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0031
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17 Feb 2012, 7:49 am

Hello Lyrute, I have read about good results when children are given a gluten-free diet. It's a complicated thing to do but you could try it. It takes a lot of thinking and preparation. (I lost weight when I tried it- so that was a nice bonus!)

I read Temple Grandin's book "Thinking in Pictures". She's known as an Aspie now, but when she was younger, she was the mute type of Autistic kid (the severe Kanner type.) She describes her experience quite well, I'd really recommend it.

Temple Grandin also does recommend the medication that she's on. After I read that, I looked at drugs in a whole new way. What I would do (and I don't know if this is really responsible) but I would give half the dosage prescribed (at first) and see what the effect is. (I'm also wary of drugs.)

I read about a study where 50 percent of children with ADHD displayed no more symptoms of ADHD, after having their tonsils out! This was a proper scientific study! You never know what my help, it's good to explore all avenues.

You're a good mother amd I see that you're doing the best for your kid.



blondeambition
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17 Feb 2012, 7:57 am

lyrute wrote:
blondeambition - Thanks for the information. I don't think I need such extreme medicines as Clonidine and Prozac. I was talking about Piracetam, because it has a lot of good feedback about helping children to improve their speach and motor abilities. This medicine will not change their social behaviour or stimms, because it is definately not a super pill or something. It improves blood flow to the brain and yes you can describe it as food for brains.
I am planning to give this medicine for my son (if he will still need it) when he will be 3 years old, and see if it will help him. So far I am not medicating my son - I give him vitamins and IQ (fish oil) that is all. We work with him every day and have different specialists helping us.

I am not against medicines, if you need them - every case is different. At the moment I do strugle to accept, that my son is still non verbal and has problems understanding world around him.

Yesterday I pretended that I am crying, to see his reaction. He was very intrested in wrinkles on my forehead then in my emotional state... He was smiling and trying to take wrinkles away with his finger. Sad but funny at the same time.


He is definitely too young to medicate now. However, it is something that I think that parents need to know about. Some other parents reading this thread may have kids that are a little older, and meds might be appropriate for their kids.


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lyrute
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17 Feb 2012, 8:08 am

0031 wrote:
Hello Lyrute, I have read about good results when children are given a gluten-free diet. It's a complicated thing to do but you could try it. It takes a lot of thinking and preparation. (I lost weight when I tried it- so that was a nice bonus!)

I read Temple Grandin's book "Thinking in Pictures". She's known as an Aspie now, but when she was younger, she was the mute type of Autistic kid (the severe Kanner type.) She describes her experience quite well, I'd really recommend it.

Temple Grandin also does recommend the medication that she's on. After I read that, I looked at drugs in a whole new way. What I would do (and I don't know if this is really responsible) but I would give half the dosage prescribed (at first) and see what the effect is. (I'm also wary of drugs.)

I read about a study where 50 percent of children with ADHD displayed no more symptoms of ADHD, after having their tonsils out! This was a proper scientific study! You never know what my help, it's good to explore all avenues.

You're a good mother amd I see that you're doing the best for your kid.



We tried gluten free diet, but it didn't give any results... and of course my son doesn't have any problems with his gut, so maybe that was not the direction to go to. I agree with blondeambition and think, that my son is still too small for medications, but I always research and I am glad I found this information about piracetam and was able to share it here - maybe someone will try and will be happy with results.
Thanks for for your advise!



blondeambition
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17 Feb 2012, 8:09 am

0031 wrote:
Hello Lyrute, I have read about good results when children are given a gluten-free diet. It's a complicated thing to do but you could try it. It takes a lot of thinking and preparation. (I lost weight when I tried it- so that was a nice bonus!)

I read Temple Grandin's book "Thinking in Pictures". She's known as an Aspie now, but when she was younger, she was the mute type of Autistic kid (the severe Kanner type.) She describes her experience quite well, I'd really recommend it.

Temple Grandin also does recommend the medication that she's on. After I read that, I looked at drugs in a whole new way. What I would do (and I don't know if this is really responsible) but I would give half the dosage prescribed (at first) and see what the effect is. (I'm also wary of drugs.)

I read about a study where 50 percent of children with ADHD displayed no more symptoms of ADHD, after having their tonsils out! This was a proper scientific study! You never know what my help, it's good to explore all avenues.

You're a good mother amd I see that you're doing the best for your kid.


I also recommend her book.


