My Facade is Slipping...

Page 3 of 5 [ 71 posts ]  Go to page Previous  1, 2, 3, 4, 5  Next

Budfarmer
Blue Jay
Blue Jay

User avatar

Joined: 30 Apr 2012
Age: 61
Gender: Female
Posts: 78

24 May 2012, 7:49 am

hyksos55 wrote:
4. I usually hide but the difference is I don’t want to be found. I do it at work and it can be embarrassing when they discover you in the dark supply closet or behind a door.

8. You strike me as the kind of person who likes numbers. I’m not real fond of numbers so I don’t do that but I’m sure I may do something similar with something else and just don’t realize it.

10. I use humor when I’m not sure how to proceed unless it’s tragic then I make a pitiful face and try to act concern. Although I am not uncaring I just can’t express it outwardly very well so I pretend for the sake of the person involved.


Thanks for the great answers. To me, part of the wonder of this board is discovering how okay I've really been all along. I'm by no means NT okay, but I am who I'm supposed to be and there are others of my species out there... LOL

In a way, I sort of feel like Steve Martin in "The Jerk" ... All my life I grew up in an NT family, waiting for the day when my instincts would kick in and I would be okay and just like the other NT's around me. Then came the diagnosis that I was never going to turn NT...

# 4 made me laugh... not because I'm laughing at you, but because I've been in that situation and it is embarrassing, but funny in retrospect (I tend to look at the world from the point of view that all of life is one long sitcom). Wait until they find you crouched under the stairwell. I didn't even try to explain that one.

#8 - I love numbers. But I am not fascinated by math as some of us are, just numbers. I collect them. I scared my boss one time because I'd been working for her for 10 years and in that time, I have done a lot of personal things for her as well as being her administrative assistant. I've done her Christmas shopping (online of course), helped her book vacations, weddings, all sorts of things. She freely hands me her American Express card all the time. One day I looked at her and said, Oh, I don't need the card, I know the number. She was a little taken aback by that. Over time, I admitted that I not only know the number, but remember the expiration date, the 4 digit CID number, her social, her date of birth, her husband's and children's socials and dates of birth and her license plate numbers on all 3 of her cars. I also know the first 100 digits of Pi and I ramble those all the time... I doodle them in patterns on pages when I'm in meetings. And I know the card number of all 5 of my credit cards, the socials and dates of birth of all of my family, my son's ex wife, his current fiance, and both his kids. And of course, everyone phone number, cell number, fax number, and the list goes on and on and on.

#10 - I have often been whispered about at funerals because I don't get all weepy and miserable. They're dead. They aren't coming back. Yes, I will miss them and it is sad that they are done, but crying really messes up my contacts and makes my head hurt. I tend to roam around the funeral home, sit in at least 30 of the chairs, drink from all the water fountains and use the toilet several times until it is time to go back to the house and eat. And I hate that part too.


_________________
I can explain it to you, but I cannot understand it for you.
-----------------------------------
AS quotient: Scored 42
Your Aspie score: 175 of 200
Your neurotypical (non-autistic) score: 30 of 200
You are very likely an Aspie


zemanski
Toucan
Toucan

User avatar

Joined: 20 Apr 2012
Age: 60
Gender: Female
Posts: 271
Location: UK

24 May 2012, 12:37 pm

My daughter's AS friend at school almost got her into serious trouble a few weeks ago with his thing for remembering numbers.

She was being badly bullied and had finally gone to the police about it. They had agreed to take a harassment case out against the girl doing the bullying and went to speak to her with her parents. A lot of the bullying was by email and text and when the police got there they found the girl's parents absolutely furious because their daughter had had odd texts that day obviously connected with my daughter (they contained her name) so they naturally thought my daughter was bullying their daughter rather than the other way round. The police rang me and explained and asked if my daughter had given out this girl's number to a friend or was using a different mobile. My daughter couldn't remember anything of the sort - all very puzzling till the policewoman read out the texts to me. The first was' "I'm a little pony", and I knew immediately who was involved.
Apparently this friend had been sat next to my daughter when she had received a text from a number she didn't recognise so she had gone through her address book to see if she could find the number. Because she is severely dyslexic she vocalises as she reads and had read the numbers out under her breath. Her friend had remembered every one of them and had just chosen one at random to contact - any friend of my daughter's would clearly (to him) be his friend too! His fascination (unusual for a boy of 16 even of the AS variety) is my little pony!

