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kazanscube
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08 Nov 2016, 8:49 am

metaldanielle wrote:

I finally got the Medicaid approval for my Entivio infusions and now I hear that the pharmacist at the hospital has put a hold on it until he can decide if it's worth the liability issues. WTF? Idk what the hell he's worried about. It's not my fault no one else has gotten it there before, it's a relatively new drug. Someone has to be the first.

Who's liable if my bowel pops and I die waiting?? I already been waiting since August, when my old GI's office lied about filling out the approval when I said I didn't want a 5hr round trip and wanted to do it at my local hospital. I'm literally starving myself because my bowel won't stay open. That and the steroids that are flipping eating away at my body and mental health are my only treatment right now. I'm sick of writhing in pain screaming for days every time my bowel swells shut and I'm so freaking sick from malnutrition and I don't have the energy (mental or physical) to deal with anymore.

That would have to be the most idiotic decision a pharmacist could as, seeing how you need such medication overall.

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Lillikoi
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08 Nov 2016, 9:44 pm

Why does it seem like everything about me is engineered to make me have the worst day possible? :wall:

Why can't I just live normally without having to monitor everything, and not worrying about one thing slipping up and my brain crashing and everything
falling apart? :evil:

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That guy is a dingus.

Raleigh
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08 Nov 2016, 9:50 pm

kazanscube wrote:

metaldanielle wrote:

That would have to be the most idiotic decision a pharmacist could as, seeing how you need such medication overall.

It makes no difference how desperately the medication is needed.
They don't care.
I've faced the same scenario.
It's criminal.
Not so much for me, but little kids in extreme need are waiting for the same medicine to be approved as well.

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Raleigh
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09 Nov 2016, 1:07 am

Made three attempts at making something for a friend with no success.
Before, I would have finished it in a couple of hours.
But I've been at it all day.
And it's just not working for me.
Nothing is working for me.
My body is alien.
It won't obey.
My brain is damaged.
I truly am a ret*d.

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Uncle
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09 Nov 2016, 5:09 am

Raleigh wrote:

Im sorry your going through frustrations today Raleigh, please dont feel down! It made me somewhat sad reading that post!

Especially how you view yourself in that last line! Your an amazing Human being!! !!

mr_bigmouth_502
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09 Nov 2016, 6:10 am

Are you happy, America? Are you f*****g happy that you just elected a fascist megalomaniac?

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lidsmichelle
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09 Nov 2016, 8:40 pm

I love you but omg f**k you. I've had a long day, seven days of work in a row, my head hurts and my lower back hurts. I'm frazzled and I'm tired and yes I'm f*****g angry and afraid that Trump won but you don't see me being antagonistic towards you. Pick a fight with someone else, not your girlfriend who made the mistake of asking how your day was.

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Herein You Will Find Various And Numerous And Innumerable Hexes, Curses, Words In The Old Tongue To Cleave A’Twain Friend, Foe, Family Alike. If You So Choose. Money Hates Me, God Hates Me, My Wife Hates Me, My Own Hands Hate Me. But Thats All Beside The Point. The Point Is That My Time Here On Earth Runs Short. Im Not Dying But You All Are. Im A Glass Of Wine. Nothing Beats A Glass Of Wine. When The Kids Arent Home And Your A Mother Theres A Glass Of Wine There. A Glass Coffee Table And I’m A Glass Of Wine. Stressful Day When The Kids And you're Husband Then Glass Of Wine. Dark Chocolate Indulge. Petty Indulgences. When you're A Glass Of Wine And Let The Body’s Hit The Floor. When Your Glass Of Wine Is Running Short And You Say Heck What Of It. Why Dont I Have Another. Bartender I Am A Glass Of Wine. Bottoms Up And The Devil Laughs. The Bartender Remembers When It Happened. They All Remember When It Happened And If They Knew That You Dont Remember Then They Would Know That Something Is Awry Here Or So They Would Think. Something Would Be Amiss Or Smells Fishy. So Theyre All Relating There Stories Of Where They Were When That Event Happened And The Eyes Move Clockwise About The Room Where We All Share Our Glass Of Wine And Suddenly The Clock Ticks To You And They Ask The Fatal Question That Destroys Your Reputation, The Question You Could Never Answer, The Dead Giveaway: Where Were You When The Bodies Hit The Floor

Froya
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09 Nov 2016, 9:35 pm

mr_bigmouth_502 wrote:

Are you happy, America? Are you f*****g happy that you just elected a fascist megalomaniac?

I truly belive that they in time will come to regret that, and see it as their biggest mistake of their lives, unfurtunately it's too late then..

ThatGirlInTheTower
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09 Nov 2016, 10:00 pm

I'm transgender. I was looking forward to transitioning over the next four years. But now? I'm going to be in constant fear, constant threat that any and all of those things could just become impossible or illegal. The house, senate and congress are all Republican controlled now. There's literally nothing stopping them. Worst part is that as I'm downstairs trying not to break into tears, my father is upstairs celebrating. There was a time where I wanted to be my father. Now I'm considering getting my last name changed eventually too. I don't feel any hatred towards him. Just utter contempt.

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TheAP
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09 Nov 2016, 10:04 pm

ThatGirlInTheTower wrote:

((((Hugs))))

kazanscube
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09 Nov 2016, 10:25 pm

ThatGirlInTheTower wrote:

Well, that does appear to be an obstacle when you have people still living in the medieval time period, though not in literal terms rather thoughts & attitudes about things. Wherein, I'd not give up hope just be aware that there is going to be more struggles. I applaud you for your courage to be who you sincere wish to be.

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metaldanielle
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09 Nov 2016, 10:32 pm

Raleigh wrote:

kazanscube wrote:

metaldanielle wrote:

That would have to be the most idiotic decision a pharmacist could as, seeing how you need such medication overall.

Exactly.

It gets worse. Turns out it wasn't liability issues. I don't know the details, but due to the way things are done, the medicaid reimbursement for the medication doesn't go to the pharmacy, but to the company. The hospital *does* get to charge for administration of the drug of course, they were just pissed about not getting a markup. Oh, non-profit hospital btw. :evil:

My mom talked to the asshat in the pharmacy (funny story, I'll elaborate if anyone is curious) and he told her to her face he changed his mind. We shall see...

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irene
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13 Nov 2016, 3:08 pm

I just checked on Google 'lots of energy at the age of 67'. The website couldn't find any info on it so it sent me links on elderly people not having any energy.

Raleigh
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14 Nov 2016, 4:38 pm

You're weird.
You know the weird people who are quirky and cute and fun to be around?
That's not you.

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It's like I'm sleepwalking

TheAP
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14 Nov 2016, 4:40 pm

Raleigh wrote:

You're weird.
You know the weird people who are quirky and cute and fun to be around?
That's not you.

Are you talking about yourself? I can relate.

Froya
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14 Nov 2016, 10:23 pm

Raleigh wrote:

You're weird.
You know the weird people who are quirky and cute and fun to be around?
That's not you.

It doesn't matter I would say.. as long as it's perceived as something positive from both sides

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