CNN story about autism in restaurants

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momsparky
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01 Apr 2013, 3:01 pm

Thought I'd share - I think somebody posted here about the "broken" hamburger story - this story was written as a response:

http://eatocracy.cnn.com/2013/04/01/autism-restaurants/



AardvarkGoodSwimmer
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01 Apr 2013, 4:12 pm

Quote:
http://eatocracy.cnn.com/2013/04/01/autism-restaurants/

Commenter Autism Mom knows firsthand how far a little kindness and understanding in a public situation can go. Her 17-year-old daughter was diagnosed with autism at age two, and she recently used her experiences to offer hope to some strangers in need of kindness.

==================

Quote:
"In the early years, there were MANY times we left a restaurant with our tails between our legs because she had a meltdown – parents with an autistic child learn quickly not to make eye contact with those around us in these situations because we know we would see only reproach and disgust.

"One time recently we were seated adjacent to a family where one child seemed to have a learning disability. His behavior spiraled out of control, and eventually the family left (before finishing dinner), leaving the mom at the table waiting to pay the check. I approached her and told her of our own experiences when Lauren was younger, and told her to KEEP GOING OUT, the reactions they dealt with were the result of ignorance – they had every right to experience a normal life as a family, and that it WOULD get better.

"She broke down and wept, having never had a kind word after a situation like that. But she had a smile on her face when she left and was no longer feeling ashamed for her son. If you're the one staring at an unruly child – please give them the benefit of the doubt and don't make judgments when you don't have the full story."

She decently and politely approached the stranger when she herself has had the same experience. Well, it's not always going to be that well received.

But probably worth taking the chance when you have the energy.



MMJMOM
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01 Apr 2013, 4:50 pm

I appreciate this aricle. y 7yo HF Aspergers son is often misjudged and I am often given bad advice about how to handle meltdowns, etc...

I love the section about when it is crutial to pick ones battles especially in the comunity. I have been in the situation more then once, where my son has had a meltdown in the park, a friends house, store, etc...and we do what we need to do to get him to the car safely. It may look like giving in to some, but if it means getting to safety, do whats necessary.

Once, my son was having a complete meltdown at the park over the ice cream truck. We had NO MONEY and he wanted ice cream. Normally, this isnt an issue, but he was in meltdown mode. The Ice cream truck was in the parking lot, which was many hundreds of feet away from the playground. he took off to the lot, and I still have my 2yo (at the time) on the playground equipment. I had my purse on a bench (who really cares, but in all actuality I do need that, and my keys were in it). What do I do? I had to get him, her and our things and try to make it all the way to the car, passed the ice cream truck. Eventually, nothing was working, he was in full blown meltdown mode, yelling "ice cream" over and over... so I started to tell him a story about his fav video game characters, and at first he was upset but he eventually got engaged enough int he story to follow my lead to the car.

When I replayed that situation to a therapist, they told me that was not a good thing to do, casue I am teaching him a reward, hearing a story he likes, after or during a meltdown. In theory, I get it. BUT when you are alone with kids running in either drection, one who may fall off equipment, one who may dart into a parking lot or worse, you do what is the safest to get everyone out of danger. Easier said then done. And we did discuss it later at home, and he apologized and really didnt know why he was so upset about it. It was a meltdown. No explination necessary.

Another time he was in the store with my DH, his dad, who has NO IDEA how to handle my son at all. He was in a bad way my son, and DH handled it all wrong by yelling at him, and threatening to take his video games away, and never take him out again, telling my son to stop being spoiled, etc...yeah not too smart. My son grabbed a bag of candy and DH tried to rip it from his hands and it broke. He now had to buy it and my son was now melting. DH calls me. He cant get DS to leave the store, he is hanging on the bag of candy screaming. I tell him to tell DS that he has to come to the car and then he can have a piece, but he has to walk out of the store nicely. He does, DH gives him a piece of candy. Did we just reward a meltdown, I dunno, maybe. But DH wasnt getting hiim out of the store any other way, and DH handled the whole thing wrong. Again, we discussed with DS about grabbing candy, yelling in the store, not listening to dad, etc...and we also spoke to DAD about how to react when in the store and he doesnt want to buy for DS.

