Ear Problems, help me talk about this and then maybe more...

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Drake
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14 Sep 2015, 8:20 pm

Hello forum.

Really what I want right now is someone/s who I can talk to about this. You don't have to actually help me with the actual problem, at least not right now anyway, what I want right now is to be able to talk about it. You see it's difficult to talk about and I'm hoping someone/s will help me with that. If I try to think about how I could write it all down it's just too big and I get all stressed out thinking about it. So this is step 1. So would anyone like to try and help me along with this please?



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14 Sep 2015, 9:10 pm

Drake wrote:
Hello forum.

Really what I want right now is someone/s who I can talk to about this. You don't have to actually help me with the actual problem, at least not right now anyway, what I want right now is to be able to talk about it. You see it's difficult to talk about and I'm hoping someone/s will help me with that. If I try to think about how I could write it all down it's just too big and I get all stressed out thinking about it. So this is step 1. So would anyone like to try and help me along with this please?


Curious, what exactly are the problems about which you would like to speak?



cathylynn
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14 Sep 2015, 9:13 pm

i have a medical background, not in ear, nose, and throat, but i might be able to be of some help. feel free to message me



Drake
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14 Sep 2015, 9:25 pm

cathylynn wrote:
i have a medical background, not in ear, nose, and throat, but i might be able to be of some help. feel free to message me

Thank you very much, I will.



Drake
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14 Sep 2015, 9:40 pm

Unfortunate_Aspie_ wrote:
Curious, what exactly are the problems about which you would like to speak?

Hello.

This started in June. Right now I have constant tinnitus. It sounds like when you turn up speakers loud but have nothing playing, with a bit of a high pitched whine added to it. There's also another sound that's quieter that I can only hear when it's quiet. I don't have the understanding to describe it, the best I can do, and it's still a really poor description, is the sound of wind going through a pipe.

But I also have another issue. When I listen to certain things, my ears go like when descending in an aeroplane, and they hurt, but not like they do when descending in a plane, it feels like I've been scratched inside my ears and like it's inflamed, and it gets progressively worse. What's more with the right thing causing it, it can take many hours to wear off after just a few minutes of exposure. This particularly seems to happen with video games or music. So I'm caught between these two issues, I can't block out the tinnitus because then I set off the other problem, so I'm stuck suffering one or the other. It's also progressively getting worse on both counts. The latter problem was the first to manifest. The tinnitus came after, and was originally on and off but is now constant.

I'm also already on antidepressants and this is having a negative effect on me with that and I'm struggling to cope. It's limited my ability to play video games, my hobby, and limited my ability to enjoy music, which I also used to help with stress relief. And also, being very much an introvert, it's damaging my ability to "recharge" as I have no peace.



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14 Sep 2015, 10:24 pm

So I can put something about how this situation started.

Now if I talk about what lead up to this, my PC speakers broke. On one occasion, I managed to get them to work again, but the sound from them was different and horrible. I just put it down to the speakers being busted. More on that later. While I was waiting for the new ones I ordered to arrive, I would listen to music on my tablet and sometimes put the tablet right next to my ears on full volume. I must stress that it is not very loud on full volume, nor would I do this for longer than a few seconds. I first used the tablet in April I think, and I've never owned one before. I would do this with the tablet then too, but I did it more with the loss of my PC speakers. I noticed that my ability to tolerate doing this was becoming less and less, and I was contemplating stopping doing it. I certainly haven't listened to loud music or loud anything since this started.

So I get my new speakers and put them on. The sound quality on these was horrible too. And this was the first I noticed my problem. I ended up trading my new speakers for my step-father's speakers. I managed to get these to sound "right", but only after setting the Real Tek Audio Manager to treble. And yet despite sounding fine, these will set me off like nothing else. I can listen to the exact same thing on my tablet without issue that would set me off horribly coming from the PC speakers. I know very little about sound and am not computer savvy. I don't know if there's something wrong with my machine or not. Originally, only stuff from the speakers could set me off, but now all sorts of things can and I stopped listening to anything from my PC ages ago.

