moving
Hoping someone can give me some ideas/suggestions...
We are moving to Colorado. I was so misinformed by an intake specialist in Colorado prior to the move and now that we are finding out teh accurate info (after this person was let go) we are in a panic. We were told by this person that there is no wait list for services. We've had our daughter on services for about 9 years now, so it's been a long time since we had to apply for services. Now, we find out there is a 4 year wait, approx. My hubby transferred his employment there and resides in Co. We are following end of month. We now can't turn around and come back to where we were, as his job isn't here anymore. I'm scarred that I can't afford her needs without the help of this waiver I was told she would qualify for immediately. Does anyone have any ideas/suggestions on how to try and get an emergency waiver? I've spoken with so many people, just to get turned away. I have even wrote a letter to the Governor. Still waiting on response. Is there something like a county hospital where they can't turn you away? She has autism, mod/severe mr, and epilepsy.
Any suggestions would be helpful. I'm desperate.
I think it's difficult to advise without more information.
What type of services does your daughter need?
Which need to be provided by governmental agencies (outside of the school system), which have been provided through the school system, and which have traditionally been provided through the medical system / health insurance?
Will you continue with the same or similar health insurance or will your family be on a new plan? If the later, will you have had continuous coverage from one job to the next?
How old is your daughter?
_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).
When we moved from California to North Carolina I was so disappointed to find how poor their early childhood development program was. Prior to our move, our son was receiving OT once a week in our home, and infant stimulation twice a week in our home, all at no cost to us. When we got to NC there was a huge delay in just getting a new eval done (why they needed it, I don't know) and retesting his ears and eyes and all that crap. After that they wouldn't even help us out besides suggesting he get OT again, and I already knew he needed OT! We had to get a referal through our doctor and pay for it through our health insurance, but we still ended up in a few thousand dollars in out of pocket costs for the year.
Sorry, I don't have any suggestions... we had a miserable experience but maybe your health insurance is better than ours, maybe they will help you out a lot at little cost to you.
Currently, she gets PT, OT, ST, and music therapy all outside of school. Then PT, OT, and ST in school. Our big concern is medical. Just the cost of her prescriptions alone, and all the doctor appointments add up. Even the pull ups she has to wear. I'm not able to work because of the severity of her behaviors. Not too many people want to take on a child who will bite, hit, kick etc., them! Just so frustrating the teh State has to take over the cost of these kiddos. Should be the federal government. Once they are approved for services, they are not taken off unless they have improved to the point where they don't qualify. Not like we can move States and, Bingo, she is all good. That is another conversation, though...
Our primary will have to cover her, but it is not that good. What insurance company is. Luckily, we have done a lot of the expensive treatments, testing, etc already, so hopefully we can have her approved by the time she needs the next surgery.
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