Page 1 of 1 [ 11 posts ] 

Bether3
Blue Jay
Blue Jay

Joined: 20 Sep 2018
Gender: Female
Posts: 76

16 Mar 2021, 11:39 pm

I'm 35 years old and have been masking my entire life. It's exhausted me, and I can't do it anymore.

I have known that I have Asperger's (ASD? I prefer Asperger's.) since I discovered the term when I was 19. Asperger's then became a special interest of mine, leading me to go to school for early childhood education with an emphasis in special needs, and now I am working for a company that works with children and adults on the spectrum.

It wasn't until within the last few years that anyone mentioned it in relation to me. Two separate times, in conversations that were unrelated to me, my Dad -who is a clinical psychologist- decided to throw in, nonchalantly, that -and I quote- "You have a touch of autism". Both times I didn't even acknowledge the comment partly because I didn't know how to approach it or react to it. I was unnerved by, my father and a mental health professional, making such a life-altering statement as if he were telling me that I have something in my teeth and in such an ignorant way. Not to mention, he has to have known that I am on the spectrum since I was a child, (There was no shortage of signs. For starters, I was born over three months premature and research shows that those with a low birth weight are five times more likely to have autism.), and left me to white-knuckle my way through life.

Anyway, lately I have been experiencing general anxiety, which I think has been amplifying my autistic traits, which I've been trying to work around, which is causing me more stress and exhaustion. I feel like I'm about to shutdown. I'm burned out due to my relationship, school and starting a new job- reviewing for a final and taking in a ton of training information for work in the same week/having a 100 pt. final and a certification exam for work on the same day doesn't help.

With all this said, I'm going to bite the bullet and have a sit down talk with my father about me being on the spectrum, if not this weekend, very soon. It's going to be uncomfortable, to say the least, as my Dad does not like serious discussions, and when I was younger and suffering from (and officially diagnosed with) Major Depressive Disorder and Social Phobia, and would explain to him my struggles, he would scoff and tell me how good I have it, how he sees clients that "are in wheelchairs and get up at 5 AM, catch the bus, and look for work", and how I was using depression and anxiety as excuses... :? . Hence, bite the bullet.

It would be a massive relief for him to (further) acknowledge, and elaborate on, me having autism, and it would doubly count as an official diagnosis, which I, personally, would like to have.

Are you masking?

For those of you who no longer mask, what lead to you "taking off the mask"? What was it like freeing yourself and doing such things as stimming in public, etc.?

Any advice on telling others that you have autism?

Thank you for reading, and I will appreciate any and all feedback!

~Blair


_________________
"Understand me. I’m not like an ordinary world. I have my madness, I live in another dimension and I do not have time for things that have no soul." ~Bukowski


quite an extreme
Veteran
Veteran

User avatar

Joined: 20 Aug 2018
Age: 325
Gender: Male
Posts: 1,922
Location: Germany

17 Mar 2021, 4:30 pm

Hi Blair, nice to find you here again! :sunny: Welcome back!
My advice on telling others that you have autism is - don't ever do it except you are very sure in front of it that they already know for sure what autism is. In my opinion you possibly don't have Asperger's but may be another kind of autism. Of course the term Asperger's has change a bit over the years. Autism is just a summary term for all kind of mental problems that prevent people from socializing with other people beside of social anxieties (but not excluding those). Asperger is a subset of this but there are lots of other variants as well. Just think about what's up with you regarding that and what things prevent you from socializing.
Once you are watching people very carefully then you'll notice that most people are trying a social behavior that causes them to fit unwritten rules and social norms. But it's just a kind of adaption to the rules of social behavior and not masking. Masking is rather trying to be a way that others are for not being recognized as being different without even knowing why others are that way that you are trying to be for fitting in and for not being recognized as totally different.
Because of this just think about the things that keep you from socializing with other people and make them a list. Once you have such kind of a list (regardless whether it's very long or very short) think about how you can explain it a bit to him. But keep in mind that many autistic people aren't really aware of all their own problems. E.g. people who lack empathy are often unaware that other people have something like that or are able to notice the emotions of others in their voice aso. But may be he'll gets you a little better once you are talking to him.