So if anyone knows about computers and sound, that could be helpful too.



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15 Sep 2015, 1:00 am

Have you been to an audiologist? Tinnitus is usually a symptom of some kind of hearing loss. I have it pretty bad.

Also, you may have inverted eardrums, as I have. This means that the eardrum is slightly 'sucked in' or concave in appearance and will be sensitive to any kind of pressure - such as from the bass in speakers when they're put next to you ears. It can cause extreme discomfort and pain.

I would see your doctor. Antihistamines can help.


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Drake
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15 Sep 2015, 12:06 pm

Raleigh wrote:
Have you been to an audiologist? Tinnitus is usually a symptom of some kind of hearing loss. I have it pretty bad.

Also, you may have inverted eardrums, as I have. This means that the eardrum is slightly 'sucked in' or concave in appearance and will be sensitive to any kind of pressure - such as from the bass in speakers when they're put next to you ears. It can cause extreme discomfort and pain.

I would see your doctor. Antihistamines can help.

Hello.

I don't think I've lost any hearing ability, but who knows.

I don't think I have inverted eardrums. I've seen the doctors but all I have to show for it is a nasal spray which doesn't seem to do anything and an appointment with a specialist on the 30th November with a gloomy prediction from the GP that I won't get anything out of the appointment.

Do you have any of the other symptoms I describe besides the Tinnitus? I also forgot to mention the other symptoms bring on headaches. Every time I've tried to look for anything to do with sound, it always seems to be about loss of hearing, not about pain or anything. I was listening to sound at a level that has been tolerable for me my whole life. I've forgotten the medical term, but they seem to think with the aeroplane effect I talked about it's to do with the pressure in my ears being messed up.

How do you cope with your tinnitus?

Oh, I should mention all these problems are behind the eardrum. And if I shake my head when having the non-tinnitus symptoms, sometimes there is a crackly sound and I can feel something there on both sides at the back of my head above the ears. Like level with the temples if you then move your hands around to the back of your head, it's not in line with the ears, it's further in.



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15 Sep 2015, 1:11 pm

Hi Drake

i am definitely not an expert but I do have a little experience with ears. not sure i can help but may give you a lead?
No harm in trying eh?

I have tinnitus (my mother also had it later in life) I got it by being stupid listening to music too loud and especially one drummer I had in my band who played too loud and had his cymbals right at ear level.
There are certain frequencies which give me pain in my ears, a singer 2 weeks ago kept hitting a specific note which hurt (I put ear protectors in) this was through a PA system and not really loud.

I also have had a burst right ear drum where my mother smacked me upside da head when I was an incredibly annoying teenager. (she was lovely but at the end of her tether ... I was so annoying!).
She accidentally cuffed my ear like a cup and the pressure bust the ear drum.. its still worse than my left one.

It was agony if I put my head under the water in the bath until it healed over. I could suck water into my mouth through my ear.
Is your both ears?

Anyway I will simply list my thoughts....

*Tinnitus can be temporary due to blockages infection etc or it can be permanent like I have.

BUT you can cope by learning to zone it out by not focussing on it (listening to quiet music at bedtime is one that I do). I get constant hissing & very high pitched...... bugger .... I`ve started focussing on it right now to analyse it! :roll:
its more a psychological thing really as I cannot make it go away I just learn to ignore it and not worry about it.
You can learn to zone it out by not thinking about it....... So DONT WORRY you can adapt to this and get on with your life absolutely fine.
just takes a bit of time ... dont over think it.

*Tinnitus can be brought on by certain drugs... check yours

* Obvious one but..... blocked ears??.. wax remover. sometimes build up can press on the tympanum (ear drum)

*Inner ear infection? ask the doc

* Sinus problems... sinusitis your sinuses run throughout your face and are closely connected with ears and pressure. I had this and I had really painful gunk right inside my face for ages it was like solidified snot (sorry), it eventually came out but I remember my hearing was badly affected... got better though

*Talking of pressure I once went on a plane and one ear didn`t `pop` for a couple of weeks... some people have worse. This is your eustachian tube (not sure about spelling)is a narrow passage leading from the pharynx (back of the throat to the cavity of the middle ear, permitting the equalization of pressure on each side of the eardrum. Thats what the popping is. this can get blocked or infected?
Swallowing does the trick, yawning massive yawns is the best though really opens it up. feels great too!

