..
started cutting self again recently to communicate this,and dad/staff understand but cant do much.
mum is drunk every day and she's been an alcoholic for years [guess who gets the blame for this self medicating?],she;s abusive at her best,and violent at her worst,she makes noise on purpose to set am off-which sometimes develops into tonic clonic seizures.a recent one had happened in the one bath have a week,as dad had rushed up to his allotment to get something,and mum had to help,she was drunk and wandered out and started cleaning up outside the room with a heavy sweeping brush except missing the floor and hitting the walls instead,she kept at it,am head banged the side/wall of the bath which split top-front of head and left the wall all blood stained,the noise from that had not stopped her because had then slowly come around face down and realised had had a seizure,was paralysed from waist down [a usual side effect am have from post seizure and too much sensory overload] so had to wait till dad got back to be lifted out.
dad had a meeting with social services the next day and the incident and seizure in the bath was brought up with them,they completely ignored it.
have been waiting to move into the new residential home for a long time now,and the reason am stuck living back with mum and dad is completely illegal but they got away with that as well.
They also awarded soundproofing a bedroom in the new home early on in the year,but a few weeks ago changed it to adding one pane of glass to the window [as if that'll stop the inside noises,given its a home for severe to the strongest profoundly autistic adults and children],am have to wait for them to mess around fighting against funding that,then put the window in,then prove its no use on its own,then wait for them to do the whole thing over again with sound proofing.
All of the staff said they cannot believe the way am being treated by them as they're not doing anything,when they know this is a very bad situation.
Back when am was twenty years old and was assessed for the first time by adult social services/LD services-the situation at home had been exactly the same as it is now [less bad even],and they came the very next day saying was now a service user,and was offered a placement in the respite unit at the institution that day-but not able to move like that and had to have transition time first.They also put a lot of force into getting the police involved,even though did not want them, because mum said am would not be allowed in the house ever again if allowed that,did not want them to,mum was appointee and was stealing the benefits am got for her drink money [and it wasnt like she bought smirnoff or whatever with it,it's tesco value stuff or other crap stuff which all makes her go extra crazy].
So.....why is it now the situation is a lot worse,they're not doing anything?
Dad wanted to sort out ordering the motability car months ago,but social worker told him no he couldnt do it,they were waiting on a new appointee and they would then sort it.
This was months ago,and no new appointee had been sorted yet,they keep making excuses,it's extremely mobility limiting because am in need of a manual wheel chair,but they would not fit in most staffs' car boots without taking the wheels and head rest off.
All the NAS staff tried to get am slowly used to going back to the other residential home after the law breaking they [not NAS staff] did,to get away from mum whilst waiting for the new placement,but showing their bias and hatred towards am again they let one of the residents get a pet bird when they all knew that was off limits [and am not counted as left as am still paying for place there],so they made it permenantly inaccessible.
The LD services have also shown their classic bias in reply to a letter written by dad about abuse off staff recieved in that home,and they blamed it all on am being 'severely challenging',am have also been blamed for sexual abuse by a resident,and years of physical and verbal abuse off staff,lots of people on the spectrum say about about not using their aspergers or autism as an excuse but that is exactly what regulary happens here [not wp!]-except its managers that blame am having autism as the cause for 'innocent staff'.
Am so fed up of all this,without the autism specialised support staff am have and LD nurse would probably have gone crazy.
this is making am very weak and over the past few weeks haven't had the energy to do much if any sometimes communication online at all,and hate self that had not got to reply to the users who replied to the PECS thread am started.
am will bump the thing soon,with update,and do thank those who've tolerated the non replies greatly as it is also part of own difficulties crossing over to online territory [back/forth communication,and interacting]!
Does anyone else relate to anything here,or have any ideas on what can help?
Sorry this is a long thread,but thought another thing..
to show how bad the drinking affects her ,she thinks wrong planet is a satanist cult.
she comes in the room and sees it on dads TFT,and starts shouting at him to check it out in case it's a satanic cult.
she's the same with another site am use [mixed disability forum],she doesnt even know what a 'web page' is,so as someone who relates to LaVeyan satanism most,am not going to try and tell her why it doesnt sound right someone calling it evil and sinful when there is so much physical and sexual abuse from priests and nuns that went on in her own religeon.
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>severely autistic.
>>the residential autist;
http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!
01 Jul 2009, 11:44 am
