Wow, Crohn's sucks sometimes

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Not autoimmune diseases such as Crohn's. IBS, maybe, but not IBD. There has been no demonstrated link.

Actually, I asked the dietician about it, and she laughed and said that gluten-free was essentially the new fad diet.

It is also not true that autistics are more likely to have trouble handling gluten. That's a common misnomer.

Yeah there's so much garbage talked about crohn's it's unreal, check out Amazon and see how many wonder cure diets there are when everyone with crohn's knows that any food will affect you differently at different times seemingly randomly. I asked my gastro if after his many years of treating crohn's he's noticed any patterns to the food that people need to avoid favour and he simply said 'no'. People are desperate though and they'll believe anything in the hope it'll work. I've spent plenty of cash on stuff to help but to no avail. My Granddad says he's found something that's completely sorted him out but it's something like £120 for the stuff, I'll post here when I get it and if it helps. Think I'd pay anything to get rid of this.

There is a certain type of aspie who cannot handle gluten. I have met 2 on my travels... the gluten actually rubs the vili off their small intestines and they become weak and skinny with a swollen stomach. NTs can have it too. I think it is a very different animal to crohns though.... I think crohns has an impact on the large intestine.

I think even in people without coeliac, gluten can be hard to digest for some. It is a very complex protein which the body has trouble breaking down.

Certainly there will be some with AS and gluten issues. The point is that gluten issues are no more prevalent in the autistic than in the NT population. I think it's confusing because apparently celiac disease has symptoms which are similar to certain autistic traits.


It depends on the Crohn's. Mine is in the ileum (the end of the small intestine) and has different symptoms than someone whose Crohn's is limited to their large intestine. It is, as you say, a totally different animal.


It can be, but unless it's confirmed by a blood test that celiac is your issue, it's not worth pursuing because the dietary restriction is almost impossible to stay on.

True. Ive met lots of aspies who dont seem to have problems with gluten. The people I have met with coeliac tend to be very fair, from what Ive noticed, so it may be a european gene.

My own intolerance is sugar.. I have not very good blood sugar stabilisation. A sugar-free lifestyle is a restriction I wish to place on myself.

I dont know a lot about crohns, I think my uncle has it though.

Crohn's victim here. Non-Aspie.

I work at a vet clinic, and we have a saying: "Better Pred than dead." Meaning, better to deal with the side-effects of the steroid Prednisone than live a life of misery and eventually die. When I flare up, I pop that stuff like candy and wash it down with an Adult Beverage. Sure, it'll make you manic, irritable, angry, or "overly friendly" (depending on your personal chemistry) but it's better than being sick.

Also: ask your gastrointestinal doctor about a drug called Humira. Works wonders, keeps me flare-free for months at a time (and my Crohn's is deadly severe so that's pretty good). It's self-injectible, comes in one of those spring-loaded Epi-pen deals. Hurts like crazy for a few seconds, but again, better than being sick.

ALSO: For what it's worth, corn sets me off. Cooked, raw, corn chips, popcorn, high fructose corn syrup, original corn syrup, whatever. It's the proteins. Sets the ol' immune system into high gear and tells my intestines to start eating themselves. Try avoiding it for a while. Couldn't hurt. Your results will vary.

I've made it nine years with Crohn's without offing myself, and you can too. Plus, you have the benefit of the good old Aspergers, so fill your time with delicious videogames and online Dungeons and Dragons.

Of course, dungeons and dragons! I knew there was something I could be doing to fill the time