* OK this next bit comes with a Massive HEALTH WARNING.... when my ears are blocked after a cold or with bath water I do this trick... BE CAREFUL though. (Our [u]ENT expert cathylynn who posted above should give advice before me... I would send her a private message)[/u].

Pinch your nostrils shut and force/blow air into your face/ears this will build pressure but often pops my ears and I can suddenly hear really clearly again. NB I learned this after my burst ear drum fiasco ... my ear drum actually whistled for a while!!... how cool is that!...
sometimes even tiny bits of air will come out of your eyes! 8O ! !!
I accept no liability for your eyes popping out or brain hemorrhage.... ask the expert first!

* Did you have a cold or flu.. again could be sinus related.

* OK on to the crinkly, grating noises in the back of your head... I get these too, I think it is kind of bone cartilage or small bits inside your joints crumbly bits (God knows what its actually called) apparently it is quite common and not a big deal. It really worried me for a time, just kind of feels a bit like gristle rubbing. I think I fell on my head too often and damaged the neck area joints. Its only loud because its right next to your ears!

* The swooping sensation could be because the inner ear is closely connected with balance. I have lost balance when stuffed up with a cold or sinus issues.

Ok thats my list... I know its not expert but you never know it may trigger off an avenue of thought to help you.

Good luck



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15 Sep 2015, 8:50 pm

Peejay wrote:
Hi Drake

i am definitely not an expert but I do have a little experience with ears. not sure i can help but may give you a lead?
No harm in trying eh?

I have tinnitus (my mother also had it later in life) I got it by being stupid listening to music too loud and especially one drummer I had in my band who played too loud and had his cymbals right at ear level.
There are certain frequencies which give me pain in my ears, a singer 2 weeks ago kept hitting a specific note which hurt (I put ear protectors in) this was through a PA system and not really loud.

I also have had a burst right ear drum where my mother smacked me upside da head when I was an incredibly annoying teenager. (she was lovely but at the end of her tether ... I was so annoying!).
She accidentally cuffed my ear like a cup and the pressure bust the ear drum.. its still worse than my left one.

It was agony if I put my head under the water in the bath until it healed over. I could suck water into my mouth through my ear.
Is your both ears?

Anyway I will simply list my thoughts....

*Tinnitus can be temporary due to blockages infection etc or it can be permanent like I have.

BUT you can cope by learning to zone it out by not focussing on it (listening to quiet music at bedtime is one that I do). I get constant hissing & very high pitched...... bugger .... I`ve started focussing on it right now to analyse it! :roll:
its more a psychological thing really as I cannot make it go away I just learn to ignore it and not worry about it.
You can learn to zone it out by not thinking about it....... So DONT WORRY you can adapt to this and get on with your life absolutely fine.
just takes a bit of time ... dont over think it.

*Tinnitus can be brought on by certain drugs... check yours

* Obvious one but..... blocked ears??.. wax remover. sometimes build up can press on the tympanum (ear drum)

*Inner ear infection? ask the doc

* Sinus problems... sinusitis your sinuses run throughout your face and are closely connected with ears and pressure. I had this and I had really painful gunk right inside my face for ages it was like solidified snot (sorry), it eventually came out but I remember my hearing was badly affected... got better though

*Talking of pressure I once went on a plane and one ear didn`t `pop` for a couple of weeks... some people have worse. This is your eustachian tube (not sure about spelling)is a narrow passage leading from the pharynx (back of the throat to the cavity of the middle ear, permitting the equalization of pressure on each side of the eardrum. Thats what the popping is. this can get blocked or infected?
Swallowing does the trick, yawning massive yawns is the best though really opens it up. feels great too!

