Dragonsanddemons’s Health Diary

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You are doing just fine dragon sister

Looks like my chemo will probably be delayed because my brother has a fever, so he probably at least needs a negative COVID test before I can be cleared.

Edit: Heard back from the clinic, they said to go in tomorrow but there's a chance they'll turn us away when they ask the COVID screening questions.

I'm home after chemo now. They didn't even ask my mom and me any screening questions, just checked our temperatures, which were both normal, so no worries there, thank goodness. Everything seems to have gone well, I'm a bit tired but otherwise feel fine. Now I just wait until the effects of the chemo hit me, I guess.

There are times when people take chemo well.

But at least you won't be surprised if the chemo side effects occur.

Did you read on your phone during the infusion?

Been thinking of you D & D, especially knowing you’ve now begun the chemo. Hoping that if you do have any side-effects, they be minor. Sending and wishing you only the best. xx

Sorry for the delay, but at least it’s for a good reason. I feel much better than I have in months and have been thoroughly enjoying my renewed energy (but don’t worry, I’ve warned my parents that as long as I feel this good, they’ll have to help me ease back into things instead of just doing everything and overdoing it). I went along with my dad while he walked the dog to the end of the street last night, then again today (dog is about three-fourths my weight, I’m still having someone else take him until we’re sure my legs are sturdy enough that he won’t pull me over if he tugs on the leash). I refilled my own ice water and finished clearing the table after dinner, and my legs didn’t even feel tired afterward! I walked out to the kitchen and scooped my own ice cream. I walked up and down the stairs a few times just because my legs felt like they could use a little stretch and didn’t need to use the railing to pull myself up, then didn’t need a break before going back down. My mom video-called my grandparents and I decided to do a few jumping jacks to show them how great I’m feeling. None of these are things I could have done just the day before yesterday. I feel the lump on my neck, and it has decreased by about three-fourths from its pre-chemo size, I had to hunt for it a little when I went to check just now. I am well aware that the side effects could suddenly slam me sometime over the next few days, but so far have only had a bit of dry mouth and otherwise feel great!

I'm back to my pre-chemo "usual" self now, mostly. My legs aren't quite as weak, but it's back to the dizziness and nearly graying out when I stand. I also feel as if I've burned my entire tongue, making eating and drinking challenging (it's probably because taste bud cells are one of the fast-growing types of cell that get hit along with the cancer cells). Even if it's something cold, it's just like "Ahh, cool - ow, ow, ow, ow, ow!" At least once I get started eating it isn't so bad for the rest of that eating session, but every time I take a sip of cool water, gosh-dang, it hurts.

Darn....that sucks! How are you with hot liquids?

I’m sorry this is happening to you. Did you talk to the doctor about it?

... Hm..

Could ask and mention to a nurse anyway.. They expect questions..

Sometimes nurses are able to give tips on how to ease aspects of a problem

(just from practical experience fr so long ..

Not smthing that can officially be written or told as it isnt supposed to be 'on the record' ... Lots of protocol that keeps them from saying anything straight up UNLESS told n asked .

if we ask n keep them 'in the loop' ...

sometimes we get help or a rough idea of how long something could last...? )

My mom went ahead and called, and the doctor sent in a prescription for "magic mouthwash," which contains lidocaine. It's working its magic right now, my tongue feels so much better. Earlier today having a sip of cool water made my eyes water and my heart feel like it was trying to escape my chest, it hurt so bad.