Rick Santorum, Wants Autism Cured?
Kraichgauer
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(clicky)maybe in light of that, you'd find this link entertaining and enlightening.
I've read this already, but thanks for the link. I think they're on to something!
-Bill, otherwise known as Kraichgauer
OliveOilMom
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Santorum's daughter has a rare genetic condition, and she has been through a lot. He sees her suffering, and because Autism is very well known and much more common than his daughters condition, he probably wants to see research into cures for it. I'm sure he's thinking about the very low functioning children when he talks about this. I don't think he has any malice towards those on the spectrum. I'm sure he would like to see Down's syndrome cured as well, or at least something done to extend their lives.
I think when people talk about curing autism, they are thinking of the very low functioning autistics. What parent wouldn't want a cure for their child if their child couldn't communicate with them, etc. Parents want what they consider a "normal life" for their children. Wanting autism cured isn't the same as wanting us all aborted or institutionalized. Wanting a cure is no different than wanting a cure for CP or blindness or deafness or paralysis. Those things do not kill you but they do effect quality of life. When I mention a cure for autism, I am talking about the lower functioning people. Those who because of the very effects of their autism cannot communicate to anyone if they would or would not want a cure.
People talk about all these horrendous things that a cure would involve, but my question is, why would they involve that? We know they don't work. Years ago they thought it might, but now we know it doesn't. Lobotomies were common a long time ago. ECT was common a long time ago. Those things aren't done routinely now. Why would you think that curing autism (for the very low functioning people) would involve something horrible? Nobody protests and screams that people who have an open fracture in their leg or severe infection in it shouldn't go to the doctor because they will just cut it off, do they? No. Because they don't do that anymore. They have other ways now.
I say, about a cure, don't be too quick to judge. Find out who they want to cure. If they mean everyone on the spectrum. What a cure would involve. If they will make it mandatory to be cured if you have it. AFAIK it's not mandatory to be cured of anything in the US. You can refuse treatment for anything if you are mentally able to. Yes, that would disqualify most of the lower functioning and all of the very low functioning autistics, but how do we know that they wouldn't want a cure? You may not, because you can type at a computer. You can communicate your needs and wants. They can't. All I wanted when I was a kid was just to be like the other kids. I didn't know why I couldn't do what they did. If there was something that would have done the job, I would have taken it in a heartbeat. Now I wouldn't, because I'm used to this and learned to handle it. Do I wish there was a cure then and I got it? Yes. The only thing that would make me not wish I had that was that it might have led me down a different path in life, not met my husband, so therefore not had the kids that I have today. Other than maybe not having the kids that I have, I would have no problem with it.
Would I be offended if it was offered to me now? Not at all. I'd probably strongly consider it. Not having AS would make things a lot less stressful for me. I'd want to know what all was involved and how it would change my thinking process, likes and dislikes, logic, etc.
As for Santorum, I think he sees wanting autism cured as an extension of his wanting something done for his own child. She has serious problems, and I don't think he's trying to cure those of us who are just really really kinda quirky.
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Kraichgauer
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I think when people talk about curing autism, they are thinking of the very low functioning autistics. What parent wouldn't want a cure for their child if their child couldn't communicate with them, etc. Parents want what they consider a "normal life" for their children. Wanting autism cured isn't the same as wanting us all aborted or institutionalized. Wanting a cure is no different than wanting a cure for CP or blindness or deafness or paralysis. Those things do not kill you but they do effect quality of life. When I mention a cure for autism, I am talking about the lower functioning people. Those who because of the very effects of their autism cannot communicate to anyone if they would or would not want a cure.
People talk about all these horrendous things that a cure would involve, but my question is, why would they involve that? We know they don't work. Years ago they thought it might, but now we know it doesn't. Lobotomies were common a long time ago. ECT was common a long time ago. Those things aren't done routinely now. Why would you think that curing autism (for the very low functioning people) would involve something horrible? Nobody protests and screams that people who have an open fracture in their leg or severe infection in it shouldn't go to the doctor because they will just cut it off, do they? No. Because they don't do that anymore. They have other ways now.
