Its offically AS

Post Reply New Topic

Its offically aspergers, plus J also has the added problem of visiual memory disorder. Half of me is happy to finally have something concrete to work with, however the other half is crying, there is no backing out its not gunna magically go away or he's not going to grow out of it.
Sure with lots and lots of help I have been told he can learn to cope and to make adjustments, but we cant give him a pill to get rid of it.
The evaluating team were fantastic, I will be seeing them all again mid Jan. They are giving me time to let it all sink in and to ponder questions to ask etc...
They tell me he may even have to do a stint in an autistic school, they want to mainstream for as long as they can, however the visual stuff is a big problem. He is a complicated case apparently. Thats my J nothing by halves. Its all a little daunting. I get the impression, Im going to be even more flat out than I already am. Ah well its all in a great cause.

aurea, believe it or not, congratulations are in order. You have made the first major step in getting the help for your son that he needs. You have done what many parents find almost impossible to do, faced the fact that you have a special needs child. That is a wonderful thing, your love for your child has proven itself ( I never doubted it anyway having read your other posts)

Having been on WP for a little while I'm convinced all of these wonderful kids are far more complicated than we ever expected. Our son,s dx is ADHD, Asperger's, and probably Tourette's with more still to come.

Yes it can apear daunting when you look at the overall picture. Just remember there great people here who have been where you are going and are willing to offer help, understanding and support. The best way to handle this is one small step at a time, it may sound cliche but it is true.

Wishing you the best and looking forward to future progress reports.

hang in there....the dx always hits hard~even if you were expecting it.

Morning all!! ! lol its 5 am here.

I have had about 4hours sleep. Information over load going on.
Thank you ster and corsarz (oops I know I spelt that wrong sorry)

I think my big thing right now and its not a bad thing is that I know now that there is going to be a lot of work involved in supporting J. A lot I have already been doing, because J himself has programed my parenting this way. Its the changes which have to take place at school that are going to be major. J's team want an aide in the class room ( J's school told me at the begining that he wouldn't get one) The team want the school to make contact with Western Autistic school ( which is local) they want someone from there to come out to J's school and do an environmental evaluation and educate the teachers. However this is up to his current school as to wether or not they actually do this.
They want the school and will be pushing as much as they can, for the school to hurry up and work out what class and teacher J will have next year so that I can prepare him now. Traditionally the school wont tell this information no matter how hard I have begged for it, until the last couple of days before school finish, one year I had to ring for the information the day before he started school.
They have told me the school need to start listening to me, ha. I obviously know when he isnt coping his teachers dont see it.
They also said the school need to be educated that J doesn't/cant be made to fit in with them, they need to accomodate him. Again ha.
I say ha because as most of you have probably read my posts, J's school isnt very accomodating and we are in for an uphill battle.
J's evaluation team have told me they want to mainstream him for as long as possible, but they have warned me he may need to have some time in a special needs school, which to be honest is a little scary.
I thought the original dx of adhd had been ruled out, now they are saying they dont think he has this but it is something that they need to keep revisiting. He does display some of these behaviours, usually when he is stressed, over excited lacking direction, or to much sensory stimulation.
I can say it took a long long time but his team are very thorough they have covered everything, and I found out yesterday that there were even more people involved in the dx than I even seen.
Any way thanks for putting up with me and my long long posts every body, I really appreciate it.

being in a special needs school *may* be better than being where he is. they might have staff who understand more of J's issues...you never know.

Hi aurea.....I just wanted to say that although hearing the diagnosis is overwhelming at first, things will get better. My son was diagnosed in April and I was a nervous wreck. My son attends a traditional public school that has an Autistic Support classroom, and he gets speech and OT as well. He has made a lot of progress in 8 months.

This site is wonderful for support too.

Just a sugesstion, aurea, since your son's school has a history of not cooperating with you to provide for your son check into his and you legal rights. I know many people from Australia post here and I am sure they could point you in the right direction.

I always thought fighting with the school was an expected part of being the parent of an Aspie.

Anyway, yes it will be a long road, but,with the right attitude it can be an exhilarating adventure.