_________________
www.freevideosforautistickids.com is my website with hundreds of links and thousands of educational videos for kids, parents and educators. Son with high-functioning classic autism, aged 7, and son with OCD/Aspergers, aged 4. I love my boys!


liloleme
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17 Feb 2012, 8:40 am

Temple Grandin is an amazing person who can help you to understand what it feels like to be autistic. Both Temple Grandin and my daughter started to speak around 4 years old so, if you son is not 3 yet do not give up hope that he will not speak. I have a friend on youtube called autismauntie....she makes videos of her niece and nephew. Sadly they lost their Father to pancreatic cancer a few years ago which was very difficult on the little boy who is 10 and still non verbal. He had to wear a helmet with a face shield as he was very violent to himself as he did not deal well with his Fathers illness and then death which shows that even though he is non verbal and appears very severe he is aware of what is going on and had a very special relationship with his Dad. I strongly suggest watching her videos, some of them are very touching and emotional. Her niece started speaking at age 6 which is a bit old and is rare but as she says, you never give up. Even if they never speak, they are in there and they know whats going on which is why I sent you the web site about Carly....there are several non verbal autistics, even some that post on here, that are able to type but not speak. They are very intelligent and insightful.
Im sorry if I came off as abrasive and its not you or DW that Im angry with it is societies view of Autism. Why cant we just be who we are? Why cant we be accepted and understood? Why cant teachers take the time to learn about autism? Its society that makes having Autism so difficult and I know its asking a lot for the whole world to be accepting of differences but when you are on this side of the fence, you cant help but dream that this will happen.
In the mean time we have each other. I like the story about your pretend crying and him trying to un wrinkle your forehead. He knew you were playing :). My daughter used to mainly ignore other people but now she just does not want me to cry. When my son died she did not want me to cry she would tell me to take deep breaths :lol: as her therapists taught her. We are not that great at comforting others but we can learn. I can empathize more with people who I have had the same experiences with.
When I first realized that my daughter had autism I was upset, I cried. I thought like most of society does that she would be locked in her own world her whole life....I learned quickly what Autism was and its how we realized that I am Autistic as well. I do like to spend time in my world but I like some people on the outside as well. Its ok if your son grows up and only has one friend or even if he wants to be by himself. What is important is they are happy. If they are not happy, trust me, you will know :lol: !
You just have to find ways to figure out what is going on....usually its sensory or anxiety. Like my daughter is having issues with the public school they have her in. I am building a sensory room and I will insist that she go to the autism school next year and if they dont up her therapy NOW, I and my husband are prepared to remove her from the school and have a tutor and do her education at home and send her to her therapy center on her typical days.
The one thing that is more important that finding that perfect medication is that we advocate for our kids, that we get to know them and know what they need.
The first thing that I did to get closer to my daughter is I imitated what she did...dont know if you have tried this yet. I also used to put her toys that she would line up on top of my head and sing a song about an animal on my head, this got her to look at me. Music can be a very powerful tool, I would sing to her when she was scared, at the doctor or at night....she had night terrors.
Keep up the therapy and take as much as you can get and play with your son, you may be surprised at the reactions you get.



blondeambition
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17 Feb 2012, 9:27 am

http://www.freevideosforautistickids.co ... ideos.html

Please also see the section on my website for about 1000 video clips from YouTube. These are speech enhancing videos and videos that teach the alphabet. They are organized topically into playlists and 100% free. You can play them directly on your TV if you have a device hooked up that lets you play stuff from the Internet. I also have a "speech links" section with 100s of recommended products.

I taught my kids to speak and read myself and heavily relied upon computer and video based instruction, as well as flashcards (purchased and homemade) and books (purchased and homemade). My younger son's speech issues have been milder, so it has been more improvement than teaching him every word. My older son pretty much had to be taught every word, how to put sentences and questions together, etc.--the whole thing. Speech and reading for my older son was all day every day until he started to get it. He still works on pragmatic "social" speech and reading comprehension, but not all day.

Anyway, a bunch of my older son's testing records are on my website, and he is a big success story.


_________________
www.freevideosforautistickids.com is my website with hundreds of links and thousands of educational videos for kids, parents and educators. Son with high-functioning classic autism, aged 7, and son with OCD/Aspergers, aged 4. I love my boys!


0031
Blue Jay
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17 Feb 2012, 11:44 am

All of you mums are brilliant. (Blondeambition, Liloleme) and all those mums who do so much. The world is such a good place when I think of people like you. I worked once with a non-verbal man with cerebral palsy- he could only move his eyes to communicate. There was a way using a book he had memorised, of communicating with him. It opened up my eyes to a whole world where people could exist , people with a great deal of understanding, who just needed a means to be able to express themselves. I wish more people were sensitive to that possibility instead of being dismissive.
I can understand people getting angry at the injustice of it.