Am I jerk because I don't like the way I am?
Here is a quick background: My parents' expectations of me were very high as a child. As I got older I fell shorter and shorter of those expectations. I felt like I failed in everything I did, which eventually led me to become suicidal back in 2017. Eventually, would led my family to help me pursue an autism diagnosis was basically finding a reason for why I was lacking in the things expected of me. I couldn't make friends, or finish school, or hold a job. I made questionable decisions and struggled in every day things. I've been in therapy for years for my depression and anxiety. Everything points to this diagnosis, 'this is why things don't work out for you.' Like okay that's a relief because it's not my fault, but...
I don't like that I exist. I'm no longer actively suicidal but it is difficult for me to feel enthusiastic about life. I have had to give up so much. I usually think I shouldn't have been born just because I'm miserable....I wouldn't want this for anyone else.
I've been told that I advocate genocide simply because I think it...makes sense to prevent autism in future individuals. I don't advocate genocide! Ever! I want to clarify that. But I don't think it's evil to study genes.
But I find it really strange I'm seen as such a bad person in other communities just because I think it's fair to avoid putting others in my situation. People have said to me, "well I'm happy with my life and love my autistic self." Well, that's great, I'm not saying we should hate ourselves. It seems very taboo to talk about. I don't understand how other people are happy, but I do understand that we don't experience the world the same way. I've been put through hell in different ways trying to navigate the world and in the end have been told all that struggle was because I'm autistic. And after that, my family kind of got tired of me. And...nothing I worked on in the past was worth it, because I didn't stand a chance masking as an NT.
There's nothing wrong with wishing I could regulate my emotions, or empathize better, be better understood, socialize....isn't it strange to say so? And to say that I would never want others to go through the same problems?
The thing is: is that autism is not always "inherited."
An example is me: I didn't inherit autism from anybody.
Autism is not all bad. There have been autistic and Aspergers people who have made great discoveries. There are some who are great engineers and scientists. I'm not one of those "gifted" ones----but I've done okay with my autism.
I'm sorry you're feeling in this much despair. Do you have any special interests that make you happy and smile?
You deserve to be happy. You are not a jerk.
I understand how you feel. i think that it is natural for people when they are extremely frustrated with their lot in life, to start getting pissed off and that will inevitably show in how they interact with the world.
I get it, i do feel like that some days. I get frustrated with the amount of crap i have had to go through in my life.
I get frustrated with the fact that life is so tough for us folks with ASD. where we can't get decent jobs, even though we can be honest, hard working, good nature'ed and decent.
while watching slimy manipulative people get up the ladder of materialistic achievements
and thus, with the material success that good jobs brings, often then get good romantic relationships
as well as the usual trappings of that the material world brings
so. sure. have days where you don't love life. and don't get on/
that's ok and its cool, cause your life isn't a bunch of roses.
but try and not let it define you
try and find something in life that you love doing
i personally love messing around with music
and it does make me happy
does help push through the loneliness and lack of material success
and gives me something to develop and plan for
just for my entertainment if nothing more
so try and not let it all get you down
so that you get angry with all aspects of life
i know its hard to try and transcend past the crap
but if you do
you may feel better
and some will pick up on that vibe
and maybe pick you up
An example is me: I didn't inherit autism from anybody.
Autism is not all bad. There have been autistic and Aspergers people who have made great discoveries. There are some who are great engineers and scientists. I'm not one of those "gifted" ones----but I've done okay with my autism.
I'm sorry you're feeling in this much despair. Do you have any special interests that make you happy and smile?
You deserve to be happy. You are not a jerk.
Thank you very much. I don't have any special interests currently. If I develop some, I will share them.
I get it, i do feel like that some days. I get frustrated with the amount of crap i have had to go through in my life.
