Autism Research so white

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ASPartOfMe
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31 Mar 2016, 12:21 am

Autism Research Lacks Cultural And Ethnic Diversity - Forbes

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Dillogic
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31 Mar 2016, 5:09 am

A simple reason for why it might be so white is because a study may come from a white country. Studies from Japan will be so brown or yellow, for example.

Adamantium
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31 Mar 2016, 10:10 am

It might help to read the article before formulating simple explanations for the headline.

The results discussed in this piece are not the result of research carried out in "white countries."

LoveNotHate
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31 Mar 2016, 2:53 pm

Adamantium wrote:

It might help to read the article before formulating simple explanations for the headline.

The results discussed in this piece are not the result of research carried out in "white countries."

I read the article yesterday.

How do you know ?

My first thought was that white kids seemed under-represented at only 64%, since the US is 76% white.

xenocity
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31 Mar 2016, 3:40 pm

Dillogic wrote:

A simple reason for why it might be so white is because a study may come from a white country. Studies from Japan will be so brown or yellow, for example.

Actually it's more cultural and social.

In most Asian countries including Japan, China, India getting diagnosed with a disability of any sort gets you and your family a massive stigma.
It regular leads to people and relatives of people with disabilities getting fired and blacklisted.
Not to mention what society does as whole.

This is also big in Africa, The Middle East and parts of Eastern Europe.

Even those Asians who have immigrated to the Western countries still get rejected from their families.
This happens to people of African descent and even many white people.

It just happens that White majority countries are more accepting of disabilities than the rest and have the key research institutions.

Add this all to the lack of participants in Autism research, then you wind up with a very small pool of people that happen to be white.

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01 Apr 2016, 12:41 pm

I have to think, too many non-white kids still get second rate medical and psychological treatment, and so are misdiagnosed when they are actually on the spectrum, if they're diagnosed at all.

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Sweetleaf
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01 Apr 2016, 2:01 pm

Kraichgauer wrote:

I have to think, too many non-white kids still get second rate medical and psychological treatment, and so are misdiagnosed when they are actually on the spectrum, if they're diagnosed at all.

I don't think that is untrue, though I think its simular for poor white kids...for the first rate medical and psychological you have to be an upper middle class white kid.

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Kraichgauer
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01 Apr 2016, 2:22 pm

Sweetleaf wrote:

Kraichgauer wrote:

I have to think, too many non-white kids still get second rate medical and psychological treatment, and so are misdiagnosed when they are actually on the spectrum, if they're diagnosed at all.

I don't think that is untrue, though I think its simular for poor white kids...for the first rate medical and psychological you have to be an upper middle class white kid.

But you know, it's common for right wingers to say that poor and minority parents encourage their kids to fake autism in order to get gubment money. Then again, their relationship with the truth is at best strained.

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Adamantium
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02 Apr 2016, 7:43 am

LoveNotHate wrote:

Adamantium wrote:

It might help to read the article before formulating simple explanations for the headline.

The results discussed in this piece are not the result of research carried out in "white countries."

I read the article yesterday.

How do you know ?

My first thought was that white kids seemed under-represented at only 64%, since the US is 76% white.

Because the article makes it clear this is about research in the US and the US is not "white countries." Therefore "white countries" is not an explanation for the results discussed in the article.

You are correct, whites and a number of groups are under-represented in the sub-sample for which racial data was available. Multiracial children are over-represented.

More importantly, since more than 80% of the studies surveyed did not report racial information, the author's conclusions seem not to be supported by the data.

Quote:

The researchers point out that an evidence-based practice that is effective for some children may not be for others and that healthcare practitioners should examine the degree to which positive results reported for a narrow group of participants effectively translates to autistic children from traditionally underrepresented groups. By determining who benefits from different interventions and why, practitioners might be able to serve racially and ethnically diverse patients.

The "may not" from the first sentence seems to have become an "are not" by the second, despite absence of evidence for this.

Maybe the Forbes piece is badly written or maybe the study is flawed and doesn't support the conclusions discussed in the piece. It's hard to tell but the details as presented don't support the conclusions. One thing that is perfectly clear is that this has nothing to do with "white countries."

Kraichgauer
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02 Apr 2016, 3:49 pm

My daughter is in a special ed class made up mostly of autistic kids, including a black kid and an Asian kid. Yes Virginia, there are non-white autistics.

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