I have a problem
iheartmegahitt
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Joined: 9 Sep 2010
Age: 37
Gender: Female
Posts: 784
Location: My own little world - No outsiders allowed!
Anyway, about me having mental retardation.
the mental retardation affects me as far as daily skills go. In other words, I'm unable to hold a job because if stress factors and also having massive anxiety problems. But then I also have trouble being able to do laundry or doing the dishes and stuff like that.
I know its kind of complicated but each one affects me in a different way.
Uh...oops.
Hey, take that picture with you so you have something to soothe you if it gets intense.
The way you describe your impairment, it sounds mainly emotional, not having to do with intelligence.
Hey, here's another idea...have you ever done any cosplay? I find sometimes that if I dress up and pretend I'm someone else...I can have an easier time in situations like these. It can also make me feel conspicuous sometimes, and stared at--but I know that a crazy wig or hat or a mask can do a lot for my ability to cope sometimes. Heck, half the folks at the con will be all dressed up, it might actually make you less conspicuous.
Cosplaying was my original intention in the first place. XD That's why I was going as Roxas from Kingdom Hearts so people wouldn't think it was weird that I was carrying around my Axel plushie which is something I tend carry around with my for comfort reasons. >o<
_________________
Diagnosed with an autistic disorder (Not AS but mild to moderate classic Autism), ADHD, Learning Disability, intellectual disability and severe anxiety (part of the autism); iPad user; written expressionist; emotionally-sensitive
I don't think this person is mentally ret*d. The way they describe it, their impairments are all autism related. If someone diagnosed them as mentally ret*d, they are likely wrong and the OP should seek a new doctor.
And it does sound like this person is just wanting their way, or making it sound worse for them by saying they're mentally ret*d just so they can get in the front of whatever convention they're going to. Just because someone has a special interest in something doesn't entitle them to throw a fit when they don't get their way-- there are other ways to explore interests. Especially when you're the OP's age (20's.)
In your opinion...but remember that this is the haven. She came here because she's struggling. Maybe she needs a kick in the hind in...I know I do now and then...I think we all do.
I'll also remind you that refrain of "there's nothing wrong with that child--he/she is just spoiled" is what most parents of ASD kids face all the time from lots of well-intentioned friends or relatives who have no clue what Asperger's or Autism is all about.
Fact is, we don't really know the OP and what her life is like. Positive reinforcement and suggestions on how to cope are probably going to be more helpful than negative comments about how she's misdiagnosed, not this or that, or just needs to suck it up--but that's just the ASD mom in me talking, a hazard of reading too many parenting books.
_________________
-Amy
without the dark of night we could not see the stars
hereirawr.wordpress.com <---shameless self-promo
iheartmegahitt
Veteran
Joined: 9 Sep 2010
Age: 37
Gender: Female
Posts: 784
Location: My own little world - No outsiders allowed!
Did I ever SAY that mental retardation affected me getting into a convention? No. I just said I HAD the mental retardation. D: You really shouldn't judge people because like so, you never know how a person could be struggling in real life, especially if you don't know that person very well. I don't think it matters even if I am able to write better than I could speak. The only reason is because writing/typing is my way of expressing myself when I can't do in a more verbal aspect. Writing is something I do often when I can't explain something verbally. It's my alternate form of communication.
Sorry, I had to throw that out there. Really. I mean I didn't come here to be attacked or ridiculed when you guys have only just met me. It seems like a lot to throw at me without realizing that I might actually have something but yet you don't know it. I think that is more wrong because I only come here asking for help for what I struggle with now. In time, if I like being here and start fitting in more I'll come more often but right now, it seems to me like you guys don't seem to want to accept me either. I just want to try to fit in with those people who might be able to see how hard it is very me to life the life I have.
I've had a rough life of being emotionally abused/disturbed/traumatized in elementary school. Never getting the help I needed due to the ignorance of NTs. This has affected me greatly more and more to a point where I can't do things I should be doing at the age of 21. You can't just 'determine' something from anyone by what you see. This is what I go through every day and it's something that can anger me a lot.