I get frustrated with the fact that life is so tough for us folks with ASD. where we can't get decent jobs, even though we can be honest, hard working, good nature'ed and decent.
while watching slimy manipulative people get up the ladder of materialistic achievements
and thus, with the material success that good jobs brings, often then get good romantic relationships
as well as the usual trappings of that the material world brings
so. sure. have days where you don't love life. and don't get on/
that's ok and its cool, cause your life isn't a bunch of roses.
but try and not let it define you
try and find something in life that you love doing
i personally love messing around with music
and it does make me happy
does help push through the loneliness and lack of material success
and gives me something to develop and plan for
just for my entertainment if nothing more
so try and not let it all get you down
so that you get angry with all aspects of life
i know its hard to try and transcend past the crap
but if you do
you may feel better
and some will pick up on that vibe
and maybe pick you up
Thank you. I will continue trying my best.
The thing is you're over generalising. Not everyone feels like that.
And also, you need to come to terms with yourself and like yourself.
Two insults come up in your title. Both referring to yourself. I find that sad.
Not because you're targeting me - you're not - but because you're targeting yourself.
I actually enjoy being the kind of person who can see smaller details in things, cope on my own socially (and bit by bit in other respects too... that's a downside of being dyspraxic) and focus for a long time on certain subjects.
I advise you try that rather than trying to be NT. Find an interest and focus your time on it. Be a bit competitive over it - trying to be the best or beat your own personal bests.
Also speak to yourself like you're someone you care about. If you had written that stuff in third person rather than first person, it wouldn't be very nice. Try to have that kindness for yourself, as well.
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Not actually a girl
He/him
You do not sound like a bad person. But beware of accidentally using eugenicist rhetoric/ideas (such as that you think all autism should be prevented).
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Opinion polls have officially begun!
Posting will be on and off due to school studies for a while. I am still around though and will occasionally pop in!
How did they manifest these high expectations? Mostly just by pressuring you to get good grades, make lots of friends, etc.?
What was your main source of academic difficulty? What were the most difficult things for you to do?
Did your parents make any attempt to make learning fun for you, e.g. by leveraging your natural interests, whatever those might have been? Or did they just punish you for getting bad grades?
What were your parents' attitudes and behavior toward the things that you liked doing, whatever those things might have been?
What kinds of things, if any, did you enjoy doing, when you were a kid?
Do you have sensory issues? Did your parents force you to put up with sensory stimuli that you couldn't stand, but that are no big deal for NT's?
My reason for asking these questions is that I'm trying to get a feel for the extent to which your problems were caused just by your autism per se, vs. the extent to which your problems may have been made worse by your circumstances and upbringing.
I would also be interested to hear anything else you care to share with us about what your life has been like overall.
I don't like that I exist. I'm no longer actively suicidal but it is difficult for me to feel enthusiastic about life. I have had to give up so much. I usually think I shouldn't have been born just because I'm miserable....
I'm sorry to hear that you feel that you shouldn't have been born. I hope you eventually find whatever you need to find in order to make your life worthwhile.
You said here that you would be looking for discussion, not just sympathy, so here goes:
Not all of us have had such uniformly miserable lives.
Some of us have gotten lucky and managed to find situations where our impairments caused us less difficulty than they would in the mainstream world, and/or we managed to find situations where we could leverage our strengths.
I want a world where there can be more situations like that, for all of us. We can create more such situations by building the autistic community. (See Longterm visions for the autistic community. See also the separate thread Autistic-friendly workplaces.)
By the way, there are indeed some strengths that are more common among autistic people than among people in general. (See, for example, Book Review: ‘The Pattern Seekers’ links human invention — past, present and future — to autism traits, Spectrum News, 10 November 2020, and A Conversation About “The Pattern Seekers” by Simon Baron-Cohen, Thinking Person's Guide to Autism Saturday, December 19, 2020.)
And I think it's good that there are people, like us, for whom living a totally mainstream life is just not an option. I shudder to think of a world in which science makes it easier and easier for all of humanity to fit into some single uniform Procrustean bed.
See the separate thread Problems with "cure" idea from the scientists' POV for discussion of some of the relevant scientific issues.
