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alex
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09 Feb 2007, 2:14 pm

Mnemosyne wrote:
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they don't distinguish. doctors are required to report how many people they diagnose with some form of a disorder


Actually, from what my social worker friend told me, that's illegal. I always thought they reported that stuff to NIMH or the CDC, but she says it's against the law for them to do that. I think this study might be based off of school records.


No, it's not against the law. The article from the AP said that's what the study was based on. Some states, like california, don't have statistics on that information.


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scrulie
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09 Feb 2007, 2:17 pm

nutbag wrote:
Well, there may be a big bunch of diagnosed Auties of one type and degree or another. . .But they are not all as wonderfully weird as MEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEE!! !! :D

:D Were you thinking of Dick Solomon when you said that?


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liza
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09 Feb 2007, 7:15 pm

A Doc recently told me AS was just an excuse to behave badly...We've got a lot of educating to do.



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09 Feb 2007, 7:18 pm

No, but was not dick Solomon on that Third rock thingie? Pretty good show, but I try to limit my TVOD.
And i'd bet even dick weren't as wierd as MEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEE!! !! !! !! ! :D



alex
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09 Feb 2007, 7:54 pm

Mnemosyne wrote:
alex wrote:
they don't distinguish. doctors are required to report how many people they diagnose with some form of a disorder


Actually, from what my social worker friend told me, that's illegal. I always thought they reported that stuff to NIMH or the CDC, but she says it's against the law for them to do that. I think this study might be based off of school records.


My new doctor works at the NIH NIMH. ^_^


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alex
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09 Feb 2007, 7:55 pm

liza wrote:
A Doc recently told me AS was just an excuse to behave badly...We've got a lot of educating to do.


i thought the doctor was the one to do educating. Hopefully he isn't your regular doctor?


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10 Feb 2007, 12:26 am

Mnemosyne wrote:
alex wrote:
they don't distinguish. doctors are required to report how many people they diagnose with some form of a disorder


Actually, from what my social worker friend told me, that's illegal. I always thought they reported that stuff to NIMH or the CDC, but she says it's against the law for them to do that. I think this study might be based off of school records.


When drs report things like that they do not include the patients name. They just report for instance a 8 yr old autistic male, caucasian, etc. If you have certain infectious diseases, such a pertussis, Lyme, West Nile, Tuberculosis, etc. the dr is required to contact the CDC and say they have an infected patient. Course a lot of drs "forget" to do that. Depends on what the disease is on whether they have to give the CDC your name. But then the dr has to tell you before hand that they are required to turn you in to CDC. But that's ONLY for first cases of new infectious disease or things like TB or Sars that they mandate you get treated for so you can't spread it. Other things like Lyme they don't give a sh*t whether you get treated.

When it comes to autism they could care less that any of us as individuals have it. They just want to have statistics to get govt funding for disabled students in the school system for instance. Its not like they are keeping an Autie List because its not contagious. Well unless you considering giving it to your offspring as contagious. So in a way it sorta is.



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10 Feb 2007, 3:37 am

it's like when your computer calls home to raven to tell it that quake crashed and that you have x processor, y ram, and z GPU



candid89
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10 Feb 2007, 3:48 am

Apparently, this is a nationwide story. I've seen it on the front of the USA Today, The Register Guard (Eugene Oregon), and I know I saw it on something else, but I didn't pay attention to it.

After reading the USA Today's take on it, it sounds like they're only talking about the growing number of children who have an ASD (Autism Spectrum Disorder). They didn't even MENTION the number of ADULTS who have some form of ASD and who are dealing with it every day!

Also, they're trying to come up with a scientific reason, or a cause, or a location that it's most prevelant. In my own personal case, it's GENETIC! I don't think it had anything to do with the vaccines I got, since my son has just been diagnosed with it, and he's only 9...but I'VE had it for 35 years! They didn't even MENTION genetics in the article!

I'm all for helping out the kids, but the "services" the states and governments want to offer would only be for the kids, not adults already dealing with any form of ASD...except the extreme cases who are already in the "system".

It's frustrating.


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agent79
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10 Feb 2007, 4:11 am

Even the adults in the "system" need more help though. They get "aged out" at 21 years old.