Anyway, I don't want to be off-topic but I can say that I have done things that can help prevent most of my meltdowns. Like having my laptop in the hotel room with me. Also having my two pillows I can't sleep without either. I also have my DSes to keep me stimulated to prevent boredom and more pressure and anxiety.
I just worry more about what's going to happen since I can never control my meltdowns. Seriously guys, if I could control them I wouldn't be having them, don't you think? My meltdowns happen like a person has a seizure. Can a person with a seizure tell when they are going to have an attack? No. That's with my meltdowns. I don't have them for attention. I have them like most autistics, I release the anger and frustration I am faced with because I have a hard time expressing it in a manner more mature as what NTs would deal with. You of all people should realize that. Different people have different situations that trigger meltdowns just like different aspies have different symptoms. No autistic person is ever going to be the same and a lot of times different things can affect them.
That's why I want to prevent from having the ridicule of a meltdown if something were to trigger my anger or something where I couldn't control myself. I don't ask for it out of being spoiled or misbehaved. I do it because I know that I can't control my meltdowns. Believe me. My meltdowns are so severe that after they happen, I feel like I have just had a seizure. When really I didn't. I can remember what I did for the meltdown and what I did after but never in between.
Anyway, I hope this helps you understand me better. I mean you're right, someone who is 21 shouldn't be diagnosed with what she has but you don't know that have of it. You shouldn't judge someone because of age because as I said before, you don't know what the person could be dealing with.
Now I really don't want anymore of this talk of me not being mentally challenged or learning disabled because it bothers me a lot. This is something even NTs will nag me about. You can't judge me until you learn more about me and my daily struggles in life without hearing the facts first. If you don't want to try and understand it, that's your problem but don't come in hearing telling me I don't have something or that I'm a fake. I'm just now getting very little of the help I should gotten when I was younger and never got. So please, I really don't want anyone nitpicking me about this. You're right, maybe I am still learning about what I might have and I don't have. But let me deal with that and not all of you guys. It's my problem and not yours.
So yeah again, if that doesn't clear things up well, whatever. It's your problem but I really feel overwhelmed by the fact that some people here don't want to accept me and not see my daily struggles when I haven't even once told you how I am affected by them.
_________________
Diagnosed with an autistic disorder (Not AS but mild to moderate classic Autism), ADHD, Learning Disability, intellectual disability and severe anxiety (part of the autism); iPad user; written expressionist; emotionally-sensitive
Sorry, I had to throw that out there. Really. I mean I didn't come here to be attacked or ridiculed when you guys have only just met me. It seems like a lot to throw at me without realizing that I might actually have something but yet you don't know it. I think that is more wrong because I only come here asking for help for what I struggle with now. In time, if I like being here and start fitting in more I'll come more often but right now, it seems to me like you guys don't seem to want to accept me either. I just want to try to fit in with those people who might be able to see how hard it is very me to life the life I have.
I've had a rough life of being emotionally abused/disturbed/traumatized in elementary school. Never getting the help I needed due to the ignorance of NTs. This has affected me greatly more and more to a point where I can't do things I should be doing at the age of 21. You can't just 'determine' something from anyone by what you see. This is what I go through every day and it's something that can anger me a lot.
Anyway, I don't want to be off-topic but I can say that I have done things that can help prevent most of my meltdowns. Like having my laptop in the hotel room with me. Also having my two pillows I can't sleep without either. I also have my DSes to keep me stimulated to prevent boredom and more pressure and anxiety.
I just worry more about what's going to happen since I can never control my meltdowns. Seriously guys, if I could control them I wouldn't be having them, don't you think? My meltdowns happen like a person has a seizure. Can a person with a seizure tell when they are going to have an attack? No. That's with my meltdowns. I don't have them for attention. I have them like most autistics, I release the anger and frustration I am faced with because I have a hard time expressing it in a manner more mature as what NTs would deal with. You of all people should realize that. Different people have different situations that trigger meltdowns just like different aspies have different symptoms. No autistic person is ever going to be the same and a lot of times different things can affect them.
