10 jargon phrases used [by the system] about my autistic son

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Many of us here in the UK have experienced first-hand the kind of dehumanising nonsense that seems to pervade the social care system when it comes to our needs. The system seems deliberately set up to be as inflexible and uncaring as possible much of the time.

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Sounds pretty much like the Australian system - set up to be as inaccessible as possible for any real kind of support (whether that be financial or in services) or help that is required for an individual to improve their quality of life.

In the US, there is no system. Period. The disabled are on their own, apart from exhortations to "pull yourself up by your bootstraps" and "overcome your challenges". Doing so is expected to be accomplished without any outside help. Even SSI is seen as govt interference in people's independence. The disabled are believed by many to be faking it for sympathy, and are constantly told to stop doing so.

That list of 10 phrases would really be funny if it wern't all too true. This is the reason that I totally avoid these so-called "professionals". I had my fill of their pseudo-technical garbage a long time ago. They're the ones that are the most in need of help, not us.

That's sad. Bureaucracy has replaced humanity it seems. The jargon points to a clinical detachment instead of objective observation tempered with some warmth.

Whenever I've dealt with these people, I feel as though I'm being depersonalised and treated as a disorder or set of diagnoses. Whenever I've directly appealed to their sense of common humanity and common things we share, it cuts no ice with them. Whenever I've mentioned that they expect things of me that they themselves would not tolerate or find in any way acceptable, they actually admit that I am in the right, then stick completely to the script. It's horrible and disgusting.

Proving once again, when it comes to so-called "mental" disorders or conditions, we do not know much. We can handle some physical difficulties fairly well. We have infectious disease rather well under controlled for example. Physiological we can do, psychological -- good luck.

ruveyn

It's all a load of bollocks.

Oh please!
For people not covered by regular health insurance there's at least medicaid and medicare, and in addition to that there are VA medical benefits for veterans.
I'm not saying that this is premium quality healthcare but it's definitely better than none whatsoever.

I take issue with the statement that if you don't have insurance in the US, there are programs! I have a job but it doesn't provide insurance. It pays very little. But just enough so my income is too high to qualify for Medicaid. Medicare is for people over 65. I am not a veteran, plus all the veterans I know say the VA has serious problems. Sorry for going slightly OT.

Jargon is terrible and dehumanizing. It happens in the US as well.

Indeed, many medical and mental health professionals simply refuse to take medicaid. I had some fun times trying to find people who will accept medicaid as payment before I figured out the score...

I'm just glad my condition is not severe enough to be under the care of these people!

Double post due to captcha nonsense.

I hope Cloudflare gets lice.

Last edited by Tawaki on 25 Jul 2013, 4:25 pm, edited 1 time in total.

Listen, if the government could round up the disabled and cull them like lame mules, they would.

And how many -good, religious, go to the house of faith worshipping folks have told me money for the disabled is BS. They should work at shelter jobs, or if they would just get hungry enough, they'd move their asses to get work. Oh, if you have made it through any amount of university, you're just a whiney b***h drama queen, working on a personality disorder, to justify sitting in your bedroom.

That last gem came from a social work.

YaY for the UsA!

Pretty much true from 26 onward. If you're going to college and had an IEP in high school, you can carry it over to college as long as you represent yourself. (Which is not a good situation for those of us who aren't so mild.)

Other than limited help during the schooling years, Autistic individuals and their families are pretty much on their own. And I'm almost positive insurance doesn't cover things like medication and Autism groups, so a lot of the support that reasonable parents with Autism have are completely out of pocket.

Don't get me started on the foster care system and welfare.

Pretty much absolutely true, and stories like this are the reason I no longer try to make it any other way.

You can find compassionate individuals who will have some empathy for the fact that everyone's bootstraps snap from time to time, and some of us get upper than others.

My single greatest fear, both for myself and for my children, is falling into some system in which we are conditions and symptoms, not people.

It has happened to me before. Thank God the "system" was a local mental healthcare system, and by moving 150 miles north I was able to get out of it. Had the system in question been a national one, with the weight of the federal gov't behind it, I would have had no way out but death.

I have had the sort of "help" described in the article, the sort of help that reduces one to a disease, a collection of symptoms and behaviors to be studied and altered, without any personhood at all. If that's help, I don't want any, thank you.

LEAVE ME THE HELL ALONE!! !!