I am very sorry to hear about your family's attitude.
You need to find situations where you don't have to mask as an NT. We, as a community, need to work to create more such situations. In the meantime, we need to help each other find the relatively advantageous situations that already exist. (For example, we are less likely to be judged harshly in a highly multicultural neighborhood than in a neighborhood dominated by just one or two ethnic groups.)
The right kind of psychotherapy and/or psychiatry can help with this, provided you can find a practitioner who is knowledgeable about ASD.
Again, the right kind of therapy and/or psychiatry can help. The big problem here is finding the right practitioner.
Also it can be very helpful to participate in an autistic adult peer support group.
Perhaps the Autism Society of Indiana can help you find both an appropriate therapist and a local support group? Or have you tried them already?
I can see why you might feel blind-sided by the reaction you got.
I don't have time right now to go into all the many reasons why many of us have strong feelings against the idea of a total "cure" or "prevention." I'll write more about this another time.
Unfortunately, today's large-scale social media are not conducive to civil discussion between people who disagree. For that, small forums like Wrong Planet are much better.
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- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.
First, I really appreciate your thoughtful and thorough response, so thank you. I will look into the links you've provided. To answer your questions...
How did they manifest these high expectations? Mostly just by pressuring you to get good grades, make lots of friends, etc.?
I grew up living alone with my narcissistic mother. She had high demands for how I handled myself, and the things I accomplished. Anything that could reflect her as a parent. In school it was expected I get grades equal to or greater than the previous semester. I wasn't allowed to go anywhere alone except school, or talk to people outside of it, or have friends. I knew since I was very small that I would be going to college because that's what I was told. I was yelled at constantly and told how lazy or selfish I was. I can't really explain what's it's like to grow up with a person like that. Excluding authority, she was not present. I went to school, struggled to do the assigments, and barely got sleep. She went to work, took out her negative feelings on me, and we both did many chores. She resented me more and more the older I got because she hated that she was expected to care for me. At 16 she insisted I get a job so I could pay rent. Because of my circumstances, I already wanted that anyway. I was taught how bad it was to rely on others and I wanted to stop doing that as soon as possible. I didn't know at the time how unrealistic an expectation that was.
I just didn't have the time. I spent hours on homework every day, and I often failed to finish group projects. I just needed so much more time to research and organize, but it wasn't going to happen. The other hard part was I didn't get along with my peers or the adults. When I asked for help, teachers became angry with me and told me to sit back down, that I wasn't paying attention.
No. We had expectations, but no celebrations. When I didn't add up to an expectation, not only did I fail, but I lacked respect for my mother, and doing so reflected that I didn't love her, or whatever other nonsense she pushed on me at the time.
She did not know or care about the things I enjoyed. Currently, I live with my father, and he has little to no interest.
We had a couple small wooded areas in our neighborhood growing up. I spent most my free time there, or in my room reading. The woods were safe because there weren't people and it was quiet. I really liked exploring wildlife as a kid, and climbing trees. As a teen, I switched to rollerblading.
I do, but for some reason these didn't really occur to me until adulthood. As a child, I didn't notice it as much.
Oh my upbringing definitely affects many things, you're right. My mother was not a warm person, to put lightly. But I still struggle even though I haven't seen her in a decade.
My life has been very isolating. I never got along with people in school. When I worked, I couldn't maintain the jobs because I couldn't meet their expectations. People don't care if you do your best, not really. They just want results. I couldn't provide that. I always wanted to be useful, because I knew people didn't like me. I went to college and that was a nightmare. Medical providers have mistreated and/manipulated me. I worked with Voc Rehab for a couple years and they treated me badly too. Not really Voc Rehab but the providers that they sent me to. I know this is getting vague but there's just so much I don't exactly know how to get into it all. It's overwhelming.
I do know now that a person's worth is not in how productive they are or what they are capable of doing. It's just been hard to unlearn, and my father doesn't support the idea at all. He always treated me well, but when he finally understood my diagnosis, he became distant.