That's why I want to prevent from having the ridicule of a meltdown if something were to trigger my anger or something where I couldn't control myself. I don't ask for it out of being spoiled or misbehaved. I do it because I know that I can't control my meltdowns. Believe me. My meltdowns are so severe that after they happen, I feel like I have just had a seizure. When really I didn't. I can remember what I did for the meltdown and what I did after but never in between.
Anyway, I hope this helps you understand me better. I mean you're right, someone who is 21 shouldn't be diagnosed with what she has but you don't know that have of it. You shouldn't judge someone because of age because as I said before, you don't know what the person could be dealing with.
Now I really don't want anymore of this talk of me not being mentally challenged or learning disabled because it bothers me a lot. This is something even NTs will nag me about. You can't judge me until you learn more about me and my daily struggles in life without hearing the facts first. If you don't want to try and understand it, that's your problem but don't come in hearing telling me I don't have something or that I'm a fake. I'm just now getting very little of the help I should gotten when I was younger and never got. So please, I really don't want anyone nitpicking me about this. You're right, maybe I am still learning about what I might have and I don't have. But let me deal with that and not all of you guys. It's my problem and not yours.
So yeah again, if that doesn't clear things up well, whatever. It's your problem but I really feel overwhelmed by the fact that some people here don't want to accept me and not see my daily struggles when I haven't even once told you how I am affected by them.
Why do you think you're not being accepted? Again, I see nothing in your post leaning towards mental retardation. I see autism. Having a difficult time communicating verbally is an autistic symptom. I'm mute around most people. I could never talk like I am not without text. Does this mean I'm also mentally ret*d? No. I'm simply stating that I would question your diagnosis of MR. Meltdowns are also correlated with autism.
I don't understand what you're saying about age. Your age has nothing to do with what you're diagnosed with. It's simply put that at your age if you know you're going to meltdown in a certain situation, you avoid it. The place is not required to accommodate you, or even care.
Everyone here seems to be in defense mode. Everyone here thinks they're being attacked when questioned, it's ridiculous.
okay...sounds like last time you went you didn't really know what was up with you. This year...maybe try to limit which activities you participate in? Maybe only go to one thing a day, or a morning and an afternoon activity with time to decompress between the activities (maybe a nice long bath or a nap in a quiet room). That's what I have to do when I go to professional conferences.
Another thing that helps me is wearing earplugs between conference events. The general buzz of people chatting over each other in lobbies and hallways really, really gets me keyed up. It's amazing how much easier these kinds of things are when the sound is dampened.
The thing is, you've got a body that needs a little TLC, and that means you have to accommodate it--even when others can't.
Also, when I have to go to conferences, I find that I get hit with depression or a need to completely withdraw for a couple days. So be sure to plan ahead for some recovery time doing relaxing, pleasurable things. In other words, it may be convenient to see extended family after the conference, but it may just be the thing that puts you over the meltdown edge. These are some things that have been working for me lately. Hope that helps you come up with a plan that is as unique as you.
Sometimes having a clear, well-thought out plan is what can get you through the chaos of environments like this.
Hope that helps.
_________________
-Amy
without the dark of night we could not see the stars
hereirawr.wordpress.com <---shameless self-promo
I can imagine this is a horrible disappointment for you. I know what it is like to have your hopes set so high only to have them seemingly dashed across the rocks. First understand that you are not alone. We all have to find ways to manage and cope through the world of nt's. Just a few thoughts take them or leave them.
1) While I know that being in line sounds like the worst possible thing imaginable. Take it as an opportunity to learn some coping mechanism. Play your favorite music or watch some anime on a phone or dvd player etc. Might want to practice at the DMV or some other long line they are everywhere. If that is too much. Practice standing in line in your back yard with your mom and others.
2) Have your psychiatrist write a letter. Couldn't hurt they have already said no. It might just change their mind but dont bank on it.
