Unexplained Rapid Weight Loss

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technicallyedible
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29 Dec 2020, 7:25 pm

League_Girl wrote:
Weight loss is caused by less calorie intake than your body uses. Since you have been sick, you haven't been consuming as much calories as usual so the weight shed off.


I wouldn't worry about it and I would only worry about whatever medical issue you are having. Unless you were already underweight to begin with, then you can worry.

Stress has made me lose a few pounds but that is because I always lose my appetite and I lose interest in food. I have to force myself to eat but I don't eat much each meal and I eat more like once a day then.


Thanks, League_Girl! I think it was stress or something similar but the magnitude was rather shocking to me. ~15 lbs a month... That is pretty gnarly and doesn't sound good for the body.



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29 Dec 2020, 7:30 pm

technicallyedible wrote:
goldfish21 wrote:
GI issue = Autism. IMO

Thanks! Anecdotally, how prevalent are "unexplained" G.I. issues associated with autism? New and still learning here.


Unexplained, I dunno. But GI issues are extremely common on the spectrum.

You’re new here. I’ll bring you up to speed on who I am to the forum:

~8.5 years ago my symptoms were at their worst.
~8 years ago I discovered their intestinal root cause and have been treating my symptoms ever since via diet & naturopathic medicine.
Symptoms have been relatively mild for the last 8 years, except when I take antibiotics or my diet is poor.

I’ve started a new career, made money and lots of friends, partied a fair bit, back to sports and fun, bought and paid off a new car and old motorcycle etc - life is pretty good with AS under control. Literally only one person I have met in the last 8 years realized that I’m autistic - because his brother is. l

People here didn’t believe me. I’m sure most still don’t. But 8 years is a long time and autism studies have since been published reporting Exactly what I shared here 7+ years ago - right down to the chemical sensitivities I discovered in myself being common on the spectrum (70%) which indicates to me that this is a common cause of autism & is treatable in many people.

So, when I say GI issue = Autism, that’s exactly what I mean. Treat the GI issue, treat the autism - and then live a happier, healthier life.


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goldfish21
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30 Dec 2020, 7:59 pm

Maybe it’s a tapeworm?


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technicallyedible
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30 Dec 2020, 8:49 pm

goldfish21 wrote:
Maybe it’s a tapeworm?

That would be a simple fix.



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30 Dec 2020, 11:28 pm

Om Nom hugs


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31 Dec 2020, 12:46 am

I wish you well and hope you can figure out the cause of your unexplained rapid weight loss.
Since you posted this in "The Haven", it is difficult for me to determine if you are seeking advice or sympathy. Because of being an Aspie, I rank poorly in the sympathy department. But I do at times freely give advice. So I have hidden my advice under the Spoiler cloak of invisibility. But you are welcome to look if you wish.

Weight loss and lack of appetite can be a sign of cancer. A few months ago I was experiencing some weight loss. Not near the level that you experienced. I was also experiencing some GI problems and some lower stomach pain. I had it checked out. In the end it turned out that I had thousands of gallstones whose total mass was that of a golf ball. The problem is that generally when this happens the gallbladder can fuse with the kidney and cancer will take root. In my case they caught it just in the nick of time.

According to the American Society of Clinical Oncology:
* When first diagnosed with cancer, about 40 percent of people report an unexplained weight loss.
* Up to 80 percent of people with advanced cancer undergo weight loss and wasting. Wasting, also known as cachexia, is a combination of weight and muscle loss.

According to American cancer society statistics, 93.6% of most cancers are curable if detected early and treated before spreading.


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technicallyedible
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31 Dec 2020, 3:18 am

Thanks so much everyone. May have left this out of original post... I originally thought it might be cancer so I asked for all available blood panels/urinalysis. Doc had a chest x ray done as well. All were clean, in fact I got better read out than 5 years ago. I then followed up with a request for mail-in colorectal screening kit which I've asked about twice and have not received. I appreciate everyone's sensitivity. To an earlier question: I am looking for any push in a good direction. A bit demoralized since my doctor seems completely unconcerned with 45 pounds of weight loss. I am not really a great advocate for myself in person and am more concerned with not upsetting and being considerate of people than getting what I need. I get this weird paranoia that the more frequent and raucous my requests as a patient, the more likely my doctor will "check out" and take a passive role in helping me. I can't seem to balance things and it really fills me with anxiety.

I feel like my need for care is directly pitted against my anxiety and catastrophizing tendencies.. Sometimes, like right now, I feel like I am suffocating under the weight of what many have told me is an easy decision. You'd think I had my hand hovering over the doomsday switch.
<--- May be triggering for those dealing with depression. The thought of trying and failing to get care again is overwhelming.

Thank you again, kind sages of the Haven of WP!



The_Face_of_Boo
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31 Dec 2020, 11:22 am

goldfish21 wrote:
GI issue = Autism. IMO



https://www.autism.org/gastrointestinal ... -behavior/

My brother has colitis.

I wonder if there are silent GI issues, like having one without feeling any pain?



technicallyedible
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31 Dec 2020, 12:37 pm

The_Face_of_Boo wrote:
goldfish21 wrote:
GI issue = Autism. IMO



https://www.autism.org/gastrointestinal ... -behavior/

My brother has colitis.

