Society pisses me off...

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31 May 2011, 9:10 pm

Because I am 22, I can't qualify for life support... such as being able to live without my parents, stuff like that. My IQ is above the requirement for the Department of Developmental Disabilities. I NEED the help and yet because I have an IQ of 75 to 80. I mean what can I do when my parents die? I don't live near relatives and a lot of them have limited financial problems. I can't live on my own, get a job or even go to college without support because of my developmental and intellectual delays.

It really sucks. My parents tried to get me respite care but they denied it. Our insurance only pays for so much and they won't cover anything I really do need. Why do people with autism have the worst trouble getting special services? It almost makes me cry. What can I do to get some services? This is the hardest thing ever and it seems like nobody wants to do anything.

I start to cry everyday, or get close to tears because I can't do anything with my life because of my developmental delays. What can I do? How can I get them to understand? How can my parents fight for this? I mean its ridiculous... don't you think?

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swbluto
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31 May 2011, 10:03 pm

Get reassessed and answer randomly/slowly on the IQ test.

iheartmegahitt
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31 May 2011, 11:28 pm

Psh... if I did one in my current mind set... I'd be sure to fail. >>;

ChrisVulcan
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31 May 2011, 11:34 pm

I don't have any practical advice, but I feel you. I had siblings who were terminally ill. I only ever fit in with my famliy. My most persistent fear was of my parents and sibs dying, because then I would be completely alone.

Well, we're all still standing, (at least so far). In addition, I'm gathering just enough social skills to make friends. Even if such a disaster does occur, I will have a few people left who understand me.

My point is: pray, trust, and confront your fears. You will get through this. I promise.

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John_Browning
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01 Jun 2011, 12:03 am

My suggestion would be to find a social security lawyer (your family can help out for most parts of the application process) and have them help you get the application started. It often takes about 2 years to go through the appeals process and hearing they make just about everybody go through to get benefits, but it would help you have a better long term plan.

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iheartmegahitt
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01 Jun 2011, 12:09 am

John_Browning wrote:

I already have SSI. That's not going to help me in the slightest. It's the Developmental Disabilities department that is denying me because my IQ isn't under 70... which is completely ridiculous since I can't function at an adult level. I can't fend for myself if my parents die.

I'm 22 right now and I can't get crap for anything. It's the hardest thing of my life. I would give anything to get support but because I am 22 with IQ ABOVE 70... I can't get s**t.

Seph
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01 Jun 2011, 12:39 am

I'm having trouble seeing where you're having problems.

You're on SSI which means you should have medicaid, right? (or is it medicare? I get the two mixed up...) So you have healthcare.

What exactly does the Department of Developmental Disabilities do? What are you expecting from them?

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iheartmegahitt
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01 Jun 2011, 12:53 am

Seph wrote:

If my parents die, I will be unable to fend for myself. But odds are, because my IQ isn't under 70, DDD (Calling it that for short) won't provide respite care or any services for me when that happens. I don't have relatives near me or even ones who will be able to support me financially. My dad has tried to get me into a program where someone goes places with me and does things with me and I was even denied that because I don't fall under the IQ of under 70.

Medicare/Health choice won't care, especially if they can screw up my medications and cause me a massive meltdown, they aren't going to do much for me after my parents die. It's stupid really... because I am 22 and yet have many developmental delays. I can't cook, clean, do laundry... because every time my parents show me how, I forget how to do it within seconds.

I can't get services now nor will I ever be able to get them then... is what I am saying. Otherwise they would be doing something to help me. But health choice doesn't see that I need such things.

Seph
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01 Jun 2011, 1:29 am

Are you worried that your parents are about to die?

What confuses me is respite care is typically short term and it seems like you're thinking about long term after your parents pass away. I don't really know what to say. You can keep trying DDD or you can try to learn to live on your own. It'll be hard, I know. Other than that, you mentioned other family. Assuming you still have time, they may be in better shape to help you.

I hope this doesn't come out badly but sometimes people need some space from other people. Is that what's going on?

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SyphonFilter
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01 Jun 2011, 8:46 pm

iheartmegahitt wrote:

I'm sort of in the same boat as you. My solution is to just not think of what might happen in the future.

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