This issue still perplexes me. Seriously. Can we discuss it?

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goldfish21
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17 Jan 2018, 6:15 pm

EzraS wrote:
What I am saying is I think you need to come up with a better method of presenting this.

Another thing is, while pharmaceutical or alternative medicine treatments do affect brain chemistry, they do not change neurology.


I'm working on it, starting this year, but it's going to take a while. 10 or 15 years maybe.

Uh..?

From google:

"neu·rol·o·gy
n(y)o͝oˈräləjē/Submit
noun
the branch of medicine or biology that deals with the anatomy, functions, and organic disorders of nerves and the nervous system."

So.. yes, they do. Otherwise there wouldn't be medicine that improves any of those things. There are. MANY different medicines that change neurology. Unless you meant to communicate something different?


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17 Jan 2018, 6:22 pm

borrowing a bit from Proverbs 15 [KJV], "softer words turneth away wrath or at least the intimidation factor." :idea: people for the most part, are intimidated by the new, it has to wear on them first, in measured doses. soft-sell [sell the sizzle first, then the steak] works better, overall, at getting more people on your side, perhaps not as fast, but the tortoise won the race in the end, so to speak. it is good that you [OP] said the most important thing, which is, that your change happened when you hit rock bottom and were cornered with no where else to go but up. we all have to reach that point before we'll overcome our natural inertia. we living things are all programmed to conserve energy as a default, we won't expend this precious resource unless it is necessary to continue living, and then only just enough to do so. you can think of chronic depression as this programming gone hog-wild. it takes a lot to overcome this, it is a highly individual process, my rock-bottom was certainly different in quality than your rock-bottom. but rock-bottom it was. a lot of the complainers [as you call them] have not really hit rock-bottom yet, I believe providence protects them from the humongously ginormously ugly total picture of what rock bottom actually is. so they will piss and moan, b!+c# and whine, as a means of stress relief until the stress builds past a certain point, then they will go silent here which is a sign they hit their rock-bottom.
anyways I digress. I hope you [OP] can be relieved of some of your perplexion [a word I made up ;) ] and cease begrudging the other posters here their stress relief [this is, at heart, a support forum, after all] and let your archived words be of future reference to some here who have hit their rock bottom (when the :idea: finally lights up) and can then see the useful information contained therein, and be ready to use it.



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17 Jan 2018, 6:26 pm

some of us have found our own workarounds [ultimately we all must find our own unique combos of useful coping tools], IOW "Your Mileage May Vary." I believe that OP's tools have worked splendidly for him, he put the info out, and maybe somebody else here now or later, may parse this info and find among it some useful tools for him/herself. he did say that they were NOT definitive, but definitely USEFUL at least to him and possibly others as well.



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18 Jan 2018, 3:32 am

goldfish21 wrote:
EzraS wrote:
What I am saying is I think you need to come up with a better method of presenting this.


I'm working on it, starting this year, but it's going to take a while. 10 or 15 years maybe.


Why would it take you ten or fifteen years?

Why not go back to that first post you wrote in November 2013, take out all the irrelevant stuff where you describe the minutiae of your everyday life and then turn the rest into a short concise report, simply giving details of the symptoms you had, how you treated those symptoms and the results of your treatment. Then do a bit of research (something you are obviously good at) to find as many organisations and individuals as possible who are currently researching causes and treatment of autism. Send them your report. You do not need to ask for money or even acknowledgement.

People here are rightly sceptical about your claims. You are just an anonymous person on the internet who claims to have had certain symptoms and who claims to have substantially alleviated those symptoms by use of a fairly radical diet. Everything you say may be true and you may in fact have made some sort of important breakthrough in the treatment of autism. Or you may be manic, hypomanic, delusional or a narcissistic attention seeker. We have no way of knowing which it is. We only have your word for it and as I said, you are just an anonymous person on the internet.

Rather than continuing to post here amongst us sceptics I think your time would be better spent sharing your ideas with the wider scientific community. Wrong Planet may well no longer be here in a few years or even a few months time and then your findings are potentially lost forever.


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goldfish21
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18 Jan 2018, 5:13 am

Sandpiper wrote:
goldfish21 wrote:
EzraS wrote:
What I am saying is I think you need to come up with a better method of presenting this.


I'm working on it, starting this year, but it's going to take a while. 10 or 15 years maybe.


Why would it take you ten or fifteen years?

Why not go back to that first post you wrote in November 2013, take out all the irrelevant stuff where you describe the minutiae of your everyday life and then turn the rest into a short concise report, simply giving details of the symptoms you had, how you treated those symptoms and the results of your treatment. Then do a bit of research (something you are obviously good at) to find as many organisations and individuals as possible who are currently researching causes and treatment of autism. Send them your report. You do not need to ask for money or even acknowledgement.