I say, about a cure, don't be too quick to judge. Find out who they want to cure. If they mean everyone on the spectrum. What a cure would involve. If they will make it mandatory to be cured if you have it. AFAIK it's not mandatory to be cured of anything in the US. You can refuse treatment for anything if you are mentally able to. Yes, that would disqualify most of the lower functioning and all of the very low functioning autistics, but how do we know that they wouldn't want a cure? You may not, because you can type at a computer. You can communicate your needs and wants. They can't. All I wanted when I was a kid was just to be like the other kids. I didn't know why I couldn't do what they did. If there was something that would have done the job, I would have taken it in a heartbeat. Now I wouldn't, because I'm used to this and learned to handle it. Do I wish there was a cure then and I got it? Yes. The only thing that would make me not wish I had that was that it might have led me down a different path in life, not met my husband, so therefore not had the kids that I have today. Other than maybe not having the kids that I have, I would have no problem with it.
Would I be offended if it was offered to me now? Not at all. I'd probably strongly consider it. Not having AS would make things a lot less stressful for me. I'd want to know what all was involved and how it would change my thinking process, likes and dislikes, logic, etc.
As for Santorum, I think he sees wanting autism cured as an extension of his wanting something done for his own child. She has serious problems, and I don't think he's trying to cure those of us who are just really really kinda quirky.
While you may be onto something about his motivations, I think many of us are offended by what Santorum says because we know what a heartless assclown he is. One of the reasons why he'd like to cure autism, I believe, is because he's against any sort of social safety net that autistic individuals depend on. He'd rather see some sort of dubious "cure" for my six year old daughter, rather than see her provided with the special education directed at her autism, which she receives. The sort of special education that I wish I could have been given at her age. Now, my little girl is pretty high functioning, but special education can help even in lower functioning autistic's lives, just as well. But it goes beyond that. Santorum essentially is ready to deny the individuality of persons with autism. And on top of that, he's displaying his ignorance in assuming that deep inside every autistic child, there's a normal child just waiting to get out. This notion is an insult to us all.
-Bill, otherwise known as Kraichgauer
OliveOilMom
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I haven't really kept up with politics this year. Not only was my cable gone for a while so I couldn't watch it on tv, but there's nobody who just jumps out at me to watch. I don't like reading the news online or watching it online for some reason.
As for special ed, it's not just autistics who receive it. Granted, I haven't heard him and know only that he has a daughter with a genetic disorder and he's republican and my mother likes him. My mother liking him is reason enough for me not to like him. I can't imagine any parent wanting schools to not offer everything they can for kids. That's why I sound like I'm defending him. I want to think that what is said was either assumed (like I'm assuming, I admit) or taken out of context. I want to think this because he is a parent. I cannot imagine a parent not wanting the best for every child out there. I know there is a middle ground, but in my mind there are either good, caring parents, or parents who are abusive or neglectful. There is a middle of the road and logically I know it, but emotionally I don't.
I also know that a lot of people here are offended by the idea of a cure. I think that if there were a cure and it was mandatory or that services were abolished so that those who didn't want the cure would have no help, I would feel differently about it. Many people choose not to be treated for certain diseases but hospitals and hospices still care for them when they need it. (that example was for physical illness, such as those who choose not to treat cancer - no I am not comparing AS/ASD to cancer, simply the personal choice of whether or not to treat something is the comparison) I know that if I had a lower functioning child, I would be pushing for everything possible to find a cure, and meanwhile make sure there were plenty of good, available services for my child. I would probably be doing the same thing for AS as well. I doubt there will ever be a "cure" but they may find drugs that help with processing and communication. Also sensitivities, both physical and emotional. I'd certainly love a drug like that for myself. I know that I react differently to many things, and I'd love to be able to deal with things like most NT's do. I would want that for my child as well.
My 16yo son has ADHD. He's on meds for that. They help. If there were no meds for it, I would be pushing for them to find a way to treat it.
I guess I'm saying that curing doesnt do away with a person. There can never be a shot to cure AS/ASD like antibiotics do an ear infection. There could be drugs that help with the symptoms of it, and that's what I think this mytical, futuristic "cure" would be. If a child who is lower functioning were given those drugs as a child, by the parent, and the drugs helped him communicate and process better and helped with sensitivities, etc, then that child's rights weren't violated anymore than a child being vien Adderall by the parent right's are violated. The ASD child could choose to stop the medication when he was of age to make his own medical decisions, just as an ADHD child can do. I suppose I'm feeling that people think Santorum wants some sort of "NT shot" to give AS/ASD kids and if the parents refuse it or it doesn't work, then lock us all up. I can't really imagine anybody wants that. And NT shot, I could see some people wanting, even people on the spectrum. But I can't see any American ever wanting some kind of mandatory medical treatment.
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My forum is still there and everyone is welcome to come join as well. There is a private women only subforum there if anyone is interested. Also, there is no CAPTCHA.