Fortunately the girl involved also had an autistic brother and her parents understood what had happened - if they hadn't it could have turned very nasty.



Senath
Deinonychus
Deinonychus

User avatar

Joined: 16 May 2012
Age: 37
Gender: Female
Posts: 357

24 May 2012, 11:35 pm

zemanski wrote:
I'm glad you found it comforting, I know how difficult this stage can be - part of my job is supporting students going through diagnosis and coming to terms with it afterwards and they are referred to me rather than other members of our team largely because I can relate to that experience even though I still haven't got formal diagnosis. For some it is a relief, for some it almost literally hits them in the face, but every one of them takes a dive for a while before resurfacing more confident than they ever thought they could be. The thing to hold on to is that you are the same person as you always were, you're just getting to know yourself that bit better and in the end you will be so much stronger for the self-awareness you are building.

On the subject of medication, Temple Grandin has written something on drug dosage and autism - she suggests the same: less is best!

stay strong!


Your comments here are much appreciated. It's comforting to be told that I'm going to resurface with confidence. I think it was you that used the word "Aspiegirl" earlier in this topic and was referring to getting walked on and so on. It's such an accurate way to describe the way that I've been coping with everything around me. I've been just reacting to my environment, not able to figure out what was "wrong with me" and agonizing over why I was such a failure and not able to figure out what I was missing. Now that there's an explanation for it it really helps. It IS helping me get to know myself better. I feel like I didn't even know myself, even though I was trapped alone in my head all the time. I'm able to see a bigger picture about why I have some of the difficulties I have, and I'm actually starting to feel proud of myself for having come so far without help.

It is hard when I tried mentioning Asperger's to my roommate today because he dismissed me by rattling off the usual stereotypical symptoms that I don't have. This new discovery is having a huge impact on my life and my fiance and I talk about it at home when we're together, so I couldn't really avoid telling the roommate, but I hate to be seen as some emotional hypochondriac finding some new ailment on a whim.

I'd figured in the past that I probably had some very mild form of Asperger's but I didn't really know all the details about it and how it could affect my anxiety problems, which have only gotten worse over the years. I've always been searching for what it is that would make me function "normal", and only after delving into people's personal experiences with Asperger's have I found out that I was going about my search looking for the wrong things. It's not about how I can become like the majority of the population, it's more about figuring out how I can get to know myself and recognize where I excel and struggle, and then have the best quality of life possible by taking advantage of the strengths and getting help during the struggles.



edgewaters
Veteran
Veteran

User avatar

Joined: 16 Aug 2006
Age: 52
Gender: Male
Posts: 2,427
Location: Ontario

24 May 2012, 11:55 pm

Budfarmer wrote:
So, in my introspection and learning about myself I have a few questions. So much has opened my eyes on this board and I have seen my hidden quirks (that I thought were unique to me) being described so perfectly by lots of others...now I have to wonder about some of the other idiosycracies I've kept under wraps...

1. I cannot knock on a closed door. I am incapable of applying enough pressure when I knock to make an audible announcement that I'm there.

2. I cannot interrupt a conversaton. If the party I want to speak to is engaged with someone else, I will sort of melt into the scenery until they are done and I can reattempt my approach.

3. I hate to appear to want anything. My former boss asks all the time if I want some lunch when she heads out. I will say no before I've even processed the request. I hate to admit that I would like to have some lunch. Then when she's gone, I scramble to find something to eat so she won't know that I really did want her to get me a sandwich.

