Roller-coaster thoughts about diagnosis

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After being in contact with so many of my sons class mates during this week from helping with the concert, I noticed that many things that I found odd with my son actually is "normal' for his age group, compaired between the kids.

I'm even asking myself if the dr could be wrong in ASD diagnosis, what if she is wrong and maybe all of this is just me overreacting and being overprotective..... ? But then again I remaind myself that 3 professionals came to the same conclusion regarding the ASD

But then again I look at my son laughing and interacting with his class mates and I think...."look at him....he blends in....there's nothing wrong"......

Is there any of you that also go through this?

Guess I can be so greatfull that his diagnosis is so mild? But then again, this is what I see while he is in therapy and on meds....Here I go again.....Roller-coaster...

It's good to hear you say all of this because you are obviously very caring! I'm not sure what to say about the diagnosis, but I'm just happy to read such a lovely post.

I had such a battle getting my son dx, he masks his difficulties no one but the family would see his difficulties. He has friends, gets on with all his classmates, involved in team sports. Very good at sports so this makes him quiet popular with his peers. Good looking so he gets lots of attention from the girls at school.

But it doesn't help with the stress from socializing and school, his anxieties levels are very high communication and language is a big problem. At times he finds it very difficult to express himself and tells me I don't understand. Sensory issues a big problem at school! Needs constant reassurance and encouragement a teenager at the moment so any suggestions I make usually end in disagreement or as he tells me stop annoying him. when I tried and explain things he takes it as criticism so I always have to be careful how I put things. At present I don't seem to get anything right but as I said teenage attitude on top of all the other issues. Sometimes I feel been HF which is positive can also make it difficult for others to see especially school and they feel they don't need to support the child as much as they should. Unfortunately its us the parents that have to deal with the lack of support and the distress, sometimes I feel I am the crazy parent.

Annmaria....I can just say ditto....it's like you are describing my son! The only difference is that at the moment he stopped all his sport....I think it's a combination of reasons! Ok...school sport...he is still very into skating....

I also think what made me so confused during this week is that he has enough 'strenght' to go up on stage and 'do his thing'.......And you are so VERY right: From outside everything seems so fine to other people and then they say things like: Stop worrying....he is doing great....see, you stress to much! The thing is...I know exactly how thin the line is between...behaving 'normal' and switching to becoming very emotional, oppositional and overwhelmed!

Ditto!

As an aspie I can fit in very well as I self taught yrs ago how to present what is expected
HOWEVER it is very stressful and I can get on overload that will effect days following
No one would suspect aspergers when I talk and function
If any one would have suspected I could have had help to deal with the things only I face alone as an adult now
You know your child so trust your instinct that they still need support and help even when they look "typical" that could indicate that is the height of need due to all it takes out of a person to present this typical exterior
Doesn't equate to diagnosis wrong just that you have done a great thing with the info you received to help your son! So congrats for that and listen to your gut or heart on what is really going on under the surface
Let's face it teen yrs are hard for anyone let alone one who is different- even if it is only on the inside Your son cracked the code on how to fit in however it is up to you to give a safe haven after all that work and know it is okay that he is different on the inside If he is like a lot of us it will continue to fade in outer life yet continue in the inner life As long as he feels this is okay and has a safe place to sort of unravel he will continue to grow into his life and all the challenges we face as adults

Thanx for the supportive words! I aggree totally that it is hard work for him, LOL for the mom also!
My son started crying one evening, months ago....saying, he is so tired because he had to work so hard that day at school, said he was very stressed. There was alot of social stress going on at that moment.....He is really giving it his all to just be accepted and to feel less different!

Yup, we totally have this. Took forever for the school to realize we weren't "helicopter parents," and we weren't secretly abusing our son, that DS genuinely has Aspergers. For years and years, I thought it was my fault, because he'd be fine for several months, and then kablooey.

Even last week, I was wondering whether we're taking the therapies, etc. too far...and then this week, his schedule was just a little off, and we had really serious school refusal and mild tantruming (DS is 11.)