* OK this next bit comes with a Massive HEALTH WARNING.... when my ears are blocked after a cold or with bath water I do this trick... BE CAREFUL though. (Our [u]ENT expert cathylynn who posted above should give advice before me... I would send her a private message)[/u].

Pinch your nostrils shut and force/blow air into your face/ears this will build pressure but often pops my ears and I can suddenly hear really clearly again. NB I learned this after my burst ear drum fiasco ... my ear drum actually whistled for a while!!... how cool is that!...
sometimes even tiny bits of air will come out of your eyes! 8O ! ! !
I accept no liability for your eyes popping out or brain hemorrhage.... ask the expert first!

* Did you have a cold or flu.. again could be sinus related.

* OK on to the crinkly, grating noises in the back of your head... I get these too, I think it is kind of bone cartilage or small bits inside your joints crumbly bits (God knows what its actually called) apparently it is quite common and not a big deal. It really worried me for a time, just kind of feels a bit like gristle rubbing. I think I fell on my head too often and damaged the neck area joints. Its only loud because its right next to your ears!

* The swooping sensation could be because the inner ear is closely connected with balance. I have lost balance when stuffed up with a cold or sinus issues.

Ok thats my list... I know its not expert but you never know it may trigger off an avenue of thought to help you.

Good luck

Hello Peejay. Thank you very much for taking the time.

Did you lose some of your hearing ability to go with the tinnitus? And does your pain last after it's brought on, or does it only last as long as the sound that brings it on?

Yes, it's both ears.

I can't keep my mind off it. I so desperately want to just listen to silence. The high pitched whine is driving me nuts. It's not even that loud even though I can't block it with my fan anymore. I've always been able to think best and relax best when all is quiet. I miss just being able to shut my eyes and let my mind wander so much. At least I can forget it exists when I'm asleep, but I also had my first dream recently where it was there in the dream and that upset me. If you get hissing and very high pitched noise, how do you manage to cut it out with just quiet music?

No medication I'm taking should be the culprit.

My ears are clean, the doctors said so that there was almost no wax when they looked.

I don't know how well the doctors can see an infection in the inner ear, but they couldn't see any signs of one.

I do suffer a lot on aeroplanes. So I do wonder if that could be the issue, and if there's a way to fix it. From what I've heard about ear damage with noise it tears off the microscopic hairs or something like that. So they're gone. So you'd think the effect would be immediate and constant, wouldn't you? Where for me, the tinnitus did not come until some time after I'd stopped with the loud noise and indeed was going through probably the quietest period of my life so as not to set the other problem off. Surely it shouldn't be continually getting worse when I've cut that off? Thank you for telling me about the eustachian tube, that's something I can look up.

No cold or flu. I've had loads of such things in the past with no issue.

I only get the crackly though when experiencing the non-tinnitus symptoms. It's linked to it somehow and I could do with knowing what it is. I shook my head earlier today and it felt like it was lower down this time, maybe it's not always in the same place or I'm struggling to pinpoint it.

Thank you. Please share any more coping mechanisms you might have.

The kindness in this thread is touching.



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16 Sep 2015, 11:10 am

I think the key is kind of ignoring it. This is hard if you keep thinking about it sure, but distraction helps.
No I do not get any pain (except very specific frequencies as I mentioned through a PA).
Mine is a high pitched hiss with a very quiet high pitch whistle overtone

Re, Quiet music (I listen to a lot of beautiful baroque music more recently with voices or choirs, it means that when all is quiet that there is a focus... I am a musician so I can get drawn into the beauty)

This helps me especially at bedtime to get off as does reading.
I will bet you that if you are absorbed in reading an interesting or exciting book you wont even notice it.
I think its a lot about the psychology of attention and simple distraction. yes it will be there again as soon as you think about it, but it will fade again as your attention wanders.