4. I hide. Sometimes I just want people to look for me... to miss me. They rarely do and I have to find someway to return from hiding and maintain my dignity, but I can't help it. When I feel mistreated or abused, I find a good place to hide (behind the stairwell, in the storage room, in the closet, under the bed, etc.) and I stay there. I especially like to hear them calling my name. And if I'm really hurt, I enjoy the frustration in their voice when they cannot figure out where I am.

5. I give up sleep in order to have time for my special interests. I don't like to be interrupted when I am involved and so I wait until everyone has gone to bed. I sleep about 3-4 hours a night.

6. I have a horrible sense of direction. If I have to make a choice on which way to turn, I will pick the wrong one every time.

7. I have real difficulty driving in heavily populated areas. The state I live in has a lot of tourist traffic and at certain times of the year, you really have to watch for pedestrians in the street. I have a very difficult time anticipating if someone is about to step out to cross the street.

8. I count down with the microwave, checking the disply every 10 seconds to see if I am still on target. I am never off.

9. Some of the esoteric things I find funny are just too arcane or "intelligent" for those around me to understand. It makes me feel very isolated. I love to make obsure, humorous connections between otherwise unrelated things, but sometimes the people around me are not educated or well-read enough to get the connection. It makes me lonely.

10. I use humor to express emotions that I otherwise do not understand... adoration, affection, attraction, interest, desire, pain, love, hurt, shame, remorse... I have a very limited emotional range. Mostly I cry about or laugh about everything. There is very little other territory for me.

These ring any bells for anybody?


1, sometimes, 2 yes, 3 strong yes, 4 no, 5 strong yes, 6 no, 7 no (don't drive), 8 no, 9 sometimes, 10 strong yes



zemanski
Toucan
Toucan

User avatar

Joined: 20 Apr 2012
Age: 60
Gender: Female
Posts: 271
Location: UK

25 May 2012, 5:26 am

Quote:
I'm actually starting to feel proud of myself for having come so far without help.


This is what I tell all my newly diagnosed students:

"You got this far by yourself, without support; that is a huge achievement. That shows you already have good coping strategies. Now you have the support you should have had and now you understand some of your strengths and weaknesses you can go even further!"

Aspergers is never mild, it simply "is". It is a form of autism, the same condition that causes some people to have terrible difficulties functioning and communicating to the point that they will need to be cared for all their lives. However your autism presents on the outside it is still autism and you have the same differences in how your brain processes information - the difference in presentation is not in the condition but in the sensory and cognitive package that comes with it. If you have extreme sensory issues and/or are less cognitively able to understand and manage your differences then the impact of them will be more severe.
Next year there will be no distinction in the DSM 5 criteria, only a severity scale that indicates how badly a person is affected by it in their day to day lives. In my view this is not a scale that tells you how bad your autism is but how well you cope with the manifestation of it. If you present as AS rather than Kanner's autism you have the ability to manage your strengths and weaknesses and develop your self-awareness.
This doesn't mean that people diagnosed with Kanner's autism don't have these abilities, many do progress in just the same way and it is not unknown for people originally diagnosed with Kanner's autism to be rediagnosed with AS as their speech catches up (the only diagnostically significant difference between the two diagnoses is whether or not you have speech delay at 3years) but that it is harder for most of them to get past their difficulties.



hyksos55
Veteran
Veteran

User avatar

Joined: 15 May 2012
Age: 56
Gender: Male
Posts: 864
Location: Texas

25 May 2012, 10:27 am

There is a certain level of relief and comfort when you figure out way it is the way it is. I believe it is only natural to want to share with certain people your discovery if nothing more then to vindicate yourself or to bring an understanding to them of the circumstances in which you operate. Sadly it seems it not easily accepted by people who have operated in the “normal world”. I am sure that for most it because they want to be encouraging and say upbeat things like “We all feel that way from time to time.” Of course there is the occasional individual who believes its hooey. I have told several friends and co-workers of my suspicions of being an Aspie and I have gotten less then a stellar response. Now that I feel comfortable being myself instead of NT person I created I get the feeling they are uneasy with me, I could be misinterpreting but I doubt it. I may have to go back to being the strong silent type they liked before for the time being and then wane them off gradually. I have a strong base at home to operate from as my family is no only supportive they are the ones that told me I was probably an Aspie.

