Abnormal EEG

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Hi All,

Recently, I took my boy to the neurologist regarding staring spells. He had him get a sleep deprived EEG and found enough abnormal activity to suggest an MRI. He said there was abnormal activity in the crown of his head (didn't specify region otherwise) and that the activity he saw could be precursor to complex partial seizures. He felt like this information plus the info I had shared with him about the staring spells indicated taking more of a look. Has anyone else been through this? Is this something that's just par for the course with kids with Asperger's? I'm trying not to take myself down any scary paths in my head, but it's hard. I'm mainly just asking for support. Thanks.

Thanks for the reply. We're definitely following up and have already scheduled the MRI, but waiting to get it done is stressful. I was sorta hoping I'd get like a bunch of people chiming in to say, "Oh yeah, we've been through that, and we're ok." Apparently not! Ugh.

I'm new here, but have plenty of experience dealing with EEG's. My wife has Epilepsy (complex partial seizures) and has taken her fair share of EEGs. It can actually be helpful if your child had an "abnormal" result because that means they can at least on some level see a reason for the seizures. My wife's has never come back abnormal, but she definitely has the seizures. Anyway, there are many drugs available these days and there is a good chance that one of them or some combination will work for your son. It took some trial and error for my wife but she has been under full seizure control for a couple years now. I would check out the EFA forum (I can't post the link as I have too few posts but it can be found on efa dot org). My wife has found it very helpful to talk with others in similar situations. Good luck and hopefully you can find treatment that will help.

Thanks for the insight and the tip on the website. I'll go check it out!

My NT son started having staring spells a couple months ago, around 18 months. Same thing - EEG showed some suspicious activity. We had an MRI. I don't have the results yet, but I assume they were normal since I didn't get a phone call. We are waiting for our second EEG now. Yes, it is scary. This son doesn't have PDD (my older one does), but he has a suspected growth disorder. The waiting and scenarios playing out in my head are torture. I am so stressed out about all this.

Thank you for your response. The waiting is SO difficult! Our MRI happens this friday. I'm just hoping and praying that he doesn't get sick and we have to reschedule. I want this behind us soon.

I have no idea how long it'll be after the MRI that the neuro will call with results! I hope you get yours soon.