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Historical point: The Salem witches were actually not burned. They were hung.

Not to be a grammar Nazi, but a picture is "hung," and a person is "hanged."

-Bill, otherwise known as Kraichgauer
I'm really into etymology, and my brand of Autism often rejects what I believe to be arbitrary rules. Hung and hanged were synonymous for centuries, and either was perfectly acceptable. http://grammar.about.com/od/alightersid ... dgloss.htm
You can thank the real grammar nazis for arbitrarily deciding that only one of the words is now commonly acceptable, based solely on the frequency of usage.
I don't care. As far as I am concerned, both are still acceptable terms in this context. I didn't vote for those guys.
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I'm not likely to be around much longer. As before when I first signed up here years ago, I'm finding that after a long hiatus, and after only a few days back on here, I'm spending way too much time here again already. So I'm requesting my account be locked, banned or whatever. It's just time. Until then, well, I dunno...
Kraichgauer
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As for special ed, it's not just autistics who receive it. Granted, I haven't heard him and know only that he has a daughter with a genetic disorder and he's republican and my mother likes him. My mother liking him is reason enough for me not to like him. I can't imagine any parent wanting schools to not offer everything they can for kids. That's why I sound like I'm defending him. I want to think that what is said was either assumed (like I'm assuming, I admit) or taken out of context. I want to think this because he is a parent. I cannot imagine a parent not wanting the best for every child out there. I know there is a middle ground, but in my mind there are either good, caring parents, or parents who are abusive or neglectful. There is a middle of the road and logically I know it, but emotionally I don't.
I also know that a lot of people here are offended by the idea of a cure. I think that if there were a cure and it was mandatory or that services were abolished so that those who didn't want the cure would have no help, I would feel differently about it. Many people choose not to be treated for certain diseases but hospitals and hospices still care for them when they need it. (that example was for physical illness, such as those who choose not to treat cancer - no I am not comparing AS/ASD to cancer, simply the personal choice of whether or not to treat something is the comparison) I know that if I had a lower functioning child, I would be pushing for everything possible to find a cure, and meanwhile make sure there were plenty of good, available services for my child. I would probably be doing the same thing for AS as well. I doubt there will ever be a "cure" but they may find drugs that help with processing and communication. Also sensitivities, both physical and emotional. I'd certainly love a drug like that for myself. I know that I react differently to many things, and I'd love to be able to deal with things like most NT's do. I would want that for my child as well.
My 16yo son has ADHD. He's on meds for that. They help. If there were no meds for it, I would be pushing for them to find a way to treat it.
I guess I'm saying that curing doesnt do away with a person. There can never be a shot to cure AS/ASD like antibiotics do an ear infection. There could be drugs that help with the symptoms of it, and that's what I think this mytical, futuristic "cure" would be. If a child who is lower functioning were given those drugs as a child, by the parent, and the drugs helped him communicate and process better and helped with sensitivities, etc, then that child's rights weren't violated anymore than a child being vien Adderall by the parent right's are violated. The ASD child could choose to stop the medication when he was of age to make his own medical decisions, just as an ADHD child can do. I suppose I'm feeling that people think Santorum wants some sort of "NT shot" to give AS/ASD kids and if the parents refuse it or it doesn't work, then lock us all up. I can't really imagine anybody wants that. And NT shot, I could see some people wanting, even people on the spectrum. But I can't see any American ever wanting some kind of mandatory medical treatment.
I seriously don't foresee any sort of drug that can alleviate the symptoms of autism. But what can do a world of good, again, is special education - the earlier the better.
-Bill, otherwise known as Kraichgauer
OliveOilMom
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-Bill, otherwise known as Kraichgauer
I agree that there probably won't ever be a cure, but who knows. I also agree that special ed should be available. I don't know why anyone would think it shouldn't. Is he saying that special ed funding should be redirected toward research for a cure? If so, that's not even logical. What is helping now will continue to help even if there is something one day to help with symptoms. And we are years, decades, centuries, maybe eternity away from any type of cure. Why would anyone want to cut funding for special ed by using the hope of a cure as a reason? Or is that what he's said?
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I'm giving it another shot. We will see.
My forum is still there and everyone is welcome to come join as well. There is a private women only subforum there if anyone is interested. Also, there is no CAPTCHA.