People here are rightly sceptical about your claims. You are just an anonymous person on the internet who claims to have had certain symptoms and who claims to have substantially alleviated those symptoms by use of a fairly radical diet. Everything you say may be true and you may in fact have made some sort of important breakthrough in the treatment of autism. Or you may be manic, hypomanic, delusional or a narcissistic attention seeker. We have no way of knowing which it is. We only have your word for it and as I said, you are just an anonymous person on the internet.

Rather than continuing to post here amongst us sceptics I think your time would be better spent sharing your ideas with the wider scientific community. Wrong Planet may well no longer be here in a few years or even a few months time and then your findings are potentially lost forever.


10-15 years because I'm shifting my entire life's direction to focus on a gradual return to University studies with the intent of going from Biochemistry into Medicine (as medicine has played THE most important role in my life, and health is wealth etc) & in 10 or 15 years instead of saying "I'm not a doctor, but.." if all goes well I'll be able to say "In my medical opinion.." That's why.

There may be some value in rewriting things ultra simply so it's not a forum post & sharing the info with more people in the scientific community than I already have. By and large, though, as someone who graduated from business school at age 19 I know damned well that MOST research on medicine and treatments has to have a business case to justify the expense. Someone needs to be able to profit from this, big time, in order for them to finance a study. There's no money in it for big pharma, so why on God's green Earth would they finance a study to support organic foods & some herbs/oils? They won't. The only way a natural medicine study of this type would be funded would be if some wealthy donor decided it was their personal cause & paid for the whole thing. The probability of finding that donor is slimmer than becoming that donor, so, if it takes me decades to accumulate millions of dollars, so be it, I have time.

I've said many times over that I don't want others on here to simply take my word for it, I'd rather they tried it for themselves and see if it works. Pretty simple way for anyone to find out of it works for them or not and have their own definitive proof vs. calling me a liar, or calling it a hoax, or simply not believing me for the sake of not believing me w/o any evidence whatsoever to disprove what I've shared.

But to each their own. Even if another 4 years passes and not one single person here has decided to try any of this for themselves I'm going to continue doing it for myself and living the happier, healthier, wealthier, blessed second life that I am - and I'll continue towards achieving astronomical academic & life goals. Everything I do today & take for granted used to be impossible for me, and I don't want to stop doing impossible things - ever. 6 years ago I'd never have imagined myself as I am today, but today I see just how far I've come and continue to aim ever higher instead of getting complacent and accepting that my present life is the pinnacle of my potential. It's not. I have work to do & I'm going to do it.


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EzraS
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18 Jan 2018, 5:42 am

Here's the thing. You're useing terms like time, effort and energy and something it would take you 10 to 15 years to present, to people who are physically, psychologically, emotionally spent. Unwilling, but really unable, to perform something you yourself are indicating requires a Herculean effort. I think you're perplexed because you don't have theory of mind.



Last edited by EzraS on 18 Jan 2018, 5:54 am, edited 1 time in total.

goldfish21
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18 Jan 2018, 5:54 am

EzraS wrote:
Here's the thing. You're useing terms like time, effort and energy and something it would take you 10 to 15 years to present, to people who are physically, psychologically, emotionally spent. Unwilling, but really unable, to perform something you yourself are indicating requires a Herculean effort.


No.

The information I have to share hasn't changed much at all since I shared it 4 years ago.

Rewriting it won't convince those who think I'm lying otherwise.

It's not going to take 10-15 years to rewrite a few pages.

It's going to take the better part of a decade, or more, to study Biochemistry & then apply to and complete Medical School. Sure, these things only take several years, but they're extremely expensive so I may need 10-15 in order to pay for it.

No, I'm not pursuing a career in medicine solely to be able to have the credentials to present medical information to the ASD community - but it is a part of my decision to do so.

For the countless pages people on these forums read they can go read my thread/PM me if they're interested. The "Herculean effort," again, is not to rewrite what I wrote. It's to return to University and make a massive career change.


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EzraS
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18 Jan 2018, 6:05 am

Welp that thread from 4 years ago should tell you everything you need to know about how people feel about it and why they're not interested. I mean I got it and am not perplexed at all by it.



Sandpiper
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18 Jan 2018, 6:09 am

goldfish21 wrote:
I've said many times over that I don't want others on here to simply take my word for it, I'd rather they tried it for themselves and see if it works.


But people do have to take your word for it if they are even going to consider trying it for themselves.

