PLEASE HELP ME! REGRESSION!

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hopelessaspielover
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30 Mar 2009, 6:49 pm

Please help...

I am an NT, just so everyone knows.

Me and my boyfriend *he has Asperger's* have been together for almost a year now. Our anniversary is coming up here next month, and I noticed he'd been a little off lately. Boy, do I underestimate things.

He hadn't been making much physical contact recently, we were talking less, he didn't look at me all the time when we talk like he used to. So I asked him what was wrong. He seemed off to me. He's been doing it for about 2 months, so I finally asked what was on his mind.

...he tells me he's regressing.

You could mistake Luke for an NT any time of the day. Yes, he has Asperger's, but you wouldn't know it unless he told you. His social skills are great and he's a wonderful boyfriend. So caring, and loving...

But he says that he's been thinking. He tells me he was thinking about what life would be like for us if we kept having our relationship, and about how at some point, he believes he'll become a burden to me and go pretty severe. He thinks the process is starting now.

He says he's trying to stop it, because he says he still loves me very much, but he's not sure how to make it stop.

he says he'll eventually end up like his old self- totally secluded, talking to no one, but still in love with me. He'd be unable to shoe it in any form, though. He doesn't want the regression to continue.

Does anyone know what he should do to stop him from reverting back to his old severe self?!?! PLEASE HELP HIM! He wants help. He said he does, so I turned here. Please help.


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Apple_in_my_Eye
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30 Mar 2009, 7:38 pm

He might be 'burning out,' from compensating too hard too continuously. That doesn't necessarily mean he's going to end up permanently severely 'regressed,' though. He might just need to learn to better manage his resouces; such as setting aside some time for absolute solitude and etc, instead of trying to act 100% normal every second (if he does).

I.e. I remember reading a married AS guy once saying his routine was to come home from work, not say much to his family, go in the bedroom and close the door, and space out on the ceiling for an hour, to 'decompress'. Then he'd get up an interact with his family.

The below is an excerpt of a really good article he & you might want to read. It's by Amanda Baggs (aka Anbuend on WP):

"Help! I Seem to be Getting More Autistic!"(link)

Quote:
Burnout

Burnout, long-term shutdown, or whatever you want to call it, happens generally when you have been doing much more than you should be doing. Most people have a level to which they are capable of functioning without burnout, a level to which they are capable of functioning for emergency purposes only, and a level to which they simply cannot function. In autistic people in current societies, that first level is much narrower. Simply functioning at a minimally acceptable level to non-autistic people or for survival, can push us into the zone that in a non-autistic person would be reserved for emergencies. Prolonged functioning in emergency mode can result in loss of skills and burnout.

With some diseases with long-term effects (and I am not suggesting that autism is a disease), it is the people who tried to ignore the long-term effects and "act normal" who often burn out, probably because they are drawing on emergency reserves to do so. There is a high chance that autistic people who attempt to ignore the fact that they are autistic and act like non-autistic people are subject to the same kind of burnout, or even autistic people who push themselves too hard in general without trying to look normal.

The danger here may be obvious: It may be the people most capable of passing for normal, the most obvious "success stories" in the eyes of non-autistic people (some of whom became so adept at passing that they were never considered autistic in the first place), who are the most likely to burn out the hardest and suddenly need to either act in very conspicuously autistic ways or die.

To the outside world, this can look as if a forty-year-old perfectly normal person suddenly starts acting like a very stereotypically autistic person, and they can believe that this is a sudden change rather than a cumulative burnout eventually resulting in a complete inability to function in any way that looks remotely normal. The outside world is not used to things like this, and the autistic person might not be either. They might look for the sudden onset of a neurological disorder, or for psychological causes, and receive inappropriate "treatments" for both of these, when really all that has happened is massive and total burnout.

This can also look much less spectacular, or be much more gradual, and it can happen in any autistic person. Sometimes, with more supports or a change in pace or environment, the skills lost come back partially or totally. Sometimes the loss in skills appears to be permanent — but even that can be somewhat deceptive, because sometimes it is simply that the person can no longer push themselves far beyond what their original capacity was in the first place.

Sometimes this kind of burnout is what leads adults to seek diagnosis and services. Unfortunately, many service systems that would otherwise support people in their own homes, cater only to people who were diagnosed in childhood, and will look at someone with a very good neurotypical-looking track record of jobs, marriages, and children with suspicion. They need to be made more aware of this possibility, because there's a high chance that an adult in this situation could end up jobless, homeless, institutionalized, misdiagnosed, given inappropriate medical treatment, or dead.

People training autistic children to look more normal or refusing to tell their children they are autistic also need to be aware of this possibility, because this is the potential end result ten, twenty, thirty, or forty years down the road. This is one of the biggest reasons for teaching us to learn and grow as ourselves, accounting for our strengths and weaknesses rather than as counterfeit neurotypicals.


CLICK HERE FOR WHOLE ARTICLE



zghost
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30 Mar 2009, 8:07 pm

Sometimes you have to go back before you can go foward. Things you leave behind don't go away. Eventually, you'll have to go and face them.



outlier
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31 Mar 2009, 1:52 am

I agree that it can be triggered by stress and burnout (mine was), though there are other possibilities to investigate in that link. Worrying about the effect regression would have on the relationship could be contributing; he might be putting too much pressure on himself.



hartzofspace
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31 Mar 2009, 3:25 pm

I've gone through this, and lost various friends. Until I read that article, I didn't understand what was going on. It's a lot to ask of a friend or a lover, but if they can stand to allow the person on the spectrum some "time off" maybe the relationship could continue.


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Dussel
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01 Apr 2009, 5:43 am

hopelessaspielover wrote:
Please help...

I am an NT, just so everyone knows.

Me and my boyfriend *he has Asperger's* have been together for almost a year now. Our anniversary is coming up here next month, and I noticed he'd been a little off lately. Boy, do I underestimate things.

He hadn't been making much physical contact recently, we were talking less, he didn't look at me all the time when we talk like he used to. So I asked him what was wrong. He seemed off to me. He's been doing it for about 2 months, so I finally asked what was on his mind.

[...]

Does anyone know what he should do to stop him from reverting back to his old severe self?!?! PLEASE HELP HIM! He wants help. He said he does, so I turned here. Please help.


From my experience of monitoring myself and the feedback I have from my lover, Aspies seems to act quite in the range of NTs if they are actual in love for some time - doing all the mad things Helen Fisher attributes to the "romantic love". This phase ends after a while (few months to few years). Than an Aspie goes back to his normal patterns. This can be for an NT-partner quite disturbing. She/he started with a normal love, got the expected love-reactions from the other side and more-or-less suddenly the behaviour pattern become less normal.

He obviously loves you: An Aspie does not normally allow anyone near him, except he has a good reason - most likely in your case love.

You had to make a decision with him together: How much is worth for you? How much do you benefit from him? Is this in good relation to strain of loving a person how does not react in the "normal" way?

Living together with an Aspie has for a NT its benefits and its shortcomings. The reliability, the honesty, the tolerance, the ability to see thinks differently are on the positive side of the account; the lack of emotional feedback is the huge negative account position. You had to see which arrangements you can do and how at end the balance looks.

What you can't do: Changing him! At the end you had to take him in "one piece". With all shortcomings and benefits.

Your decision!

If you want to keep a reasonable relation with him on a mere "friendship" basis: Play honest with him! Say clearly why you made this decision!