The link to the forum is http://www.rightplanet.proboards.com
Historical point: The Salem witches were actually not burned. They were hung.

Not to be a grammar Nazi, but a picture is "hung," and a person is "hanged."

even though they were hanged they were indeed burned [see urban slang] in the slang sense that they were prematurely rendered dead by the impious hands of madmen/sociopaths. as for hanged versus hung, maybe some of these witches were really effeminate men? who could really say they knew? one would have to jump into the WABAC machine and go back there to surreptitiously peek under some hems to see for sure. that may be considered as "seeing the big picture."






Way to weasel out of that one!

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I'm not likely to be around much longer. As before when I first signed up here years ago, I'm finding that after a long hiatus, and after only a few days back on here, I'm spending way too much time here again already. So I'm requesting my account be locked, banned or whatever. It's just time. Until then, well, I dunno...
Kraichgauer
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-Bill, otherwise known as Kraichgauer
I agree that there probably won't ever be a cure, but who knows. I also agree that special ed should be available. I don't know why anyone would think it shouldn't. Is he saying that special ed funding should be redirected toward research for a cure? If so, that's not even logical. What is helping now will continue to help even if there is something one day to help with symptoms. And we are years, decades, centuries, maybe eternity away from any type of cure. Why would anyone want to cut funding for special ed by using the hope of a cure as a reason? Or is that what he's said?
As a Republican who had been so far to the right that he had been off the radar while serving in the senate, Santorum believes that it's somehow in the country's best interest to cut away at the social safety net, which includes special ed. Rather, he figures people are supposed to pull themselves up by their bootstraps, and should be responsible for their own children's education - like he always brags he does.
-Bill, otherwise known as Kraichgauer
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Ron Jeremy executed for witchcraft.
Film at 11
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Kraichgauer
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Longshanks
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I think a lot of this is being overblown. I'd worry more about Ron Paul and Barack Obama's views on autisim than I would Santorum. Obama almost had a massive coronary when he found out that an autistic air force officer commanded part of the tarmac force at the base he was visiting when I was serving there. Obama went so far as to demand court-martials.
-Longshanks
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Kraichgauer
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-Longshanks
Never heard that. Do you have a source?
-Bill, otherwise known as Kraichgauer
Longshanks
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For military reasons I can't reveal it. I just thank God he didn't find out about my AS. I commanded the other half.
-Longshanks
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Longshanks
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You are gracious, my friend.
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