3) Try to understand the fact that NT's don't think like you. When all the facts line up in your head you act. NT's when there emotions and some facts line up they act. I think you might be saying "I have given these people all the reliant facts. They should acquiesce to my demands" The real world rarely works that way.
4) If none of this is palatable. Make a youtube clip saying hi to your favorite voice talent and email them a link. You never know they might talk to you on the phone. How exciting would that be?
Good luck..Take a deep breathe...Realize that the only requirement to belonging is the air in your lungs.
_________________
I have yet to see any problem, however complicated, which, when you looked at it in the right way, did not become still more complicated.
- Poul Anderson
Perhaps you have HFA instead.
That wasn't the issue, Chronos. You aren't qualified to diagose him, either. Why not concentrate on what OP is needing help with?
If you don't believe it, don't answer. If it isn't true, and you respond like this, then you've just fed a troll. If it is true, you end up looking like a really big jerk.
Actually those aren't the only two possibilities. I read the first post and the first thing that occurred to me is that it was NOT written by an individual with mental retardation. AS or HFA, learning disability, absolutely, but to put one's thoughts together like that requires a certain amount of intellectual capacity. In my work I see a lot of people with all of the above, and I know that ppl with autism and attentional problems, and learning disabilities, can score falsely low on IQ tests. That isn't meant to downplay anyone's problems...hell, I have a high IQ and I have significant interpersonal difficulties....it's just meant to say that maybe there's more untapped potential there than you suspect, if you can find a way to tap it. In fact, if as I suspect that is a falsely low score, it may aid you in getting more services and help for yourself, which is never a bad thing when you have neurological issues. I won't tell you that you don't have challenges (and more challenges than I do because I don't have the learning disability) or that you don't deserve to get the help you need, because I know that you do. BUT, I see something there that I think the tests missed, and it's a good thing.
I wish I could advise you as to the meltdowns, but the way I stopped having them isn't really the best (and I didn't stop having them until I was nearly 30). It worked, but I don't recommend it.
~Kate
_________________
Ce e amorul? E un lung
Prilej pentru durere,
Caci mii de lacrimi nu-i ajung
Si tot mai multe cere.
--Mihai Eminescu
~Kate
Kate, I think we are all thinking the same thing, but OP came here looking for help about the con. But instead she was told she can't be this or can't be that and was given very little help coping with her problem. She felt so attacked in this post, and so unwelcome, that she posted this: http://www.wrongplanet.net/postt137414.html
That's not right. She belongs. Whether she's right or wrong about what's going on with her is really irrelevant when all she's looking for is a little support about the con situation--and everyone's going off about her statement about mental retardation and offering very little help for her problem.
_________________
-Amy
without the dark of night we could not see the stars
hereirawr.wordpress.com <---shameless self-promo
~Kate
Kate, I think we are all thinking the same thing, but OP came here looking for help about the con. But instead she was told she can't be this or can't be that and was given very little help coping with her problem. She felt so attacked in this post, and so unwelcome, that she posted this: http://www.wrongplanet.net/postt137414.html
That's not right. She belongs. Whether she's right or wrong about what's going on with her is really irrelevant when all she's looking for is a little support about the con situation--and everyone's going off about her statement about mental retardation and offering very little help for her problem.
*sigh* Such is online communication, especially with a group such as ourselves. My post was meant only in a positive light, and also not to say *she* was wrong, but that the *test* was.
Yes, she belongs, and I don't think I suggested otherwise. Personally, I think the remarks about being "spoiled" are much more offensive, but hey, that's just me. I have a seizure disorder and I also used to have severe meltdowns until I was almost 30 (to the point where I've fractured a finger and got glass in my wrist) and I definitely see the seizure comparison, even though having both, I could tell the difference. To dismiss them as "temper tantrums" IMO is missing the mark by a lot and also being dismissive.
~Kate
_________________
Ce e amorul? E un lung
Prilej pentru durere,
Caci mii de lacrimi nu-i ajung
Si tot mai multe cere.
--Mihai Eminescu