UGH, so many instances, but again, I understand fully that how we handle meltdowns at home or in secrue situatons are completely different then when things are in public, can get unsafe or scarey. And people looking or passing judgment of what they would and wouldnt do needs to stop. Take my kid for a few days and tell me what you did better and how it worked, go ahead!


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momsparky
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01 Apr 2013, 4:57 pm

I think it is also different when you have a kid who can "pass" so people's first assumption is brat instead of autism. However, it's good to know that people are coming around and starting to offer support instead of just making snide comments and staring.



ASDMommyASDKid
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01 Apr 2013, 5:46 pm

MMJMOM, I am going to ask a very stupid question. Your son's therapist thinks that doing anything your son might like during a meltdown is an incentive to meltdown? If you someone can't help a meltdown how can you incentivize or disincentivize a meltdown? This makes no sense to me. I would think distraction is a completely legitimate technique. I do this a lot. I mean I guess if your child is meltdown specifically to get attention, I could see the logic, but not for wanting ice cream.



MMJMOM
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01 Apr 2013, 7:00 pm

ASDMommyASDKid wrote:
MMJMOM, I am going to ask a very stupid question. Your son's therapist thinks that doing anything your son might like during a meltdown is an incentive to meltdown? If you someone can't help a meltdown how can you incentivize or disincentivize a meltdown? This makes no sense to me. I would think distraction is a completely legitimate technique. I do this a lot. I mean I guess if your child is meltdown specifically to get attention, I could see the logic, but not for wanting ice cream.


I dunno, he told me it was like rewarding the meltdown. Or maybe teaching him that he can act however and he will get something he likes out of it. But usually after a meltdown, he feels sick, his head hurts, his eyes hurt, he is tired, lethargic....I cant imagine how he feels GOOD or like he was rewarded after that.


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03 Apr 2013, 3:36 pm

MMJMOM wrote:
ASDMommyASDKid wrote:
MMJMOM, I am going to ask a very stupid question. Your son's therapist thinks that doing anything your son might like during a meltdown is an incentive to meltdown? If you someone can't help a meltdown how can you incentivize or disincentivize a meltdown? This makes no sense to me. I would think distraction is a completely legitimate technique. I do this a lot. I mean I guess if your child is meltdown specifically to get attention, I could see the logic, but not for wanting ice cream.


I dunno, he told me it was like rewarding the meltdown. Or maybe teaching him that he can act however and he will get something he likes out of it.


This is asinine and I think it is pretty clear your therapist does not understand there is a difference between a meltdown and a temper tantrum. Meltdowns are neurological, not behavioral, in nature.

And in certain situations, I have most certainly "given in" to temper tantrums given the circumstances and environment. The lesser of two evils, you know? I have also carried on as if nothing was happening, which gets even dirtier looks from most people because they assume I am not "managing" my child. You really can't win, and any time anyone throws me even a slight bone of encouragement, I eat it up. I have made a personal commitment to at least look at the parent with a sympathetic pair of eyes.

And you are very right, momsparky. All this looks like spoiled rotten brat behavior in a kid who can pass. Even when the people who are watching know about the underlying autism.


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05 Apr 2013, 2:30 pm

I've had my fair share of meltdowns, but my mother always did her best to take me out of the place if possible. One of my biggest sensory issues is a baby crying or kid screaming, and I get so utterly disgusted when a kid is carrying on and the parents don't take them away. I realize that babies cry and can't help it, and that some kids throwing a fit may have ASD or another neuropsych disorder, but that doesn't mean that it makes the sensory issue any less extreme for me. If I'm forced to stay in proximity of a wailing baby, I get ready to meltdown myself. Just thought I'd offer that perspective, from somebody who knows both sides.


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