You might even try white noise in the back ground it kind of duplicates the tinnitus. (there are some cool little phone apps which have loads of sound loops like waves, fire crackling , breeze in the forest with birdsong etc... very relaxing).

p.s. I don`t know that true silence exists, however I do find the environment very very peaceful and tranquil on some quiet sunday morning when all the cars are gone....

I think you may be getting into an anxiety loop: you are focussing on the noise because the noise wont go away and the noise wont go away because you are focussing on it!

There will be moments when your attention wanders away from the noise, but make sure when it comes back to just kind of notice it is back then say here it is again and then get on with what you are doing you dont have to panic if it it keeps cpming back to your attention.. just kind of accept it and move on. consciously distract yourself if you must.

This is NOT life threatening, you definitely CAN learn to manage it so that it really wont interfere at all,
Eventually please believe me that it will hardly affect your life at all.
The future is not as bad as you think you are just thinking about it a lot at the moment.
Humans are marvellous at adapting to things....
Distraction is a very underatted cure for a lot of ailments! :wink:



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21 Sep 2015, 12:44 pm

Peejay wrote:
I think the key is kind of ignoring it. This is hard if you keep thinking about it sure, but distraction helps.
No I do not get any pain (except very specific frequencies as I mentioned through a PA).
Mine is a high pitched hiss with a very quiet high pitch whistle overtone

Re, Quiet music (I listen to a lot of beautiful baroque music more recently with voices or choirs, it means that when all is quiet that there is a focus... I am a musician so I can get drawn into the beauty)

This helps me especially at bedtime to get off as does reading.
I will bet you that if you are absorbed in reading an interesting or exciting book you wont even notice it.
I think its a lot about the psychology of attention and simple distraction. yes it will be there again as soon as you think about it, but it will fade again as your attention wanders.

You might even try white noise in the back ground it kind of duplicates the tinnitus. (there are some cool little phone apps which have loads of sound loops like waves, fire crackling , breeze in the forest with birdsong etc... very relaxing).

p.s. I don`t know that true silence exists, however I do find the environment very very peaceful and tranquil on some quiet sunday morning when all the cars are gone....

I think you may be getting into an anxiety loop: you are focussing on the noise because the noise wont go away and the noise wont go away because you are focussing on it!

There will be moments when your attention wanders away from the noise, but make sure when it comes back to just kind of notice it is back then say here it is again and then get on with what you are doing you dont have to panic if it it keeps cpming back to your attention.. just kind of accept it and move on. consciously distract yourself if you must.

This is NOT life threatening, you definitely CAN learn to manage it so that it really wont interfere at all,
Eventually please believe me that it will hardly affect your life at all.
The future is not as bad as you think you are just thinking about it a lot at the moment.
Humans are marvellous at adapting to things....
Distraction is a very underatted cure for a lot of ailments! :wink:

Hello again. Sorry for not getting back to you earlier. I went to the doctor again on the 16th, and basically I don't have any recourse except to wait until the 30th of November comes along. I even enquired about the possibility of going private, but I wouldn't be able to speed up the process much and it would likely cost a lot of money which I can ill afford.

This news was actually of some benefit though, as it has, at least for now, managed to get me to switch off that aspergers mindset of wanting to analyse and pick apart something now that I feel I've exhausted my options. So my mind has stopped demanding attention on it. So not getting back to you and the thread has been partially as I've been quite busy and partially as I haven't wanted to while I've been able to keep it out of mind. The first few days I did quite well, so I didn't want to risk bringing it back into my mind. I'm still struggling though. The last couple of days have been pretty rough with the other problem bothering me more than the tinnitus.

But as you say, distraction does work. The tricky part is finding something that's enough of a distraction. Unless I'm really absorbed by something it doesn't work.

Your tinnitus sounds fairly like mine.

Music can set off my other problem, so it's tricky. I have come up with a possible way to experiment though when it's bedtime, I can find something on Youtube and use my tablet (making sure the e-mail notification noise is switched off!) and then playing it, there's plenty of stuff on there both music and white noise. But I'd need to find something that wouldn't set off my other problem and work against the tinnitus. At the moment it's eased off a bit, the tinnitus, so I'm not needing to try this just yet as I'm managing to get to sleep without it.

