My own mother is ashamed of me

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compcuanol
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28 Jan 2013, 12:11 am

So I was complaining to my mom about how it seemed so much easier to be an aspie in other countries (I'm french) because for one thing, there's financial support just for being autistic. I wasn't aware the same thing existed in France, which my mom then told me about. I was really happy to hear about that, because obviously I can't get a job. I've tried, doesn't work. So, I thought, how awesome, all I have to do is get diagnosed, and I'm gonna be payed for doing nothing, what a nice way for society to make up for excluding me in the first place ! So I told my mom let's call some people, let's make it happen, we're not gonna be poor anymore, life is wonderful ! !!
But she did NOT seem happy about this wonderful idea of mine. Because apparently she's totally ashamed of having an autistic daughter. I mean I confronted her about it. I repetedly told her I didn't care AT ALL about being "categorized" as asperger which was her argument against getting an official diagnosis. I asked if she was ashamed, expecting her to look really offended and say "of course not, daughter of mine, what an awful idea" or something similar, but no, she then proceeded to pass the vaccum cleaner, making sure I couldn't annoy her any longer. WHO DOES THAT ??
I'm surprised by all this, I had no idea my mom was such a b***h. I mean she works with low-fonctioning autistics for god's sake ! ! She's the one who suggested I might be asperger in the first place, all those years ago ! And I thought she was such an awesome mom, so devoted to her family who should think more of herself really. And I was so proud of her for finally divorcing my a**hole of a father last year. And now, it's like my image of her, everything I thought I knew about her, it doesn't really mean any thing anymore.
And I keep thinking, if MY OWN MOTHER can't handle it, why would anybody else ? I mean she's had YEARS to get used to the idea...
And it's not like the rest is any better. My little brother thinks it's really funny, and he keeps mocking me, everytime he hears the word autism. He's been doing that for years, which I guess making a joke of it is his way of coping with it, and it's not really mean-spirited, but it's still annoying. And the only reason he's kinda defending me on this matter is because there's money involved.
And I haven't talked to my other brother in years, but the reason for that is that he's always been an a**hole about me being weird, even when I thought I was a normal kid so ... yeah, he's an a**hole in general anyway. I mean, if he was king of the world, any kind of person who's not totally normal would be put in prison. And that includes non-white people, and gay people and ALL those freaks of nature. I'm sure he thinks autistic people should be killed at birth. God, I hate my family ! !!

...So that was longer than expected, I guess I really needed to get this out. So anyway, do you think I'm being too hard on my mom ? How does YOUR family view your "aspie-ness" ? Do they accept it ?



Last edited by compcuanol on 28 Jan 2013, 4:00 am, edited 1 time in total.

2wheels4ever
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28 Jan 2013, 1:10 am

I was not aware France was even giving disability stipends for autism, what with the header right at the top of the WP site and all. I have a mother similar to yours; she has become a bit more supportive lately, though some days I wonder how she could ever have cared for disabled people yet talk to me the way she does.

Even if you begin receiving government money for your condition, it will not solve your financial problems and if you continue to live with family, which will probably be the case as living independently requires a considerable amount of money, they will be threatening to send you to an institutional facility every other month.

Hope it goes well either way


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compcuanol
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28 Jan 2013, 2:13 am

2wheels4ever wrote:
I was not aware France was even giving disability stipends for autism, what with the header right at the top of the WP site and all.


Yeah, honestly, I think they're just being dramatic. I'm not saying they're inventing stuff, but taking things that happened to a few people and making it seem like it's so much more common than it is, I think that's lying in a way. The thing about France and autism is mostly that people are so ignorant about it. Basically, when french people hear autism they think of an idiot drooling over himself and rocking back and forth and that's it. If you tell them autism is not a disease, they just get confused. So, there's A LOT of ignorance, but that's really the worst of it and it could be fixed easily if the media decided to care.

2wheels4ever wrote:
Even if you begin receiving government money for your condition, it will not solve your financial problems and if you continue to live with family, which will probably be the case as living independently requires a considerable amount of money, they will be threatening to send you to an institutional facility every other month.


I don't intend to live at home for the rest of my life. I intend to keep looking for work. And if I can get financial help, maybe I could go to college or get a driving lisence which should, in theory, make it easier for me to get a job.
I just think if the option exists, then I'm entitled to it because without it, I probably WILL live with my mom for the rest of my life.



