No more WP for me

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I've got a busy life outside the internet so I don't need it for social interaction, I just got addicted to talking on a forum lol. The rest of them aren't that good.

Welcome back, Olive Oil!

welcome back.

theres other aspie forums?

yep, aspiescentral, asperclick, the AS subforum on psychcentral, and one or two others I can't remember the name of.

I wondered why you were no longer posting in AC. Did this incident happen in the chatroom or via PM?

And she come back.

It happened in the chatroom and I made a couple comments about it in a thread and signed out. When I came back it said I was banned for violating rules. I was in the chatroom and had actually had a pleasant conversation with the particular moderator who I had vehemently been disagreeing with in a thread about a cure related topic but we were talking about decorating and English manor houses. It was all fine and well and he left somebody else came in and he was new too I believe and we were discussing the place and I said they don't like being pro cure here, and he asked my opinion on it and I told him and asked his and we were having a polite discussion about it and not arguing at all and the mod came back and said he had been watching the chat and it wasn't a topic that could be discussed because it was recently discussed in a thread between me and him and he had locked it. Now that isn't even a particular subject which you can't bring back up, like a situation or an incident, etc. It's a general topic thats all over autism forums. He was just telling me I couldn't talk about it because I disagreed with him. He didn't like my opinion at all. Also, apparantly AS has no symptoms that are considered deficits, I'm deluded for thinking that the sensory issues are important and if I think that AS is anything more than a different neurology that is being discriminated against and if I dare to say it's a medical condition, because ya know it's talked about in medical textbooks and taught about in medical school, and it's organic based because of neurology and not psychologically based like a personality disorder then I'm a horrible person. So I told him it was people like him that made me decide to contribute money to autism speaks so they could put it toward public education. Thats right about when I got banned.

I don't care. I'm not going to waste my time trying to explain how something that is caused by the neurology of the brain and is only seen in a small segment of the population overall and that causes problems for them that society just being nicer won't fix, and that many times requires treatment and medication to help improve the quality of the person's life is a freakin' medical condition! Saying it's a medical condition doesn't mean it's a bad thing! Hell, there is a medical condition that causes guys to have really spectacularly large penises and I don't know anybody who thinks thats a bad thing! Yeah it's a medical condition, but so what? Dude's got dates for the next 6 years! This guy was just touchy about everything to do with it. And if you can't look at facts as facts and not as good or bad, then you got a much bigger problem than having AS. The fact that it's a medical condition is neither good nor bad, and the idea that it's simply another type of personality is idiotic. While it may present with a distinct type of personality, it's more than that and personality is only a small part of it. Now, to people who are looking for a reason for their social issues and quirks and regular weirdness and read about AS and take three tests and watch Parenthood and then decide that's what they have because it sounds so much like them on the webpage and it proves that people are just mean and it's not their fault, then maybe it is a personality thing. By that I'm talking about those who don't really have it but decide they do, or those who go around finding different disorders both neurological and psychiatric and psychological to research and decide they have every few months or years but never actually see anyone about it and it's always something different wrong with them every time you see them but this time they are sure, or those who just jump on whatever bandwagon that comes down the street that sounds like it might be the one missing piece in their lives - I'm not talking about people who really do have it and have diagnose themselves online but only use that dx to help themselves learn different ways to deal with some issues they have or those who strongly believe they have it and would see someone about it if they could or will be going to see someone. Of course there is no way for me or you to know which not professionally diagnosed people fit into which category, but I think you can sometimes SWAG it pretty well by the things they say, but not always because there are people in all categories, and also professionally dx'd who say things that would lead someone (mainly me) to believe they were in a different category from the one they are in.

So. That was the issue. A cure and whether or not AS and autism is a medical condition. Someone also said that AS wasnt autism but that might have been edited out later, I don't know. It might still be there. I think you were there weren't you? I remember your fish.