I know that there is a strong anti-curebie movement among aspies---and trust me I hate BigPharma. I subscribe to the Chevelle Vitamin R theory..."If they're making it, then they're pushing it, they're leading us along."---

HOWEVER...money needs to be made available for research and new treatment methods to help those on the spectrum who suffer.

I don't suffer from AS (although I probably would have answered differently 10 to 15 years ago)....BUT I can venture a guess that my son suffered from his autism when he was younger.

The people diagnosed with Rett's suffer because their form of autism comes with debilitating pains and tremors.

In the end, whenever the researchers begin to find causation...they will discover that it is not a spectrum disorder at all. They will find that these are separate conditions. Perhaps overlapping conditions, but with separate causes.

I believe in the genetics theory.

I also believe that SOMETHING (which I don't know what it is---could be meatloaf) is making it worse.

I believe that my son could have been an aspie like me, but after all has been diagnosed as an autie. His symptom severity is MUCH worse than mine.

My husband refuses to even consider diagnosis (although I have come to believe that he also rests on the spectrum) but his oddities have been magnified in our child as well.

What is the cause of the magnification? Why are so many aspie parents having autie children?

You can hate the curebies, but their screaming is bringing money to research and therapies. Both of these things are helping you and people like you.


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10 Feb 2007, 4:15 am

I think this could be a hypothetical plan for them:

Report only the kids so that they all get cured. Ignore all the adults with Autism and AS because they'll all die eventually.


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liza
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10 Feb 2007, 8:19 am

As a provider of services to people with intellectual disabilities, we are seeing a lot of auties that were never diagnosed and now in their 60's. No one is keeping a secret count on this I think they are just trying to identify AS/AT and Rhetts' and get the behavioral services, speech, OT etc in place. We see a wave coming and knowing how hard it is to get funding in place we have to make noise now. In other words education. Though NT I have 6 family members on the spectrum including a daughter and husband. By the way the Doc who said it was just an excuse for bad behavior is a family doc. But since medical docs can't diagnose this it does not really matter, I was merely trying to point out the issues with getting treatment. By the way we are changing Docs, unless I can educate him which I try every chance I get.



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10 Feb 2007, 5:54 pm

There was an article on the front page of my newspaper today saying that in Utah, 1 out of 133 kids are autistic. They also said that research revealed that from birth to 18, there was an average cost of 3.2 million dollars over the lifetime. Now, besides being irritated at having a value fixed to my head, I am also a little confused. Doesn't "lifetime" mean the span of life from birth to death, not from birth until a randomly assigned number indicating maturity (i.e. adulthood)?


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10 Feb 2007, 5:58 pm

dexkaden wrote:
There was an article on the front page of my newspaper today saying that in Utah, 1 out of 133 kids are autistic. They also said that research revealed that from birth to 18, there was an average cost of 3.2 million dollars over the lifetime. Now, besides being irritated at having a value fixed to my head, I am also a little confused. Doesn't "lifetime" mean the span of life from birth to death, not from birth until a randomly assigned number indicating maturity (i.e. adulthood)?


Well, that would be what makes sense, but I guess not.
3.2 million for what? Special education, therapists, ect (or in other words, things they wouldn't need if they weren't autistic)? Or just in general (food, housing, ect)?


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dexkaden
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10 Feb 2007, 6:02 pm

LadyCass wrote:
dexkaden wrote:
There was an article on the front page of my newspaper today saying that in Utah, 1 out of 133 kids are autistic. They also said that research revealed that from birth to 18, there was an average cost of 3.2 million dollars over the lifetime. Now, besides being irritated at having a value fixed to my head, I am also a little confused. Doesn't "lifetime" mean the span of life from birth to death, not from birth until a randomly assigned number indicating maturity (i.e. adulthood)?


Well, that would be what makes sense, but I guess not.
3.2 million for what? Special education, therapists, ect (or in other words, things they wouldn't need if they weren't autistic)? Or just in general (food, housing, ect)?


I dunno. It didn't say. It just said on average autism costs 3.2 million dollars over 18 years.


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10 Feb 2007, 7:24 pm

That makes no sense. The state didn't spend a dime on me ever that isn't spent on every other kid (or wouldn't have if my mom wasn't on welfare/medicaid) and I know special education doesn't get that much money. I would write an editor asking for some statistics if you ever see another article like that


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