Hey zemanski thanks for the phrase.

Aspergers is never mild, it simply "is".

Cheers


_________________
"The law is what we live with; justice is sometimes harder to achieve." Sherlock Holmes


Senath
Deinonychus
Deinonychus

User avatar

Joined: 16 May 2012
Age: 37
Gender: Female
Posts: 357

25 May 2012, 12:21 pm

zemanski wrote:
Quote:
Aspergers is never mild, it simply "is". It is a form of autism, the same condition that causes some people to have terrible difficulties functioning and communicating to the point that they will need to be cared for all their lives. However your autism presents on the outside it is still autism and you have the same differences in how your brain processes information - the difference in presentation is not in the condition but in the sensory and cognitive package that comes with it. If you have extreme sensory issues and/or are less cognitively able to understand and manage your differences then the impact of them will be more severe..


I agree with hyksos55 about the phrase. I used to put myself down because I was lucky enough to have been born into a very loving, mostly competent :wink: family. I went to a good school, had a brain that could perform well with tasks like memorizing and conceptualizing, and I had academic prowess that made it easier to get good grades. With all I had going for me I didn't understand why I turned out to be such an incompetent failure (I don't have those views now).

What I see now is that having all of those things going for me is the reason I was able to deal with things like sensory issues at a young age. My mom was very helpful in figuring out how to work around sensory issues by not forcing me to dress a certain way (I hated pants and socks for a long time). My parents never got angry or frustrated with me for stimming (even though I rocked pretty violently sometimes). When I had problems with coming off as "flat" in my speech my parents helped me learn how to use intonation properly.

One thing that harmed me more than helped is that my mom did a lot of the social interaction stuff for me, like telling people at the door that I was busy when I really just didn't want to play and was too afraid to go to the door), or calling people for me. It made things less stressful then, but I feel less competent in social situations now as an adult.

The problem I have is that because I've learned to cope so well I might be written off as "NT" when I go in for my diagnosis. That's why I want to look for someone who actually deals with autism so they'll be able to really see me for who I am. I'm probably not going to be able to get diagnosed for years though, because I'll have severely limited funds until I finish school and get a good job, and I'm not covered under my insurance for an autism specialist.

I hate that, because I don't like making a claim that's not backed up by official diagnosis, no matter how confident I am about it.



Budfarmer
Blue Jay
Blue Jay

User avatar

Joined: 30 Apr 2012
Age: 61
Gender: Female
Posts: 78

25 May 2012, 12:31 pm

One of my problems right now, and I am pretty sure this is just a phase, is that I am very conflicted between the person I am when nobody is looking, and the facade I have spent my whole life creating, forifying, repairing, adjusting and maintaining. I have worked so hard all of my life to be one way, that to let that facade down now and just be me seems too easy, too simple... like cheating.

One of the things about me is I cannot stand cheating. I think that comes from working so hard for everything I achieve, that it just angers me when someone cheats and gets the advantage without the hard work. I don't ever think like that and methods of cheating just don't occur to me. I never take what's not mine, physically or metophorically.

And to just... be... without having to do something in order to be just feels like cheating. I am not sure how to explain it.

I also don't do well with receiving gifts. I have a tough time even receiving back money that is owed me if I know that person paying me back really still can't spare it.

I guess you could say that I have the opposite of a sense of entitlement...

Anyway, all of this is very hard and since finding out that I have Aspergers and I don't have to hide who I am, I seem even more determined to do so, even against my will.


