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That sucks. I know what it's like to throw up frequently. When I was younger, my POTS wasn't as controlled.

I just had some really bad acid reflux. I've always had issues with that.

Hi Worthless.

I'm curious to know more about your experience with POTS, if you don't mind.
I know what it is, but didn't realise vomiting was part of it.
Is that considered a common symptom?

What other conditions did they consider for you before diagnosis?

Sweet Pea hugs

I've had chronic problems w/ my digestive system since I was a toddler. My esophagus/stomach/small intestines get swollen and will end up with ulcers. My stomach acid also irritates the ones in my stomach, which makes me vomit a lot. The sores + excess mucus production also make me have issues with malabsorption and make me anemic from that + bleeding. When it acts up that all gets worse and it sucks so bad that I just constantly feel like s**t. I don't even know exactly why this happens.

Holy cow.
I'm sorry to hear all that.
Were you tested for H-Pylori or Gastroparesis?
What type of anaemia is it?

Sweet Pea hugs

There are times when people should really keep their mouths shut. There are a lot of people in my life who don't have a filter.

I love Gomer Pyle. He's such a Sid. :O)

I don't know if I was tested for either of those things. The gastroenterologist said that eosinophils were causing it, and that they were caused by a dairy allergy, but even if I don't eat dairy it acts up. She also said I had an iron deficiency (and maybe some other vitamin, I dunno) from it. Every time I've been tested since then I still am deficient in it.

My digestive issues also go into periods were I have almost no (noticeable) symptoms and then periods, like now, where my abdomen and/or stomach constantly hurt, and I vomit + have a myriad of other gastrointestinal issues. I'm going to try to see a gastroenterologist again and try to figure out what's actually up w/ my digestive system, since it messed w/ my productivity at school and now is starting to mess with my productivity at work.

Sweet Pea hugs

I love handicapped characters, especially Schultz. He's the ultimate Sid. :O)

I"m glad you'll get more info.
None of that sounds good.

H-Pylori is an infection that can cause ulcers.
It's usually screened by a breath test but I think they can do stool testing too.
You'll end up with a cocktail of antibiotics (about five kinds).

Gastroparesis is a digestive problem.
Food doesn't move from your stomach to your small intestine properly.
The testing is done with several hours of scanning.
You have to eat food coated in radioactive dye and they watch it move.

Just pointing these out in case they sound familiar.

My daughter had a bad infection of C Difficile as a baby.
It nearly killed her.
She still has stomach issues that they thought were ulcers / gasto.
Luckily they weren't.
She has Cyclical Vomiting Syndrome (ewwwww .....) instead.
Plus of course her Lupus.

I don't want to sound like a medical snob, but we've been through a lot.
If you think of it, let me know before you see your gastro again.
I'll send you some other ideas that you might want to question.

I don't think I did either of those procedures. I remember that I got an endoscopy done + biopsies of tissue from my digestive system, and they also took a few vials of blood from me that they did various tests on.

I also don't mind any suggestions that you have. I don't really have any idea what could actually be wrong with me, so I'm open to ideas. lol

I'm tired of all the old tricks that people keep using on me.

I was going to ask about Endoscopy. ^
I'm glad they've done biopsies too.

I was wondering about Colitis.

I knew someone else who did years of testing for food allergies.
She finally went to a Naturopath who diagnosed Celiac.
That's a gluten thing.

Dairy intolerance is really hard to identify.
My doctor swears I don't have a problem with it.
I've been tested for years.
I can tell you ... I definitely have a problem with it.

It's funny that your experience with dairy is the reverse.
(Doctor says yes, you say no. ^ )

The other thing I'd recommend is called an Iron Panel test.
It tests a lot of different variables with iron and ferritin.
I won't get into all that here, but it could explain your anaemia better.

I think they considered pretty much everything before they gave a very tentative preliminary diagnosis and transfered me to a specialist.

I started having symptoms at the seccond semester of 6th grade after a serious week long mystery illness that took at least another week to recover from. I remeber people commenting that I looked "dead" during that time I was recovering. It got really bad by the start of 7th grade and I actually came close to needing to be held back even though it was all excused absences. Thankfully, they didn't count it as an absence if I made it to the school (even if they immediately called my dad to take me home). The medical testing was initially carried out by my pediatricians and their staff. It seamed like I was in that office all the time for tests and exams. They took countless blood samples. I was even on nurse's first time taking blood from a real pediatric PT, oh boy that was a fun time. My mom intervined after like 7 minutes of torture and demanded that someone else take my blood, but I digress.


They eventually stumbled upon POTS while doing research to try to find an answer and decided to see if that was it. They then did a simple test of measuring my vitals lying down, sitting, and standing while leaning against a wall. And then having my stand there for as long as I could or till 15 minutes while measuring my vitals at regular intervals, I don't remember which. They then concluded that I probably had POTS and that it seemed like the best fit, but they they were wholly unqualified in that area. They prescribed me Gatorade and referred me to one of the top pediatric cardiologists in my metropolitan area. He worked in a children's hospital annex that I had been to before for other things (I have also gone to that cities main children's hospital at least once for testing). He did a similar test, but with a few key differences, he had me hooked up to a full EKG, as well as automatic BP cuff, and pulse oximeter. He also would not let me lean on anything or hold onto anything, but had a nurse there to catch me when/if I fell. The test would start out lying down after he had done an exam on me including checking my pulse via the right femoral artery (really wierd and awkward choice and only got more so as I got older...) And I had been then fully hooked up to the machines. I would me asked to try to lie still and they would do a print out of my EKG, then they would have me sit up and do another, then they would have me stand up and do multiple EKGs at regular intervals untill 15 minutes was up or I could no longer stand. This test was repeated every month till I aged out of his care at age 21. He initially prescribed me beta blockers, but that did not work. He then ended up prescribing me florinef, thermotabs (salt tablets), and Gatorade.

That six months of testing before the referral was the worst as my POTS was in full swing and completely uncontolled. It caused intense nausea, severe vomiting, various other gi issues, trouble standing, vertigo, loss of appetite, ect.. Thankfully with management it is manageable, but is at best a daily hinderance and annoyance. I have passed out numerous times from it, but usually I am good at sitting down or lying down before I pass out, including the first time it happened in the second semester of 6th grade. My pediatric cardiologist said that it would get better and go away in my mid to lat twenties, but I am in my early thirties now and it is still very much an issue.