Again, the right kind of therapy and/or psychiatry can help. The big problem here is finding the right practitioner.
Also it can be very helpful to participate in an autistic adult peer support group.
Perhaps the Autism Society of Indiana can help you find both an appropriate therapist and a local support group? Or have you tried them already?
I am very grateful for my therapist. I met him at the end of 2017 and he has been an anchor for me since then. Unfortunately, it doesn't seem there's much he can do about the intensity of my emotions. That's not his fault at all. It's just how my brain works, I think.
A support group would be wonderful! I haven't been able to find any in my area. I don't think we have them here. My case manager has looked too.
I am familiar with Autism Society. They are one of the providers I worked with from Voc Rehab.
Thank you very much for all your insight and general interest in my question. There is a warmth and understanding in your writing that is very comforting.
And also, you need to come to terms with yourself and like yourself.
Two insults come up in your title. Both referring to yourself. I find that sad.
Not because you're targeting me - you're not - but because you're targeting yourself.
I actually enjoy being the kind of person who can see smaller details in things, cope on my own socially (and bit by bit in other respects too... that's a downside of being dyspraxic) and focus for a long time on certain subjects.
I advise you try that rather than trying to be NT. Find an interest and focus your time on it. Be a bit competitive over it - trying to be the best or beat your own personal bests.
Also speak to yourself like you're someone you care about. If you had written that stuff in third person rather than first person, it wouldn't be very nice. Try to have that kindness for yourself, as well.
You are right, I'm still working on how I talk about myself at times. Thank you.
While I don't really want to support eugenics, I can't help but agree with you. I know many people with autism are fine and happy, but the simple fact is a significant amount are not and not having it is always better than having it. If there was a proper cure I would absolutely support it. Maybe I'm biased because I agree with you, but I do not think you're wrong or a jerk for feeling that way.
Thank you for your input.
As Mona Pereth suggested, one needs to look for an outlet to be oneself without a mask. The closest thing that I have found in my small world is an anime or comic con. Most people there are free to express themselves as they want to be. They tend not to judge others, unless you are actively participating in a costume contest. The catch for some On the spectrum is that it may cause meltdowns due to the environment stimuli. I know that I have to limit my time in large crowds or I will have issues there.
Hobbies are another possible way to unmask for a period of time. Since there are endless possibilities for what you might be interested in, consider exploring those options. My hobbies have kept me alive in very dark times. It gave me reasons to live past the severe bullying that I was dealing with. If you find a goal to work for in a hobby, it may help you deal with the bad feelings that have plagued you.
As for your family judging you with their expectations, it is your life to live, not theirs. I learned long ago not to try to compare my life to others. While the grass may look greener on their side, that may just be fresh manure instead.
How did they manifest these high expectations? Mostly just by pressuring you to get good grades, make lots of friends, etc.?
I grew up living alone with my narcissistic mother. She had high demands for how I handled myself, and the things I accomplished. Anything that could reflect her as a parent. In school it was expected I get grades equal to or greater than the previous semester. I wasn't allowed to go anywhere alone except school, or talk to people outside of it, or have friends. I knew since I was very small that I would be going to college because that's what I was told. I was yelled at constantly and told how lazy or selfish I was. I can't really explain what's it's like to grow up with a person like that. Excluding authority, she was not present. I went to school, struggled to do the assigments, and barely got sleep. She went to work, took out her negative feelings on me, and we both did many chores. She resented me more and more the older I got because she hated that she was expected to care for me. At 16 she insisted I get a job so I could pay rent. Because of my circumstances, I already wanted that anyway. I was taught how bad it was to rely on others and I wanted to stop doing that as soon as possible. I didn't know at the time how unrealistic an expectation that was.
I just didn't have the time. I spent hours on homework every day, and I often failed to finish group projects. I just needed so much more time to research and organize, but it wasn't going to happen. The other hard part was I didn't get along with my peers or the adults. When I asked for help, teachers became angry with me and told me to sit back down, that I wasn't paying attention.
