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dostoyevsky
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Joined: 4 Apr 2012
Gender: Female
Posts: 3

05 Apr 2012, 10:14 pm

No one would ever accuse me of being the best social butterfly, but I've definitely had friends and stuff. Then I lost it, a couple of really terrible things happened. 1: I was diagnosed with incurable seizures. I was put on all this crazy medication that didn't make things better, they made things worse, they made me tired all of the time and didn't help the seizures. It's horrible and lonely and I can't drive a car. I'm afraid that I'll have seizures and 1 seizure is a catastrophe, but I was having them every month or even every week, they've settled down a little now. 2: My older brother died soon after the seizures started, and I loved him more than anyone else in the world, or at least that's definitely the story now that he is dead. I miss him so much. He was so amazing. He was so smart. He was so sweet. He was only 20. 3: Obviously everyone else is also going crazy at this point.

Socially I feel like now I've dug myself a hole of loneliness now. I think because I sort of withdrew into myself, where I feel most comfortable, to deal with all of this, and I am also an artist so it's real easy for me to just draw pictures or write stories to escape, I'm more comfortable doing that than talking to people. When I feel lonely sometimes I think I must be autistic or something, but looking back at what I've written most people haven't had such a horrible life and I probably need to try harder or something. I don't know. I try to be friendly but sometimes I'm irritable and I say that it's all of the keppra (for the seizures). I feel like I've been tackled by life, and picking myself up is really hard.



Narfibald
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Joined: 22 Feb 2012
Age: 38
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05 Apr 2012, 10:37 pm

Terrible what happened to your brother, especially since you were so close. While I haven't lost a relative myself, I know what its like to deal with grief. Wanting to withdraw for a while is alright, its good to have some alone time to sort things out. Just remember, there's a time to grieve and a time to move on, and don't let this tragedy ruin your life. I don't think your brother would want that. As for the seizures, well tell your doctor you don't think the medicine is working. Maybe there's another one you could try that would work for you. Stay strong.


_________________
I have no purpose, I make them.

--Narfibald Narfchester von Narfington
--Lord of Castle Narfenstein
--Ruler of the Narfshire
--Keeper of the Tome of Narf
--Aspergian in Good Standing


Claradoon
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Joined: 23 Aug 2006
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06 Apr 2012, 2:55 am

I hope you're not blaming yourself. You're suffering a devastating loss - give yourself lots of room to grieve. Art and writing are excellent to express your grief and love for your brother.

Do not stand at my grave and weep,
I am not there; I do not sleep.
I am a thousand winds that blow,
I am the diamond glints on snow,
I am the sun on ripened grain,
I am the gentle autumn rain.
When you awaken in the morning’s hush
I am the swift uplifting rush
Of quiet birds in circling flight.
I am the soft star-shine at night.
Do not stand at my grave and cry,
I am not there; I did not die.

http://en.wikipedia.org/wiki/Do_not_sta ... e_and_weep

Art and writing might help with your experience of seizures as well. I'm no fan of doctors - "seizures" is not a diagnosis - maybe you can get the doctor to tell you what's causing them. Personally, I would google the cause and the meds.