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28 Jan 2013, 3:10 am

I really sympathize about the situation with your mother.

My own mother was so determined that we are all excellent and work ethic and in perfect health (and on and on and on) - not to mention that everything can be fixed by willpower. It wasn't until she died, aged 89, that I was able to consider the possibility of Asperger's at all. At that point, I was 57yo.

So don't do what I did. Well, do what I did but do it now, not when you're 57yo. I went to our big mental hospital (got a referral from family doc) and got a written diagnosis from the Autism Dept., signed by the psychiatrist in charge. That's one page on hospital letterhead, and all it says is that "a diagnosis of ASD is warranted." It's backed up by an inch thick of tests but all I have to show people is that first page.

So once I had an official Dx, I went to the community health centre and they helped me apply to the government. They put me on permanent disability allowance.

As for people who think you're looking for a free ride, let me tell them that I worked 30 years and got fired every 1-3 years. And it was pure unmitigated hell, doing work which I did extremely well in social settings where I could not cope at all. And I tried.

Don't let anybody badger you into living a false life. If the truth for you is a disability allowance, go for it.

There's no need to tell your mother what you're doing. It took me 2 years to get the diagnosis. Just get started.

In the meantime you might want to work on rearranging your world re sensory overload. Like that vacuum :lol:



compcuanol
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28 Jan 2013, 3:57 am

Thanks for replying

Claradoon wrote:
As for people who think you're looking for a free ride, let me tell them that I worked 30 years and got fired every 1-3 years. And it was pure unmitigated hell, doing work which I did extremely well in social settings where I could not cope at all. And I tried.

Don't let anybody badger you into living a false life. If the truth for you is a disability allowance, go for it.


As far as I'm concerned, I have no doubt it's what I need to do. I don't care what people think. They have no idea what it's like to be me and they don't care to ask so their opinion is irrelevant.

Claradoon wrote:
There's no need to tell your mother what you're doing. It took me 2 years to get the diagnosis. Just get started.


The thing is, I would really like her help. I don't like the idea of doing the whole thing alone but I guess I'll have to...



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28 Jan 2013, 8:55 am

I understand you. My mother is just the same. You need to find the emotional support from somewhere else ( I found it in my local aspie group)



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28 Jan 2013, 9:23 am

compcuanol wrote:
The thing is, I would really like her help. I don't like the idea of doing the whole thing alone but I guess I'll have to...


You won't get support from her in the foreseeable future. But nothing's going to happen right away anyway. I think you could go to your family doc and get a referral - and you need a psychiatrist because it's in the DSM. So then you call for an appointment and wait about six months. I waited a year. It's not going to happen all at once.

And keep us posted!



compcuanol
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28 Jan 2013, 1:54 pm

Heidi80 wrote:
You need to find the emotional support from somewhere else ( I found it in my local aspie group)


I wish I could. But apparently there's only one group in Paris and they meet like three times a year. I don't live anywhere near so that's not an option for me. Which is too bad because, meeting another aspie would be... Well, honestly, it's the only dream I have left at this point.

Claradoon wrote:
You won't get support from her in the foreseeable future. But nothing's going to happen right away anyway. I think you could go to your family doc and get a referral - and you need a psychiatrist because it's in the DSM. So then you call for an appointment and wait about six months. I waited a year. It's not going to happen all at once.


Yes, I know it takes forever. But I'm still waiting for my mom to ... I don't know, admit she's wrong or something before I even start. Because just calling to make an appointement is like a major thing for me and I want her to just at least remind me to do it and annoy me a little if I keep putting it off and making excuses.
She KNOWS that's all I need from her and it's such a tiny thing. It would take two seconds of her day ! !
I'm just really shocked by her reaction to the whole thing... It makes feel even more alone (which I didn't think was possible).

But anyway, thank you all for the replys, made me feel better.



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28 Jan 2013, 2:12 pm

compcuanol wrote:
Claradoon wrote:
You won't get support from her in the foreseeable future. But nothing's going to happen right away anyway. I think you could go to your family doc and get a referral - and you need a psychiatrist because it's in the DSM. So then you call for an appointment and wait about six months. I waited a year. It's not going to happen all at once.