No. We had expectations, but no celebrations. When I didn't add up to an expectation, not only did I fail, but I lacked respect for my mother, and doing so reflected that I didn't love her, or whatever other nonsense she pushed on me at the time.
She did not know or care about the things I enjoyed. Currently, I live with my father, and he has little to no interest.
We had a couple small wooded areas in our neighborhood growing up. I spent most my free time there, or in my room reading. The woods were safe because there weren't people and it was quiet. I really liked exploring wildlife as a kid, and climbing trees. As a teen, I switched to rollerblading.
I do, but for some reason these didn't really occur to me until adulthood. As a child, I didn't notice it as much.
Oh my upbringing definitely affects many things, you're right. My mother was not a warm person, to put lightly. But I still struggle even though I haven't seen her in a decade.
My life has been very isolating. I never got along with people in school. When I worked, I couldn't maintain the jobs because I couldn't meet their expectations. People don't care if you do your best, not really. They just want results. I couldn't provide that. I always wanted to be useful, because I knew people didn't like me. I went to college and that was a nightmare. Medical providers have mistreated and/manipulated me. I worked with Voc Rehab for a couple years and they treated me badly too. Not really Voc Rehab but the providers that they sent me to. I know this is getting vague but there's just so much I don't exactly know how to get into it all. It's overwhelming.
I do know now that a person's worth is not in how productive they are or what they are capable of doing. It's just been hard to unlearn, and my father doesn't support the idea at all. He always treated me well, but when he finally understood my diagnosis, he became distant.
Again, the right kind of therapy and/or psychiatry can help. The big problem here is finding the right practitioner.
Also it can be very helpful to participate in an autistic adult peer support group.
Perhaps the Autism Society of Indiana can help you find both an appropriate therapist and a local support group? Or have you tried them already?
I am very grateful for my therapist. I met him at the end of 2017 and he has been an anchor for me since then. Unfortunately, it doesn't seem there's much he can do about the intensity of my emotions. That's not his fault at all. It's just how my brain works, I think.
A support group would be wonderful! I haven't been able to find any in my area. I don't think we have them here. My case manager has looked too.
I am familiar with Autism Society. They are one of the providers I worked with from Voc Rehab.
Thank you very much for all your insight and general interest in my question. There is a warmth and understanding in your writing that is very comforting.
Reading all these things you're saying here made me tear up a bit. This doesn't happen often.
I think the main difference between you and me is that I was a bit luckier and, maybe more important, I'm farther ahead in that journey by now. The main reason why I ever even went after a psychiatric diagnosis (and even got "diagnosed" with schizophrenia at one point, because that was how messed up I was by stress and bad medication) was to get my parents off my back. Lucky for me, it worked. Because once there was authoritative opinion involved, they had to choose between believing I had a real impairment or believing their parenting had broken me. Otherwise they would probably still be complaining about my laziness and ungratefulness (my mother in particular). I did go through a period of pretty bad depression anyway. Recovering was a long process. Still ongoing in some ways, I guess.
This is where I am today though:
Once I switched paths... things got worse. A lot worse.
I'm still dismayed by all the unnecessary ignorance and hostility in the world, but I don't feel like I'm a victim of it anymore. I can be sad without being angry (I don't always succeed at it, but... it's possible now). I've learned to expect the worse, hope for the best, and do what I can with what I have. It takes time and determination to switch paths and go against the current, and it's not painless, but it's worth it.
I want to respond with something helpful, but I'm not sure where to start. I'll post a song for now, for what it's worth. I hope you find it comforting.
https://www.youtube.com/watch?v=PkiIPzG37vQ
Feel free to ask me questions anytime, here, elsewhere or over PM if you want. Or if you want to talk about anything I've already posted, also feel free. Just... no pressure.
There is hope.
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earth is just a tiny ball