Anybody who knows me knows I'm for a cure because of the issues that it causes the person who has it. Not just social ones. There won't be a cure because it's all over and in the brain and removing autism from someone who has it would be like trying to turn a Hummer into an MG m***et by replacing the doors and fenders - not possible. Maybe they will come up with better treatments for the issues that it causes us. Meds might someday be discovered that help with the sensory issues and the processing issues and even the perspective issues, although since the social issues aren't rooted in shyness I don't see a pill to help social issues but maybe something could come about that would help facilitate recognition and understanding of social cues once they are explained and pointed out to us. Maybe a pill to help with the being overwhelmed by the stress other than the ones that are out there and don't do a whole lot for us at times. Maybe something to help those who absolutely cannot stand change. You never know what they will discover about the brain and how it works and what makes it work differently. I'm for pills that could help those things. That also woudnt change who the person is, it would address the particular symptom. Then again, it might not be possible. Nobody knows.

However, with the way prenatal testing and genetic research is going there will one day be a prenatal test for everything, even things we think are ridiculous now. One day you might know that your baby to be will probably get heart disease or is likely to have breast cancer or even will probably develop type II diabetes in his 50's along with cholesterol problems and erectile dysfunction. You'll know if your child will need braces on his teeth or be overweight or have severe cystic acne. And once we are testing unborn babies for things they might get in middle age and cosmetic things in childhood, it's certainly a no brainer to test for autism cause that is a huge fear of parents. And as long as abortion is legal as a choice by the mother then we cannot limit her reasons because there will be no way to. A lady who finds out her kid will be fat and doesn't want a fat kid may just say that she decided she's not ready to have a baby right now or suddenly wants to go back to school as her reason for aborting if the law says you can't abort for things that aren't fatal or seriously impact morbidity. So we need to educate the public so that one day when they test for the autism gene or whatever it is they discover, when a mother finds out her child is probably autistic, she will know that the kid stands a greater chance of just being a little odd or weird about some things than he does of being 15 years old rocking in the corner in a helmet and diapers fingerpainting on the wall in his own poop. While that is not the most common severity of autism it's the one parents minds go to immediately when they hear that. It's terrifying to think anything is wrong with your child, and when the only information you have about the specific condition your child is likely to have is catastrophic, you are more than likely to abort if you are at all ok with aborting for quality of life of the child as well as quantity. While we may understand that those kids in the corner do enjoy things and do have a life of their own, although it's very different from everybody else's and almost impossible to recognize autonomy just by glancing at them in a tv show or the dr's waiting room etc, when you have no interaction with them at all, most people aren't willing to risk what they think of as "putting their child through that".

I'm not saying it's fine to abort low functioning kids, but I'm saying it's a reality that if there is a test and if the main picture of autism that the public has is the lower functioning people then there will be many more abortions than there would be if the public knew that low functioning is a very small part of autism and their child has more of a chance of being medium functioning or high functioning AS. They wont be aborting because of some bigoted hatred and eugenics plan to wipe us all out, they would honestly believe that a life low functioning is torture for the child so they would think they are sparing him that. I'm not even going to get into the issues about abortion when a child may have severe issues like very low functioning autism or many other conditions that can cause a parent to think that they are sparing the child a life of pain. Thats a separate issue and not my point. My point is that there needs to be education so a parent knows that if they decide to abort then there is a good chance they are aborting a child who won't have very many problems with autism at all. Again, I'm not talking about the social issues and things society does. I'm talking about issues that no amount of just being nicer to the autistic person and more accommodating can ever fix. Internal issues like sensory and food and overload, etc.

So, I've gone off on my tangent, but to me it's just common sense. The test is coming for autism because it's coming for everything. There is no way they will test for everything else but autism, because it is a serious matter many times. So we should get off our podiums about just letting us be weird on our own and hold hands and sing about it and start talking about what we can do to educate the public about all facets of autism as well as the one small place on the spectrum that people's minds just go to.

So, that is my horrible, dangerous, deluded, ignorant, unscientific, hateful, fake AS and probably NT stealth, undercover spy for Autism Speaks opinion. At least that's some of the flack I got about it there and also here. While it's actually not scientific at all, I think it's a well thought out and pragmatic opinion. I'm not saying to stop pushing for acceptance, understanding and reasonable accommodation. You can do that and educate the public at the same time. You can do more than one thing. Hell, you could do five or six if you have the funding and the people to write copy! I don't see why my opinion is so horrible to some people. I'm not saying they should abort us all, I'm saying they need to find meds to fix some of the problems and when they find the gene there will be abortions just like there will be for weight, cholesterol, minor heart problems, etc when they can test for that as well so we need to just resign ourselves to that now and instead of futilely protesting the research into this testing, to accept that it will happen and to start education now so that by the time it's available people will have heard for a long time that autism isn't always the worst case, and that even when it is there is someone inside there even if you have a hard time communicating with each other.

