perhaps, be a productive member of society while still being dependent upon society for daily living needs. That has always been true of priests and religious leaders, hasn't it?
Mostly, I think those are the sentiments of a frustrated parent worried about what happens when he is no longer able to care for his own grown child. As a parent, you want that child independent so that their needs of daily living aren't prey to politics or the charitable whims of others. You don't trust the safety net; you want your child to be his own safety net. On that one person to one person level, concerned about the one child you love more than life and want to protect from everything you can, I think I can understand what the poster wants.
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Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).
http://blog.cripchick.com/archives/8612
Wildly off-topic, but how on earth can linking to someone's public blog "out" them?

Different matter entirely if it was some sort of private community of course. But then we wouldn't have been able to follow the link anyways.
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"The man who has fed the chicken every day throughout its life at last wrings its neck instead, showing that more refined views as to the uniformity of nature would have been useful to the chicken." ? Bertrand Russell
http://blog.cripchick.com/archives/8612
Wildly off-topic, but how on earth can linking to someone's public blog "out" them?

Different matter entirely if it was some sort of private community of course. But then we wouldn't have been able to follow the link anyways.
The comment quoted in the first post was a posted comment in response to the blog, it is not contained in the blog. It wasn't made by the blogger at all, but by a reader.
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Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).
That's a standard eugenics argument; it's been around for a long time. The only difference in this case is advocating cure rather than enforced selective breeding. I imagine, though, if a cure became mandatory he'd next complain that that's too expensive a burden and selective breeding or abortion should then be mandatory.
And that argument extends to all disabled people (even working ones, since 'accommodations' are an unfair and unaffordable expense put on businesses, right?), the elderly, orphaned children, and so on. It's a race-to-the-bottom argument that ends with some Spartan society where a lot of babies get drowned.
From 1926:
[img][800:954]http://www.autistics.org/library/1926exhibit.jpg[/img] (click image for into about the pic)
Did you read the context in which the author posted? I don't believe he favors eugenics at all. Certainly, it may be helpful to point out to him that this method of thinking can lead to B which can lead to C which can lead to D and so on, but jumping straight to an alarmist image and an alarmist terminology is a bit much. That kind of reaction makes the gaps wider, instead of doing anything to bridge understanding.
Hey, my first reaction was similar. But then I read the context. Many things take on nuance when you read their context.
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Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).
there is nothing in that posters comment saying that all autistics are required to take a cure. in fact, if you continue reading, his next post specifically states that those who are high functioning need not take advantage of cures if they choose not to. altho i disagree with his statement about their being two kinds of autistics,"“borderline” generally among the aspergers who generally can function quite well in the normal world" and those requiring 24/7 monitoring and care. that defies the entire idea of autism as a spectrum. there are a lot who are considered high functioning but certainly do NOT function well in the nt world, they simply manage to fake it better than those with a cognitive deficit would.
as i see it, the statement about the need for a cure is an emphasis on the fact that the cure is not just because someone is unhappy with their lot. that is a valid reason for taking a cure, but it is not the only reason. the poster is a parent, and i am sure the ability for their child to take care of themselves after the parents are gone is more than enough reason to consider a cure. how many parents of a disabled child unable to care for themselves, if faced with certain death, would NOT choose to give their child a cure that could allow them to live independently after the parent died? it would be irresponsible of a parent to NOT at least consider it.
i am much more alarmed by those who insist a cure should NOT be made available than those who promote a cure being researched. i have never seen a single person saying all autistics should be made to be cured whether they want to or not, but i sure have seen autistics saying a cure shouldnt be made available at all. its not neurodiversity if you are forcing people to live with a neurological condition they would rather be cured of.
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Neurotypically confused.
partner to: D - 40 yrs med dx classic autism
mother to 3 sons:
K - 6 yrs med/school dx classic autism
C - 8 yrs NT
N - 15 yrs school dx AS
as i see it, the statement about the need for a cure is an emphasis on the fact that the cure is not just because someone is unhappy with their lot. that is a valid reason for taking a cure, but it is not the only reason. the poster is a parent, and i am sure the ability for their child to take care of themselves after the parents are gone is more than enough reason to consider a cure. how many parents of a disabled child unable to care for themselves, if faced with certain death, would NOT choose to give their child a cure that could allow them to live independently after the parent died? it would be irresponsible of a parent to NOT at least consider it.
i am much more alarmed by those who insist a cure should NOT be made available than those who promote a cure being researched. i have never seen a single person saying all autistics should be made to be cured whether they want to or not, but i sure have seen autistics saying a cure shouldnt be made available at all. its not neurodiversity if you are forcing people to live with a neurological condition they would rather be cured of.
I have to go and read the post, but I did want to comment. I don't believe that anyone should be researching a cure. It's a waste of time and resources. Take the "cure" money and find effective solutions to help people who are impacted function in society.
I can understand wanting better for someone who has a co-morbid like mental retardation or seizures - that has a huge impact on what a person is capable of. But trying to cure Autism is like trying to cure old age. It's going to happen, better to be able to cope with it when it does.