Reading is difficult when the tinnitus is bothering me. Even something interesting. Something that's just mildly interesting has become really hard to concentrate on because of it, it seems to amplify the tinnitus when I read, it's as if my senses are heightened or something. And even something genuinely interesting is difficult, it really impairs my ability to go into my imagination and start painting the mental pictures I normally could when reading. I enjoy reading, but this is really making it difficult.

I'm not sure how I'd do on a quiet day out, but I have taken a few walks since this all started and being outside currently is enough to wipe out the tinnitus. And for the most part it doesn't set off my other problem either.

I do think I was in the anxiety loop and they do say stress worsens tinnitus. I hope I can stay out of it.

Yeah, it's difficult, if I do forget about it for a moment and then recognise it being there, it is upsetting. I also do this thing where after not noticing it for a bit, I notice I haven't noticed it for a bit and get a jolt of excitement immediately followed by despair as thinking about it makes me realise it's still there after all and I wish I could stop doing that but I do it multiple times every day.

I could imagine potentially learning to live with the tinnitus, tune it out like you tune out other background noise like ticking clocks, but if I'm stuck with the other problem that will effect my life by stopping me from doing certain things because of the pain the sound causes.

Thank you very much for the help. I don't know if you or anyone else have anything to offer. I might post more in the thread, I'll definitely back here when the 30th November is on the horizon to try and shape what I've talked about into something concise for the doctor.



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24 Sep 2015, 11:10 am

Drake wrote:
Yeah, it's difficult, if I do forget about it for a moment and then recognise it being there, it is upsetting. I also do this thing where after not noticing it for a bit, I notice I haven't noticed it for a bit and get a jolt of excitement immediately followed by despair as thinking about it makes me realise it's still there after all and I wish I could stop doing that but I do it multiple times every day.


glass half full = wow I have not noticed it for a while well done. No need to despair that its not permanent... small steps.

Funnily enough every time I am writing to you my tinnitus comes to the for again!... no worries though as I soon get distracted.

Oh yes... reading with some (neutral-ish) background music might help you focus on the story too.



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29 Sep 2015, 12:16 pm

Hello again Peejay.

I thought I should mention that since I wrote

Quote:
I also do this thing where after not noticing it for a bit, I notice I haven't noticed it for a bit and get a jolt of excitement immediately followed by despair as thinking about it makes me realise it's still there after all and I wish I could stop doing that but I do it multiple times every day.
it's stopped happening.

I'm still pretty miserable about the whole thing though, but hanging in there for now.



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29 Sep 2015, 3:36 pm

That`s good news,

I know there are other issues too making you feel down but try to remember that life can still be amazingly beautiful at times.
Look at clouds in a blue sky, ........uplifting....
All the best
PJ



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04 Oct 2015, 12:18 pm

Peejay wrote:
That`s good news,

I know there are other issues too making you feel down but try to remember that life can still be amazingly beautiful at times.
Look at clouds in a blue sky, ........uplifting....
All the best
PJ

Thanks for the support PJ.

Unfortunately I now have a new type of tinnitus to go with the rest. It started a couple of days ago on and off, but I think it's now settled into permanence. This one the best I can do is describe it as like a car alarm, you know how the pitch goes up and down up and down, it does that, though not quite like a car alarm, it varies how much it goes up and down and when it goes up and down but it's fast. It's thankfully nothing like as piercing as a car alarm, and it's really not very loud when all is quiet. The problem is this tinnitus seems like it gets louder with background noise, background noise that I would think should easily block it based on how quiet it is when all is quiet won't block it, so I can hear it over things I would not normally hear the other things over.

What is wrong with me??? It feels like it took an eternity just to clear September from when I posted here, September feels like it dragged on forever, and now I have to deal with this as well and still have to wait the better part of 2 months to see the specialist and I don't know what state I'll be in by the time we get there. It just keeps getting worse.