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2PreciousSouls
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10 Feb 2009, 10:16 pm

My DS signs symptoms are predominately; Noise sensitivities, Routineness/sameness, and language delay....

Could it be something obvious other than AS or Autism?

I just look at him all too often lately and think... Really there seems to be nothing to daignose.

This whole waiting game for dx is a bit consuming.

Any thoughts or comments will be appreciated thankyou



CelticGoddess
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10 Feb 2009, 10:42 pm

To be honest, autism isn't as big or scary ( or obvious) as one might believe. Whatever it is that makes your child who she/he is, they're still the same. There are a lot of other things that can overlap it (like ADHD and/or Tourettes). It just means that there's something about their brain that operates a little differently. Regardless of what the outcome is, you just have to love them through the tough times. Isn't that what every parent does for their child? :)



2PreciousSouls
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10 Feb 2009, 10:48 pm

Hope this thread didnt come across differently to what I intended it to.

Celtic Godess; Absolutely!! I love him no matter what... .In fact I love his quirky ways, its what makes him.

I'm really just wanting to know the dx now... despite what it is, I dont feel as though the support is there without a dx.

Maybe I have the wrong impression about getting certain support through a diagnosis?

I want to be able to research what it is that he has so that i have a better understanding of it.

Hope that makes sense.



CelticGoddess
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10 Feb 2009, 10:55 pm

No, I totally get what you're saying and I absolutely agree. People were critical when I went after the dx for my son, but I knew it was crucial for getting my foot in the door for services and support, so I really do know where you're coming from.

I know it's hard to wait. I've been in your shoes before. I'm sorry if my response came off as odd. We've had one of those days where my whole day revolved around physical meltdowns and your post brought me back to the early days. It doesn't matter what he has, I just had to love him through it. Here he is at 10 and I'm still doing the same thing, but thankfully days like these are fewer and farther between.

I hope your family gets they answers they need to help your child be the best version of themselves. Hugs.



2PreciousSouls
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10 Feb 2009, 11:09 pm

No I didnt think your post was odd :)... I know what you were getting at.

The waiting game has been the hardest of all of it so far! I feel like I'm going crazy until I know what it is, then I can move forward quicker?

Also, I feel at times that I may be over or under reacting with describing his symptoms... Its sooo confusing.... Especially the good days where I think to myself...What am I diagnosing? He's fine.

Its just such a confusing time at the moment!

Thanks again.



Marcia
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10 Feb 2009, 11:35 pm

My son was referred to the Community Autism Team for assessment in December 2007 and the assessment starts on Thursday this week!! !

So...I know about waiting, and I know about the looking at your child, and wondering...

My son is getting extra support at school in the meantime, and has a Speech and Language Therapist, and I've had one meeting with the Educational Psychologist, with another meeting scheduled for later in the month. Everyone keeps saying, informally, that they reckon he is on the Spectrum, but I find it really, really frustrating that we don't know for sure.

And a diagnosis does seem to mean that current, and other, supports and accommodations can be formalised and taken to another level.



2PreciousSouls
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10 Feb 2009, 11:55 pm

Thanks Marica :)

Great that the ball is finally rolling for you. That is a very long wait!



ster
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11 Feb 2009, 6:45 am

my daughter has all the symptoms you write about and her dx is ADHD- we just went for her 2nd eval to confirm the ADHD dx....doc says she's an enigma.



Crescentia
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11 Feb 2009, 9:44 am

ster wrote:
my daughter has all the symptoms you write about and her dx is ADHD- we just went for her 2nd eval to confirm the ADHD dx....doc says she's an enigma.


From what I hear, many doctors still don't think girls get Asperger's. Girls also present differently, tending to have fewer social problems and aggressive behaviors. If you don't think the diagnosis quite fits your daughter, you know best! Don't let anyone tell you that your feelings as her mother are wrong. You know your daughter a whole lot better than they do!



adriann
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11 Feb 2009, 10:44 am

2PreciousSouls wrote:
No I didnt think your post was odd :)... I know what you were getting at.

The waiting game has been the hardest of all of it so far! I feel like I'm going crazy until I know what it is, then I can move forward quicker?

Also, I feel at times that I may be over or under reacting with describing his symptoms... Its sooo confusing.... Especially the good days where I think to myself...What am I diagnosing? He's fine.

Its just such a confusing time at the moment!

Thanks again.


this sounds so much like me...all of it



ster
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11 Feb 2009, 2:46 pm

unfortunately, i've been down the eval road more than once...........not going there again......will just try to deal with her dx & help her as needed