_________________
I can explain it to you, but I cannot understand it for you.
-----------------------------------
AS quotient: Scored 42
Your Aspie score: 175 of 200
Your neurotypical (non-autistic) score: 30 of 200
You are very likely an Aspie


Budfarmer
Blue Jay
Blue Jay

User avatar

Joined: 30 Apr 2012
Age: 61
Gender: Female
Posts: 78

25 May 2012, 12:40 pm

Senath wrote:

The problem I have is that because I've learned to cope so well I might be written off as "NT" when I go in for my diagnosis. That's why I want to look for someone who actually deals with autism so they'll be able to really see me for who I am. I'm probably not going to be able to get diagnosed for years though, because I'll have severely limited funds until I finish school and get a good job, and I'm not covered under my insurance for an autism specialist.

I hate that, because I don't like making a claim that's not backed up by official diagnosis, no matter how confident I am about it.


I understand completely what you are saying. I too learned to cope so well, that I surprise even myself sometimes when I am able to smile and act like I am enjoying a situation when inside I am screaming to get away.

One tactic you might try is to visit your primary care physican that is covered by your insurance. Share your concerns with him or her and tell them exactly why you feel you may have Aspergers. In many cases, the Primary can refer you to a specialist and that will put it into a category that your insurance is more likely to pay for. Ask the desk clerks at your doctor's office. They are generally accustomed to working with a variety of insurance plans and they typically make the referrals to all sorts of specialists for a wide variety of things. They will most likely know if your plan will cover a referral. Mine sent me to a neuropsychologist, and my insurance covers 1 visit per month (for meds) to the NP. I don't want any meds, so I just use the one visit per month to discuss other meds I don't want. For therapy, I'm sort of on my own, but I've found a few local options that don't cost anything like the Employee Assistance Program where I work and a support group that meets once a week in town - although I haven't worked up the nerve to go there yet. :oops:


_________________
I can explain it to you, but I cannot understand it for you.
-----------------------------------
AS quotient: Scored 42
Your Aspie score: 175 of 200
Your neurotypical (non-autistic) score: 30 of 200
You are very likely an Aspie


zemanski
Toucan
Toucan

User avatar

Joined: 20 Apr 2012
Age: 60
Gender: Female
Posts: 271
Location: UK

25 May 2012, 12:58 pm

Just because you can be the person you are when you are in private doesn't mean you have to let go of the person you want to present to the outside world if you aren't ready or don't want to. A mask is a useful tool when you don't want to be too exposed but realising it is a mask means you now know that you can let it down if you want to.

When you have found a comfortable place to be with yourself in your own mind then you can feel stronger in yourself and perhaps change the person you show to others, perhaps only a little or bit by bit - remember, there are strengths to AS, not just weaknesses and oddities. Your strong sense of justice and fairness is one of those strengths which is common to many people on the spectrum, and one that others can appreciate - it can make you a loyal and valued friend and colleague, someone others know they can trust and rely on. It can make life difficult when others don't see things quite the way you do or when it holds you back by making you feel you are cheating but it can be a great help too.

It is still early days and these sort of adjustments take a lot of time and emotional energy, as you build your awareness you will learn to feel more comfortable with yourself and learn which tools are useful and which can be disgarded.

Go easy on yourself



Budfarmer
Blue Jay
Blue Jay

User avatar

Joined: 30 Apr 2012
Age: 61
Gender: Female
Posts: 78

25 May 2012, 1:29 pm

Thanks Z. I know it is just another leg of my journey... I had to draw my own map the last time... at least this time, I can see that there are a few folks on the path ahead of me.