I think a lot of people have gotten so self involved with the way they were treated because of their autism that they confuse the idea of doing something to treat it, or even for all intents and purposes cure it by treating the major symptoms, with someone saying that they shouldn't exist or with negating their importance and personhood. I think that a lot of people were treated so bad because of their AS that they have the backlash reaction of "I'm PROUD of it and it's not medical it's normal it's a gift it's great it's superior and you better accept it!" because they internalized so much of the crap that gave them low self esteem that the only way to prove it wrong is to embrace the issue that caused them problems as a wonderful and better thing to have altogther rather than see it as a difference in the brain that can to some extent be managed and sometimes treated medically so the person can deal with the issues caused by it therefore making their life easier. It's no better nor worse than NT, but it isn't the norm and it's a disorder because it causes problems for the person.

I think the main difference, to sum up my going on and on about it, is that some people see a cure as a thing so NT people have an easier time dealing with the autistic person's issues while others see a cure as thing to make the autistic person have an easier time dealing with their own issues. I'm in the latter camp because a cure isn't just a high tech cootie shot like some people think it's meant to be.

Sorry to go on like that, but it's an important topic to me.

What is AC?

I often use psychcentral.com to talk about autism.

It probably stands for AspiesCentral. There is also AsperClick. They are other forums online for ASD. AsperClick is run by Willow Hope. She has videos on youtube. I don't know who runs AspiesCentral. I've read some of both of these forums myself, but don't have accounts on them as it's "bad enough" for me to have an account here without an official diagnosis. Also, I am really stuck on this forum and it'd format and have figured out people here. I can get mentally overwhelmed on this site alone. No need to add more sites

Aspie Central. I'm on the other one as well but it's not very active

It's nice to see your posts again. Have you watched The Perfect Child? It's a Sweedish documentary regarding Downs Syndrome and prenatal testing.

here's a list of the staff members...i recognize at least two of them as they have/have had accounts on here.

http://www.aspiescentral.com/members/?type=staff



lol same here it's been like that even before i became a mod, i spent really too much time here then to try and participate and mingle in other sites. this satisfies enough.

yeah idk. takes a lot of time to do wp and can be quite upsetting at times. don't think I could handle more, but nice to know theres some options for when i leave here. though didn't care much for ac's set up.

There are not many regular posters on AC, and users get (functional) blogs you can read to learn more about them, so it's more intimate/less overwhelming. The mods also tolerate less stuff. You won't see many heated political debates there. There are fewer sub-forums and less off-topic discussions. It's much easier to manage than WP.

Thanks!

No I haven't seen it. Is it on Netflix? That's all I have right now with a little Amazon from time to time when it wants to work.

Since tests were developed for Downs, a lot of women have aborted because the test showed it to be likely. However my husband's brother's wife was pregnant and was about 35 years old or so, right on the borderline for the risk to go up, and her test came back likely and they said there was a good chance he would have Downs, but she didn't abort because they weren't 100% sure and she said she couldn't ever live with not knowing so she had him and he's fine. No Downs at all. He's a douchebag slacker who doesn't do anything at all but he's perfectly fine. Of course he's a douchebag cause of how my BIL raised him, the wife had him and then ignored him completely and my BIL did everything. Really, that's not just his side of the story, that was their agreement. She wasn't maternal at all. BIL spoiled him rotten. Bad spoiled. He's 22 or so now and never worked a day in his life, sleeps all day and plays video games, smokes pot, and talks on the phone all night. Can't drive, can't wash his own clothes, can't heat his own frozen freakin pizza cause his dad does it all for him. I'm surprised he can wipe his on ass. For the first two years he grew facial hair, his dad shaved his freakin face for him! Good looking kid too, but he's too good for girls here in Alabama. All the good ones are in the state they moved here from according to him.

I don't think it's available on netflix.. http://www.idfa.nl/industry/tags/projec ... 9d6f12aa62
It deals with some difficult topics, in a 'everyday family life' manner, although the focus is on Down's, I believe the same values and consequences could be applicable to prenatal testing for any disability/abnormality.