They have to take your word for it that you actually had the symptoms you describe in the first place. They have to take your word for it that your unshakable belief that you are/were autistic, based on reading a few books, is correct. They have to take your word for it that you did in fact follow your diet and it had no adverse effects. They have to take your word for it that the improvement of your symptoms actually happened as you describe, and are not attributable to something else. Before anyone can make a reasoned decision as to whether they are even going to try your diet or not, people have to take your word for an awful lot of things. I'm not suggesting that you are lying or this is a hoax but you are still just one anonymous person on the internet making a number of unverifiable claims and suggesting that people try radically changing their diet on the basis that these things actually happened. People get into a lot of trouble by believing stuff they read on the internet.

Anyway, good luck with achieving your "wildest ambition yet" and your "astronomical academic and life goals". I won't be trying your diet. Those two phrases right there and other similar ones scattered throughout your posts ring alarm bells for me. I'll stick with working towards realistic goals.


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goldfish21
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18 Jan 2018, 6:23 am

EzraS wrote:
Welp that thread from 4 years ago should tell you everything you need to know about how people feel about it and why they're not interested. I mean I got it and am not perplexed at all by it.


Still perplexing that someone (me) would share here that they've figured out how to treat what ails us all, and then do so for 4+ years living a better life for it, and all everyone here is interested in is complaining about their symtpoms instead of treating them. How can you not see how that's bizarre to me?


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goldfish21
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18 Jan 2018, 6:43 am

Sandpiper wrote:
goldfish21 wrote:
I've said many times over that I don't want others on here to simply take my word for it, I'd rather they tried it for themselves and see if it works.


But people do have to take your word for it if they are even going to consider trying it for themselves.

They have to take your word for it that you actually had the symptoms you describe in the first place. They have to take your word for it that your unshakable belief that you are/were autistic, based on reading a few books, is correct. They have to take your word for it that you did in fact follow your diet and it had no adverse effects. They have to take your word for it that the improvement of your symptoms actually happened as you describe, and are not attributable to something else. Before anyone can make a reasoned decision as to whether they are even going to try your diet or not, people have to take your word for an awful lot of things. I'm not suggesting that you are lying or this is a hoax but you are still just one anonymous person on the internet making a number of unverifiable claims and suggesting that people try radically changing their diet on the basis that these things actually happened. People get into a lot of trouble by believing stuff they read on the internet.

Anyway, good luck with achieving your "wildest ambition yet" and your "astronomical academic and life goals". I won't be trying your diet. Those two phrases right there and other similar ones scattered throughout your posts ring alarm bells for me. I'll stick with working towards realistic goals.


It's not as if that thread was my first post on these forums. I had a year or two of the same complaints as everyone else here. Then everything changed when I figured out & did what I did.

I would call pursuing a career in medicine rather wildly ambitious, as well as an astronomical academic goal, regardless of who was doing it. Maybe you think wanting to become a doctor is unambitious or an easy academic feat. Not sure why either statement would ring alarm bells for you or anyone, but whatever, that's not for me to understand nor care about.

In the past, becoming a doctor would have been very unrealistic for me despite my intelligence, as my attention/focus & other issues would have certainly constrained me from doing so. Now? No, not so much. For the first time in my life I don't have resistance from those around me (in real life, not here on the forum), instead I have encouragement & the response from people in my life has been, "Yeah, I can see you doing that." vs. cautioning me from attempting it because they don't think I could. One of my friend's who's been to medical school's reaction was "Yeah, you know what? You could probably make it." I don't really care if doing something like this is unrealistic for you, it's now realistically possible for me & I'm going to Try. I'd rather give it my all, every bit of my time, energy, money and other resources and fail vs. not try and look back on my life 35 years from now and wonder.

June 12th 2017 I completed the Tough Mudder for the 4th time in Whistler and on my way back to town decided to swing by a Jr High School reunion night at local pub. One of the first people to greet me opened by saying "I figured you and your brother would be doctors or something by now." I didn't react to it, but it made me think.. reminded me of my Aspie uncle who's nearly 70 now and his story of going to a HS reunion and having an ex-teacher ask him, "So, what did you do?" Him: "What do you mean?" Teacher: "Well, did you become a doctor, lawyer, or engineer?" My uncle: "I could have done THAT? Why didn't anybody tell me?" He never did find a healthy balance & while he's highly intelligent, he's someone people would describe as nuts due to his ASD/bipolar symptoms. Myself, on the other hand, I have found that balance.. and I don't want to turn 70 and wonder if I Could have done it. I'd rather try and Know I can't vs. always wonder. But, I think I can, tbh. It's not going to be an easy road, I know that. But, I think I can do it, so I'm going to Try.

