Page 1 of 4 [ 61 posts ]  Go to page 1, 2, 3, 4  Next

Redstar
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 25 Sep 2007
Age: 36
Gender: Male
Posts: 30
Location: Modesto, CA, USA

14 Nov 2007, 10:00 pm

I sent a letter to the newspaper in response to a grandmother of an autistic boy, after her comments on autism being an "insidious condition" offended me.

She wrote:
People with autism, not autistic people

Thank you for your article on Asperger syndrome ("Looking for answers," Oct. 7, Page A-1). In view of the alarming increase in the worldwide number of those who live with Asperger syndrome or classic autism, the more that is known about this insidious condition the better equipped we will be to deal with it.

There is one error in your reporter's otherwise excellent story. The article frequently referred to "autistic boys," "autistic high schoolers," "the autistic spectrum," etc. The accepted phrase is "with autism." It is used by parents, professionals and others who work with those who have any form of the syndrome. My grandson, Zev, is a young man with autism. Though the difference in terminology might not appear to be of much significance, it is important to those who are involved and I believe their wishes should be respected, particularly in the media.

****** ********

Modesto


I wrote:
Some of us like being autistic

I am 17 years old and I have Asperger's Syndrome. I am writing in response to "People with autism, not autistic people," (Oct. 12, Letters). Since I am autistic, I feel that I must speak out against her appalling treatment of something that most autistics don't feel is "insidious" or a "condition."

The writer said the correct identification of autistics is "with autism." This phrase is not the accepted term, and is actually hotly debated between the autistic treatment stance and the autistic community. "With autism" is mostly used by professionals and parents who do not truly understand autism. To those in the autistic community, denoting us as "with autism" makes it seem like we have some disease that should be treated — not something that is a part of who we are and enjoy being.

I may not speak for all those within the autistic community, but I feel that I have more voice than someone like the writer of the letter who dismissed autism as something "insidious."

STEVEN APPLEBAUM

Modesto


I'm very proud that that my letter was printed with almost no serious alterations from the original. :D



Age1600
Veteran
Veteran

User avatar

Joined: 22 Apr 2007
Age: 41
Gender: Female
Posts: 2,028
Location: New Jersey

14 Nov 2007, 10:15 pm

Wow Good Job, and i totally agree with you, i dont have autism, i am autistic, and i wouldn't have it either way!


_________________
Being Normal Is Vastly Overrated :wall:


hartzofspace
Supporting Member
Supporting Member

User avatar

Joined: 14 Apr 2005
Gender: Female
Posts: 7,138
Location: On the Road Less Traveled

14 Nov 2007, 10:48 pm

You make a good point, there. I have struggled to get this across a few times to NTs, who seem to view autism as a way of acting, or choosing to act, than a way of being. I cannot cast off my AS like a bad mood, whenever I feel like it. For example, I was trying to explain sensory overload to someone. They immediately said, "Oh, I get like that." As if it were an occasional malady, and not something that for me, is inevitable if I don't take steps to avoid or curtail certain situations.


_________________
Dreams are renewable. No matter what our age or condition, there are still untapped possibilities within us and new beauty waiting to be born.
-- Dr. Dale Turner


Age1600
Veteran
Veteran

User avatar

Joined: 22 Apr 2007
Age: 41
Gender: Female
Posts: 2,028
Location: New Jersey

14 Nov 2007, 10:59 pm

hartzofspace wrote:
You make a good point, there. I have struggled to get this across a few times to NTs, who seem to view autism as a way of acting, or choosing to act, than a way of being. I cannot cast off my AS like a bad mood, whenever I feel like it. For example, I was trying to explain sensory overload to someone. They immediately said, "Oh, I get like that." As if it were an occasional malady, and not something that for me, is inevitable if I don't take steps to avoid or curtail certain situations.


omgosh i totally know what you mean, i just wish more ppl knew and understood, instead of assumin, or just sayin stop acting like holy jeez i wish i was acting!


_________________
Being Normal Is Vastly Overrated :wall:


Redstar
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 25 Sep 2007
Age: 36
Gender: Male
Posts: 30
Location: Modesto, CA, USA

14 Nov 2007, 11:02 pm

Every time I describe autism or Asperger's Syndrome to anybody I do so in a really excited, jolted manner of speaking. Most people in my PE class think I'm mentally challenged for my head jerks and line-following.

