Wow, Crohn's sucks sometimes

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After my Crohn's disease had been in remission for 8 years, I managed to land myself in the hospital yesterday with a bowel obstruction. It came out of nowhere. Not cool whatsoever.

The worst part was them giving me an NG (nasogastric tube) which, as you might imagine, was fed into my nose and down into my throat. However, it did help a ton.

So yeah, it's been a rough couple of days. Still at the hospital but I feel normal now that they removed th NG.

I don't know if Crohn's is considered an ASD comorbid or not (I know that many gastrointestinal diseases are believed to be related), but hoy.. It's not fun.

go gluten free, try it out.


Many people with autism can't handle gluten and it could be what's causing your problems.

My brother in law has Crohn's-He's had to have a few bowel resections. I know what he goes through so ...my sympathies. I hope you're up and about soon.

Hi, yes Crohn's definitely sucks. Sorry to hear it's come back so suddenly lets hope it goes away again in the same manner. I've no idea if it's anything directly to do with the ASD since it's an immune system disorder and your only the 2nd I've seen here including me but I have no doubt the stress brought on by my ASD definitely brought it out for me. Having a hard time lately? Bottling up feelings doesn't help.

Stress and tobacco are the two major antagonists apparently. No harm in trying the diets but each time I've seen a new specialist I ask about diet and if they've noticed any patterns from their years talking to patients and they give me a short answer each time, no. The most advice I've been able to get is to avoid green veg due to nitrates. Sugary and fatty foods ruin me.

Anyway man hope you're doing better soon, let us know how you get on.

Last edited by Hmmmn on 10 Sep 2009, 8:53 pm, edited 1 time in total.

I once knew someone with that disease. I could always smell a strange stinky chemical like odor whenever I was near them. Can you tell me what the deal was with that?

Why don't you give him a call and ask him?

I haven't seen the person for almost twenty years.

I've known 3 people with Crohn's and never noticed that.

Could it have been methane? I know that the gas I pass has a tendency to be extraordinarily noxious compared to your average human. That might be TMI, but hey... you asked.

I dont have Crohns but I do have bowel problems as does my aspie son. I think I may have IBS, and my symptoms definitely get worse from stress. Good luck to you. You are young so I;m sure you'll be up and around soon.

Methane itself is odorless. Things like sulfur and nitrogen compounds, etc. are what you smell.

So what made you think the smell was something to do with the Crohn's? Smells associated with Crohn's don't generally have a chemical smell, ususally more organic

Crohn's is different from celiac disease (gluten intolerance). Some foods can set off Crohn's flare-ups, like very fatty foods or foods with lots of fiber (or at least one kind of fiber, either solluble or insolluble, I don't remember which).

That was the one person I ever met who I knew had Crohn's. And it was also the only person I've noticed that smelled like that.

I probably don't remember the exact stench since it was back in 1990.

I suppose it could have been the sulfa-based maintenance drug you were smelling. They don't use those very much anymore. They're into 5-ASAs now (mesalamine, mostly).

Anyways, I'm back at home now. All is well (at least until the next time)!

Celiac can cause malnutrition which can them cause other diseases.