_________________
I am as I am. :skull: :sunny: :wink: :sunny: :skull: Life has to be an adventure!


Bether3
Blue Jay
Blue Jay

Joined: 20 Sep 2018
Gender: Female
Posts: 76

17 Mar 2021, 11:14 pm

"Hi Blair, nice to find you here again! :sunny: Welcome back!"

Thank you Klaus for the feedback and welcome! :)

"My advice on telling others that you have autism is - don't ever do it except you are very sure in front of it that they already know for sure what autism is."

I won't go around telling others that I have autism, but I will tell those closest to me, and in situations where it is relevant, for instance if it is affecting my work.

"In my opinion you possibly don't have Asperger's but may be another kind of autism. Of course the term Asperger's has change a bit over the years. Autism is just a summary term for all kind of mental problems that prevent people from socializing with other people beside of social anxieties (but not excluding those). Asperger is a subset of this but there are lots of other variants as well. Just think about what's up with you regarding that and what things prevent you from socializing."

Autism and Asperger's are now under the umbrella of "Autism Spectrum Disorder" in the DSM5. I have studied autism, the spectrum and it's various subsets as you say since I was 19, and I can tell you based off of my life experience, observations by others, and all that I have read and watched, especially from women on the spectrum, that I have what used to be called "Asperger's". According to the experts, Tony Attwood for example, females tend to be better at "masking" than males, so well in fact that they are often dismissed as being on the spectrum, and in part because the diagnostic criteria is geared more towards the signs displayed in males. The analogy of masking is often made of actors/actresses on a stage. I can socialize well, but it is exhausting as I am constantly aware of adjusting my facial expressions, eye contact, tone of voice, body posture and I prefer quiet, solitude and surrounding myself with my interests. Most exhausting of all, most people "dump on me", talking at me, on and on and on, about trivial, mundane things, usually gossip about other people, and most of the I act like I'm interested, nodding my head, giving proper responses, partly because of conditioning and partly because I don't want to hurt others feelings.

"Once you are watching people very carefully then you'll notice that most people are trying a social behavior that causes them to fit unwritten rules and social norms. But it's just a kind of adaption to the rules of social behavior and not masking. Masking is rather trying to be a way that others are for not being recognized as being different without even knowing why others are that way that you are trying to be for fitting in and for not being recognized as totally different."

See above.

"Because of this just think about the things that keep you from socializing with other people and make them a list. Once you have such kind of a list (regardless whether it's very long or very short) think about how you can explain it a bit to him. But keep in mind that many autistic people aren't really aware of all their own problems. E.g. people who lack empathy are often unaware that other people have something like that or are able to notice the emotions of others in their voice aso. But may be he'll gets you a little better once you are talking to him."

I have a whole list of my signs of autism since childhood that I made years ago. My Dad knows me well, has often said "You are lightyears ahead of your peers intellectually, but lightyears behind socially". When quarantine started he told me, "You've prepared for this your entire life", lol, as, like I stated, I love my solitude. Plus, he's a psychologist and has recognized some autistic traits, which I am curious to know which ones.

~Blair


_________________
"Understand me. I’m not like an ordinary world. I have my madness, I live in another dimension and I do not have time for things that have no soul." ~Bukowski


Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Gender: Female
Posts: 8,712
Location: New York City (Queens)

18 Mar 2021, 7:53 pm

Bether3 wrote:
I'm 35 years old and have been masking my entire life. It's exhausted me, and I can't do it anymore.

I have known that I have Asperger's (ASD? I prefer Asperger's.) since I discovered the term when I was 19. Asperger's then became a special interest of mine, leading me to go to school for early childhood education with an emphasis in special needs, and now I am working for a company that works with children and adults on the spectrum.

You're certainly not the only autistic autism professional out there. And, it seems to me, autistic autism professionals are likely to have some insights that NT autism professionals do not. In my opinion, it is highly desirable to have both NT's and autistic people involved in providing services to autistic people -- and it would be highly desirable for autistic people on the staff to be able to be open about it with clients.

Hopefully more and more service provider organizations will come to realize this and specifically welcome people on the autism spectrum as employees. It could then, hopefully, be safe for you to be open with everyone about Aspergers.