After watching Mozart and the Whale, and reading more and more about autism, I think I have a higher functioning form of Asperger's Syndrome. I mean, I don't take medication, and in most situations I handle alright.

I started thinking back and I remember doing all sorts of stuff. I used to hit my head against the wall, flap my hands, eat grass and paper, and go hours without talking. There's probably more, but they must have been so deeply embedded that I don't remember

I feel kinda sad that I've integrated into NT society so much I've given up those autistic traits. I've begun an autistic withdrawal lately, hoping my mind will revert back to the way it was. Is that weird, wanting to be more autistic?



Age1600
Veteran
Veteran

User avatar

Joined: 22 Apr 2007
Age: 41
Gender: Female
Posts: 2,028
Location: New Jersey

14 Nov 2007, 11:24 pm

Redstar wrote:
Every time I describe autism or Asperger's Syndrome to anybody I do so in a really excited, jolted manner of speaking. Most people in my PE class think I'm mentally challenged for my head jerks and line-following.

After watching Mozart and the Whale, and reading more and more about autism, I think I have a higher functioning form of Asperger's Syndrome. I mean, I don't take medication, and in most situations I handle alright.

I started thinking back and I remember doing all sorts of stuff. I used to hit my head against the wall, flap my hands, eat grass and paper, and go hours without talking. There's probably more, but they must have been so deeply embedded that I don't remember

I feel kinda sad that I've integrated into NT society so much I've given up those autistic traits. I've begun an autistic withdrawal lately, hoping my mind will revert back to the way it was. Is that weird, wanting to be more autistic?


no sometimes i wish i was more autistic at times so at least ppl wont say to me, you dont look or seem autistic to me! Even though I don't 247 show my autie self, doesn't mean im not!


_________________
Being Normal Is Vastly Overrated :wall:


Redstar
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 25 Sep 2007
Age: 36
Gender: Male
Posts: 30
Location: Modesto, CA, USA

14 Nov 2007, 11:50 pm

I'm writing a book set in a world where autistics seperate themselves from NT society by establishing their own schools. There they learn the Autistic Disciplines, the combined behavioral modification and social conditioning and mental stability techniques so that autistics can function in normal NT society, but are still able to withdrawal whenever they want.



hartzofspace
Supporting Member
Supporting Member

User avatar

Joined: 14 Apr 2005
Gender: Female
Posts: 7,138
Location: On the Road Less Traveled

15 Nov 2007, 12:05 am

Speaking of hiding it, I have recently given myself permission to rock gently in public, whenever I feel the need. The other day, I was sitting on a bench, waiting for the bus, and gently rocking. Two college girls soon joined me. I was deep in thought, and when I finally looked up, I could see the old, familiar look of bewilderment. The girl quickly looked at her friend, and then back at me. Finding this irritating, I went on ignoring them. I could feel this tension, as they continued to communicate silently about me. I wonder why rocking is so disturbing to them, and so pleasant to me. Perhaps I should have started disrobing? At least their consternation would then be justified, at least to me! :twisted:


_________________
Dreams are renewable. No matter what our age or condition, there are still untapped possibilities within us and new beauty waiting to be born.
-- Dr. Dale Turner


Redstar
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 25 Sep 2007
Age: 36
Gender: Male
Posts: 30
Location: Modesto, CA, USA

15 Nov 2007, 12:06 am

I really don't like clothes. It feels good to be . And for some reason I have no sense of societal taboos. So I can go walking down the street in my boxers, or shirtless, and just say "I'm autistic, b***h." At least, I wish I could.



hartzofspace
Supporting Member
Supporting Member

User avatar

Joined: 14 Apr 2005
Gender: Female
Posts: 7,138
Location: On the Road Less Traveled

15 Nov 2007, 12:12 am

:o :lol:


_________________
Dreams are renewable. No matter what our age or condition, there are still untapped possibilities within us and new beauty waiting to be born.
-- Dr. Dale Turner


sinsboldly
Veteran
Veteran

User avatar

Joined: 21 Nov 2006
Gender: Female
Posts: 13,488
Location: Bandon-by-the-Sea, Oregon

15 Nov 2007, 1:54 am

so the Licensed Clinical Social Worker said "Have you ever thought of acting??" and I said "oh, yes! I am acting now" and she says "oh, where? one of the dinner theatres In Ashland?" and I said, "No, right here, right now, with you!" and she says "what do you mean? I don't see any acting" and I said "Bingo!" "What do you think, I live exclusively with NTs for almost 60 years and you think I don't know how to act?"