On a side note... this was posted on the corporate web site that they insist must be our Home Page on our browser... oh if only it were that simple. I almost found this offensive

Wellness Tip for the Week: Practice Good Mental Health

Taking care of your mental health is a major part of your health and well being. In order to take care of anyone else, it is necessary to start by taking care of yourself. You have to keep your mind healthy, so you can do the things in life that are important to you whether it is taking care of your family, taking a class, volunteering, enjoying a hobby. Here are some tips to get started on the road to happiness and fulfillment:

Think positive and keep a sense of humor.
Prevent negative feelings from building up; deal with the cause constructively.
Learn to like yourself.
Make the best of what you have.
Learn to accept what you cannot change.
Be kind, loving and polite to your family and yourself.
Treat everyone with respect.
Stay healthy by exercising regularly, eating wisely and getting enough sleep.
Don’t smoke or drink alcohol to relieve stress; they won’t solve your problems and may make things worse.


_________________
I can explain it to you, but I cannot understand it for you.
-----------------------------------
AS quotient: Scored 42
Your Aspie score: 175 of 200
Your neurotypical (non-autistic) score: 30 of 200
You are very likely an Aspie


zemanski
Toucan
Toucan

User avatar

Joined: 20 Apr 2012
Age: 60
Gender: Female
Posts: 271
Location: UK

25 May 2012, 2:09 pm

Corporate condescension!



hyksos55
Veteran
Veteran

User avatar

Joined: 15 May 2012
Age: 56
Gender: Male
Posts: 864
Location: Texas

25 May 2012, 2:43 pm

Be nice if it was that easy, I guess for NT’s it might be. When I look around me I see lot of normal people putting on facade too and the things on that list are some of them.

Again Z you summed it up nicely.

"Corporate condescension!"

To senath, about the diagnosis I understand where you’re coming from, I feel the same way. I've noticed something though about people with AS and I think it's true. It doesn’t matter if have a diagnosis. If anything it’s for us personally and the rest of the world, that’s what the diagnosis is for, Aspies know their own. Good luck too you.

Cheers


_________________
"The law is what we live with; justice is sometimes harder to achieve." Sherlock Holmes


zemanski
Toucan
Toucan

User avatar

Joined: 20 Apr 2012
Age: 60
Gender: Female
Posts: 271
Location: UK

25 May 2012, 5:22 pm

It's not that easy for NTs either.

If you already have mental health problems that list won't help - it's too late, you need professional help not a trite list - and if you don't you won't be motivated to do the things because you won't see the risk (AS people are much better at seeing the risk than NTs many of whom prefer to live life oblivious until it hits them in the face but that's probably because so many live on the edge of mental health problems because of the stress and anxiety they live with every day trying to cope in a largely hostile world).

The people a list like this is most useful for are those who have had mental health problems and have recovered - however, those people will already know how important some of those things are for them to avoid falling into the same state again, so it's not that useful for them either.



Budfarmer
Blue Jay
Blue Jay

User avatar

Joined: 30 Apr 2012
Age: 61
Gender: Female
Posts: 78

25 May 2012, 9:14 pm

zemanski wrote:
It's not that easy for NTs either.

If you already have mental health problems that list won't help - it's too late, you need professional help not a trite list - and if you don't you won't be motivated to do the things because you won't see the risk (AS people are much better at seeing the risk than NTs many of whom prefer to live life oblivious until it hits them in the face but that's probably because so many live on the edge of mental health problems because of the stress and anxiety they live with every day trying to cope in a largely hostile world).

The people a list like this is most useful for are those who have had mental health problems and have recovered - however, those people will already know how important some of those things are for them to avoid falling into the same state again, so it's not that useful for them either.


So it's dribble... see that's what I thought from the beginning. It really started to piss me off everytime I needed to go to the internet (which is about 40% of my job), I had to see that pop up in my face. It really made me have to get away from my desk more often than usual because it made me feel ... icky.


_________________
I can explain it to you, but I cannot understand it for you.
-----------------------------------
AS quotient: Scored 42
Your Aspie score: 175 of 200
Your neurotypical (non-autistic) score: 30 of 200
You are very likely an Aspie


Senath
Deinonychus
Deinonychus

User avatar

Joined: 16 May 2012
Age: 37
Gender: Female
Posts: 357

26 May 2012, 9:16 am

Thanks, hyksos55. :)