To that end, it would be helpful if there were some professional associations of autistic autism professionals. I hope such organizations will come into existence at some point in the not-too-distant future. (Such an organization should probably start small, as just a specialized support group.)

A professional association of autistic autism professionals is just one of the many kinds of groups I would like to see emerge for autistic people who work, or want to work, in particular categories of professions/occupations. See Autistic Workers Project.


_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.


Last edited by Mona Pereth on 18 Mar 2021, 8:15 pm, edited 1 time in total.

Mona Pereth
Veteran
Veteran

Joined: 11 Sep 2018
Gender: Female
Posts: 8,712
Location: New York City (Queens)

18 Mar 2021, 8:08 pm

Bether3 wrote:
Are you masking?

For those of you who no longer mask, what lead to you "taking off the mask"? What was it like freeing yourself and doing such things as stimming in public, etc.?

Any advice on telling others that you have autism?

I've never been able to "mask" fully. I've never been capable of normal eye contact rhythms, for example. I've never made a systematic attempt to mimic them, either, because I've always felt that actually listening to people was more important than looking like I'm listening. (See this video for a humorous portrayal of the ways that looking like one is listening can interfere with actually listening.)

Fortunately I live in a highly multi-cultural neighborhood, with lots of immigrants from all over the world, so people around here are accustomed to dealing with people with a variety of different kinds of body language. I strongly recommend that autistic people live in neighborhoods like this if they can.

As for talking to people about autism: I've told my relatives, but I don't tell random strangers.


_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.


GameCube
Raven
Raven

Joined: 1 Apr 2019
Age: 37
Gender: Female
Posts: 124

20 Mar 2021, 2:03 am

I never really realized it recently, but I mask a lot. Due to recent events I have been piecing my life together. I was originally diagnosed with Autism around age 24 before than I thought I might be Autistic based on some research I found, but I shrugged it off thinking someone would have told me if I was Autistic.

Up to year ago, I found myself getting exhausted and angry with myself and wondering why my approach to life wasn't working. I been to therapy in the past and they always told me I was doing great. They loved the way I talked and the sense of confidence I had. They were even convinced my anxiety wasn't all that bad and I was an emotionally strong person suffering from low self-esteem. I thought maybe this is as good as life gets since everyone at some point has to pretend to be something they are not.

I have recently taken COVID as a time to rethink my life as my last job did not end very well. I realized I have been unhappy for a long time and I need to try a new approach. I started a few different therapies, read a few self-help books, and even tried mindfulness. Throughout all this I have realized I was never really living in the moment and I have never been comfortable and constantly living in fear that I am not good enough for society. I become scared of myself and realized I want to get to know who I am and appreciate my own life more.

I'm learning to take off my mask, its scary as I'm getting used to how my body behaves. It's difficult and I'm experiencing a lot of flashbacks as I'm doing things I would have been punished for as a child or silently criticized myself for as an adult. In a way it is freeing as I am learning more about how to be honest with myself and allowing people to either accept or reject me for who I actually am. I think I'll start to develop better connections with people who actually care.

It's really hard to train or "rewire" my brain though. Once I start to relax and let things go my self criticisms cut in and want to sabotage everything since that's what I'm used to doing. I'm learning to ignore this inner voice and keep finding new areas to direct my thoughts to the present.

To be honest I'm still not totally confident with telling people I'm Autistic. I have had really terrible experiences with this in the past and its been a hard thing for me to talk about. I'm in the process of developing healthy strategies to discuss my Autism. I guess the only thing I can suggest is it's really important to open about your Autism in your own terms. In the past I have made the mistake of letting others to do this for me and allowed them to make a big deal out of it (both in negative and positive ways). I have allowed people to just dismiss and not take my diagnosis seriously to allowing people to throwing a party to discuss my diagnosis. It's all really embarrassing and I had no idea what I was doing in both instances. I have learned its very important to take control of your story and to tell people how you honestly feel.