Yes, I know it takes forever. But I'm still waiting for my mom to ... I don't know, admit she's wrong or something before I even start. Because just calling to make an appointement is like a major thing for me and I want her to just at least remind me to do it and annoy me a little if I keep putting it off and making excuses.
She KNOWS that's all I need from her and it's such a tiny thing. It would take two seconds of her day ! !
I'm just really shocked by her reaction to the whole thing... It makes feel even more alone (which I didn't think was possible).


WHOA!! You *must* separate yourself from your mother! We women are very often so much identified with our mother that we cannot function independently. Witness my situation, where I had to wait till Mom passed at age 89 and I was 57 to get Dx'd with Asperger's. I was not capable of thinking otherwise. At least watch yourself doing this. And to separate is a matter of grief.

It's not two minutes out of her life; it's her entire life; it's her motherhood as she sees it. She can't help you with Asperger's without throwing her own life in the garbage. All her mothering has not saved you; all her mother-guilt was justified. She is truly facing terrible issues here. Are they truly relevant to your situation? I don't think so. But waiting is death. I hope you go ahead somehow.



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28 Jan 2013, 3:00 pm

Mine are okay with it. They accept me and see it as my personality and as who I am.

Your mom may have gotten upset because when you said you wanted to get diagnosed so you can get money from the gov for it, she saw it as a free ride and it upset her. Plus some people say disability is not for people who can't get a job when they are capable of working. But what they don't seem to understand is having a disability can make getting a job hard for you. I do think having one doesn't mean you don't have to work, it's just there as a tool and you have money until you can get work. Some people just give up and some don't. Plus there are places out there that employ people with disabilities and there is voc rehab. So to say you wanted a diagnoses so you can get paid to sit at home and do nothing pushed her buttons. I don't know how things work in France like if there are places that help people with disabilities get jobs or not.


But you can ask her if she would rather have you be a burden or just be on disability so you have some income of your own.


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compcuanol
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28 Jan 2013, 3:36 pm

Claradoon wrote:
WHOA!! You *must* separate yourself from your mother! We women are very often so much identified with our mother that we cannot function independently. Witness my situation, where I had to wait till Mom passed at age 89 and I was 57 to get Dx'd with Asperger's. I was not capable of thinking otherwise. At least watch yourself doing this. And to separate is a matter of grief.

It's not two minutes out of her life; it's her entire life; it's her motherhood as she sees it. She can't help you with Asperger's without throwing her own life in the garbage. All her mothering has not saved you; all her mother-guilt was justified. She is truly facing terrible issues here. Are they truly relevant to your situation? I don't think so. But waiting is death. I hope you go ahead somehow.


I'm confused by your answer. I think I must have given you the wrong idea. I'm NOT asking her to throw her life away. I'm asking her to help me, in the SMALLEST way possible, to make the changes I need to live independently, which would benefit her more than me.
And anyway, if I'm completely honest, everything I do, it's for my family because if I were to do anything for MYSELF, I would jump off a cliff.
I don't think "seperating myself" from the only reason I'm still trying is really the healthy thing to do. Also, it's not like I've been waiting for months for my mom to hand me the phone. It's been two days...

League_Girl wrote:
So to say you wanted a diagnoses so you can get paid to sit at home and do nothing pushed her buttons.


Well, that's the thing. I didn't really say it like that. I actually made funny little drawings of me getting a diagnosis, then me with lots of money, then me going to college, and then me working in an office and then her turning my room into a new room. And I still gave her an explanation of the drawings, even though they were pretty clear. I wanted to make sure she understood getting diagnosed was a good thing. Honestly, I put a lot of thought into it. Which is why I don't think her reaction was appropriate.



Last edited by compcuanol on 28 Jan 2013, 4:05 pm, edited 1 time in total.

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28 Jan 2013, 3:56 pm

I tried calling my mother over the winter holidays, only to find out that she had changed her phone number without telling me ... again!

(Hey, ma! I'm the son who never sold drugs, never got anyone pregnant other than my wife, never broke into people's houses, never went AWOL, and never went to prison. I'm the son who finished high school, who put himself through university and earned an engineering degree, who enlisted in the military and earned an honorable discharge, and who married the mother of my children before those children were conceived. So why do you cut me off?)

