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ASPartOfMe
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Joined: 25 Aug 2013
Age: 62
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Location: Long Island, New York

23 Aug 2018, 1:49 am

CDC Expands Autism Monitoring Efforts

Quote:
For the first time, the government’s autism surveillance network will begin factoring the experiences of teenagers with the developmental disorder.

The Centers for Disease Control and Prevention is currently seeking out research centers to participate in the next round of regular autism tracking efforts through its Autism and Developmental Disabilities Monitoring Network.

Traditionally, the CDC has selected researchers at sites across the country to comb through health and educational records for 8-year-olds in their areas to assess how many qualify for an autism diagnosis. This data is then used to estimate autism prevalence, which was pegged at 1 in 59 children in the latest count released this spring.

More recently, the network expanded to include data on 4-year-olds as well as information on other conditions like cerebral palsy and intellectual disability.

Now, the CDC is eyeing teens. For the monitoring reviewing data from 2018 and 2020, the agency wants researchers at up to two sites to look at 16-year-olds who were previously identified as having autism symptoms in the network’s tracking when they were age 8.

“It’s essentially a follow-up on children who were first picked up by the surveillance system in 2010 or 2012,” said Matt Maenner, an epidemiologist who’s leading the CDC team that does autism surveillance. “This goal is basically to find out what’s happened to these kids since age 8.”

In addition to teens, grants for the new round of monitoring will require all sites to track autism in 4-year-olds. Previously, only half of the research locations looked at younger children.

The CDC is expected to release its next autism prevalence estimates — based on data collected in 2016 — in 2020. That report will be the agency’s first to primarily rely on diagnostic criteria for autism adopted in the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders, which took effect in 2013.

The first data on teenagers is likely to be included in the CDC’s 2022 and 2024 reports.


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Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person. - Sara Luterman