I hope all of this makes sense and I apologize if this is too much info, I just really struggle with making my points precise while still making sense.



goldfish21
Veteran
Veteran

User avatar

Joined: 17 Feb 2013
Age: 42
Gender: Male
Posts: 22,612
Location: Vancouver, BC, Canada

20 Mar 2021, 12:10 pm

Yes, I recall it being absolutely exhausting during peak social times & stronger AS symptoms.

I’ve hardly had to ever mask at all over the last 8 years. Much prefer treating asd and reaping the many benefits - including not having to be exhausted by masking. 8)


_________________
No :heart: for supporting trump. Because doing so is deplorable.


Bether3
Blue Jay
Blue Jay

Joined: 20 Sep 2018
Gender: Female
Posts: 76

02 Apr 2021, 4:34 pm

Mona Pereth wrote:
Bether3 wrote:
I'm 35 years old and have been masking my entire life. It's exhausted me, and I can't do it anymore.

I have known that I have Asperger's (ASD? I prefer Asperger's.) since I discovered the term when I was 19. Asperger's then became a special interest of mine, leading me to go to school for early childhood education with an emphasis in special needs, and now I am working for a company that works with children and adults on the spectrum.

You're certainly not the only autistic autism professional out there. And, it seems to me, autistic autism professionals are likely to have some insights that NT autism professionals do not. In my opinion, it is highly desirable to have both NT's and autistic people involved in providing services to autistic people -- and it would be highly desirable for autistic people on the staff to be able to be open about it with clients.

Hopefully more and more service provider organizations will come to realize this and specifically welcome people on the autism spectrum as employees. It could then, hopefully, be safe for you to be open with everyone about Aspergers.

To that end, it would be helpful if there were some professional associations of autistic autism professionals. I hope such organizations will come into existence at some point in the not-too-distant future. (Such an organization should probably start small, as just a specialized support group.)

A professional association of autistic autism professionals is just one of the many kinds of groups I would like to see emerge for autistic people who work, or want to work, in particular categories of professions/occupations. See Autistic Workers Project.


I agree that it is so valuable to have autistic autism professionals, as, like you said, they have insights from first hand experience that NTs do not, and a professional association of autistic autism professionals in which autistics can speak, instead of being spoken for (the opposite of "Autism Speaks"), is a wonderful idea!


_________________
"Understand me. I’m not like an ordinary world. I have my madness, I live in another dimension and I do not have time for things that have no soul." ~Bukowski


Bether3
Blue Jay
Blue Jay

Joined: 20 Sep 2018
Gender: Female
Posts: 76

02 Apr 2021, 5:21 pm

GameCube wrote:
I never really realized it recently, but I mask a lot. Due to recent events I have been piecing my life together. I was originally diagnosed with Autism around age 24 before than I thought I might be Autistic based on some research I found, but I shrugged it off thinking someone would have told me if I was Autistic.

Up to year ago, I found myself getting exhausted and angry with myself and wondering why my approach to life wasn't working. I been to therapy in the past and they always told me I was doing great. They loved the way I talked and the sense of confidence I had. They were even convinced my anxiety wasn't all that bad and I was an emotionally strong person suffering from low self-esteem. I thought maybe this is as good as life gets since everyone at some point has to pretend to be something they are not.

I have recently taken COVID as a time to rethink my life as my last job did not end very well. I realized I have been unhappy for a long time and I need to try a new approach. I started a few different therapies, read a few self-help books, and even tried mindfulness. Throughout all this I have realized I was never really living in the moment and I have never been comfortable and constantly living in fear that I am not good enough for society. I become scared of myself and realized I want to get to know who I am and appreciate my own life more.

I'm learning to take off my mask, its scary as I'm getting used to how my body behaves. It's difficult and I'm experiencing a lot of flashbacks as I'm doing things I would have been punished for as a child or silently criticized myself for as an adult. In a way it is freeing as I am learning more about how to be honest with myself and allowing people to either accept or reject me for who I actually am. I think I'll start to develop better connections with people who actually care.

It's really hard to train or "rewire" my brain though. Once I start to relax and let things go my self criticisms cut in and want to sabotage everything since that's what I'm used to doing. I'm learning to ignore this inner voice and keep finding new areas to direct my thoughts to the present.

