Clean Rooms to Detox ASD's

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http://www.scrippsnews.com/node/33093
"With childhood autism cases skyrocketing and no cure in sight, doctors at the Children's Institute in Pittsburgh are planning on a Hail Mary pass approach to the mysterious disorder -- housing young patients for weeks at a time in a pollutant-free "clean room," in an attempt to detoxify their bodies.

No cause for autism has been found, and debates rage as to whether the brain development disorder is purely genetic or caused in part by environmental factors, including air and food-borne chemicals.

With roots in autism treatment theories that until now have lived mostly on the Internet, the pediatric clean room plan would be the first of its kind in a mainstream American hospital environment.

The Children Institute's Scott Faber, a pediatrician with several hundred autistic patients and a waiting list six months long, is one of the believers in toxic causes, and the institute is trying to back him with a multimillion dollar test of the novel theory.

Under the plans -- developed with help from Duquesne University -- autistic patients would live for more than six weeks in a 1,000-square-foot room kept mostly free of harmful chemicals and pollutants, using special air-filtering systems, ultraviolet lights and air locks on doorways.

Furniture, paints, toys and floor coverings would be designed to be toxin-free, and food, clothing and water organic and clean. Doctors would seek to rid patients' bodies of chemicals and boost their immune systems through natural means such as nutritional supplements and dietary changes.

Basically, it would be pushing a "reset" button on the child's body, with the hope of wiping autistic symptoms away.

"What we would like to do is have kids live in this wonderful environment where they are exposed to almost none of the Industrial Revolution. And we wonder, if the chemicals come out and the heavy metals come out, will the children start improving?" Faber said.

"Will they start showing signs of clinical improvement, such as language improvement and socialization improvement? Will they become less obsessive? Less fascinated?"

Autism is one of a group of developmental disabilities disorders that cause substantial impairments in social interaction and communication, and are characterized by unusual behaviors and interests. Many people with these disorders also have unusual ways of learning, paying attention and reacting to sensation. Rates have greatly increased in recent years, according to the U.S. Centers for Disease Control and Prevention, though some of the rise may be due to changes in reporting and diagnosing the disorder.

It will require an estimated $500,000 to fully design and at least $1 million in yearly operating support its first three years.

The Children's Institute plan would be taking what is arguably a fringe movement into the mainstream: It would be the first autism treatment of this kind staged in an American hospital setting. It will be matched with scientific analysis, sensors and video cameras to study the real impacts of detoxification. The data and findings will be shared openly, he said.

The room would house only one patient at a time and have educational and play spaces, and a table for dining. Medical staff, teachers and family would have regular access to the room through an air-locked entrance, and another air lock would separate the room from a kitchen and laundry area. There will be a small bedroom for the child and a couch for a family member to stay overnight.

At the outset, patients would be only the sickest children, who have not responded to other treatments. They would stay six to 12 weeks, allowing an estimated four to six children to be treated per year. (Twenty families have already expressed interest.) After leaving, spaces at each patient's home would be equipped with lower-level clean technology, such as ultraviolet lights and air filters, and children would continue with special diets.

With so many doubts -- and so few answers -- about effective autism treatments among the growing community of families affected by the condition, the institute said openness is vital to the experimental method's success.

"We're not saying this is the full cause" of autism and related illnesses, Faber said. "Obviously there are multiple causes, and there are going to be found many genetic causes, many environmental causes and many genetic-environmental interactions. But we wonder -- we speculate -- that it's possible if we have children living in a unique environment that has not (previously) been created scientifically that we can make a difference."

Educational, physical, speech and behavioral therapies have long been the traditional treatments for autism, but a growing number of families and researchers have called for further biomedical treatments as well, suspecting there is a chemical side to the disorder.

Parents "research anything they can get their hands on and there are so many things saying 'Try this or try that' that aren't necessarily safe. It's a frightening thing," said Kim Aburachis, of Peters, Pa., who has twin 10-year-old boys, Nathan and Tyler, with severe cases of autism. Her boys have seen Faber for more than seven years and are likely to take part in the clean room treatment.