Yeah, life sucks, but sometimes you just gotta live with it.


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28 Jan 2013, 6:29 pm

compcuanol wrote:
So I was complaining to my mom about how it seemed so much easier to be an aspie in other countries (I'm french) because for one thing, there's financial support just for being autistic. I wasn't aware the same thing existed in France, which my mom then told me about. I was really happy to hear about that, because obviously I can't get a job. I've tried, doesn't work. So, I thought, how awesome, all I have to do is get diagnosed, and I'm gonna be payed for doing nothing, what a nice way for society to make up for excluding me in the first place ! So I told my mom let's call some people, let's make it happen, we're not gonna be poor anymore, life is wonderful ! !!
But she did NOT seem happy about this wonderful idea of mine. Because apparently she's totally ashamed of having an autistic daughter. I mean I confronted her about it. I repetedly told her I didn't care AT ALL about being "categorized" as asperger which was her argument against getting an official diagnosis. I asked if she was ashamed, expecting her to look really offended and say "of course not, daughter of mine, what an awful idea" or something similar, but no, she then proceeded to pass the vaccum cleaner, making sure I couldn't annoy her any longer. WHO DOES THAT ??
I'm surprised by all this, I had no idea my mom was such a b***h. I mean she works with low-fonctioning autistics for god's sake ! ! She's the one who suggested I might be asperger in the first place, all those years ago ! And I thought she was such an awesome mom, so devoted to her family who should think more of herself really. And I was so proud of her for finally divorcing my as*hole of a father last year. And now, it's like my image of her, everything I thought I knew about her, it doesn't really mean any thing anymore.
And I keep thinking, if MY OWN MOTHER can't handle it, why would anybody else ? I mean she's had YEARS to get used to the idea...
And it's not like the rest is any better. My little brother thinks it's really funny, and he keeps mocking me, everytime he hears the word autism. He's been doing that for years, which I guess making a joke of it is his way of coping with it, and it's not really mean-spirited, but it's still annoying. And the only reason he's kinda defending me on this matter is because there's money involved.
And I haven't talked to my other brother in years, but the reason for that is that he's always been an as*hole about me being weird, even when I thought I was a normal kid so ... yeah, he's an as*hole in general anyway. I mean, if he was king of the world, any kind of person who's not totally normal would be put in prison. And that includes non-white people, and gay people and ALL those freaks of nature. I'm sure he thinks autistic people should be killed at birth. God, I hate my family ! !!

...So that was longer than expected, I guess I really needed to get this out. So anyway, do you think I'm being too hard on my mom ? How does YOUR family view your "aspie-ness" ? Do they accept it ?


Stigma is a terrible thing, especially from the people who are supposed to care about you. I think when it's your own child, it's hard to accept the fact that they have a disability, especially one so heavily stigmatized. I also wonder if perhaps she is upset by the idea that you want to be on benefits. Of course, if you require it then that's fine, but maybe she feels like you're giving up too soon in terms of employment? Anyway, she's being a major tool for making it all about her. Who gives a damn what she thinks when it affects you?

Your brother sounds like a douche bag, though I'm wondering if he's just trying to push your buttons and isn't really the genocidal freak you describe him to be?

I'm personally very lucky as my family doesn't give a s**t if I'm weird. Pretty accepting family I have.



compcuanol
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28 Jan 2013, 8:18 pm

MindBlind wrote:
Your brother sounds like a douche bag, though I'm wondering if he's just trying to push your buttons and isn't really the genocidal freak you describe him to be?


That made me laugh ! !! Yeah, maybe I was a bit hard on him. Still, he might not be a genocidal freak, but he's still a mean bully.



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29 Jan 2013, 12:32 am

compcuanol wrote:
MindBlind wrote:
Your brother sounds like a douche bag, though I'm wondering if he's just trying to push your buttons and isn't really the genocidal freak you describe him to be?


That made me laugh ! !! Yeah, maybe I was a bit hard on him. Still, he might not be a genocidal freak, but he's still a mean bully.


You could always suggest to him that extreme black-and-white thinking, so to speak, like that, might suggest he could be on the spectrum himself, especially if he never goes anywhere and stays home all the time. I'm the aspie in my family and I actually enjoy being outside, go figure


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29 Jan 2013, 12:42 am

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