I still don't think she actually comprehends what I was trying to tell her.
we are poly neural, they are uni neural. They have no idea.


Merle



Apollyon
Toucan
Toucan

User avatar

Joined: 9 Nov 2007
Gender: Female
Posts: 299

15 Nov 2007, 3:09 am

I would never want to be "normal".

I've noticed most NTs have no sense of self, and end up miserable because of it later in life.
The prognosis: Apollyon likes her brain.

One of my former bosses told me once, (after I'd gotten comfortable around my co-workers) that I should get into acting. I told her, I can't act. She laughed pretty hard and said, "oh yes you can! you do it all the time and you're good at it!"

Funny how I can't see myself, outside of myself.



Aysmptotes
Sea Gull
Sea Gull

User avatar

Joined: 10 May 2007
Age: 38
Gender: Female
Posts: 227

15 Nov 2007, 3:12 am

I heard on NPR this guy who was saying how offensive it was to say that you wished that your kid didn't have autism but they still loved their kid. It is part of who we are and our personalities. He said it is equivalent to saying, "Oh I love my kid, but I wish that my kid was a boy instead of a girl, but I still love them."

I people shouldn't pity us for how we think and interact with the world.

For some reason it reminds me of the Stepford Wives. I never saw the movie but I read the book and it is the scariest thing I have ever read. This was before I knew I had AS, but the throught that someone (my parents) would change me if they had the chance or at least delude themselves into thinking this new thing they create is me, scared the hell out of me. Because I know that they would. If my mother had a magic wand to change me, I know she would. And I equate that with wanting to erase the other's soul and existance.

I want to tell people about myself, and how I interact with the world and how I think and feel about things, and not have it belittled. But it is misunderstandings such as the newspaper article which prevent me and others probably from being open about themselves.



Apollyon
Toucan
Toucan

User avatar

Joined: 9 Nov 2007
Gender: Female
Posts: 299

15 Nov 2007, 3:53 am

Interesting that you bring up Stepford Wives, because this (concept) is mostly how I view NT society.

I don't like the idea of being forced to change, either unwillingly or unknowingly- for "my own good". My own good according to whom? They don't know me.



Age1600
Veteran
Veteran

User avatar

Joined: 22 Apr 2007
Age: 41
Gender: Female
Posts: 2,028
Location: New Jersey

15 Nov 2007, 4:32 am

hartzofspace wrote:
Speaking of hiding it, I have recently given myself permission to rock gently in public, whenever I feel the need. The other day, I was sitting on a bench, waiting for the bus, and gently rocking. Two college girls soon joined me. I was deep in thought, and when I finally looked up, I could see the old, familiar look of bewilderment. The girl quickly looked at her friend, and then back at me. Finding this irritating, I went on ignoring them. I could feel this tension, as they continued to communicate silently about me. I wonder why rocking is so disturbing to them, and so pleasant to me. Perhaps I should have started disrobing? At least their consternation would then be justified, at least to me! :twisted:


I had this happen to me too, i recently startin rockin in public and boy do ppl talk, its like whats wrong with rockin honestly? I wish ppl just for once get a life instead of spendin their days making fun of other ppl. I also ignored them, done caring what ppl think!


_________________
Being Normal Is Vastly Overrated :wall:


fangfarrier
Sea Gull
Sea Gull

User avatar

Joined: 5 Nov 2007
Age: 59
Gender: Male
Posts: 221
Location: In the Highland of Scotland, never far from a pie shop

15 Nov 2007, 10:00 am

hartzofspace wrote:
Speaking of hiding it, I have recently given myself permission to rock gently in public, whenever I feel the need. The other day, I was sitting on a bench, waiting for the bus, and gently rocking. Two college girls soon joined me. I was deep in thought, and when I finally looked up, I could see the old, familiar look of bewilderment. The girl quickly looked at her friend, and then back at me. Finding this irritating, I went on ignoring them. I could feel this tension, as they continued to communicate silently about me. I wonder why rocking is so disturbing to them, and so pleasant to me. Perhaps I should have started disrobing? At least their consternation would then be justified, at least to me! :twisted:


Wear an Ipod or other MP3 type, one, the music helps block out other distractions and two, if seen rocking it might be assumed you're moving to a beat!


_________________
Asperger's is the reason for my behaviour,
Not an excuse.

Me, after much thought on the matter.