Err, grumble, defective body making life difficult.

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Hmm, guess I will say something.
And I guess this is the place to say it.
Basic concept could be described as, Err, grumble, defective body making life difficult.
And there's not (yet) much which can be done about it.

Okay, autism is going on and that's its own thing.
Also going on are multiple other neurological, endocrine, mitochondrial, musculoskeletal, things/problems/diseases/defects.
Which are not currently 'curable'.
Maybe in some alternate universe's 21st century they are, but not in this one.

One specific happening causing major inconvenience is in the neurological category.

Pressure on my body at any given point eventually, sometimes slowly & sometimes quickly, leads to that area developing a pins and needles, stinging, burning, sensation.

After several years the paid medical professionals still haven't determined why.
And that our county seat farm burg's hospital abruptly closed middle of January 2020 after having been sold to different operator in 2018 isn't helping with that.
Also not helping is that the nearest city with its hospitals is further away than I can drive with my defective body any more.
Also not helping is all the stuff happening with covid, shutdowns, closing of nonessential health care, et cetera.

Anyway, that sleeping is becoming a bit of a challenge is why I'm writing this here.

Lying on back or sides soon causes that pins and needles, stinging, burning, sensation in my hips and thighs.
Thanks to problems with a 30 year old spinal injury sleeping on my stomach isn't going to happen.

(ya know, sleeping in zero G is sounding kind of appealing)
(but the moldiness in the Space Station would land me in the hospital getting asthma treatments for the asthma they keep telling me I don't have https://www.sciencedaily.com/releases/2 ... 121252.htm)

At this time I'm sitting up in bed with my knees drawn up and laptop in my lap (with a large hardcover book behind it to keep cooling vents from being obstructed by sheets and blankets)(I'm there because of ME/CFS flare today)
and the bottoms of my feet are screaming at me with that pins and needles, stinging, burning, sensation because of the pressure on them with my knees drawn up.
(that thing which is one of the reasons Ii had to stop working stand up all day retail in the 1990s)
(and for several years now there is a thing going on where the layer of tissue which makes a thin padding between foot bones and sole of foot is gradually disappearing. oh, yay, what fun)

So far any medications which have been tried have ended unsuccessfully. One did work, somewhat, for about 14 years but several years ago just stopped having ANY effect.
Other than it, the only things found so far that my quirky immune system will tolerate, have to be strong enough to pretty much knock me out, or leave me in a zombie fog all the time.

Which doesn't actually stop the cause of the pins and needles, stinging, burning, sensation, it just gets in the way of my conscious experience of the sensation.

Can't live life knocked out, ya know.
But, man, I am so weary of this.

Dear kites - So sorry for what you’re having to go through each and every day, and even morseo further with the flare-ups. {{{{{{{ kites }}}}}}

It hurts knowing you’re experiencing such extreme onslaughts of what sound like torture to me. I wish I had the answers and could, as your friend, get you to and fro this now further removed hospital, now that your local has closed.

This life sure can be brutal, for some. Wish I had some answers for you that might help, in these circumstances. This sounds a severe version of what someone I know has. What really helped him was horse chestnut cream, a transparent gel, has a cooling effect and settled down his pins and needles, burning sensations. He doesn’t think any medication will help you, only cause further unpleasant side effects. However, if this works, you could then progress onto horse chestnut tablets, which soften the veins, relieving nerve problems in the extremities of the body. This is a more natural remedy, which won’t cure but will ease the sensations you’re experiencing. Here, in the UK, horse chestnut cream isn’t expensive, but if it is where you are there, I will happily ship some to you, free of course. It’s been used for centuries, and was literally the only thing that helped. This cream has been known to give instant relief and helps sleep ... this is what my aquaintance used...(note, it’s not just for use on legs, but for any part of the body experiencing pins, needles, burning sensations...
https://www.amazon.co.uk/Timely-Chestnut-Menthol-Extract-Plantain/dp/B07Z6MC86X/ref=sr_1_21?dchild=1&keywords=horse+chestnut+cream&qid=1611310675&sr=8-21

Diet is a long-term solution to many issues, and often these are inter-related issues. It’s about identifying the direct cause of your issues, something I can’t do remotely. It may well be your liver, or an allergy, or an intolerance to particular foods, too much carbohydrate in your diet ... Cutting sugars and high carb foods from the diet is known to alleviate some of the issues you mentioned(ie all pastas and rice, bread and potatoes and no refined sugars). Alot of things the body doesn’t like are in those groups. Adding alot more leafy green vegetables is good for nerves. (spinach and kale), veges with antioxidants.

You might find that the cooling cream alone eases these pins n needles, burning sensations.

Your body’s in distress and at the end of the day, you need to change something by taking action. Even it’s a wrong action initially, you can then take steps to decide to not live like this anymore, to fight back.

You have such incredible talent in mutiple ways and I consider you a sweet friend who is being denied the life you could and should have. Seriously, it’s really important that attempts to make a change are taken. The same goes for depression. It’s about finding what works. Action is needed to take control of the situation. X

What Juliette proposed couldn’t hurt. It’s not potentially poisonous.

I’m sorry you’re going through this stuff. It’s not fair, I know. You haven’t harmed anybody.

Am sorry your having to deal with multiple situations , I hope you find some relief , The things that Juliette wrote about sounds like very good advise . Some people have sought out Integrative medical doctors , I believe.
When faced with multiple co-morbidities.

Thanks y'all.
This has been going on for better than 16 to 20 years.
Dad has been dealing with similar for almost 40 years.

Leafy greens are usually highly recommended for autoimmune disorders, but with the occasional “quirky body” and certainly in some of the more extreme cases of gut lining damage, those oxalates can clearly have a very negative impact. That article was interesting! Thanks for sharing it. It truly does come down to finding what works for the individual. The woman in the article you shared, had tried a number of different diets, even becoming vegetarian(I have vegans and vegetarians in my family trying to control certain symptoms they’ve been trying to combat). A healthy, balanced diet, living healthy, exercising, can still see a body going backwards health-wise frustratingly. There are so many different conditions that can work against what might seem a logical choice in treatment, diet.

The article mentioned kidney stones. A family member went through a period of having kidney stones continually causing untold pain and problems, even having surgery for them. Turned out, they were being caused by high calcium due to the heartburn tablets they were taking. In that case, omeprazole was the answer.

Horse Chestnut is toxic to dogs and cats, but if I was in the amount of discomfort you describe, and it was relieving my symptoms, I’d ensure my 2 cats couldn’t lick those past of the body that need the cream. Certainly hope that you manage to get some better sleep and that this flare up settles down soon.

Seems there is a big trend towards alkaline type water. With hi Ph. Levels of 8. Or higher. Am wondering if that would help or hurt kidney stones . It is suppose to keep harmful bacteria down in the human body , I have been told.

^^ Hi Jakki . That would depend on the type of kidney stone. That is, whether or not it would begin to dissolve in an alkaline solution. There are about 6 different types of kidney stone. Some are uric acid based and cystine(this type would be helped with alkaline type water).

Struvite and calcium would not be helped by alkaline-based water.

Thank you for the information Juliette ( hi there) ..... interesting , did not even know of various type of kidney stones