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AlexJade
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30 Mar 2009, 9:18 am

Today I finally found someone locally that can do testing for AS. I called and made an appointment with them for Thursday and hopefully my insurance will help pay for it because testing here is 2500 dollars. The thing is I am very scared. I am scared of what if what is going on with me is not AS, what if all my "quirks" that have caused me so much loneliness and pain in my life is from something else? What if the emotional distance and lack of empathy and the inability to deal with change that my ex left me over is due to something else? What if my break downs and my lack of social abilities that have driven off all of my friends are not because of AS? I also find myself tweaking over what if it is AS, what does that mean? Does that change anything in my life? What will it change? Will the people in my life or recently out of my life be more understanding? It feels like this is a huge change that will affect everything in my life. Yes or no this just makes me want to curl up in a corner and cry.



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30 Mar 2009, 9:40 am

$2500 - how many therapy sessions does that include? or is it just for a diagnosis? you should not pay more than $100 per hour.


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AlexJade
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30 Mar 2009, 9:58 am

As far as I can tell that covers the initial evaluation and then the 6 hours of the testing from what I was told. If my insurance covers it I will pay nothing so that is nice. Unfortunately if I don't go with this group the next soonest time anywhere around is in June.



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30 Mar 2009, 10:02 am

I remember that feeling when I had my first assessment done. They diagnosed me NLD with AS traits. I cried because I knew they were wrong. That was a free assessment.

I had another free assessment through voc rehab that DID diagnose me with AS, only three months later. In the mean time, I paid a private MD $500 for a second opinion to make sure. He was a specialist in AS and he agreed.

Later, I paid $1000 (insurance covered) for a full neuropsychological profile. It was very enlightening. I learned I had very poor executive functioning.

I recently had another assessment done, this time for my level of functioning. It was also free.

I don't understand this $2500 thing!


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30 Mar 2009, 10:04 am

I just saw that you posted again while I was posting. Well, I'm glad your insurance will cover it.

Just remember, either way the test goes, you are still who you are. I had to remember that through all my testing experiences. Focus on the positives about yourself, because when you get tested, you hear plenty of negatives!


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Learning2Survive
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30 Mar 2009, 10:08 am

AlexJade wrote:
Today I finally found someone locally that can do testing for AS. I called and made an appointment with them for Thursday and hopefully my insurance will help pay for it because testing here is 2500 dollars. The thing is I am very scared. I am scared of what if what is going on with me is not AS, what if all my "quirks" that have caused me so much loneliness and pain in my life is from something else? What if the emotional distance and lack of empathy and the inability to deal with change that my ex left me over is due to something else? What if my break downs and my lack of social abilities that have driven off all of my friends are not because of AS? I also find myself tweaking over what if it is AS, what does that mean? Does that change anything in my life? What will it change? Will the people in my life or recently out of my life be more understanding? It feels like this is a huge change that will affect everything in my life. Yes or no this just makes me want to curl up in a corner and cry.


Call the doctor's office and find out the exact name of the evaluations you are scheduled for. Call your insurance and find out if they cover it. You DO NOT want the MD to send you a $2500 bill because the insurance ended up rejecting it. The doctor wants your money and will push for more than you need. So schedule a half hour initial assessment. You might be better off just seeing a psychiatrist on a weekly basis - MUCH better use of the $2500.


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AlexJade
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30 Mar 2009, 10:14 am

Thursday is going to be the hour long initial assessment. Then they will schedule the more indepth stuff later. I told them that if my insurance does not cover this 90% I cannot do it so they are checking that out for me right now and will call me back so we can cancel if they don't.



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30 Mar 2009, 10:18 am

the 6 hour long assessment sounds like overkill. using the 6 hours for therapy 6-7 therapy sessions is a much better use of your insurance money.


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AlexJade
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30 Mar 2009, 10:29 am

It probably is overkill but where I am at the only people that I found that does testing for adults is either these people or a group an hour away that is not covered by insurance at all and wants 1500 for it.



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30 Mar 2009, 10:46 am

AlexJade wrote:
It probably is overkill but where I am at the only people that I found that does testing for adults is either these people or a group an hour away that is not covered by insurance at all and wants 1500 for it.


Don't let them pressure you into doing the 6 hour testing. As a patient you have a right to autonomy. Tell them you want the one hour initial assessment only. After that, you can call again and schedule the 6 hour rip off if you feel like it. As a patient, you are the boss. They have to do whatever you tell them.


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AlexJade
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30 Mar 2009, 12:51 pm

Called around more and found someone who DOES work with my insurance and can see me wednesday morning. Gonna cost me around 300 dollars just have to drive an hour to get there.



AlexJade
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01 Apr 2009, 3:51 pm

Initial assessment is done and I have the full range of tests scheduled for friday. The person I am seeing says she sees traits along the autism spectrum but also signs of PTSD from a long history of abuse. Not sure if friday can come to soon or if I want it to take as long as possible to get here.