Here is a list of the questions for the survey. If you are interested in partaking in it, feel free to leave me a private message, and I will provide you with a consent form and my email address so you can attach your answers as a word document in an email. If anyone has any further questions, don't hestitate to ask. Thanks for your time and energy!
Please select a pseudonym for yourself so that confidentiality is assured.
__________________________
Personal Background Information/Demographics:
Please indicate your age in years:
Please indicate your gender:
Please indicate your ethnicity:
White (not of Hispanic origin)
African-American
Hispanic
Asian or Pacific Islander
American Indian or Alaskan Native
Other
Educational Background Information:
Please indicate your highest level of education:
Family Information
Please indicate your marital status:
Married
Single
Separated
Divorced
Widowed
Other
What is your relationship with the Autistic child?
Please indicate if you have more than one child with a disability, and if so please indicate the nature of that child’s disability.
How old is your child with Autism?
At what age did you find out he/she had Autism?
Does Autism run in your family?
What type of Autism does your child have?
What do you think the main effects of autism are?
How has Autism affected your life?
Has Autism put a strain on your family? If so, how?
How were you told that your child has autism?
Where did you, as parents, receive the most information about your child’s disorder?
Were you addressed in a professional manner about the diagnosis?
How did you feel before, during and after the diagnosis process?
Had there been any behavior from your child which you had seen, before the diagnosis of autism, that you did not understand, which you could understand once the diagnosis had been made?
During the diagnosis process, were the diagnostic terms explained? If so, which ones? Was there anything else you would have liked to be told, in retrospect?
During the diagnosis process, were sources of support explained? If so, which ones? Was there anything else you would have liked to be told, in retrospect?
During the diagnosis process, what sources of information about autism were explained? Was there anything else you would have liked to be told, in retrospect?
During the diagnosis process, what coping strategies were discussed? Was there anything else you would have liked to be told, in retrospect? Was counseling available for you? Did you have counseling?
During the diagnosis process, how were the future consequences explained? Was there anything else you would have liked to be told, in retrospect?
During the diagnosis process, what sources of treatment were explained? Was there anything else you would have liked to be told, in retrospect?
Was information provided about the long-term effects of Autism?
Has any professional, such as a family service worker, speech and language therapist, school psychologist, or teacher made a big impact on your child’s development? If so, how?
In your family, did both of the parents of the child with autism react the same, or was there some degree of difference?
Have you been involved in any service organizations or support groups for parents with autistic children? If so, which ones, and have they helped?
For parents, what are the negative and positive effects of a child with Autistic Spectrum Disorder?
21 Mar 2007, 7:38 pm