What's realistic for me is different than what's realistic for you. Hell, what's realistic for me Now is WAY different than what was realistic for me 6 years ago. In every way. Financially, too. I was $110K in debt and then bankrupt (despite my business school education) and back then I "KNEW" that I would never be able to make or accumulate any money. Meanwhile, in my present reality, during the single largest 1 day gains I've ever seen in my stock trading account my wealth increased by more than $77,000.00. In. One. Day. It spiked a bit more the next day, then dropped a fair chunk over the next few days due to some related industry headlines. It'll go back up, and then some, I'll diversify further, increase my wealth, finance my next education with it hopefully.. and if not, plan B, I'll use my ever increasing wage from the trade I'm currently apprenticing to pay for tuition and books much more slowly than if I make a large windfall from investments. And to think 6 years ago I didn't think I'd ever see a normal working wage, nevermind impressive investment returns. (Which would be much higher if I never made mistakes.. but I don't have a crystal ball.) My reality & what's realistic for me to achieve is clearly different than yours and what you think you can do.


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18 Jan 2018, 7:51 am

Now I kinda want to see those topics from all those years ago where Goldfish is at the bottom... you don't seem like a complainer so I'd like to see if that is something you used to be or has your writing style simply changed after things started to go well for you.

As for me, I won't be trying this for various reasons. First, from what I saw from another topic it seems rather expensive. If I had the level of income you do then I probably wouldn't think so, but the thing is that I don't. Then, there's no quarantee it'd even work for me. I can also be a bit of a picky eater and don't have the best selfcontrol when it comes to food, so even if I did decide to try it's highly likely that I'd mess up.

All this added to the fact that I already have a way that lessens my trouble caused by autism brings me to the conclusion that it's better for me to stick with my way and let others try your way if they want to.

I could try your way and my way together of course but meh, I know the limits of my abilities and tolerance. A strict diet is not something I'm cabable of with my current income and mental health.



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18 Jan 2018, 8:09 am

goldfish21 wrote:
.....someone (me) would share here that they've figured out how to treat what ails us all.....


That's a pretty big leap you've made there.

goldfish21 wrote:
I would call pursuing a career in medicine rather wildly ambitious, as well as an astronomical academic goal, regardless of who was doing it. Maybe you think wanting to become a doctor is unambitious or an easy academic feat. Not sure why either statement would ring alarm bells for you or anyone, but whatever, that's not for me to understand nor care about


No I do not think that pursuing a career in medicine is easy, but nor do I think it is wildly ambitious or astronomical.

As to the other bit, if you do not care about it, I will not bother to explain. I think I am done with this thread.


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18 Jan 2018, 10:00 am

I used to share the same frustration as you. I never did any diets and my ASD issues could have been anxiety issues, I don't know. But I realized not everyone has the same strengths and willpower to try and some could be so into that their brains are wired that way they are not able to do it. Maybe they are millennials who have had a early diagnoses and grew up being told they can't do this or that because of their autism and they'll never figure it out.

It's like how some severely autistic kids grow up to be "normal" while others stay severe and have limitations and always need assistance no matter what help they get while the others grow up to be successful like Temple Grandin for example or Raun Kaufman. While some keeps their autism symptoms, for others like Raun, they disappear. Then I hear stories about how some go through a burn out while others like Temple seemed to have never gone through it yet. So you could be one of those lucky ones and be happy for it. Also not everyone has a learning attitude. Why is it that some severely autistic kids grow up to be high functioning while others stay non verbal and always needing care? This is a controversial topic.

Also maybe it could be executive functioning issues that keep them from doing that diet or they don't want to be on a strict diet because it's too much work. Lot of people are like that. That is why people put weight back on and why "diets fail and don't work."

It's not just autistic people, people with other disorders are not interested in working on their issues to get better. It's just easier to be a victim to your condition than working with it. People use brain wiring as an excuse IMO.


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18 Jan 2018, 11:21 am

It should be remembered that autism has many causes. Gut bacteria might not be at the crux of someone's autism.

Sometimes, autistic symptoms cannot be mitigated through diet.

I believe many other therapies must be employed---whether with what Goldfish has presented, or without what Goldfish has presented.

What Goldfish has presented is applicable to him. He feels like he wants to share it. He should not express befuddlement, however, that other people might not be willing to try what he presented. This might be seen as a manifestation of a person adopting a superior attitude (even if that is not his intention).

He should just present it without expressing his befuddlement. He should say, "it works for me; maybe it will work for you," rather than saying, "It HAS to work for you, since it has worked for me. How can you NOT try what has worked for me?"

It would be nice if Goldfish's regimen actually works on someone else, or a few others here. If it does work on a few people here, then it can gain a wider audience.



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18 Jan 2018, 11:54 am

I'll have to agree with Sandpiper. Typically, aspies aren't given to blind acceptance. There's no way any of us on WP could verify the before & after state of a poster's condition and change based solely on his claims, much less spend the time, effort and money on an uncertain, unverifiable "treatment."