I wonder if there are silent GI issues, like having one without feeling any pain?


Very cool link! Thank You! I will hold on to this for the next time I write my Doc (later today).

Best,

T.E.



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31 Dec 2020, 12:50 pm

As someone who's morbidly obese, I would welcome some unexplained rapid weight loss.



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31 Dec 2020, 1:59 pm

The_Face_of_Boo wrote:
goldfish21 wrote:
GI issue = Autism. IMO



https://www.autism.org/gastrointestinal ... -behavior/

My brother has colitis.

I wonder if there are silent GI issues, like having one without feeling any pain?


Thanks for that quick read. I’ve been sharing very similar self learned info here for nearly 8 years. There’s a bit of new to me info in that little article though, so thanks for that. 8) Scientific understanding of autism continues to grow, evolve, and explain the finer details of what I merely have a rougher personal experiential understanding of. It’s nice to learn more of the micro details. 8)

Yes. I don’t recall ever experiencing any pain, And didn’t even realize I Had any GI issues until I dealt with them because what I experienced was normal to me my entire life. Had any medical professional asked me if I had GI issues I would have honestly said “No, none,” not realizing that what was normal for me was abnormal for a typical human being. It’s for that reason that I believe GI issues are drastically under-reported in both autistics and the general population.


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technicallyedible
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31 Dec 2020, 2:16 pm

goldfish21 wrote:
The_Face_of_Boo wrote:
goldfish21 wrote:
GI issue = Autism. IMO



https://www.autism.org/gastrointestinal ... -behavior/

My brother has colitis.

I wonder if there are silent GI issues, like having one without feeling any pain?


Thanks for that quick read. I’ve been sharing very similar self learned info here for nearly 8 years. There’s a bit of new to me info in that little article though, so thanks for that. 8) Scientific understanding of autism continues to grow, evolve, and explain the finer details of what I merely have a rougher personal experiential understanding of. It’s nice to learn more of the micro details. 8)

Yes. I don’t recall ever experiencing any pain, And didn’t even realize I Had any GI issues until I dealt with them because what I experienced was normal to me my entire life. Had any medical professional asked me if I had GI issues I would have honestly said “No, none,” not realizing that what was normal for me was abnormal for a typical human being. It’s for that reason that I believe GI issues are drastically under-reported in both autistics and the general population.


Thanks too for the personal piece of the story. These two types of info need to be discussed together in a common context and explored. I'll certainly keep sharing myself, and am interested in this gut/brain connection. Kind of interesting information when one considers the Chakras/Ayurvedic medicine as well. People have been finding patterns and connections in health for thousands of years prior to the invention of instrumentation and experimental frameworks for verifying them scientifically.Enjoying the discussion. Thanks!



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31 Dec 2020, 3:25 pm

^Indeed! (Chakra connections)

Maaaaaybe ~8 years on Wrong Planet is finally ready for this conversation? It sure as F wasn’t when I shared what I’ve learned & done several years ago. :roll:


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31 Dec 2020, 4:50 pm

Sounds like Malabsorption or similar.

Has your blood been tested for nutritional deficiencies?



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31 Dec 2020, 7:29 pm

goldfish21 wrote:
^Indeed! (Chakra connections)

Maaaaaybe ~8 years on Wrong Planet is finally ready for this conversation? It sure as F wasn’t when I shared what I’ve learned & done several years ago. :roll:

Nope. Not ready. Come back in about 8 years.


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31 Dec 2020, 7:38 pm

technicallyedible wrote:
Thanks so much everyone. May have left this out of original post... I originally thought it might be cancer so I asked for all available blood panels/urinalysis. Doc had a chest x ray done as well. All were clean, in fact I got better read out than 5 years ago. I then followed up with a request for mail-in colorectal screening kit which I've asked about twice and have not received. I appreciate everyone's sensitivity. To an earlier question: I am looking for any push in a good direction. A bit demoralized since my doctor seems completely unconcerned with 45 pounds of weight loss. I am not really a great advocate for myself in person and am more concerned with not upsetting and being considerate of people than getting what I need. I get this weird paranoia that the more frequent and raucous my requests as a patient, the more likely my doctor will "check out" and take a passive role in helping me. I can't seem to balance things and it really fills me with anxiety.

Your doc is more likely than not, not so much unconcerned with your cancer concerns, as weighed down by this coronavirus thing, even if not directly involved in treating it. The delay in receiving the test may reflect a pandemic situation too, whether a lab has closed or the posts are slow. Call the doc's office and ask to speak to a nurse. Explain that you have asked twice for the test, and you wonder if it was ever ordered? (say this in a pleasant voice.)

Doctors are only human. I think my own primary care doctor is possibly having a nervous breakdown (I won't go into why) and am thinking about changing docs, but I'm in the middle of a wheelchair order and I'd rather get that finished before I switch docs. My whole point here is, the failure in getting the test to you might have NOTHING to do with your doctor's attitude and more to do with his/her aptitude.


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