To be honest I'm still not totally confident with telling people I'm Autistic. I have had really terrible experiences with this in the past and its been a hard thing for me to talk about. I'm in the process of developing healthy strategies to discuss my Autism. I guess the only thing I can suggest is it's really important to open about your Autism in your own terms. In the past I have made the mistake of letting others to do this for me and allowed them to make a big deal out of it (both in negative and positive ways). I have allowed people to just dismiss and not take my diagnosis seriously to allowing people to throwing a party to discuss my diagnosis. It's all really embarrassing and I had no idea what I was doing in both instances. I have learned its very important to take control of your story and to tell people how you honestly feel.

I hope all of this makes sense and I apologize if this is too much info, I just really struggle with making my points precise while still making sense.



Hi GameCube,

I too have found myself piecing my life together, and in doing so have become aware of compensatory strategies that I wasn't aware of and how I have numbed myself, even from something as simple as body awareness. Memories of struggles I had in childhood and comments that people have made towards me over the years are coming to the surface and pieces are coming together in a way that they haven't before in all of my years of contemplation. Over the last few years especially I had devoured self help books and read and listened to anything revolving around spirituality and mindfulness, (consciousness studies, the mind-body connection and the like). I currently don't have a regular meditation practice, but I take moments out of the day to focus on the present, and sometimes I'll meditate to a guided meditation. Lately though, for whatever reason, my body awareness has become heightened and I am, like you, truly understanding how uncomfortable and unnatural my body feels (and has always felt. Numerous times people have commented on how stiff I am, and have told me to relax, even when I thought I felt relaxed. It's like I'm wearing a tight shoe all the time- well, when I am around people. I constantly find myself adjusting myself -the way I am sitting, standing, the tone of my voice, etc.- to fit what I think is required of me to fit the situation I find myself. Now, seemingly all at once, I feel like I can't do it anymore.

I too have been to therapy, albeit briefly, and I too was told how articulate I was, and how confident I was, and that "nothing is wrong with you" (I had been diagnosed with Major Depressive Disorder and Social Phobia prior), when my anxiety was so strong that I barely left the house.

I applaud you for learning to take off the mask. Since even the short time since I have made this post, I can feel my mask slipping, and me feeling simultaneous relief and discomfort by it. For instance, when I am burned out, I don't try to hide it, which means that my natural resting b***h/sad face and neutral voice come out and I am then constantly asked, "What's wrong", to which I have to keep saying "Nothing". I haven't experienced this much since high school, and boy, does it bring back memories! :P Having a punk persona helped with this one.

All of what you have written makes perfect sense (as you can probably tell from the above), so much so that I feel like we are cut from the same cloth. And no need to apologize for the length- I appreciate your disclosure and insight and enjoyed reading it. I also struggle with being precise in my writing (I had one English teacher in middle school who would hand me back my papers to edit as they were too long lol.).

Thank you for taking the time to share with me. :)

~Blair


_________________
"Understand me. I’m not like an ordinary world. I have my madness, I live in another dimension and I do not have time for things that have no soul." ~Bukowski


Bether3
Blue Jay
Blue Jay

Joined: 20 Sep 2018
Gender: Female
Posts: 76

02 Apr 2021, 5:34 pm

Update: Since it's "Autism Awareness Day" (It should be "Autism Acceptance Day") , and I have some free time, I'll be speaking with my father tonight about being autistic! ... :D.


_________________
"Understand me. I’m not like an ordinary world. I have my madness, I live in another dimension and I do not have time for things that have no soul." ~Bukowski


quite an extreme
Veteran
Veteran

User avatar

Joined: 20 Aug 2018
Age: 325
Gender: Male
Posts: 1,922
Location: Germany

03 Apr 2021, 7:53 pm

Bether3 wrote:
Update: Since it's "Autism Awareness Day" (It should be "Autism Acceptance Day") , and I have some free time, I'll be speaking with my father tonight about being autistic! ... :D.

I hope that anything is a little bit better now also if there where some disagreements. :wink:
Otherwise such stuff remains an everlasting task that needs to be done.


_________________
I am as I am. :skull: :sunny: :wink: :sunny: :skull: Life has to be an adventure!