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kraftiekortie
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11 Oct 2016, 6:09 pm

Ulcerative Colitis is no joke.

I agree.

But my mother, at age 82, is surviving it well.



TheSilentOne
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11 Oct 2016, 7:15 pm

Feel better :heart:


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beakybird
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11 Oct 2016, 9:50 pm

metaldanielle wrote:
I've been graduated to clear liquids. I'm having some....output, which is good. I'm anemic, but so far I'm staying above transfusion level. Barely.

My old Jr high nurse is here supervising medical students as part of her current position. We were very happy to see each other and and it's good to have someone with a personal interest in my care.

My immediate prognosis is much better, but my long term is getting worse. My Dr basically said start hunting for good surgeons before I need emergency surgery and don't get a choice. He's been aggressively pushing for surgery this whole time and I don't like his attitude. I'll definitely be seeking other opinions once I get released.

Beakybird, I got diagnosed when I was 8. *That's* young. :lol:


Glad you can laugh about it at least. That's a s**t deal right there... You seem to be in ok spirits though.

Obviously if the Dr is an a**hole, he is, but I can see the point if this seems inevitable to at least ensure the surgeon is good, than playing surgeon roulette in an ER situation. Of course I'd be fighting that too...



Alliekit
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12 Oct 2016, 1:15 am

kraftiekortie wrote:
In the US, surgery is just an operation in an "operating room" or "OR."

In the UK, a "surgery" is a regular doctor's office. People "undergo surgery" in an "operating theatre."

People are "in the hospital" in the US.

People are "in hospital" in the UK.

People are in "satisfactory condition" in the US.

People are "in a satisfactory condition" in the UK.

Am I right, Alliekit?


I haven't really noticed the differences in distinction tbh. Surgery here also means a procedure done in an operating room.

We mostly just call the doctors GPs



Evam
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12 Oct 2016, 1:52 am

I separate doctors into "surgeons" (not only surgeons, but the ones with the harsh, expensive methods) and non-surgeons, and am suspicious of the former. They are money-driven, lack understanding for physiologic processes, are fond of mechanic or tough solutions to a problem, lack empathy and are a bit (or even quite) sadistic. As a patient you feel often manipulated by them. And this feeling is justified.

They are the better surgeons though.

It would be good to get the opinion of a non-surgeon.

Get well soon.



metaldanielle
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13 Oct 2016, 5:14 am

Things came to a head with the aforementioned Dr. He's a nasty piece of work who has been making enemies everywhere he goes. I have a new guy on my case, complete opposite in personality and is a very good doctor and person.

Yesterday had so many ups and downs I feel like a yo-yo. Some highlights.....

I ran out of veins to poke. They tried every painful desperate method to get blood from them and they just kept blowing. My nurse drew it from my IV, which is last resort due to risk.

I graduated to food. I am eating slow and carefully picking the gentlest foods. So far, I have been tolerating it.

A family friend I am fond of visited and brought me a gift. A beautiful stained glass piece to hang in my window. :heart:

I talked to the infusion pharmacist, she is on the case, I should be able start soon. That will hopefully get me off these steroids.

I am proud of how I have been handling things, it's really amazing all things considered. How hard I've been working to assert things clearly, to hold my emotions together as well as I have despite my challenges in that regard. Of course, never good enough for my mother, never can acknowledge my growth. I had to spend a few extra spoons asserting myself to her because I didn't conduct myself to her unrealistic standards.

I'm not getting enough alone time. My parents have been here as much as possible. I'm drowning in human interaction.

But....the Dr just left and said I can go home today!!


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kraftiekortie
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13 Oct 2016, 5:38 am

Excellent!

Congratulations on you leaving the hospital!



Evam
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13 Oct 2016, 6:44 am

Great. I mean most of it, and in particular that you have a good feeling about how you handle it.

Do you eat mainly boiled or well-fried foods (including quite a lot of vegetables and fruits), or what do understand by "the most gentlest foods"?



Misslizard
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13 Oct 2016, 10:29 am

Hoping you get well soon.So sorry you are going thru this.


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BeaArthur
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13 Oct 2016, 1:48 pm

Get well soon. It should be comforting to be back home with familiar surroundings.


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