"We're so excited, so enthusiastic, just for the hope of this," she said.


Reach Tim McNulty at tmcnulty(at)post-gazette.com.



(Distributed by Scripps Howard News Service, www.scrippsnews.com.)"



I don't think I would like being treated like I was a bio hazzard for six weeks.

Yet another stupid attempt at dehumanizing us. Autism is *not* a disease. AIDS and cancer are.

They're trying to help. What I read about doesn't sound like dehumanization at all. It seems like no matter what the government tries to do for autistics, it's spit back in their faces. If absolutely nothing was done for autistic children, if they were ignored, people like you would whine-whine-whine about that. I'm petty sure thsat no matter what stance was taken by the medical community, they'd get accused of commiting horrible Nazi-like acts. Grow up.

and now they are proving the 'epidemic' of asthma is because kids were kept too clean, too antiseptic as children and causing the malaise to flourish.
we must be so painful to folks, I can not imagine!
My parents thought that it could be 'cured with a paddle/belt' and I thank gawd they had not heard of the electrified floor treatment!
Merle

Yet another autistic activist. When will you people learn that autism is often a bad thing?

Not every autie or aspie buys into the "no cure" movement, and many, such as myself, do wish to improve ourselves.

I won't pass an opinion on the approach, but I am going to look up the paperwork involved, because I'm interested in knowing how the project was presented, where the funding is sourced, and what procedures have gone through on it. This is very controversial and thus it is interesting in that it appears to have "made it" in a hospital - usually it's difficult to get even the most straightforward medical program through if it involves money.

I could never wish, for myself or for anyone else, to become "less fascinated." People aren't fascinated enough as it is.

Yet another superior condescending attitude that separates auties from each other by calling us 'you people.'


Merle

I think hospitals should move to this model for all rooms. It seems like disease would have a harder time spreading from one patient to another if there were airlocks between each set of rooms.

I also think we should give the hospital credit for trying something. They seem to indicate in the article that the hospital thinks it's a long shot, but that they want to do something to improve the situation for autistics in their care. Autistic families in their area are volunteering to use these rooms - it's not some kind of mandate that autistics have to reside in these special rooms during their visits.

Even if it doesn't work, the scientific community can cross it off their list of potential options for autistics. Personally, I think a private room devoid of all the hospital noise would be nice.

I would like for the toxins approach to be finally laid to rest after all, so parents aren't shelling out thousands of dollars for quack detox treatments that range from useless to deadly. I suppose that the proliferation of quacks is why it got approved. I suppose that the researchers want to bust the quacks once and for all. This is a good thing.

For an idea of what can happen when the quacks gain the upper hand, read Charlatan by Pope Brock, the story of John Brinkley, a diploma mill "doctor" who from 1921 to 1937 promised to cure impotence (excuse me, erectile dysfunction) by switching men's natural testes for those from goats. Of course, most of the "patients" died, from blood infections if nothing else. Brinkley killed himself in 1937 after becoming embroiled in an endless lawsuit filed by the first generation of quackbusters, funded by the infant American Medical Association. While not the solution they'd wanted, at least it stopped the wave of deaths.

Brinkley ran the most powerful radio station in Kansas to promote himself, and when he finally got kicked out of Kansas, he set up shop in Del Rio, Texas, in the Rio Grande Valley, and constructed a one megawatt (one million watt) radio station in the shantytown of Ciudad Acuna on the other side of the river in Mexico. On a good night, you could hear him in Fairbanks, Alaska. The radio station was on the air long after Brinkley's mansion and hospital had crumbled into the Texas sand. After he died, it played music-first what we would call country, then early rock. It finally went off the air in the early 1980s, having been superseded by technology. Aside from the countless deaths and the invention of quackbusting, Brinkley's legacy lived on in the radio station. Most quacks aren't that smart, albeit twisted smart. But every time an "incurable" syndrome rears its head, Brinkley's ghost laughs.